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Watching her decline....
It has been a while since I last checked in. To be honest I have spent weeks pretending this is all going to go away and things will go back to "before cancer". Mom has taken quite the slide and it seems that now we are going to watch her slowly slip away. She is no longer able to walk at all, chemo is no longer an option…
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Breast, Ovarian and Brain Cancer.......Can anyone survive all three?
Hello, It has been a few months since I have been on here but here is my story and concerns. My mother (Current age 63) had breast cancer in (1990) 21 years ago, she went through 6 rounds of chemo and radiation.....She survived. In June of 2010 she was dx with stage 3c ovarian cancer, during her debulking they removed an 8…
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Found out I have a BRCA1 gene mutation
Wondering if anyone has any more info about this type of mutation. From what I understand it effects the tumor suppressors. Anyone have a similiar situation?
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Thank you
I want to thank everyone who sent me their condolences when my Mom passed away August 17th. I know I should send everyone a personal thank you but honestly I haven't got the energy. Thank you to everyone that has supported me and included me in their thoughts and prayers. I hope you all dance with NED sometime very soon.…
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Clinical Trials
Here is a website that might be of help to some or all. www.clinicaltrials.gov/show/nct01068509 There are locations in CA, FL, Georgia, Indiana, New Jersey, New York, NC, SC, Ohio and Washington. I will be getting into the clinical trial at Stanford. The vaccine is called MUC1 Dendritic Cell Vaccine ( CVAC ) Phase 2 Hope…
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Durable remission with chemo alone for recurrence anybody?
Need to hear some uplifting stories today. Is it even possible to achieve a durable remission (1 year or longer) doing chemo alone without surgery, or chemo first, followed by surgery for a 2nd recurrence? I am 5 years out from 1st recurrence and I know the statistics regarding remissions getting shorter and shorter, but…
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Feeling all those feelings
I'm feeling the urge to share what I've been going through in the last month since my return home, to Scotland. Just having all of my familiar things around is enormously comforting. But it hasn't been all joy. I started reading "The Emperor of All Maladies" during my last few days in Oregon and finished it when we got…
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round 4
well later today is round four of chemo you would think I am use to it by now but I am not. It seems like the after effects and lasting almost all the days before the next chemo. I ended up in the ER last night I had been trying to go the bathroom from 3:30pm and till 8pm while I was in the ER. With in a few minutes before…
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I'm pretty certain that I should have part ownership in Puff
tissues! Just bought another box earlier tonight. Oh well... Without nose hairs I never thought about how runny our noses could be. Hope all of you wonderful ladies are enjoying your holiday weekend. My daughter came Friday, went on back to college this afternoon as we are to get heavy rains and winds from T. S. Lee…
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What's up with family in all of this?
I'm going to whine tonight. I have been doing the cancer thing for 7 years. I'm experiencing my 2nd recurrence after 5 years, and my family seems so distant about all this. Have they had enough? My sister said she'd call saturday, and didn't, and seems to keep up the facebook connections that interest her. They all know…
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Will be thinking of you all
I am having computer problems and it looks like I have to purchase a new computer. Oh joy! My techie told me my computer has been hacked. So I won't be around for a while. I will be thinking of all of you when I take part in the Ovarian Cancer Walk of Hope this coming Sunday. A week ago, I had my four monthly checkup with…
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Recurrence to lymph nodes only
I just found out I am having a recurrence for the 2nd time. First time was 2 years after treatment and this time after 5 years. It is in several lymph nodes in my chest and neck. Will need to go back on chemo. I had taxol/carbo both times and wonder if it will be used again?? Anyone else have mets to lymph nodes only?
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The largest brain fart
I went grocery shopping with earlier today. At the start of the shopping a friend called and I chatted with her a bit, but said to her, "Honey I can't shop and talk at the same time, call you later." I resumed my shopping. When I got to the register the gal rang me up. I pulled out a card to pay....she looks at me…
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Wonder if I should consider a clinical trial for recurrence
I'm still trying to wrap my head around my recent recurrence to the lymph nodes. My oncologists are reviewing my case this week and next, trying to come up with a plan. Are clinical trials worth pursuing or should I exhaust other chemo options first? I have only had carbo/taxol for initial treatment and 1st recurrence. Not…
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Understanding My Pathology Report
Ihad my second surgery to remove my uterus, cervix, right ovary and omentum on August 24. The surgeon told me the news from the pathology report was good, and I don't doubt him. But, when I read the surgical pathology report, it does not sound good. How can I learn to interpret this report? I have been to other websites…
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Is there anyone that has not been able to stay working after treatments are done?
