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looking for advice and hope
It's been 2 yrs since I had a partial kidney nephrectomy stage 1 and a complete hysterectomy for ovarian cancer 1a followed by chemo. My cat scans have been clear for two yrs and ca-125 numbers were good. Last week my first ct scan shows two small enlarged lymph nodes in the stomach area and all my peace of mind is gone.…
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Sounding like a broken record
I haven't been able to find Susan P. (yet!) so I begain to miss others from this board. Has anyone heard from Mom2greatkids or Cafewoman? Mom has not been on since April of 15 and I guess I'm spelling CafeWoman wrong because I can find no record for her. Someone, please, give us some good news! Debra(Jo)
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Please Help
My gyn-onc is moving to the West Coast - can anyone suggest a Gyn-onc in the Chicago area? I'm bummed but hopeful can find someone just as good! I would appreciate any suggestions! im Brca + Stage 3 .... Thanks and happy new year!
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Help!!!
I just need some advice. I am 43yo, my mother had ovarian cancer while she was pregnant with me and died at the age of 30. I was born healthy just premature. I am having symptoms of ovarian cancer for the last 2-3mos: pelVic pain, vaginal discharge (brown, bloody and at times clear), abdominal bloating, feeling full…
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Merry Christmas
wishing you all a wonderful Christmas!
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Damage to kidneys
Hello, I am wondering if any of you are among the 30% of women whose kidneys are affected by the chemo. I just learned that I am one. I am on paclitaxilel and cisplatin, cisplatin is the likely cause and they have reduced this by one fifth. as a result I am looking at taking fewer and fewer of the "supporting" drugs to not…
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My friend needs your prayers
My good friend is dying after fighting ovarian cancer for 5 years. Only two weeks ago we were hanging out together in the hospital, complaining about bland food and trying on wigs; and now she is in a coma on life support. I don't want the horror I saw yesterday in her dark hospital room to replace the memory of the…
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Newly Diagnosed Ovarian Cancer
Hi everyone! My journey started on 10/29/15 with the diagnosis.....my ONLY symptom is moderate ascites. Since then after labs, pelvic...more labs, another pelvic, ct scans etc....my gynecologist oncologist says she is 95% sure it is ovarian cancer .....I am having a biopsy on wed along with some fluid removal to see what…
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gyncitobine
good morning ladies. I haven't been on this site in quite some time, I hope everyone is well. my wife Lorraine has stage 4 ovarian cancer and just resumed chemotherapy last Tuesday. Her doctor is giving her gyncitobine this time with carbo, she was getting taxon and carbo before and she handled that quite well. The…
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The waiting game
Hello all, I'm new to this site. I had thyroid cancer last year. (Complete thyroidectomy and radiation). I've always had an issue with ovarian cysts. I had been told that it was a normal part of being a woman so I never really gave it much thought. I was just going to be "one of those" women who had issues. A few weeks…
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Possible recurrence of Ovarian Cancer
I was treated for Ovarian cancer 12 years ago, breast cancer 10 years ago, and skin cancer 2 years ago. Last week my doc found a mass in the pelvic area and I'm terrified. I'm 66 years old and I don't think I have the emotional strength to go through more chemo and surgery. Chat rooms were extremely helpful while I was on…
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Graviola, a plant found in Mexico said to cure cancer. Anyone heard of it or used it?
i have a friend who took this, he had prostate cancer, and is doing well. That is not ovarian cancer. Another friend has just heard about this and another is looking into it on mainstream Cancer sites. Of course they can't recommend it and give possible big side effects. I'm wondering if any of you have heard of this or…
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CA125
2013 My CA125 was 12 2014 My CA125 was 14 Results from yesterday 2015 it went to 22.6 2010 I had endometrial cancer stage 1 and had Hysterectomy Is this something that needs to be investigated?
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Scared about symptoms
Hello, Just wondering if anyone has any advice. I went to a walk-in clinic this morning with bad cramps and stomach bloating. They found a trace of blood in my urine and are sending me for a transvaginal test tomorrow. Just so scared it is ovarian cancer. Any thoughts or advice? Thank you so much, Sue
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anyone consuming soy/or soy lecithin?
Hello. I have read conflicting articles about comsuming soy with Ovarian Cancer and or Carcinosarcoma. Some articles say to stay away completely and others say soy is good, then others say soy is good but not soy supplementations that are in foods and such. My oncologist says eat anything I want. I don't of course. Do any…
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Chicago area or University of Michigan gyn/onc recommendations?
