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Primary Peritoneal Cancer
Hello All, I am 54 yrs old and have been fighting PPC since June 2005. I have had 3, 10 month remissions. This is a very sneaky disease. It is always very advanced before it is detected. The symptoms are so subtle. I was very lucky I was diagnosed and had debulking surgery within a week. 3 weeks later after incision had…
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Finally Going to See Gyne/Oncologist next Tuesday - What to ask?
After a long battle trying to get in to see an oncologist before I am diagnosed yay or nay I am going in to see one next Tuesday. Many of you know my story of NHL diagnosed 20 years ago and only one recurrance 2 years later and NED since. Lots of side effects from treatments. Because of my medical history when they found a…
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disappearing complicated cyst
I was wondering if anyone had a complicated cyst(mine was 3 cm and had it for about 7 months)and had it disappear. I went for my 8 week ultrasound and was told it was not there anymore only thing they saw were a lot of cysts but that they looked just like cysts nothing to worry about.
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Does stage of disease effect reoccurence risk?
I was dx with stage IV sereous papillary ovarian Sept.08. I have had 5 rounds IV carbo/taxol IV and 3 rounds of cisplatin/taxol IP. I completed by chemo the end of April '09. I am 42yrs old with 2 young children. I am TERRIFIED of reoccurence. Does the stage of disease determine when a reoccurence will occur?
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My Mother is a 3-C, what does this mean?
It's been one week now and she starts chemo Thursday, She sees the surgeon Monday. They are waiting to do surgery until the chemo has been tried and they are hoping it will help to shrink the main tumor and some of the "stragglers" as I call them. The oncologist was wonderful. The nurse was great. I feel very good leaving…
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Probably a Dumb Question about Chemo
Ok folks, if the chemo is doing such a good job shrinking the tumors, why doesn't that cure the cancer? Does this question make sense? My mother's is shrinking too. So I think, great, just keep giving her the chemo and it will go away. What am I missing?
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Trying to get a grip....
Hi. I was diagnosed back in October of '07 with stage 4 ovarian cancer, already metastisized to my liver. At the time of diagnosis, my CA125 was nearly 23,000 (that's not a typo). They gave me six months to live. The good news is, I'm still here (hoo-ray). The bad news is, we may be running out of treatment options. Since…
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had my chemo
I got my chemo today. I saw the gyn/onc yesterday and he is dropping the Doxil for now and we will just go with the Carboplatin. My tumor has shrunk by physical, CA125 and no pain being the signs. He says that being down 10 days (first treatment) was too long and his goal is to keep the tumor at bay but not hurt my quality…
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9/11/2001
May God bless all the souls lost eight years ago on 9/11, and bless all their loved ones who must live every day without them. God keep our wonderful country safe from those who seek to do us harm. Jane
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Yesterday at ER
I had another attack yesterday AM, excruciating pain in the entire abdomen, NV, sweats. I went to the ER and had blood work and a CT scan done. The result is that it's my 2 hernias causing these attacks, one of them pops out next to the navel and is hard and the size of a golf ball. It takes time for it to reduce back to…
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Any words of encouragement from older OC survivors after a relapse?
My mother who is in her early 70’s had her operation for OC 2 years ago and began chemo soon after. She was doing very well and her CA125 went down to normal after a few months. She was getting stronger and even started playing tennis again. Then a year ago it came back and she started another chemo drug. Since the last 6…
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I'm making my will
Since my Mommy passed, I was suggested to do my own will to protect my children. I promised my lovely Mommy that I would take good care of what she left me and that all would be for her grandchildren... and at the end she nodded but said to me: "But remember you go first". I suppose her worrying about health issues and…
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Fascinating new (July 2009) study on Serous Ovarian Cancer!
This was posted on the Uterine Cancer Board, and so fascinating that I had to pass along the link to you all to check out, especially those of you with papillary serous ovarian cancer: http://www.associatedcontent.com/article/1994664/new_study_shows_fouryear_window_for.html?cat=5 The hope in this research lies in the…
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September Ovarian Cancer Awareness
Hello, just a friendly reminder it is again ovarian cancer awareness. Last week I wrote my letters to the Editors and the first newspaper already printed it. Remember by helping to raise awareness ~ it could save someone's life. Most local papers do have editorial or opinion sections you can send a letter to. Hugs ♥…
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Extreme vomiting
My mom is diagnosed with recurrent Uterine papillary serous carcinoma, which is similar histology to the ovarian cancer. Her cancer now spreads to her abdomen and she is on Doxil chemo. She had only one treatment. But the consistent vomiting started 5 days after the chemo and has not stopped yet. She is in the hospital…
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Doctor puzzled about high WBC, any suggestion?