I started my chemo in March of 2010 and finished in August 2010. I had gone back to work late April 2010. So, I did maintain my job while going through chemo. I timed it so I would have chemo on Tuesdays and have the rest of the week off and return to work the following Monday. My place of employment was wonderful. But…
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A bit of hope
http://www.bbc.co.uk/news/health-14761417 http://www.bbc.co.uk/news/health-14730608 http://www.bbc.co.uk/news/technology-14728716
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Ovarian Cancer back after 12 years
Hi, I am Munawar Sultana. I went through a hysterectomy 12 years back after Ovarian cancer diagnosis. I recieved 4 cycles of chemo as it was stage 1C. Now after 12 years my CA 125 is 169.77. My Onc wants me to get other opinions before she starts the treatment and she is also suggesting a major surgery, as cancer cells are…
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Upcoming Run/Walk Events to Break the Silence....PLEASE THINK ABOUT ATTENDING ONE IN YOUR AREA!
Upcoming Run/Walks September 2011 09/10/2011 - Run/Walk to Break the Silence on Ovarian Cancer - Delaware Valley Chapter Memorial Hall Philadelphia, PA Register here. Learn more 09/11/2011 - Run/Walk to Break the Silence on Ovarian Cancer - Massachusetts Chapter Marine Park, Day Boulevard South Boston 09/11/2011 - Walk to…
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Fibromyalgia and chemo
Just throwing this question out there. I have fibromyalgia and have had it for years could the chemo be making the pain of fibromyalgia worst. I have been put on morphine three times a day 15mg each pill. Some days it does not seem to be near enough for the pain I am going through. the past two day have been really bad for…
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i found this today, I dedicate it to my Mom <3
You're still here in my heart and mind, still making me laugh cause your stories live on. I hold you in a thought and I can feel you. I feel you and this gives me strength and courage. The tears I have cried for you could flood the earth ... and I know you have wiped each one away. For you Mother, I promise you this; I…
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Rise in CA 125
Hi everyone, I've been receiving chemo for the last 5 years and since last year I've been on constant chemo. I was on Doxil, that didn't help, I was on Avastin & Cytoxan, while some tumors were stable, several others showed growth. Then I was on Avastin & Topotecan, again some were stable, while other showed growth. Then…
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Learned something new from my eye doctor today
I love my eye doc! Besides being a brain cancer survivor, he is so compassionate. I asked him about a side effect I have been having from cisplatin/gemzar. I've been noticing that for about a week after infusion, I think I see shadows/shapes/etc. out of the corner of my eyes. He told me that your eyes get there blood…
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The last days
As you know Mom died August 17th at 5:32 in the morning. August 15th I was over visiting and I started to sing a song that Mom always sang to me. I don't what it's called but it the first line is "mares eat oats and goats eat oats and little lambs eat ivy, a kid will ivy too, wouldn't you? A kid'll eat ivy too, wouldn't…
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Any word from Kathleen or her family yet?
Anyone hear anything since Kathleen's surgery? I keep stopping in here to look for news.
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Kelly33
I have been thinking about you and your family. You have many friends here who are concerned about you. If you can drop us a line and let us know how you are doing. I know this is a very difficult time,,you are in my prayers...and your mom is not forgotten..val
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Chemo disposal
Ok, I posted the topic about the stink we exude with chemo....so that means chemo is exiting our bodies. I am getting cisplatin and etoposide for my chemo. When the nurses put the drip up they put on the little blue gowns to protect thier regular clothes from any spillage. At on of my chemos, not during mine just while I…
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LINDA & KATHLEEN
I'M SO HAPPY TO HEAR BOTH OF YOU ARE DOING WELL! This makes my day! I know it's quite a recovery process, but you both sound so positive and upbeat. God bless you both as you continue to heal and get back to reasonable 'normalcy'. Sending lots of love, hugs and prayers to you both! Monika
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I'm Back
The second chemo treatment hit harder than the first so I've been feeling really tired and not sleeping more than 2 to 3 hours a night. I had the 3rd and final chemo today. I feel guilty about celebrating when some are going through so many more treatments, but I'm glad it's over and now things are down hill from here (I…
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Chemo stink
Ok, I have just finished this round of chemo. I reek of it. My clothes smell. When I go to the bathroom it smells. The bed sheets smells. I thought it was just me but my mother who is taking care of me can smell it too. It has me besides myself. It makes the nausea worse and I just do not know what to do about it. I am…