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Radiation Over--CA125 Up
Hi, just thought I would give you a quick update as where I'm at. I finished 18 treatments of radiation last Friday, right after they did a CA 125. I saw my oncologist today and they did another CA 125 , he said it went really high and they don't know why. I didn't want to know what it was, before I started radiation it…
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confusing symptoms
Hey gals! I have had some strange symptoms the past few days. It has been a week and a half since my last chemo and I am usuallly blessed to have no nauseaa. The past three days I have been having HORRIBLE cold sweats and nausea. I talked to my gno/onc because I thought my hormones might need adjusting. I don't sleep…
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Two down, two to go
i had my second chemo last Wednesday. I have been blessed that I have not had a lot of side effects, except after that darn shot....can't think of the name of it. Oh, and of course my hair is gone. After about three days of watchings it come out, I went to my stylist and we buzzed it. I was brave...NO TEARS. I suprised…
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Clinical Trial vs. standard chemo
I found out yesterday that the treatments I have been receiving consisting of Paclitaxel & Cisplatin didn't work. After four treatments my CA125 went down to 21. After treatments 5 & 6 it began to rise. It's now at 44. Dr. wants to change the treatment. I had surgery in March and had hoped the first treatment choice would…
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fertility and cancer
Is anyone out there struggling with fertility/cancer? Obviously, since both my ovaries are gone , there is little I can do, but has anyone else found themselves in my position with no kids and no ovaries? thanks sherise
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Prayers Needed
Hi, I need some prayers. I’m having my 1st radiation treatment for the 1 ½ inch tumor on my vaginal cuff. It is in between my bladder and colon. My CA had gone from 241 to 865 in a month. They stopped my chemo. I will be having radiation everyday for 4 weeks, except Sat. and Sun. I heard that the side effects can be worse…
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Getting to the bottom of it
Hi all, My saga continues. I had a CT/Pet scan on Aug. 5th, and found there is indeed a tumor that now measures 3.8 x 3.8 cm, up from 2 x 1.8 cm in February. Today I got the results of my CA-125 that was drawn on Monday; it's 47, down from 61 last month. My oncologist is on vacation this week, so I won't hear from him…
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My CA125 test makes me really nervous...
i got my CA125 number today, this is the first since I started chemo, and it went way up-like from 488 to 1000. everyone keeps telling me things are going well, and my oncology nurse said the DR is not concerned at this juncture, But Hell...I AM!!! when he did the hysterectomy and took out the masses in my peritoneal…
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Sharing Ned
Hi Everyone.... I also have to share the news about my latest checkup. All is clean and good on my top half. There is not even any evidence of scar tissue! I am so pleased by this it's hard to put into words. Still taking the Tamoxie, and it seems to be doing okay with me...no huge side effects. My labwork also shows my…
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NEW CHEMO/DOXIL
Hi I wrote in about 3 months ago asking if anyone had been on the chemo Doxil. I got some good responsives. I started DOXIL in June. I have had 3 treatments and have had very bad side effects. Everything from a bad rash, neasua, muscle spasms and depression. To name a few. Had a CT scan July 29th and the DOXIL did not even…
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1 year down
Hi Everyone, I haven't been here for awhile, but stopped by tonight see how things were going. I see some names I don't recognize, which means more have joined this group. It's such a great source of friendship and information. I also saw names I did recognize, and that's great! I passed my one year cancer free mark in…
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Blood Clots in lungs from surgery
Hello everyone: Many questions, but first is the blood clots in both lungs from surgery. I am new to this discussion board and just had good results of 1st cat scan. I had complete Hysterectomy and lymph nodes eight months ago which put my into full menopause etc. I have been on warfarin for 8 months and the last reading…
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Curious About Something
I just stumbled across this board as I was looking for support groups and love to read all the encouraging notes. I am curious though as to how many of you who have ovarian cancer went to their gynocologists for regular annual exams? I just had mine in April (nothing was foudn) and now I have a 10cm tumor on one ovary and…
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Scared Newbie
I 've been reading this site for several days and it has been a big help. I went to a gyno last week for the first time in way too long (yep I'm an idiot). He found a large mass when he examined me. I went for an ultrasound and he said he can't be sure, but there's a good chance it's ovarian cancer. He said when a woman is…
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New here and a lot of questions
My sister just had a CT last Friday, here is what the report says: "lesion in the left hepatic lobe lateral segment appears as a metastasis. while the bilateral ovarian cystic neoplasms described below. likely metastatic ovarian cancer. the lesion at the tip of the pancreatic tail is non specific" We will have the first…
