The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

Latest info about my port problem
After going back & forth for several weeks now, I met with my surgeon and it was decided that the port I've been having a problem with needs to be removed. I still have some redness near the scar line but it's much better than before. All they can tell me is that this infection most likely happened as to the way my port…
New here
My mother was diagnosed with stage 1 ovarian cancer this July. The surgeon said there was no fluid her uteruse was soft....stage 1. The surgeon put hr surgery off for two weeks. When he went in it had spread she had fluid in her abdomen and it was on her colon and bladder. He diagnosed her atk a stage 3 c. I feel so angry…
CA 125 Went Up Instead of Down
I just had my second round of Taxol/Carboplatin on Monday. My lab work prior to chemo showed my CA 125 had elevated from 170 to 446 since my first round of chemo. That seemed very strange to the doctor and they are going to retest it next week at lab draws. Anyone else experienced something like this. My cancer had been…
Passive exercise and a great supplement
I don't know if anyone has talked about chi machines before, and I'm not trying to sell them, but I though I'd share a bit about them. They are good for anyone but perhaps vital for people who are too compromised by illness to be able to do conventional exercise. You basically lie on your back with your ankles elevated on…
Did not pass for chemo yesterday
Hola amigas, I was ready yesterday for my seven cycle of chemo but the nurse told me that my blood can't clot and I have to wait for a week. Has anyone experience this before and what should I do to increase this and be ready for next week. Thank so much
saw the movie 50/50
and thought it was very well done. This man had a 50/50 odds of beating his cancer and my odds are not as good. All the emotions you felt are addressed in the movie,shock,anger,hopelessness ,and a renewed relationship with friends and family. It also has some caregiver issues as well. It is a tear jerker so bring your…
Now THIS is a cause worth supporting...
This time around, because it's still considered "high season" in New York City and the hotels in mid-town Manhattan were going for $400 a night (and since last January we have racked up thousands of dollars in hotel expenses during my many trips to NYC), my daughter and I stayed at The American Cancer Society's Hope Lodge.…
Yellow eyes (jaundice) yesterday & today, so an unscheduled visit to the oncologist. :(
I have mets to the liver, and my latest blood labs from 9/25 showed improvement in my liver function since I completed my radioembolism treatments 8/26. So I was surprised when I started developing symptoms of liver distress a couple weeks ago (light stools, Tang-colored urine). Then the last 2 days, the whites of my eyes…
Back home....tired and still NED
My CT scan was termed "good" by Dr S and the radiologist, although I have some "ground glass" in one lung that they think is the result of being intubated during my hernia surgery and a "small" amount of ascites, which they also attribute to the surgery. My CA125 had gone down a point (to 18), so I am still on the vaccine…
6th chemo
Hey Sisters !! I had my 6th tx yesterday. I was on taxol/carbo. There is a national shortage of taxol. I did get switched to taxotere. This was supposed to be my last tx, but ca 125 though still coming down is at 232. Last month it was 363. Onc said this does happen but I am worried that I am becoming resistent ? I am not…
Where do most people go for chemo? Med. Onc private office or large cancer centerI
I was wondering where most of you go. I was previously going to a cancer center and getting standard chemo. I'm going to go back to an oncologist near my area as the travel to the city was too much, especially on days I had chemo, plus I took public transportation. The latest treatment suggested was Alimta. I was wondering…
Stage III Grade b found on biopsy angry rash left almost covering my body with no explanation from
I finally had the surgery three months after finding an adnexal mass incidentally on an MRI of the hips for severe arthritis. Planned laparoscopy turned into laparotomy with an almost six hour surgery. The doctor found cancer in both ovaries, the omentum and positive cells in pelvic wash. None of the lymph nodes were…
It seems like a got cancer once a year, this will be the thrid time :-(
Hi ladies, Days ago I post about the paracentesis I got cause by the fluid in my abdomen, I know is the cancer coming back, the first time I got 8 Lt of fluid, that was how they found the cancer, I did not had any other symptoms ... I'm feeling pretty down, I don't have much ilusion for what is coming to me, and I'm…
Today I got out my belly One liter and a half of fluid, my CT scan doesn't shows disease, but my CA-
Hi ladies, It's been a while since I been here, I was feeling sick, I started to take Letrozole in August 21th, and I did not go to good for me, I had a lot headache, the hot flases came back, some nausea, and upset stomach, so time pass, and around 2 weeks ago my stomach started to hurt so much, and swells, so last…
