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Ringing the bell
My Mom was diagnosed with stage 3a ovarian cancer in February of this year. She had surgery at the end of Feb and the Dr's said they got all of the cancer. She finished her last, 6th, treatment today. My sis just sent me a pic of her "ringing the bell" before she left MD Anderson. She does go back in a month to have her…
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My little alien....
Saw my gyn/oncologist and got my (I think) number 5 maintenance (aka consolidation) chemo. I introduced him to my little alien - the abdominal hernia that was recently diagnosed by my PCP. My PCP referred me to a surgeon - a referral I ignored until I could ask my oncologist if I could have the surgery without interrupting…
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Support NOCC and maybe President Obama, A. Jolie, others will eventually notice
I've read several of the statements about celebrities and their link to our cancer and unfortunately what seems to be a lack of involvement. Obviously we can't connect to those people personally but we can help suppport NOCC. If you go to the website you can find out how to contact your state rep/senators to help pass…
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MSFANCIFUL and any others who wouldn't mind sharing their docs' plans for their cancer
Hi everyone. It's been a while since I've been on this site. I'm here for my sister who was dx Stage III in April 2008. She's currently undergoing her third type of chemo--Doxil this time since January. Up until April it was really working for her. Then her CA-125 only went down 7 pts, in May they went up 36 pts. I was…
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CT Scan
I saw my oncologist today and asked when I would be getting a CT scan done... She said they are typically done one year after finishing chemo (unless there are symptoms or a rise in CA 125). Has anyone had them done sooner than one year? I know the exposure to radiation is not good, but I would feel so much better having a…
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anxiety
Linda Dorian's passing really has sent me into an emotional tailspin. I am so scared. I feel like nobody in my family understands. Family get to go on with their normal lives while I am stuck in my nightmare. I've been on chemo since January and nothing has made my cancer regress. I've only more advancement. My ca125 in…
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Happy dancing all over the place
I had a colonoscopy today and they found nary a thing - not even a polyp. This is the first one I have ever had that I did not have multiple polyps. Yay me! My gastro doc, whom I have known for 20 years, said, "Come back in five years and don't be late. I don't want you making me think the worst." And even…
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Chemo curl is here !
I finished chemo in January of this year...my hair started growing back in March. At first it was very straight (which is how my hair has been all my life), but in May it started getting very curly ! People keep asking me if I've gotten a perm ! too funny. I've read about chemo curl but wasn't sure if it was real or a…
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Unable to have surgery...
My wife and I are new to this site but found it VERY insperational and helpful. We have a "bizarre" situation (so say the docs). My mother-in-law, Vicki, was diagnosed with Stage 4 ovarion cancer in February. She had 4 round of chemo since and just recently had to stop it - the cancer spread "officially" into the lining of…
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Prayers for Angela
Thank-you so much for all the prayers. We can tell that we are all being lifted up by prayer. Today Anglea sayed, as she spoke contected to all kinds of tube, that when she gets out, she wants a really big birthday party. I believe she is going to get it. Praise God
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DEAREST MEGHAN
I am so, so sorry to hear that your mother has passed away. We shared many personal emails and developed quite a friendship across the miles. Not to mention her wonderful posts here, and how many lives she has touched. I wish I could ease your pain, and be there to help you cope during this difficult time. I am glad to…
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Angelina Jolie, where are you?
I read in this morning's Parade magazine that Angelina Jolie's mother, Marcheline Bertrand, died of Ovarian Cancer at age 56. The superstar was very close to her mom, so I am a bit dismayed that she has not lent the weight of her fame to raising money and awareness for this terrible disease. I have read, of course, of…
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Healthy Breasts!!
Thought I'd change my profile picture as after 3 months post chemo my hair is growing back nicely and reflects my life at the moment. I have just had a lovely holiday in the Canary Islands (Fuerteventura) and was unable to resit getting a sun tan. I know I was supposed to wear SPF 50 but I couldn't help myself and used SPF…
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CA-125 stalled?
