-
Am back after a rest
I am back now. I just needed a break for awhile. I am still doing well, my Ca 125 is still at 9 and I am almost back to my old self again. I missed you all. Hugs lynda
-
I posted Nancy's memorial on her FB page
If you belong to Teal Warriors, you can also access it from there. It was such a bittersweet undertaking. I hope to take lots of photos on Saturday - the quilt, the memorial wall, etc. Carlene
-
I met Rookerbird!!!
Kathy (Rookerbird) brought some wigs and scarves and hats by yesterday that she wants me to donate to my local support group. Such a sweet lady! And her son, who was visiting from Houston, is a delightful young man. Since Kathy is on some pain meds, her son has been her chauffeur during his visit. He joked that it was…
-
I am trying to spread the word
about ovarian cancer.I receive several womans magazines in the the and they never ever metion ovca,,only breast cancer. I wrote them a letter on facebook to please do a story on this as it's symptoms are so vague. I hope they will listen, I went for my yrarly mammogram last week and my radiologist tech said her mom died…
-
Memorial Wall
My NOCC local chapter will have their 5K next Saturday and will feature a memorial wall, where we can post names, photos, etc of people we have lost to ovarian cancer. I am working on sheets for all our CSN teal angels. Putting faces to the disease is important. I want people to SEE that this is not something that happens…
-
New picture
I have a new display picture from the winner's walk of hope. Our small city raised 33,000 and the walk nation wide raised 2.6 million. It's a start, let's hope next year it is 3 million. I am the one wearing the shirt with the teal ribbon that says Mom and her passing date. My husband made it for me. It was a great day and…
-
Thrush
Well that awful sore throat that's still here is thrush! I know this can be a side effect of chemo, but I'm 2 months POST chemo. Has anyone else had this happen? Are there natural ways of curing it or preventing it from coming back.
-
Port problem (cellulitis)
Has anyone ever has cellulitis in the area around their port? I went for chemo yesterday and the nurse noticed there was some redness above the port where my incision was originally made and the area felt warm. I was able to get chemo thru my vein. After much going back and forth between nurses, I finally saw the dr. The…
-
Recurrence symptoms?
I would like to ask the ladies who have had a recurrence if they had any symptoms? Did you feel the cancer coming back at all? How long where you in remission if you did have a recurrence? It has only been less than 3 months and I feel like my cancer is coming back. I go to the gyn/onc tomorrow for a follow up and I am…
-
what color am I going to be
I just found out I have to have a biopsy of left breast.. 3 areas..probable malignant. I am not sure how to cope with this. Having one cancer is bad enough,,but two. Yikes/ I am praying for negative results of course but I have this inner intuition that I do have 2 cancers now, I looked up breast core biopsy on google and…
-
side effects after round 4
Ok had round four of taxol/carbo and advastin and the bone pain is a lot worst but I am also having problems with the upset stomach and heart burn. I do understand that it will get worst as I get more treatments but I sure do hate this. I never want to have anyone I know go through this again or ever. I know it sounds like…
-
Radiation Fatigue
I am getting radiation to my clavicle for a recurrence in the nodes. I've had 3 treatments out of 5 so far, and today I felt super fatigued. Is this a common side effect of treatment? Doc said I probably wouldn't have any side effects, but boy I feel wiped out.
-
Constipated.....
Sorry for the gross topic but I need help. I had a cat scan done a few days back because I have had vague pain in my right side and abdomen since surgery at the end of June. The scan showed excessive stool in my colon (doctor's words). He said to use a laxative every day. I have noticed I am never regular since surgery. I…
-
Distended abdomen
The stage of my cancer at the moment is cause un-comfortable and at times painful abdominal bloating. I am finding I can only eat small meals as my stomach feels like it might explode otherwise. Has anyone else experienced this? If so how did you cope? Did you take anything to help relief the discomfort? I start chemo on…
-
has anyone's ca 125 lowered or remained stable with high dose iv vitamin c?
sisters, just finished chemo for first recurrence of upsc, and am going to start high dose iv vitamin c and wondered if anyone's ca 125 lowered after having this, or remained stable. thanx, and sisterhood, maggie
-
OVCA quilt
This makes no sense to me, but below is the email I received today. Hi Carlene. The NOCC has decided that they are not pre selling tickets and you have to be present to win. So......just between me and you.......if your friends want to by tickets they can send the money to me (or you if you are going to be at the walk) and…
-
Can the grade/type of cancer change over several years?