I'm starting to really hate steroids.
I took my fifth treatment yesterday. I could not settle down last night or this morning. Woke up several times during the night sweating (of course, those wonderful hot flashes). Now I have no energy. I stay so hungry after treatments. It's hard for me to understand why some people take steroids by choice. Guess they like…
question about neulasta
I was given mine on the same day of chemo, my friend gets hers the day after, how did you recieve yours, just curious
Hair Today, Gone Tomorrow
I'm on day 17 out from my first chemo round. I cut my hair really short the week after my first chemo. This morning I woke up with my head feeling tender and a little sore, and today as I run my fingers through my hair I'm starting to have several strands come out. Does this mean that I have arrived at the point of…
taxotere
HI sisters !! I had appt with onc today. I have been on carbo/taxol for 5 txs. Today I was told there is no taxol. I will be switched to taxotere for 6th chemo. Also I will have ct on 10/25. My chemo will also be extended. My ca 125 numbers are coming down- 362 from 4700. Onc said he is extending txs till numbers are less…
konsyl psyllium fiber for constipation....is it good?
I had my Chemo yesterday (Avastin/Taxol) and I'm already constipated.Taking this Konsyl Psyllium fiber but I don't think its working.Is there anything I can take?
Please help..Going for Avastin/taxol once a month chemo
I'm a 7 years cancer survivor.I went through lots of diffrent chemo in the past.This time My doctor decide to gave me Avastin with taxol once a month.Is anyone having or had this chemo before?What are the side effect I'm expecting ..any advice will be appreciated. Thanks, sham
I am confused.....Help....
Should I ask my doctor to put me on Avistan after my chemo is done? I am heading to my 6th and last round of traditional chemo and wonder if I should do that to stay in remission. What do you all think? My current CA 125 is 19. Thanks. Robin
Need some help to decide the best port to ask for
I decided I need to see the surgeon about my port, it's not getting any worse, but it's not getting better, even after 18 days of antibiotics. When I originally had my port put in, the surgeon didn't tell me of different kinds. The one I had was a portacath and I always found it to be somewhat large and bulky (in fact the…
What to expect after Chemo
My mother-in-law is taking her first round of chemo as I type this. They are giving her a booster(not sure what that's for?) then taxol/cisplatin. When will she start feeling sick? Do all chemo treatments make you sick? They said her hair will fall out. Is that usually over time? She is still in the hospital after just…
CA-125 NORMAL
When I began my chemo my number was 106. Pet scan showed 2 lymph nodes possibly cancerous. Today the number was 14!! I have one more treatment in 3 weeks. He said I will have a pet scan after I see him in 3 weeks following the treatment! SO EXCITED AND HAPPY AND THANKFUL!! Hoping and praying for the same as all of you. As…
Last Chemo Treatment in February... Do you think I should give up my second job?
I am an adjunct teacher for a local college and had agreed to teach two classes this coming Spring. I started treatment last week and will have 5 more which will take me to the beginning of February. For those of you who have been through it, do you think I am expecting too much of myself to work full time AND continue my…
OMG You should see my hands
OMG you should see my hands. On my last treatment my fingers swelled up and I couldn't bend them. I couldn't even hold a fork to eat. Side effect from Taxotere. Well they have went down to normal now and my fingers are all dried and cracked and peeling. Just like if they were burnt or something. I look like a snake…
strange prickly/slight stinging sensations in pelvic/abdomen area???
sisters: i posted this on the uterine site, and thought to check in here to ask if anyone has experienced these little, off and on stinging sensations in pelvic or abdomen areas, they come and go, though had been gone for many months. now they're back. my partner thinks they're nerves regenerating after surgery/chemo (…
Heading back to NYC on Tuesday
I will be back at MSKCC Tuesday - Thursday. This time my daughter is coming, instead of my husband. Jonie....we will definitely be doing a girls' night out, so order a pizza for Larry and clear your calendar. Carlene
chinese medicine
hello, on saturday i went to see chinese herbalist, he has great reputation and lots of happy clients.he was very nice, soft spoken,his English was well enough to communicate, took my hand - listend to my pulse and strangly enough his first question was: "do you cry a lot?" . which i do. also he told me that i have…
clear cell chemo treatments
I was wanting to hear from people with clear cell ovarian cancer regarding what chemo drugs are used in their treatments. Which were successful or not?

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

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