Mom had 3 carbo/taxil treatments and they did a cat scan and physical exam and determined tumor had not shrunk enough for surgery. Now she's had another 3 chemos (3rd one today). CA-125 went from 700 down to around 150 quickly, but now the trend has really slowed down (127, 116, 114). In two weeks she is due for another…
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My book is finished and backa from printers
My book about my cancer is back from printer's today, book is titled :Hope for Tomorrow", it turned out very nice I think
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29 years old with stage 3c of ovarian cancer
Hi all, I need some place to talk. This has been a rough year. I have stage 3c ovarian cancer and I am 29 years old. Last July I was diagnosis and ended up having a full hysterectomy when my debulking surgery took place. I am on my 4th cycle of chemo Cysplatin via IP and Taxol via IV. I have 2 more cycles left. Some reason…
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up date on Angela
Angela got throught the surgery. They removed all the cancer they found, they beleive they got it all! Had to remove her spleen. Level 3c cancer. She is in recover now. PRAISE GOD, they got it all! I am claiming VICTORY! Please continue to pray for her recovery. Linda
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The Immortal Life of Henrietta Lacks
I am reading this book now and it is fascinating. Briefly, the cells from Henrietta Lacks cancerous cervix in the early 1950's are alive and well today, having beneffited millions of people, especially my generation, as they were used to perfect the polio vaccine. The cells were the backbone of virtually all cancer…
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Sister gets scan tomorrow
Darlene gets a mri tomorrow, the insurance would not pay for pet scan so this is what she gets, they are looking to see if it had gone to her brain, please all prayer warriors, pray for her that she will be healed like I was, and that it has not gone anywhere else, especially to the brain thanks in advance for the prayers
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Doxil skin
Hi everyone. I've had 2 rounds of doxil and I'm dealing with extreme dry skin. I've discovered a great product and wanted to share with you all. Corn Huskers Lotion!! It's oil free and it works wonderfully for me. I still use aquaphor at night, but the Corn Huskers Lotion is my new go-to day lotion!! Blessings, Natalie
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Borderline Ovarian Cancer... is it cancer?
Okay guys im so confused. My obgyn told me she found a tumor while doing surgery for endometriosis, it came back as borderline ovarian cancer. I am now going to a gyno onco but the first one i went to was a prick and made not time for me so i am changing to make a long story short. he told me nothing except spots were…
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Ovarian Cancer Research News..
Study finds EPB41L3 'protector gene' inactivated in 65% of ovarian cancers If they turn it on...cancer cells self destruct! Hurry up with the clinical trials baby! http://www.news-medical.net/news/20100703/Study-finds-EPB41L3-protector-gene-inactivated-in-6525-of-ovarian-cancers.aspx
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avastin
In light of my allergic reaction to carbo, my onoclogist is now considering adding Avastin to the Gemzar. I'm wondering what monitoring is done while on Avastin. Given my history of bowel obstruction and temporary illeostomy I am nervous of the risk of bowel perforation. Is monitoring done? Thanks for any information.
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Elbow joints ache
Has anyone else had this after chemo is finished? At first it was only my left elbow, and now it is both. I only notice it in the evening when I am relaxing, and so forget to ask my doctor about it. I just assume that achey joints are par for the course when you have had 26 doses of toxins pumped into you, and am thankful…
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PARP Trial for NON BRCA women and C-Diff
Hi All, It's been awhile. I've had a rough few weeks. It seems that I have something called C-Diff. It's a bacteria one picks up in hospitals and trust me it makes you very sick. I am going to need a procedure that I don't want to describe. Anyway, I wonder where I picked up this bug? Hmmmmmm what hospital have I been in?…
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Just a little scared.
Hey, So it's Meghan. It's about 2 AM and i was thinking about my mom, How she seems to be...I don't know...Giving up? See, She used to have good days, and bad days. Now she has bad days, and worse days. Whats also been on my mind is the fact that she is hiding things from me. About 2 weeks ago, at a lobster fest i was with…
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Wow, I'm taken back
First I have to say it again I am truely taken back by all the support and love on this site. I have been a nurse for 20 years and involved with RFL and The Breast Cancer 3-day for several years. Now instead of sending one of my patients home or to another hospital with cancer I have to deal with it hands on with my…
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Should I be worried???
Hi Has anyone had a metastatic inguinal lymph node? Yesterday my doctor confirmed that I my right node has metastasied caused from PPC. Will be having a CT scan on Tuesday and hopefully see an oncologist on Wednesday (both my gyn/onc and oncologist are on holidays). I had surgery in October 2008 for Primary Peritoneal and…
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survival
My sweet, beautiful daughter has been told by the cancer specialst that her scan looks like cancer. There were masses aon both her overies, and all over her abdomnal area and a large mass by her colon. If it is cancer it is at least level III. She is having cancer surgery this Thursday, July 8th, which also happens to be…
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Latest Update - Libby
Wow! Hot day here in St. Clairsville, Ohio. Enjoying that beautiful sunshine and all that goes with it. 28 of us here for cookout yesterday with corn hole and hillbilly golf. Great day of celebrating our freedom with family, food and fellowship! After 1 week at Outer Banks with kids and grandkids (another on the way),…