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I really need your help!
My name is Melanie and I just found this board today. I've been looking for something like this for almost 3 years, never thought to look here! That's chemo brain for you! I am stage IV teal warrior. As I have read through your stories I see a piece of me in each of you and I feel like I've known you all forever. I just…
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Linda Dorion
I got a message from Dorion (Linda) via Face Book. She was in the hospital all last week, having fluid (2 1/2 liters) drained off her abdomen. She is suffering from extreme fatigue. Linda....if you see this, we are all praying our hearts out for you and Meghan. Carlene
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New research: AVASTIN added to chemo increases progression-free survival in OVC
This just came out yesterday: Bevacizumab (AVASTIN) Added to Chemotherapy Increases PFS in Ovarian, Related Cancers Elsevier Global Medical News. 2010 Jun 7, N Osterweil CHICAGO (EGMN) - Progression-free survival in women with advanced ovarian or related female reproductive tract cancers was increased by nearly 4 months…
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third Alimpta down, count coming down
Here is an update on how things are going with me. It's been awhile since writing but that's sort of good as nicer weather helps me get out and do some more in yard. I've had my third treatment on Alimpta. So far it's been bringing down the count, slowly. Started at 525, last one came in at 427. So far sides not too bad,…
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cruise/vacation
I booked a cruise for June 27th. I am a bit fearful I may get 'sick' or have a bowel event on this trip. If I were on land and in the US I'd feel a bit at ease. I know a few of the ladies have recently been cruising and on vacation. How did you handle your fear of getting sick? What did your doctor say? Where were you in…
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Mom is Terrified - This is a hard trip
Hi All, By the time you read this, my sister, mother and I will probably be driving into NYC to meet with my mother's gyn/onc for the results of her PET scan. She is terrified....She is convinced that the "suspicious spots" are recurrance... She doesn't want to be in a trial...doesn't want any more chemo as it was so awful…
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I have had a lovely day today
Thought I'd drop by and tell you all about my lovely day. I had money as gifts for my 50th birthday in March and I have been waiting and waiting to get the all clear from my oncologist before I could spend it. My plan was to have a pamper day at a "Day Spa" but I couldn't go whilst I was on chemo. So, I am now 9 weeks post…
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Doxil out
Hi Everyone, Spent a night in the hospital with severe pain after trying to eat lunch. The cancer has spread to an area on my left side and if I eat or drink too fast it causes the cancer cells to press on the abdomenor vice versa. I was told by the ER Dr that I could stay in the hospital where they could make me…
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Chemo #5 and CA125 Results
Chemo #5 today, uneventful BUT, I had my CA125 drawn! Before Surgery, almost 10,000 After Surgery, 7500 After 2 chemos, 86 After 4 chemos, drum roll please.........16!!!!!!!!! If I weren't currently fighting the Benedryl coma drip, I'd do a happy dance! HUGS! Leesa
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The 2010 ASCO Conference and Avastin clinical trial results
Yesterday, Genentech announced results from a Phase III study of Avastin (bevacizumab) that showed women with previously untreated advanced ovarian cancer who received Avastin in combination with chemotherapy, followed by the continuation of Avastin alone, had a 39 percent improvement in the likelihood of living longer…
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Chris McG?
Anyone hear from Chris lately as to how things are going the last few days? If you are around Chris- I am thinking of you and your mom..... HUGS- and prayers... Michele
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Finally beginning to understand the Avastin/No Avastin Issue
I belong to two local support groups, and of course many of the same people are in both. One member, whom I have never met, recently posted that she was going to Illinois (we live in Texas) so she could get Avastin. That made no sense to me, so today I asked some of the other ladies and this is what I found out: Medicare…
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National Cancer Survivor Day
Hello Everyone, today I went to National Cancer Survivor Day at Mercy Hospital in Baltimore. There were many inspiring stories from ovarian cancer survivor's. All stages. There were tons of survivor's. There were stage 2,3, and 4's. They have been okay for years. I was so inspired and moved. Mercy Hospital is a Catholic…
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extreme numbmess in feet by Gemzar/campto
Hello ladies My Mom had extreme numbness in her feet tonight.The side effects of this regimen looks like more than what we expect as her oncologist reassured us that the side effects would be less than Carbo/taxol. She looked so frustrated and discouraged tonight and I am really sad.Is there anything to help this extrem…
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high pulse with first chemo
My mother had her first chemo treatment on Tuesday. She has a power port which is completely under the skin, which is great. She had the combo of carbo/taxo...that may not be completely spelled right,but I am sure you all know what I mean. Anyway, she has been having very high pulse rates since her treatment around 108 to…
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port bleeding
As I already posted, my mom had her port inserted today. Bleeding is an issue with her because of her medications. It has blead through a thick bandage in about 5 hours. The nurse said to call the doctor if she had "excessive bleeding" - well, whats excessive? I have changed the bandage, and if it continues to bleed over…
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White count finally coming up some
my white count finally came up some it went from 0.7 to 0.9, this is still low, but I just know God can bring it all back to normal.
