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TOTAL SHOCK
I posted earlier today about my abdominal discomfort, well I got to see my G.I. doctor,asked him if he had received a copy of my CT scan report,he started to read it out loud. No findings to suggest recurrent disease or metastases. Then something I was not told a 2cm hyperdense mass within the anterior cortex of the upper…
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14 year,stage 4 survivor
Hi ladies! I found this bit of happy news on the Inspire discussion board! "What do you mean by long-time survivor? I am a 14 year ovarian, stage 4 survivor, and yes, I do take supplements and have since my initial surgery. I feel as if they are an important part of keeping my immune system built up so IT can control the…
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Abnominal discomfort
I finished my chemo Feb25th 6 rounds carbo taxol, Cat scan Ned April 8th CA125 9.2. I am still getting a lot of abdominal discomfort not sharp pains sorenes and stomache ache and a bit of bloating. I have been trying new foods and spices in my diet and drinking more organic fruit juice. I also have gas not as bad as after…
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OMG ca 125 4000
My check up the 9th of June after being off for 5 months. I am just Floored. I went in for a ct scan the 14th and haven't heard back yet. I am calling tomorrow. This is my 4th recurrence I believe....at this point I don't know anything about anything--just a fog. Anybody have these high of numbers with a recurrence?
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Nervous about possible breast cancer
Hi, I first want to thank you all for helping me understand what goes along with ovarian cancer. I was diagnosed a little over 2 years ago with stage 3. I had debulking, hysterectomy, etc., and have been doing fine. My dr. who I love, has had to change my chemo's several times as I've have become allergic to them one by…
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CA-125 rise drastically
Hello I'm a victim of OVC I was found - I have this beast last year Sep 2009 When I landed at EMR - over there I was disclosed I have this - OVC Did - 1rounds of Carbo/Taxol 2 rounds of Abraxane with Taxol Surgery - removed all overies, FT and UTS last 2 rounds of Carbo/Taxol Surgery was done on Jan 2010. Last chemo was…
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Update
Just letting you teal warriors know. I did have my blood work this morning. My white, hemo, hema, platelets are back to normal. Red cell count 3.77. Been off 2 months without chemo and shots. But my CA 125 is up to 214. Had been normal for 3 months during my treatment. Going to The James Center in Columbus for second…
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Sanam This is for you
Hi Sanam, When your mother digonised with ovca.what grade and stage she have and what type. Please write her pathology report here so someone can help me. I am asian guy.but my mother had uterine cancer so everyone helps each other like family. write down her report. Thanks Kumar
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Great news
HI everyone, I got some great news today from my doctor. I got results from my CA125 and it had gone down another 40 points. Not only am I rejoicing, but relieved that I am doing the right thing by taking a short chemo break. It feels so good to get good news for a change! The CA125 has consistently gone down since adding…
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allergic reaction to carbo
Bummer for me. I went for my infusion of Gem/Carbo and developed a red rash on my face, back, stomach, chest and arms. It started about 3/4 through the infusion of the carbo. Looks like all platinum based meds are out for me now. Onc and gyn onc will decide if just do Gemzar alone or move on to something. I really don't…
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Any gardeners out there?
Some of you may have read my 'seed box' story on one of my posts. The circle of life and death in a garden allows you to see how natural and inevitable death is for EVERY living thing, not just for us with cancer, but for all of God's living creations. As a life-long organic gardener, I gather the seeds of my plants each…
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my mama went to be with jesus
Hi ladies. Just wanted to let you know that my dear mom went home to be with Jesus Sunday night. I was there in the E.R. holding her hand 15 months ago when we found out about her stage 4 ovca- and I was there with her holding her hand Sunday night when her last breath left her body. She fought hard even to her last…
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Need advise for stage IV recurrence treatment
Hi, I am new to this site and I need advise ASAP. I was diagnosed and had surgergy for stage IV ovarian cancer in late Oct. 2008. I had 6 rounds of carbo and taxol and then 12 more rounds of continuation treatments of taxol. My CA 125 never dropped below 50 but my CT scans were NED and I did great with chemo except of very…
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I'm back
Had my first dose of cistoplatin and gemzar Thursday and two blood transfusions and then they set me free to come home after nine days. So far, just extreme fatique and sleep a lot as to the side effects. Both the gyn/onc and colon surgeon said the further surgery was not an option. All of our kids are coming the 8th of…
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how slowly does doxil work?
