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A Great Day!
I spent the morning in Forest Park, St. Louis at the 5th annual Roc Star 5K. There were about 2000 participants and they presented a check for $55,000 to Siteman Cancer Center at Barnes Hospital. My team had 20 people (aunts and uncles, cousins, siblings, my daughter, mom and husband). It was our first year and now that…
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Chemo resistant tumors
I was getting a thermography done yesterday, and it turns out the nurse performing it is the same nurse practitioner I had heard of a few months ago who was working on a clinical trial, treating cancer with large doses of proton pump inhibitors. I got a full hour to ask her questions, and she is a wealth of information.…
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Well, it's back
My dear wife, Cindy, had her last Taxol consolidation therapy last month. Went to MD Anderson for CT Scan and CA125 today. Several lymph nodes came back positive on the scan. CA125 was only at 9.5. Her CA125 had previously ranged from 2-4 during our one year of remission. New plan is to go on carboplatin/gemzar/avastin…
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vaccine therapy
Anybody have any type of vaccine therapy? I have clear cell ovarian and drugs are not working. what drugs have worked for you? Dr suggest md anderson. What are your experiences there?
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First chemo after surgery
It has been over 3 weeks since my surgery, and the chemo assay is still not in. I don't know why it is taking so long! Anyway, my doctor ordered the first cycle of chemo, and then we will change accordingly when the results do come in. I fly to CA tomorrow to do cisplatin and navelbine on Monday AM. Did the labs yesterday,…
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Thanks you all
It has been just been over three months since I was told about my cancer and just over two months since I found this site. I just wanted to tell of you how much I love this site and all of you. I have learned so much about my cancer and how strong we become during our fight. I have reached out so many time with just need…
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New and scared
just looking for support
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3rd Treatment and Ethyl
Hi Ladies! Tomorrow I get my (1st) power-port and will begin my 3rd round of chemo next Tuesday. I'm in another clinical Phase II trial (vaccine trial didn't work for me). I will get dose dense Taxol every week and possibly an oral glucose-factor inhibitor that will block glucose receptors. The glucose is from the insulin…
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I'm just amazed as to how staff handle a port
I guess I'm just a little upset and amazed as to how staff handle a port, especially when they're supposed to be oncology nurses. I've had some type of rash (or infection) for the last 2 weeks. When I first saw the oncologist, he put me on antibiotics. And, then was referred to my primary care doc, who continued the…
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Port question
How soon after you have a port placed can you start using it for chemo? My wife muscled through 18 months of chemo treatments without one but is now tired of getting stuck multiple times.
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Hats and scarves
I recently found a couple of nice websites for head wear. (it seems that recently I've been pretty hung up on my hair-less status, more so now that they've extended my treatments) I know I've seen them mentioned in a few posts here, but thought I would start a new thread for any newcomers that may be searching for…
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Traveling (cruising) during chemo
I am considering taking a cruise in 6 weeks. I will have had 2 of my first treatments with Carbo/Taxotere. Is this a good idea? I have cruised in the past during treatment with no problems.
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Remission
When do you count for remission. What is considered remission? When do you start to count for NED is it when my organs affected were removed, or when I had a clear pet scan, or when my cat scan after treatment was done. Not really sure about all this need a little help. Thanks Sharon
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Is a port necessary?
I had a port 7 years ago and it was great at the time. It became infected in 2006 and I came down with sepsis and barely made it and the infected port was removed. I will need to start chemo again soon and wonder if they will suggest another port. Pros and cons??
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Question for post chemo ladies.