My sister had total hysterectomy on 8/13. And she is hospitalized since 8/28 because of small intesine blockage. She had high white blood cell count, but no fever and vital signs are normal. Doctors do not know why and where is wrong. Yesterday, they found an air pocket in her abdominal area, the radioalist suspect the…
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Thank you all
Thank you for your kind and comforting words. As you say only time will help. We have decided to move next month. Any tips for living in Florida?? I hope this will help us all to change our environment and maybe help me a little bit. Many prayers for you all. Liz
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Translation
Hi Everyone, I went online to translate some of the arabic replys. It seems to be about a game site, girl photos and chat rooms. Just thought I'd give everyone a heads up. Hope everybody has a great weekend! Kathryn
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No chemo today
I didn't get my chemo today, rescheduled for next week. My oncologist said my blood was barely OK and he does not want to knock be down too hard because of the diverticulitis complication. He did schedule an echocardiogram for tomorrow. My CA125 did go from 434 to 288 since the last chemo so it did knock it back. He wants…
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Picture of Mom with wig and new hat and me...
Hi Everyone. I just got back from NY where Mom had her second chemo and is in remarkable spirits. We took a picture for the website. She is in her new wig and summer hat. My sister also purchased a winter hat as well. Her 3rd chemo is in 2 weeks and then CT scan. We hope the chemo will have shrunk the tumors and stragglers…
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Libby's update
Had my checkup yesterday. CA125 has gone from 199.8 to 36.3 after two complete cycles (1a&b and 2a&b). Praising the Lord that chemo (gemzar/cisp) is working this second time around too. Ill defined mass on left side (rectosigmoid junction) is somewhat smaller by physical exam. White counts staying up due to Neulasta…
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Good News
Hi, I just want to share my good news. I have had 4 treatments of carbo/taxotere, after having 8 treatments of the same back in 2007 and a 15-month remission. My CA125 is down to 22. My gyn-onc says he expects me to go back into remission! I will have two more treatments and then a CT scan at the end of October to confirm…
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Date for surgery
Hello to all! I have a date with the oncologist now - September 14th. He said there is a 20-30% chance I may have a temporary colostomy when it's done, because the tumor is close to my colon. He did say the CT/Pet scans were clear in all other areas, and I am grateful for that! I've already made a post-surgical appointment…
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2nd Pelvic Ultrasound is in
Just heard today that the cyst has grown a little in just under 2 months but only by 2 or 3 mms each side. The mural node is unchanged at 1 cm. which my doc is happy with as it is the node that she worries about the most. Still I know that a cyst can be cancerous too so suffice is to say I am not relieved by this report…
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Bluerose, any news?
Hey Blue, do you have any news to share yet...thinking of you and wishing you well...Cindy
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Brenner Tumor
Can anyone give me some information on a malignant Brenner Tumor? I would like to find someone who has been diagnosed with this type of tumor.
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Update on Linda
Rather than bits and pieces on posts, thought I'd just a few things about my wife LInda. In early August her counts rose ever so slightly from 6-8 to 21. She grew worried of course, but the next test showed a 25, not a significant rise or an indicator that we're facing more cancer as yet. Last time her counts went from 8…
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Could it be cancer?????
Hi all! For the last few years I have had severe bone and muscle pain and have worried what if it is some sort of cancer. Also, I have had so many female problems- heavy periods, sometimes months at a time of bleeding, pain, etc. My mom was diagnosed with breast cancer last year. That prompted me to make a few appointments…
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my next step
I just got my CA125 (75 up from 18 in June) and PET/CT back. Still some pesky stuff lurking after 6 cycles of the cis/gem. Anyway, after a 3 month break, I will start the doxil September 3rd. Gotta go back and read up on all the stuff I need to prepare.... kathleen:)
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They are taking everything out of me..in 2 weeks...
Well, what a learning experience today. My Ob/GYN and GP both met with me and have informed me that due to the strong genetic link in my family, they intend to remove ovaries, tubes, uterus etc. They had already set up an appointment with the surgeon (head of gynecology). Anyway, they said that they are finding more and…