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vaccine therapy
Anybody have any type of vaccine therapy? I have clear cell ovarian and drugs are not working. what drugs have worked for you? Dr suggest md anderson. What are your experiences there?
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First chemo after surgery
It has been over 3 weeks since my surgery, and the chemo assay is still not in. I don't know why it is taking so long! Anyway, my doctor ordered the first cycle of chemo, and then we will change accordingly when the results do come in. I fly to CA tomorrow to do cisplatin and navelbine on Monday AM. Did the labs yesterday,…
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Thanks you all
It has been just been over three months since I was told about my cancer and just over two months since I found this site. I just wanted to tell of you how much I love this site and all of you. I have learned so much about my cancer and how strong we become during our fight. I have reached out so many time with just need…
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New and scared
just looking for support
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3rd Treatment and Ethyl
Hi Ladies! Tomorrow I get my (1st) power-port and will begin my 3rd round of chemo next Tuesday. I'm in another clinical Phase II trial (vaccine trial didn't work for me). I will get dose dense Taxol every week and possibly an oral glucose-factor inhibitor that will block glucose receptors. The glucose is from the insulin…
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I'm just amazed as to how staff handle a port
I guess I'm just a little upset and amazed as to how staff handle a port, especially when they're supposed to be oncology nurses. I've had some type of rash (or infection) for the last 2 weeks. When I first saw the oncologist, he put me on antibiotics. And, then was referred to my primary care doc, who continued the…
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Port question
How soon after you have a port placed can you start using it for chemo? My wife muscled through 18 months of chemo treatments without one but is now tired of getting stuck multiple times.
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Hats and scarves
I recently found a couple of nice websites for head wear. (it seems that recently I've been pretty hung up on my hair-less status, more so now that they've extended my treatments) I know I've seen them mentioned in a few posts here, but thought I would start a new thread for any newcomers that may be searching for…
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Traveling (cruising) during chemo
I am considering taking a cruise in 6 weeks. I will have had 2 of my first treatments with Carbo/Taxotere. Is this a good idea? I have cruised in the past during treatment with no problems.
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Remission
When do you count for remission. What is considered remission? When do you start to count for NED is it when my organs affected were removed, or when I had a clear pet scan, or when my cat scan after treatment was done. Not really sure about all this need a little help. Thanks Sharon
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Is a port necessary?
I had a port 7 years ago and it was great at the time. It became infected in 2006 and I came down with sepsis and barely made it and the infected port was removed. I will need to start chemo again soon and wonder if they will suggest another port. Pros and cons??
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Question for post chemo ladies.
I had my last chemo on 9/16/2010 and am still experiencing aches, pains, fatigue and a general lack of stamina. I don't want to exaggerate the situation, I am feeling great but I don't think I'm back to before ov/ca. I am 63 and not a real active person so although I was healthy, I know I was not very fit. Here's my…
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mom is gone
Mom passed away suddenly this afternoon. We believe she had some type of CVA, likely caused by a blood clot. Her left leg had swollen to 3 times its normal size, a complication post surgery this past week. I cannot even begin to describe the utter loss I feel, the hopelessness..this grief is consuming me. She died with all…
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Sluggish port
Got a question re: my PowerPort. I was in Tijuana at an integrative cancer clinic getting treatments for 3 weeks but I had to use a peripheral vein for the blood draws--the port was OK for IV infusions only (the nurses couldn't get blood out of it). Has anyone else had this experience--what should I do about it? By the…
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I think I have ovarian cancer
I have been having lower abdominal pain for going on three weeks now. When my husband and i were having intercourse we had to stop because i started crying in was in so much pain in my lower abdominal. a few days later my pain was n my lower abdominal and all the way down to my knees now lastnight it was from my lower…
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New advance for ovarian cancer
Tomorrow night on ABC World News, Diane Sawyer will interview Joan Doak who is a survivor and staffer for NOCC (sorry Carlene) regarding a new procedure for identifying ov/ca cells during surgery using a flourescent dye. Below is a link to a news story about this breakthrough. This is news to me, maybe some of you have…
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Flushed face
I took my 3rd treatment 3 weeks ago today. Since late this morning my face has been flushed. My B.P. is normal. I have no fever. What could cause this? I typically am red faced a couple of days following treatment, but three weeks? Has anyone else experienced this? Thanks, Carla
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Fingers swelled up
I am having a rough time. I currently am on taxotere/carbol. I thought the doctor was going to put me on taxol/carbol, but he decided to go with taxotere. I have had two treatments so far and each one has been dealing me a fit. Have so much trouble with loose bowels. I lost weight with that..7lbs in 3 days. I get that…
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I'm a little discouraged
Hi everyone, I guess I'm just getting a little discouraged and a little nervous because my CT scan is next week. I've been on so many different chemos since the fall of last year including Avastin and the tumors have grown a little. I guess I would have liked to hear, they shrunk. I guess I'm getting used to the…
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Am I becoming a hypochondriac???