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Lost and Confused
Hi.. My name is Sarah and i am 22 years old. This past January I was diagnosed with Stage I Ovarian Cancer. My cancer was a hypercalcemic small cell cancer and due to the sever nature of my cancer i was underwent 4 sessions of chemotherapy. I am happy to say i am now 3 months cancer free. Despite having healed physically i…
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New to this site
Hello. In reading all the posts on this forum for quite a while now, I have found that everyone's personal stories, theirs or family members courage and willingness to overcome this disease to be so uplifting and reassuring, I thought I would post my own questions regarding my mom who was diagnosed with stage 3 ovarian CA…
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Floating
My wife Linda got a little jolt a month back when her numbers rose ever so slightly from 5-8 CA-125 to 21. The last (current) blood test was 25, which her G/O assured her was still normal. So, like many of you, we are floating...On a small sea of general relief but also anticipation. Because we all know this disease and…
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Remember my relief over finally getting a Gyno/Onc? FORGET IT
Bummed doesn't begin to discribe how I feel. I feel like I am in some bad nightmare that just keeps replaying back to the start. I called today to see what date they had for me to see the Gyno/Onc I fought so hard to get an appointment with and was stunned to find out that they got it and looked at it and sent it to…
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Keeping it "real"
I just want to thank everyone on here. You have been a huge source of support and inspiration while I await my surgery and diagnosis. You girls keep it "real". You tell the truth (even when it's ugly) and honestly share your experiences. If the biopsy comes back as cancer, I feel so much more equipped to deal with it after…
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My Mother's Cancer is Everywhere...I think I am heart broken
We met my mother's surgeon today, and although I liked him personally, I hated his news. Apparently they like to "debulk" first and then do chemo. The reason they are doing chemo on my mother first is that the cancer is everywhere in her abdomen and around the small intestine; and he doesn't think he could get it all at…
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Whew, finally got my Gyno/Onc. referral and other tests being requisitioned
Update on my quest for getting this cyst and node biopsied. My doc came back from holidays today and she agreed to get me a referral to a Gyno/Onc instead of just a Gyno - apparently it was quicker to get me to a Gyno than the Gyno/Onc she felt here, sigh. We will see. I also requested another pelvic ultrasound for…
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Doxil
I will start Doxil on Thursday. Looks like every four weeks. No cisplatin with it. I asked about that and my oncologist says it causes so much nausea that he wants to try Doxil alone to start with. May add it later. My colon is involved and I have to really work to keep it working so I will have a double time of keeping…
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Why Doxil
I have ovarian cancer for two years and am now taking Doxil. My cancer has spread to my rectum and intestines. My question is why am I taking Doxil when my cancer is not in my ovaries, since all my female organs are gone? I was also given maybe two years to live and am very depressed about that and cannot stop crying.
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Double button
Eeek! The button must have stuck. I can't delete this, only edit. Oh well. Now I can send double (((hugs))) and wishes! Colleen
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Doxil plus Carboplatin
Well, after canceling my chemo yesterday to have another CT scan and get a check by the surgeon, I finally got my chemo today. The fever I had Wed. was not from an inflamed colon or diverticulitis again so I got into the clinic for the chemo today after being cleared by the surgeon. Feel really sleepy and tired after the…
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Incontinence and 1st Chemo- with Mom
Yeah, major milestone. Mom made it through her first chemo. I am sure this is not a big deal for many vets of chemo, but this was a huge stepping stone for us. The pills (steroids) she took last night apparently made her a chatty cathy, and then the ativan they gave her made her loopy, but she did her 6 hours and is on the…
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Back into the hospital...
Today, my mom called me after I was finishing dinner with my boyfriend and his family. She went back into the ER because of stomach pain. It wasn't just backed up gas. It is a bowel obstruction of the small intestine. I am scared. So I went to visit her at the hospital. We talked and laughed for about 2 1/2 hours. This is…
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New Here
Hello Everyone, I am 48 yr.s old and was diagnosed with stage 2 ovarian cancer in May. I had a complete hysterectomy and part of my colon removed. I did end up back in the hospital with an infection, that has cleared up now. I had my first chemo treatment last Fri.. I seem to be feeling better than I expected. I have a…
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Mom's CA125 and a question
My mom is on coumadin, a blood thinner for her blood clots. She called me while I was at work, because she has been having bad gas. She called the Cancer Care Alliance and they said she has a lot of gas. While she was in the hospital at the end of July, the nurse there said she has a lot of backed up gas from the partial…