-
Really Scared
I'm sorry I have to be here, as I'm sure we all are. I was diagnosed with Stage 3 -O cancer back in May, and after a lot of crap, was able to have surgery. I am appalled at the healthcare in this country-truly. As some of the other ppl here, when I first found out, I had no ins, no $...and no one one wants to know you.…
-
Results of my CT Scan....
Hello, my name is Sherron. I was diagnosed with ovarian cancer Aug 08', had surgery the same month. Besides removing everything, they had to scrape my intestines to remove the little spots where it had burst. I went to chemo every 3 weeks for 6 hours. They decided to put in a stomach port and it got infected. It tunneled…
-
Ct scan results
Hi Ladies, My oncologist just called with good news, my CT scan didn't show any sign of my cancer, so I won't have to restart chemo this month. He said with my CA rising steadily, there is definitely something going on, but we'll keep checking it monthly, and we'll need to restart treatments at some point. He said that at…
-
Stage 4 survivor here.
How many others here? 13 years for me. So far so good.No recurrence to date. Be well, Jan in So. Calif.
-
To Hana7475...I know where your at
Hey Nancy! This is certainly a scary trip...no doubt about that. I found this site a few days after my first treatment & I come every day. They are pretty awesome in here! I was so apprehensive before my first treatment, but it wasn't as bad as I thought.(But then..whom of us envisioned putting toxins in our body anyway??)…
-
I think I've got a bowel obstruction ;-( What can I expect?
Hi I've got all the symptoms, and my nurse had me double-up on Milk of Magnesia + use fleet enemas. I can't keep anything down besides yogurt... yet an apple goes through me (can the apple get through if there's a blockage??) Anyway, it looks like I'm going into the hospital tomorrow if something doesn't change soon (I…
-
possible oc?
hi a little history about me. I had stage 0 bc in 95', this year had microscopic blood in my urine i pushed for more testing they found a forond had surgery to remove 6/09 ended up being a papilloma (not cancer)but before surgery had a ct scan with out contrast and they said was most likely a cyst based on my age 39 but…
-
Probly a stupid question....!
I am just wondering about the hair loss thing. I started my chemo on 7/8 and have had 2 treatments-the first was the Taxol/Carboplatin, then I just had the Taxol IV/Cisplatin IP last week- with the Taxol IP coming up on Tues. I started losing hair pretty good this past week, but in the last day or 2 it has been minimal. Am…
-
CA125 dropping
God's morning to you all! Just wanted to post a quick update that my ca125 has dropped on the abraxane. Biggest drop I've ever had. Figured it had to be better as the pressure in my abdomen hasn't been as bad and the incontinence has gotten a little better. Anyway Abraxane #3 was given yesterday and my Dr said we'd stay on…
-
Feeling Guilty for Being Optimistic - I think I'm crazy and it' only been a week.
Ok, I think I am crazy. What a week. First, I am terrified my mother is going to die; and now I am feeling totally optimistic. I read someone's post about abraxene (paxitacil) and that's what my mother is going to get. The oncologist said we were going for a cure. So I sit here tonight and think, "no problem". I'm out of…
-
CT Scans - Who is reading them?
I have a couple of questions I'd like to throw out and see if anyone knows the answers. How can a person know if a doctor has actually viewed a CT scan? A second question is what could be so special about a scan on disk that they can't be opened? I've been seeing a doctor for more than a year now, hand carrying scans that…
-
screening for recurrence
Hello Ladies, Now don't laugh at me, but I found out that my CA125 went from 5 to 6 this month. 'Keep in mind that my Doctor has pegged my baseline at five and feels single digits are my goal. Naturally the nurses said no big deal(have not seen doc yet) Even though it is a small rise and may be a fluke, I am concerned.…
-
To the point of tears today .....
after talking to my Gyno's office. I won't go over all my problems as I have outlined them on these boards before but suffice is to say I am still dealing with a long wait to get my cyst biopsied and on top of that am dealing with a very rude Gyno and nurse who makes you feel like you are bothering them when you dare to…
-
Help me with my Mom please
I am desperately sad. My mother, who i love dearly was diagnosed on Friday with Ovarian cancer. We don't know how far it has gone but we do know that there are two huge masses. She looked pregnant and has been feeling terrible. It is either stage 3 or 4. She is terrified and I can't blame her. I want to help her so have…
-
Just a Thank you to all...