I finished chemo a year ago and everything seemed to be doing well for several months. But then this summer I started really struggling with not feeling well. My ca-125 has been creeping up and the last they checked in July it was 197. They did a ct scan in June but it did not detect any signs of masses at that point.…
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Taxotere and Carbo it is!
I've been wondering what my chemo regime will be for my 2nd recurrence and the winner is- Taxotere and Carbo. He also said I could do Taxotere and Cisplatin, but the Cisplatin seems to be harsher. Will start treatment next week and every 3-4 weeks there after. Doc feels this will put me in remission as it has worked twice…
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peach fuzz
Hi all next week is my 5th treatment of taxol/carbo and in October with be my 6th and last of the taxol/carbp and I will only have advastin for five more months after that. The nurse said that with only taking advastin that my hair will start growing back. Here's my question I did not lose all of my hair I have a very fine…
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guilt felings
wondering if anyone has dealt with feelings of guilt about surviving cancer and treatment. My Godfather just passed away from pancreatic cancer on Friday. I am a 1 year survivor of ovarian cancer. Having a rather hard time feeling positive about myself when he did not survive. Feel guilt that I survived. Trying to find out…
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Fingers swelled up
I am having a rough time. I currently am on taxotere/carbol. I thought the doctor was going to put me on taxol/carbol, but he decided to go with taxotere. I have had two treatments so far and each one has been dealing me a fit. Have so much trouble with loose bowels. I lost weight with that..7lbs in 3 days. I get that…
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My first delay in treatment :(
I was scheduled for treatment number 5 today. However, my platelets were at 59, so it will be delayed until next week. A chemo nurse said that they should be back up next week. My white and blood counts were fine. I wonder how many women do get through all 6 of these treatments without any delays? Hope all of you are…
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And now, for some GOOD news....
The NOCC selected 9 of the quilt squares for a wall hanging that will be permanently displayed in their headquarters in Dallas, along with a copy of the "book of stories" that was raffled off with the Ovarian Cancer quilt. Four of the squares were ours: Joan Jack Mary Klein Bonnie Lemke Leesa Green I am so pleased about…
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I'm getting out!
I still can't believe the sweet words I just heard from my doctor. "Would you like to go home?" 8 days ago, I checked in, had major surgery (6 hours) and a very rough few days. I turned a corner a couple days ago and feel great today.Have to pack up, but will check in later with more details. Hugs to all, kathleen
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Juicing
Do any of you ladies juice regularly? I am back and forth in my mind as to whether or not I should buy a juicer. I have read that there are many health benefits to juicing. As always, thanks for your input. Carla
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First Fluorescence-Guided Ovarian Cancer Surgery
First Fluorescence-Guided Ovarian Cancer Surgery ScienceDaily (Sep. 19, 2011) — The first fluorescence-guided surgery on an ovarian cancer patient was performed using a cancer cell "homing device" and imaging agent created by a Purdue University researcher.…
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A question for ladies in remission
Once I finished treatment my oncologist told me I would see her every six months and my surgeon once a year. I have the CA125 every three months. During treatment I felt so cared for. I could call anytime for any reason. Once I finished treatment I am back in the hands of my primary. I emailed my oncologist in March about…