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need a latino person ...expert in ovavian cancer for someone i met this weekend
this is Paula's letter to me...she is 39 single...she went to doc was told she had disease and woke up with complete hysterectomy....i think maybe a language barrier..cause we know we all sign for complete hystewrectomy...she is scared..has no clue where she stands and the doctor is telling her options and telling her to…
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IP Port
Hello Everyone. I am new to this world of cancer and these boards have really helped with great information and postive thoughts. I was dx in July of this year. I have had all the surgery (Stage IIIC) and getting ready for chemo. I am wondering who has had carboplatin via IP (6 rounds every three weeks) that can share…
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3rd. Annual Ovarian Cancer Survivors Celebration
Ladies, I hope you all have the opportunity to attend such an uplifting meeting as I did Monday. We had 2 hours of great uplifting hopeful speeches and a wonderful lunch. The main speaker way Fran Di Giacomo, arthor of " I'd Rather Do Chemo than Clean out the Garage: Choosing Laughter Over Tears" who is a survivor of…
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Crazy dripping sweating
Many of you already know that I have a cyst and node that was discovered by accident in Nov of last year and I have been struggling to get a biopsy. It's small anc the cyst is filled with clear liquid that my docs think is a good sign, the node however is solid. My question at this point is I am wondering if any of you…
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bleeding
Is it normal during/after chemotheraphy? I know that my mom is on blood thinners for a blood clot, but .. she's called her nurse at the Seattle Cancer Care Alliance about it and made an appointment for this coming Thursday. I was just wondering, do/did any of you ladies experience any bleeding?
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Recent study from Japan re: late stage ovarian cancer
I am trying to locate an article, supposedly came out in the last few days from Japan's Journal of Medicine or a similar agency. Heard it was in a Health Day or Health Care magazine but can't seem to find. If anyone knows of this information or source please share. Thanks.
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starting second round
Well my numbers have gone up more, from 11 in June, 20 July 27 and 112 in Aug. So the dr said am now stage IV as will be on and off chemo. Have a bulge on abdomen that is growing, a small spot deep in left pelvic area, a spot on liver an spot on lung. Said was a candidate for clinical study, so trying that. Will know on…
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Double post.........sorry
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HE4 test
Hi everyone! I was at my Gyn/Onc yesterday for a 4 month follow-up. I'm happy to report that my CA-125 is 5.5 after 2 years out of chemo. I feel very fortunate, but still waiting for that other shoe to drop, if you know what I mean. For my next blood test (in another 4 months), for the first time they will be doing an HE4…
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Is anyone from the Dallas/Ft Worth area?
The oncologist I have been referred to - actually he is an OB Gyn Oncologist - is named Mark Messing. He is with a big oncology practice called Texas Oncology. I was just wondering if anyone has heard of Dr Messing, what kind of rep does he have, etc? I'm sure he's a good doctor, and I may be totally jumping the gun here,…
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My wife Linda's counts: SFSG
After a brief (and admittedly small) rise in CA-125 from 8-9 to 25, my wife's "antenna" were up in August. You know how that goes. But her September counts came through at 17. So we're dealing with a hernia and such but so far no indication that the cancer is back. We'll keep praying that's the case and be thankful for the…
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I am new to OC and the forum
I was wondering if there is a way to message other members, and does my story sound remotely like anyone else's? I am 62 with no risk factors for ovarian cancer, other than my age. I had my uterus and cervix removed 30 years ago. Recently (approximately 2 wks) I developed some bothersome symptoms: pain in my midriff area,…
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doxil side affects
new to message board, 6 years with OC, stage IIIc , surgery twice, Taxol/Carbo twice, starting Doxil next week. Any info with the side effects of this chemo would be greatly helpful to me... Dr. says less invasive then Taxol with very few, if any, side effects, possible skin reactions but not always , but I am still…
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New user
Hello I am new to this site and not sure what to do Would like to learn how to use the chat room but can not access it Anybody have any recommendations? Are chats better than discussion boards or vice versa Sure would like to connect and make some friends
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3rd Recurrence
Scheduled for a PETCT tomorrow as CA 125 has risen to 121. This is the 3rd recurrence in 10 years. I am very anxious and going through lots of emtotions right now. Reading all of your notes and letters gives me strength that I am not going through this alone. Keep me in your prayers. Jean
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How much do you want to know?
