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They say I am in remission..so why don't I feel better...?
Has anyone else experienced this? I was dx with stage 3 OV cancer last May. I have gone thru Taxol/Cisplatin IP, then Gemzar/Cisplatin- finished last of treatments May 13th. I have had my scans- and have NED, but he wants me to do maintencnce because it took so long to bring my CA125 down(now @ 17-started at 1000). For the…
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White spots
I have a weird question.............well maybe its not weird but not overly serious. I am now 10 weeks post chemo and I keep getting "white pimple spots" on my face. It isn't acne - I've never had acne. I was just wondering if any one else has experienced this? I am thinking it is the toxins of the chemo coming out of my…
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My surgery is tomorrow
and I am feeling pretty calm. I just drank the laxative and I am having only clear liquids today. I hope and pray my surgery will be successful in removing all (i can dream) the cancer from my body. I want to wake up from this nightmare. I will have quite a possee at the hospital tomorrow. My son, mom, my cousin who is…
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Going back into chemo Monday after 4 1/2 month break. Feel down.
I saw my chemo-oncologist this morning and it looks like I'm starting back on weekly taxol chemotherapy on Monday. We talked about the option of staying out of treatment for the summer and keeping a close watch on my CA-125 and doing another CT/PET if it rises sharply or if I have any physical symptoms. And we talked about…
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Looking for support
My name is Jacquie and I'm not sure how to use this site exactly. I'm in search of finding a network of others out there caring for their Mom's and going through this journey with them. I find it difficult at times to always keep up the positiveness. Sometimes, I just want to let myself be mad, because I'm so tired of this…
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CUREOVCA vanity plates
I just ordered vanity plates for my car that reads CUREOVCA. Looking for ideas for two other vehicles. STOPOVCA?
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PPC & Me
I am a 44yr old woman from Southern NJ. I would just like a minute to tell my story. For a few months I had been feeling bloated and felt pulling on my side. I finally went to my GYN to have him see what was wrong. After an ultrasound, he told me that I had a growth on my uterus. There were 2 decisions that I could have…
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Before you decide....Taxol
Did you know that Taxol belongs to a class of chemotherapy drugs called plant alkaloids. Plant alkaloids are made from plants. The vinca alkaloids are made from the periwinkle plant (catharanthus rosea). The taxanes are made from the bark of the Pacific Yew tree (taxus). The vinca alkaloids and taxanes are also known as…
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Would you like Prozac with that?
This is from 2009, so just humor me if this is old news to the rest of you. Do any of you on Doxil also take Prozac? Is there merit to this (see cut-and-paste below): Dr. Dan Peer of the Department of Cell Research and Immunology at Tel Aviv University is reporting that combining Prozac with doxorubicin increases the…
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Saundra
Hello ladies It has been a while since Joe's last update . I wonder if anybody has any update. thanks
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I HAVE A FRIEND WHO HAS PERITONEAL CARCINOMATOSIS STAGE IV
Hello to all the ladies who has peritoneal cancer. About January 2010 I met a friend who was in denial that she had this deadly cancer. Initially she thought she had ovarian stage IV cancer. Her numbers (ca-125) were 14,000 and she claimed that taking alkaline supplements brought her numbers down to 7. She refused her…
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indecision
I saw my oncologist last week and she said the Avastin is slowly shrinking the tumor but she doesn't think it will completely shrink it. She said the only chance I have of being cancer free is another surgery--a colostomy which would likely be permenant(this is due to the tumor location). And of course the cancer could…
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Favorite sayings
I love this saying "YOU NEVER KNOW HOW STRONG YOU ARE UNTIL BEING STRONG IS THE ONLY CHOICE YOU HAVE" I wondered if anyone had any they liked??? I truly hung on with dear life to "Cancer sucks" cuz it does.