My mom is on Doxil for her 1st recurrance of PPC. Her CA125 was up to 3800 just 3 months after her original chemo. After 2 doxils her number was 3200 and after 3 doxils her CA was 2500. She completed her 4th doxil a week ago and has not had the CA rechecked since then. Her oncologist is sending her to a gyno-oncologist…
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Tired? Maybe it's not just the chemo
When I went for my monthly dose of Taxol this week, I mentioned (again) how tired I am. My doctor, who was pretty cavalier about it last month (he said, "It's probably just because we're trying to poison you."), suggested I might consider stopping the Taxol maintenance. I was speechless! (A rare occurrence.) So the next…
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They say I am in remission..so why don't I feel better...?
Has anyone else experienced this? I was dx with stage 3 OV cancer last May. I have gone thru Taxol/Cisplatin IP, then Gemzar/Cisplatin- finished last of treatments May 13th. I have had my scans- and have NED, but he wants me to do maintencnce because it took so long to bring my CA125 down(now @ 17-started at 1000). For the…
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White spots
I have a weird question.............well maybe its not weird but not overly serious. I am now 10 weeks post chemo and I keep getting "white pimple spots" on my face. It isn't acne - I've never had acne. I was just wondering if any one else has experienced this? I am thinking it is the toxins of the chemo coming out of my…
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My surgery is tomorrow
and I am feeling pretty calm. I just drank the laxative and I am having only clear liquids today. I hope and pray my surgery will be successful in removing all (i can dream) the cancer from my body. I want to wake up from this nightmare. I will have quite a possee at the hospital tomorrow. My son, mom, my cousin who is…
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Going back into chemo Monday after 4 1/2 month break. Feel down.
I saw my chemo-oncologist this morning and it looks like I'm starting back on weekly taxol chemotherapy on Monday. We talked about the option of staying out of treatment for the summer and keeping a close watch on my CA-125 and doing another CT/PET if it rises sharply or if I have any physical symptoms. And we talked about…
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Looking for support
My name is Jacquie and I'm not sure how to use this site exactly. I'm in search of finding a network of others out there caring for their Mom's and going through this journey with them. I find it difficult at times to always keep up the positiveness. Sometimes, I just want to let myself be mad, because I'm so tired of this…
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CUREOVCA vanity plates
I just ordered vanity plates for my car that reads CUREOVCA. Looking for ideas for two other vehicles. STOPOVCA?
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PPC & Me
I am a 44yr old woman from Southern NJ. I would just like a minute to tell my story. For a few months I had been feeling bloated and felt pulling on my side. I finally went to my GYN to have him see what was wrong. After an ultrasound, he told me that I had a growth on my uterus. There were 2 decisions that I could have…
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Before you decide....Taxol
Did you know that Taxol belongs to a class of chemotherapy drugs called plant alkaloids. Plant alkaloids are made from plants. The vinca alkaloids are made from the periwinkle plant (catharanthus rosea). The taxanes are made from the bark of the Pacific Yew tree (taxus). The vinca alkaloids and taxanes are also known as…
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Would you like Prozac with that?
This is from 2009, so just humor me if this is old news to the rest of you. Do any of you on Doxil also take Prozac? Is there merit to this (see cut-and-paste below): Dr. Dan Peer of the Department of Cell Research and Immunology at Tel Aviv University is reporting that combining Prozac with doxorubicin increases the…
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Saundra
Hello ladies It has been a while since Joe's last update . I wonder if anybody has any update. thanks
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I HAVE A FRIEND WHO HAS PERITONEAL CARCINOMATOSIS STAGE IV
Hello to all the ladies who has peritoneal cancer. About January 2010 I met a friend who was in denial that she had this deadly cancer. Initially she thought she had ovarian stage IV cancer. Her numbers (ca-125) were 14,000 and she claimed that taking alkaline supplements brought her numbers down to 7. She refused her…
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indecision
I saw my oncologist last week and she said the Avastin is slowly shrinking the tumor but she doesn't think it will completely shrink it. She said the only chance I have of being cancer free is another surgery--a colostomy which would likely be permenant(this is due to the tumor location). And of course the cancer could…
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Favorite sayings
I love this saying "YOU NEVER KNOW HOW STRONG YOU ARE UNTIL BEING STRONG IS THE ONLY CHOICE YOU HAVE" I wondered if anyone had any they liked??? I truly hung on with dear life to "Cancer sucks" cuz it does.
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Writing a book on my experience
Going to write a book on my experience, Will title it "Hope for tomorrow"