I had my last chemo on 9/16/2010 and am still experiencing aches, pains, fatigue and a general lack of stamina. I don't want to exaggerate the situation, I am feeling great but I don't think I'm back to before ov/ca. I am 63 and not a real active person so although I was healthy, I know I was not very fit. Here's my…
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mom is gone
Mom passed away suddenly this afternoon. We believe she had some type of CVA, likely caused by a blood clot. Her left leg had swollen to 3 times its normal size, a complication post surgery this past week. I cannot even begin to describe the utter loss I feel, the hopelessness..this grief is consuming me. She died with all…
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Sluggish port
Got a question re: my PowerPort. I was in Tijuana at an integrative cancer clinic getting treatments for 3 weeks but I had to use a peripheral vein for the blood draws--the port was OK for IV infusions only (the nurses couldn't get blood out of it). Has anyone else had this experience--what should I do about it? By the…
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I think I have ovarian cancer
I have been having lower abdominal pain for going on three weeks now. When my husband and i were having intercourse we had to stop because i started crying in was in so much pain in my lower abdominal. a few days later my pain was n my lower abdominal and all the way down to my knees now lastnight it was from my lower…
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New advance for ovarian cancer
Tomorrow night on ABC World News, Diane Sawyer will interview Joan Doak who is a survivor and staffer for NOCC (sorry Carlene) regarding a new procedure for identifying ov/ca cells during surgery using a flourescent dye. Below is a link to a news story about this breakthrough. This is news to me, maybe some of you have…
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Flushed face
I took my 3rd treatment 3 weeks ago today. Since late this morning my face has been flushed. My B.P. is normal. I have no fever. What could cause this? I typically am red faced a couple of days following treatment, but three weeks? Has anyone else experienced this? Thanks, Carla
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Fingers swelled up
I am having a rough time. I currently am on taxotere/carbol. I thought the doctor was going to put me on taxol/carbol, but he decided to go with taxotere. I have had two treatments so far and each one has been dealing me a fit. Have so much trouble with loose bowels. I lost weight with that..7lbs in 3 days. I get that…
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I'm a little discouraged
Hi everyone, I guess I'm just getting a little discouraged and a little nervous because my CT scan is next week. I've been on so many different chemos since the fall of last year including Avastin and the tumors have grown a little. I guess I would have liked to hear, they shrunk. I guess I'm getting used to the…
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Am I becoming a hypochondriac???
I finished chemo a year ago and everything seemed to be doing well for several months. But then this summer I started really struggling with not feeling well. My ca-125 has been creeping up and the last they checked in July it was 197. They did a ct scan in June but it did not detect any signs of masses at that point.…
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Taxotere and Carbo it is!
I've been wondering what my chemo regime will be for my 2nd recurrence and the winner is- Taxotere and Carbo. He also said I could do Taxotere and Cisplatin, but the Cisplatin seems to be harsher. Will start treatment next week and every 3-4 weeks there after. Doc feels this will put me in remission as it has worked twice…
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peach fuzz
Hi all next week is my 5th treatment of taxol/carbo and in October with be my 6th and last of the taxol/carbp and I will only have advastin for five more months after that. The nurse said that with only taking advastin that my hair will start growing back. Here's my question I did not lose all of my hair I have a very fine…
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guilt felings
wondering if anyone has dealt with feelings of guilt about surviving cancer and treatment. My Godfather just passed away from pancreatic cancer on Friday. I am a 1 year survivor of ovarian cancer. Having a rather hard time feeling positive about myself when he did not survive. Feel guilt that I survived. Trying to find out…
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Fingers swelled up
I am having a rough time. I currently am on taxotere/carbol. I thought the doctor was going to put me on taxol/carbol, but he decided to go with taxotere. I have had two treatments so far and each one has been dealing me a fit. Have so much trouble with loose bowels. I lost weight with that..7lbs in 3 days. I get that…
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My first delay in treatment :(
I was scheduled for treatment number 5 today. However, my platelets were at 59, so it will be delayed until next week. A chemo nurse said that they should be back up next week. My white and blood counts were fine. I wonder how many women do get through all 6 of these treatments without any delays? Hope all of you are…
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And now, for some GOOD news....
The NOCC selected 9 of the quilt squares for a wall hanging that will be permanently displayed in their headquarters in Dallas, along with a copy of the "book of stories" that was raffled off with the Ovarian Cancer quilt. Four of the squares were ours: Joan Jack Mary Klein Bonnie Lemke Leesa Green I am so pleased about…
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I'm getting out!
I still can't believe the sweet words I just heard from my doctor. "Would you like to go home?" 8 days ago, I checked in, had major surgery (6 hours) and a very rough few days. I turned a corner a couple days ago and feel great today.Have to pack up, but will check in later with more details. Hugs to all, kathleen