I am new to this forum and currently at the point of evaluating which gyn/onc to see as a next step for possible ovarian cancer. I live in southwest Michigan and considering doctors in Chicago (Northwestern, U of Chicago) or University of Michigan (Ann Arbor). If anyone has positive (or negative) experiences with doctors…
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Surgery
Hi Ladies, Not posted for a while, feeling a bit stressed. Tomorrow is surgery day. I have packed my bag and trying to be positive. The incision is breast bone to pubic bone, and hopefully the alien in my pelvis will be evicted. I'm really worried about the stoma, but myabe, just maybe it can be avoided. Just feeling sorry…
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Thanksgiving 2015
Dear Teal Sisters, Happy Thanksgiving from the Pacific North West! It is 17 degrees F and the winds are quiet. Last week we had 71 mph winds, a tree fell on our home and we have 8 broken roof trusses. But God is good, only property damage, all family and friends are safe. So, I am thankful for my husband, sons, family and…
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My New Oncologist's Cutting-Edge Approach Is Saving My Life
“60 Minutes” ran a segment last night (you can find it online) about an oncologist and research scientist in LA – Dr. Patrick Soon-Shoing – who is championing a low-dose, multi-chemo approach to fighting cancer. This is exactly what my own oncologist, Dr. Howard Bruckner, has been doing with tremendous success for years.…
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Newly diagnose ovarian carcinosarcoma 3C
Newly diagnosed and looking for survivors and your experience with treatment choices you made.
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CA-125 Questions
Hoping somebody can help me decipher what the doctors are telling me about CA-125. What I'm hearing seems really contradictory. I am 2 years into this and had a 10 month NED period before a recurrence in November, 2014. CA-125 was always an excellent measure for me. * Was 207 before first surgery * After first chemo, was…
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Whats causing me to be shake in the morning?
for the past month shortly after getting out of bed I start to shake, it passes after a couple of hours be really starting to bother me. I'm on cisplatin and now it's been almost 2 years on chemo with only a break after my second surgery. This is the 8th chemo drug I've been on over the past 3 years. Kathy
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My Story---need advice
Hi everyone, I'm a Thy Ca survivor, with an undiagnosed ovarian mass. Long story short, they found a solid mass in my left ovary in March, were supposed to remove it in April, removed the wrong ovary, and I still have a mass 8 months later. All of my tests have come back indeterminate. Was wondering if anyone had any…
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Just checking in
Hi everyone. I have not been on in a long time. I just had my first year anniversary after treatment for my first re-occurence. I am maintained on Lynparza a parp inhibitor and hope it keeps me in remission. I scrolled the topics on the site and i am sorry to see some have pasted. My thoughts are with all of them. Hoping…
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Stoma
Has anyone had a stoma fitted? I have a operation booked for November 25th. This is to hopefully remove tumour, but there is some bowel invasion and a stoma is possible. I just wondered how it is. Feeling pensive LA
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Reporting results with Avastin/Topetecan
Hi loves, haven't been on the board for awhile and for those who don't know me, I'm a 9 year survivor, stage 3C, was in remission for 2 1/2 years and have been chemo in for the past 6 years. I did great with Cisplatin/Gemzar for over three years. That is a tough combo, but it kept me stable and you've got to love that! I'm…
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ESTROGEN INHIBITORS
Wondering if anyone is taking an estrogen inhibitor such as Anostrozole or Aromasin? I have been on it for over a year for a bout with breast cancer, and my CA125 seems to be doing the jumping-jacks. It has gone from 13 to 16 back down to 15 up to 28 then 35 now back to 31. My CT for OVCA follow-up is clear, but given how…
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doxil side effects - had 3rd tx on Th Oct 29 DID ANYONE EXPERIENCE BAD SWELLING OF FEET & LEGS $ FOR
AND HOW ABOUT BACK ACHES other than that no real problems Tks Susan P
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mmmt of ovary stage 3c any survivors ?
My mother 51 years of age diagnose with mmmt of ovary stage 3c 1 month back got debulking surgery done 3 weeks back optimally done this cancer is very rare and we are hell scared any survivors? looking for hope
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Recurrence or Progression?
My mom was diagnosed with stage 3C ovarian/peritineal cancer in March. She had three cycles of chemo, surgery then 9 more weekly chemo treatments. Her CA 125 was at 12 after her last chemo. She had her one month follow up today and her ca125 is at 58. The Dr wants to repeat the test in two weeks and do a PET scan to see if…