I would just like to Thank all of you wonderful women for your words of encouragement & your straight up comments. It helps me a lot of days to just come in here & read. So much of this is scary, and its the unknown factor that is behind that. But, as my son points out to me ON A DAILY basis....there is no certainty in…
-
Update on Mom
Yesterday, my mom and her significant other came to visit me at my work in the mall! Thank goodness the mall customer service has wheelchairs for people :) I am still sick with a cold.. it is almost gone, but I put a mask on my face (thank goodness for working at a Japanese store!! MASKS!!) and washed my hands. I have hand…
-
Needle Biopsy
The procedure went smoothly and was hardly painful. Took about 30 min. but I was at the hospital for 6 hours with all of the intake, waiting, and recovery time. I will not get the lab results for a couple of days but did learn that the "mass" is solid and about 5 cm on the sigmoid colon. It was not there on May 15 CT scan…
-
Health care proposal
Hi ladies, I'm concerned about the new health care plan the White House is proposing, I assume that some of you are also concerned. I thought we might get some opinions here on the forum. My husband and I have Medicare as our primary insurance, and private ins. as our secondary. We're very content with the care we've…
-
Mood of the day: hopeful
You have all been soooo supportive and helpful that I wanted to update you on what's going on for me. I had my pre-op appointment with my gyn yesterday. It was very good to get to talk to her face to face. The ct scan looked good. Nothing going on with any of my other organs other then a huge collection of kidney stones…
-
How do you motivate yourself to get screened?
Hi everyone, I'm the daughter of an ovarian cancer survivor. I'm also writing a chapter for a website about ovarian cancer, and I'm looking for tips on how to motivate yourself to get screened, particularly if you have a genetic susceptibility or strong family history of cancer. Getting yourself out the door and to the…
-
Just wondering Topics.....
I have several issues that I've been wondering about lately. I'm on my 6th round of chemo now and my hair has begun to grow back. I shaved my head when hair started to fall out (during 2nd treatment) but it never seemed to stop growing totally. What I have now is very fine & grey. Also I have read that during treatment…
-
etoposide V-16
Well girls this is my next drug of choice. I took my first pill this morning, 2 pills a day for 20 days. Has anyone been on this chemo and can you tell me something about it? I would so appreciate all the insight you could give me. Thanks and God Bless, Jan
-
no insurance no chemo
Hi all, I am new here and fairly newly diagnosed. I have had a port implanted and one round of chemo with taxol and carboplatin. My first chemo was 28 days ago. I have been unable to get another appointment for chemo because I do not have any way to pay for the treatments. I do not have insurance or cash and am in the…
-
Skin
I have noticed that my mom's skin gets very dry easily. So after she gets out of the showers, I put lotion on her body, because it absorbs better into the skin. Is dry skin a side effect from the chemo? Also, my mom has lost around 60 pounds and she hates looking into the mirror at herself. Her skin is saggy and thats a…
-
Lauracec update
I knew Laura as we were both treated at Kaiser in Portland, Oregon. She is the one that told me about CSN. I received this e-mail from her husband and wish to share it with the board. I know she had lots of friends on the board. "I lost my wife, Laura Harkins, to ovarian cancer on June 14, 2009. Ovarian cancer is difficult…
-
CA125
First time posting....wanted feedback on others experiences with CA125s. My count has been going down slowly after starting chemo. Cisplatin/Taxal IV/IP. After completing round 4 my count was at 21. After completing round 5 it went up to 36.5. My Dr. doesn't want to change anything yet so I just got out of the hospital…
-
No real answer yet
After four days of leaving messages on an answering system and getting no reply I got hot today and finally got to talk to my gyn/onc nurse. She copped not plea as to why she was not returning my phone calls but did say their only records was a chest x=ray and not a CT scan. She obviously was looking at wrong records.…
-
Lyn...
I just noticed that you have fibromyalgia as well as the ovarian cancer. I was diagnosed with fibro in february and am on Savella (a very new med!) and flexeril(sp? I have generic of course). And was doing really well until three weeks ago. Then I started with this major exhaustion. Really it's beyond even what I've felt…
-
Questions about Neulastin vs. Neupogin
I haven't been posting too much lately because I've been pretty weak with anemia, for which I'm receiving Procrit injections. I haven't had too bad a reaction to the Procrit, just achiness that is relieved with Tylenol and occasionally Ibuprofen. My white count is also very low which lead to bronchitis, which I've also…
-
Good News
My mom went in for her 4th round of chemotherapy at the Seattle Cancer Care Alliance today. She called me while I was at work and told me the news. She wanted me to know. Her CA-125 went from around 600 to 288!! Does this mean that the cancer is dying? I know that the CA-125 is a tumor marker, but I just want to ask to…