My sister diagnosed with PPC on 8/10 and had surgery on 8/13. Since then, she had complication after complication and hospitalized still as of today. She hasn’t got any chance to read anything about her disease herself. So my question is, as family member, how much should I tell her? Do you want to know everything? Y
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Primary Peritoneal Cancer
Hello All, I am 54 yrs old and have been fighting PPC since June 2005. I have had 3, 10 month remissions. This is a very sneaky disease. It is always very advanced before it is detected. The symptoms are so subtle. I was very lucky I was diagnosed and had debulking surgery within a week. 3 weeks later after incision had…
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Finally Going to See Gyne/Oncologist next Tuesday - What to ask?
After a long battle trying to get in to see an oncologist before I am diagnosed yay or nay I am going in to see one next Tuesday. Many of you know my story of NHL diagnosed 20 years ago and only one recurrance 2 years later and NED since. Lots of side effects from treatments. Because of my medical history when they found a…
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disappearing complicated cyst
I was wondering if anyone had a complicated cyst(mine was 3 cm and had it for about 7 months)and had it disappear. I went for my 8 week ultrasound and was told it was not there anymore only thing they saw were a lot of cysts but that they looked just like cysts nothing to worry about.
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Does stage of disease effect reoccurence risk?
I was dx with stage IV sereous papillary ovarian Sept.08. I have had 5 rounds IV carbo/taxol IV and 3 rounds of cisplatin/taxol IP. I completed by chemo the end of April '09. I am 42yrs old with 2 young children. I am TERRIFIED of reoccurence. Does the stage of disease determine when a reoccurence will occur?
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My Mother is a 3-C, what does this mean?
It's been one week now and she starts chemo Thursday, She sees the surgeon Monday. They are waiting to do surgery until the chemo has been tried and they are hoping it will help to shrink the main tumor and some of the "stragglers" as I call them. The oncologist was wonderful. The nurse was great. I feel very good leaving…
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Probably a Dumb Question about Chemo
Ok folks, if the chemo is doing such a good job shrinking the tumors, why doesn't that cure the cancer? Does this question make sense? My mother's is shrinking too. So I think, great, just keep giving her the chemo and it will go away. What am I missing?
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Trying to get a grip....
Hi. I was diagnosed back in October of '07 with stage 4 ovarian cancer, already metastisized to my liver. At the time of diagnosis, my CA125 was nearly 23,000 (that's not a typo). They gave me six months to live. The good news is, I'm still here (hoo-ray). The bad news is, we may be running out of treatment options. Since…
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had my chemo
I got my chemo today. I saw the gyn/onc yesterday and he is dropping the Doxil for now and we will just go with the Carboplatin. My tumor has shrunk by physical, CA125 and no pain being the signs. He says that being down 10 days (first treatment) was too long and his goal is to keep the tumor at bay but not hurt my quality…
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9/11/2001
May God bless all the souls lost eight years ago on 9/11, and bless all their loved ones who must live every day without them. God keep our wonderful country safe from those who seek to do us harm. Jane
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Yesterday at ER
I had another attack yesterday AM, excruciating pain in the entire abdomen, NV, sweats. I went to the ER and had blood work and a CT scan done. The result is that it's my 2 hernias causing these attacks, one of them pops out next to the navel and is hard and the size of a golf ball. It takes time for it to reduce back to…
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Any words of encouragement from older OC survivors after a relapse?
My mother who is in her early 70’s had her operation for OC 2 years ago and began chemo soon after. She was doing very well and her CA125 went down to normal after a few months. She was getting stronger and even started playing tennis again. Then a year ago it came back and she started another chemo drug. Since the last 6…
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I'm making my will
Since my Mommy passed, I was suggested to do my own will to protect my children. I promised my lovely Mommy that I would take good care of what she left me and that all would be for her grandchildren... and at the end she nodded but said to me: "But remember you go first". I suppose her worrying about health issues and…
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Fascinating new (July 2009) study on Serous Ovarian Cancer!
This was posted on the Uterine Cancer Board, and so fascinating that I had to pass along the link to you all to check out, especially those of you with papillary serous ovarian cancer: http://www.associatedcontent.com/article/1994664/new_study_shows_fouryear_window_for.html?cat=5 The hope in this research lies in the…
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September Ovarian Cancer Awareness
Hello, just a friendly reminder it is again ovarian cancer awareness. Last week I wrote my letters to the Editors and the first newspaper already printed it. Remember by helping to raise awareness ~ it could save someone's life. Most local papers do have editorial or opinion sections you can send a letter to. Hugs ♥…