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I AM OFFICIALLY CANCER FREE
JUST GOT THE NEWS I AM OFFICIALLY DANCING WITH NED I AM SO RELIEVED AND HAPPY AND GIVE GOD ALL THE GLORY
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Radiation
Hello everybody My Mom's surgeon asked for radiation therapy in her pelvic area. she is already on Gemzar/Campto after her surgery which was 1 month ago. Do you have any experience with radiaition? what are the side effects?How many sessions it might be? How effective it is and so on. Thanks
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In case I go missing.......
I put my contact info in my profile, so if I go missing and you guys are wondering what happened, you can at least email me. Maybe we could nominate someone to receive and store email addresses and/or phone numbers to be used in case one of us is MIA. I know I don't want anyone to worry that I have died when, in fact, I'm…
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Blood Donors
After reading Bonnie's post about blood donors AND Leesa's post about getting the message out: I posted on my facebook wall: All that are able: PLEASE donate blood. It is so important to many sick people. Pass the word! If you have a facebook perhaps you would consider posting something. Maybe your friends and their…
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Getting the message out
Visit our facebook page and add your thoughts and ideas to this discussion: (I had lots of time to think today, it was a chemo day!) Don't worry about hurting my feelings if you have other ideas, the more ideas we have, the more likely someone is to execute one of them!…
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Results...not so good
Well, I should trust my mother's intuition. Spots everywhere....no symptoms yet....she feels great. No treatment as of now...I loved the gyn/onc's approach...very gentle and supportive. We go back in 6 weeks. When I went to her office and saw the PET scan....the doctor did say this was normal ovca..does anyone else have a…
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Bone Marrow Biopsy
God's morning to all! Haven't updated for awhile so thought I would post a little bit this morning. Tomorrow is the bone marrow biopsy to see what is going on, my daughter Lynn is going with me as I need a driver. I got the Hemo/Oncologist's notes and labs results in the mail on Saturday and they are thinking that I now…
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A couple more "happy stories"
More happy stories.....all true and all recently posted: I was diagnosed IIIC in May, 1987. A friend of mine was diagnosed in the fall of 1985 or 1986. She recurred after 14 years but after treatment for the recurrence she has been fine. I recurred in 1993 but I have needed no treatment since March 1994. I was relieved…
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CA-125
I have a question. My Mom was diagnosed in February with stage 3a ovarian cancer. Her ca-125 was 3250. After her surgery, and they said they got it all, but before her first treatment her ca-125 was 24. After 2 treatments it was down to 12.7, well she went back today for her 4th treatment and the Dr changed her chemo meds,…
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my mom in indiana tribute and thanks
Hello all you wonderful people Thanks for helping at our time of need. As I've said before what comes around goes around. My mom entered eternal life Wed at 4:09pm with her family by her side. She fought hard but the treatment was too late. She is peaceful and was at the end. Again lets all keep fighting to end this…
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update on my treatment etc
Well I had chemo and another scan yesturday and my catscan showed I am stable, that is great but I am beginning to wonder if I will ever go into remission again?! My doctor is so busy I never really get to talk with him only the nurses so I emailed him in hopes of getting answers about future treatments and other things! I…
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Too scared to be happy
I just wondered if anyone ever felt the anti-climax I am feeling after receiving positve news from the hospital. My oncologist (himself) phoned me the other day to offer good news that my CT scan was positive and there is No Evidence of Disease on any of my major oragns or lymph nodes. This is a really positive outcome for…
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My mom was just DX not long ago- I love her so much
She is 65. Just wanted to say you are all strong women and you are all also in my prayers. God Bless you - and you will beat this as I know mom will. She has a wonderful ocologist/gynecologist. This hit our family like a ton of bricks. She is still, as always- incredibly positive and never complains. Had her first round of…