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Writing a book on my experience
Going to write a book on my experience, Will title it "Hope for tomorrow"
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Ladyjogger
Just wondering if anyone has heard from Terry lately? Last she posted she had radiation. She used to post regularly and was an encouragement to me several times. kathleen:)
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how safe are ct scans
I have had 12- 13 ct scans of abdomen and chest. Am i at great risk for lymphoma, chest and othe cancer now
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Stage 4 feel good story
Here's another inspiring story from the Inspire message boards. I was diagnosed in 2004, (stage 4) treated and had a three year remission. In 2008, my Ca 125 went from 7 to 48 in three months time. A week later it was 62 and a week after that it was 82. The ct scan showed only fluid in the pelvic area. My doc assured me…
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A very nice thread in inspire.com
Dear ladies I found a very nice thread in inspire.com and I wish to share it with you. http://www.inspire.com/groups/ovarian-cancer-national-alliance/discussion/anyone-who-was-on-carbo-taxol-and-has-not-had-a-recurrence/?page=1#replies Nice stories!
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Survivor Story
Hello Ladies, this is my 89 year old grandmother, who was born in 1921. The handsome fellow beside her is my 13 year old son, Tony. My grandmother's name is Beatrice. She had ovarian cancer in some year that she does not remember. They took out her ovary and her appendix. No treatment. She has had Stage 1 breast cancer 5…
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Saundra's doing even better
Joe here: the doctor removed the nose tube, a big relief. Today the colon doc said she could have nourishment. She ate some egg, grits (a corn cereal), and drank some coffee. Oh, first she had an orange popsicle -- said it was wonderful. Haven't seen her primary oncologist yet. We were told Friday that nourishment would…
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I'm glad I found you
My name is Karen (Kiki is my knickname). I was diagnosed with Stage IV ovarian cancer on March 16, 2010. Up until then I was in perfect health. Fighting the battle of the bulge all my life but not on any medication and my doctor referred to me as one of her healthiest patients. Well, as you all know, my life is forever…
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To those of you with this cancer
What can I do for mom who is having pain with the mass in her stomach- (had one round of chemo last week) What are things that you found "comforting" (soft nighties, etc) and where did you get your hair wraps? She didn't lose any yet- but I know it's coming. I see some really stylish and just cute plain ones online. I…
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Anyone know the answer to this?
I have heard that once you have a recurrence, your disease is considered chronic and instead of plain old ovarian cancer, you are said to have recurrent ovarian cancer. That all makes sense. The part I am confused about is this.....is remission a one-shot deal? Has anyone had one recurrence, gone back into treatment, then…
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Low red blood cell count
I have another question for all you wonderful ladies. My mothers red blood cell count is dropping very low. She has only had one treatment of carbo/taxol. Due to have 2nd one one later this month. I know she needs to eat lots of protein to get the count back up.....but someone told her that tea was very bad to drink when…
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Maintenance chemo...?
Morning! I haven't been on here in awhile...can't remember the last post I did. I think I was going thru a kind of depression (imagine!) with all this...but anyways! I was dx last May with stage 3 ovarian, had a complete hysterectomy on June 12th, went thru 6 Taxol IV/Cisplatin IP, then had 3 rounds of Gemzar/Cisplatin,…
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How do bad people rest their heads on a pillow at night???
I cannot believe this!!!! Someone stole my Mom's wig from her closet at the nursing home!!! What kind of person would steal a cancer patient's wig??? Ughhh, mean people suck.
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Lupron shot
Yesterday, I went in for my lupron (anti-estrogen) shot. Yes, a shot!!! It took all of 5 seconds, and felt so strange to not go down to the chemo room for a 4 hour infusion. My doctor talked me into getting lupron, as he says he has had more success with it than Femara. Just personal preference, so I went with it. Either…
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When can I expect to be released by doctor
I am scheduled for debulking surgery on 6/21 and then three more chemos. I know everyone is different but how long after the last chemo would I be expected to be released by my doctor? I realize I will have to be on guard the rest of my life. I have pretty much decided to retire from my job. I turned 62 in February and…
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Can you ladies fill me in on Femara?
HI ladies, I have been on 3rd line chemo since September and although the cancer is not gone (4 small tumors in abdomen including 2 lymph nodes) I desperately need a break. I was trying to figure out a way to get some avastin, but that door seems to be closing. Soooo, finally made the decision yesterday with my Japanese…
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help! liver mets growing-chemo not working!!
Help! My mom is recovering so well from her massive stroke, only to have the doctor tell her that the topotecan is not working. Her liver mets are growing, now lining of pancreas inflammed from ovca, lymph nodes in abdomen are larger. She has had taxol/carbo initially and it worked wonderfully! Then after her debulking…