My oncologist is having my cancer slides from 2006 (my first recurrence) compared to my biopsy from last week to see if they are the same/different. Can the cancer grade or type change after 5 years? I originally had a high grade cancer. This seems strange to me that it could be different now, but perhaps cancer morphs.
-
Watching her decline....
It has been a while since I last checked in. To be honest I have spent weeks pretending this is all going to go away and things will go back to "before cancer". Mom has taken quite the slide and it seems that now we are going to watch her slowly slip away. She is no longer able to walk at all, chemo is no longer an option…
-
Breast, Ovarian and Brain Cancer.......Can anyone survive all three?
Hello, It has been a few months since I have been on here but here is my story and concerns. My mother (Current age 63) had breast cancer in (1990) 21 years ago, she went through 6 rounds of chemo and radiation.....She survived. In June of 2010 she was dx with stage 3c ovarian cancer, during her debulking they removed an 8…
-
Found out I have a BRCA1 gene mutation
Wondering if anyone has any more info about this type of mutation. From what I understand it effects the tumor suppressors. Anyone have a similiar situation?
-
Thank you
I want to thank everyone who sent me their condolences when my Mom passed away August 17th. I know I should send everyone a personal thank you but honestly I haven't got the energy. Thank you to everyone that has supported me and included me in their thoughts and prayers. I hope you all dance with NED sometime very soon.…
-
Clinical Trials
Here is a website that might be of help to some or all. www.clinicaltrials.gov/show/nct01068509 There are locations in CA, FL, Georgia, Indiana, New Jersey, New York, NC, SC, Ohio and Washington. I will be getting into the clinical trial at Stanford. The vaccine is called MUC1 Dendritic Cell Vaccine ( CVAC ) Phase 2 Hope…
-
Durable remission with chemo alone for recurrence anybody?
Need to hear some uplifting stories today. Is it even possible to achieve a durable remission (1 year or longer) doing chemo alone without surgery, or chemo first, followed by surgery for a 2nd recurrence? I am 5 years out from 1st recurrence and I know the statistics regarding remissions getting shorter and shorter, but…
-
Feeling all those feelings
I'm feeling the urge to share what I've been going through in the last month since my return home, to Scotland. Just having all of my familiar things around is enormously comforting. But it hasn't been all joy. I started reading "The Emperor of All Maladies" during my last few days in Oregon and finished it when we got…
-
round 4
well later today is round four of chemo you would think I am use to it by now but I am not. It seems like the after effects and lasting almost all the days before the next chemo. I ended up in the ER last night I had been trying to go the bathroom from 3:30pm and till 8pm while I was in the ER. With in a few minutes before…
-
I'm pretty certain that I should have part ownership in Puff
tissues! Just bought another box earlier tonight. Oh well... Without nose hairs I never thought about how runny our noses could be. Hope all of you wonderful ladies are enjoying your holiday weekend. My daughter came Friday, went on back to college this afternoon as we are to get heavy rains and winds from T. S. Lee…
-
What's up with family in all of this?
I'm going to whine tonight. I have been doing the cancer thing for 7 years. I'm experiencing my 2nd recurrence after 5 years, and my family seems so distant about all this. Have they had enough? My sister said she'd call saturday, and didn't, and seems to keep up the facebook connections that interest her. They all know…
-
Will be thinking of you all
I am having computer problems and it looks like I have to purchase a new computer. Oh joy! My techie told me my computer has been hacked. So I won't be around for a while. I will be thinking of all of you when I take part in the Ovarian Cancer Walk of Hope this coming Sunday. A week ago, I had my four monthly checkup with…
-
Recurrence to lymph nodes only
I just found out I am having a recurrence for the 2nd time. First time was 2 years after treatment and this time after 5 years. It is in several lymph nodes in my chest and neck. Will need to go back on chemo. I had taxol/carbo both times and wonder if it will be used again?? Anyone else have mets to lymph nodes only?
-
The largest brain fart
I went grocery shopping with earlier today. At the start of the shopping a friend called and I chatted with her a bit, but said to her, "Honey I can't shop and talk at the same time, call you later." I resumed my shopping. When I got to the register the gal rang me up. I pulled out a card to pay....she looks at me…