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Ovarian Cancer

I don't know how to support my mom
My mom is losing her second battle with ovarian cancer. Doctors have told her that she has, at best, a few months left. Her CA125 levels keep going up, despite aggressive chemo. I don't know what to say to her... She's scared and she keeps telling me that she's not ready to leave the earth. I have no idea what words to…
Response from American Cancer Society re: discussion board topics on search engines
Hi everyone, I did receive a response from the ACS and I noticed today on the page where they list all the various types of cancer, there is now a disclaimer. I feel that they should have had this originally. I don't mind sharing my experiences but I thought that a discussion group was confidential between their members.…
LindaP
In reply to your post under my original post regarding treatment. I think my onc wanted to start with avastin/cytoxan because it is gentler. If that worked I'd still have Taxol in my pocket. I am still not 100% it wasn't working. I didn't have a beginning treatment ca125 drawn. My lastest ca125 was 2wks prior to starting…
Vacation if Florida
My wife and I want to go to Florida this spring but we need to find a place that can do blood tests. Does anyone have any suggestions for the St. Petersburg, Clearwater area?
2nd Line treatment questions
I am on my 2nd line treatment of carboplatin & doxil. I only had a 4 month remission with the taxol. Could anyone tell me if there will be hair loss or any differant side effects with this combination of drugs? My hair is just starting to come back & I don't know whether to have it styled , if I'm going to lose it again…
Wish we could post pics
Had a great time - drinks, dinner and Starbucks - with Joni. She is so cute and FUN! Carlene
I made it!
I am in Manhattan and have already made plans to meet up with Joni for dinner. My appointment is tomorrow morning, first vaccine injection. I have never seen so many people in such a small area. And the cars....wow. Even Dallas does not come close. Carlene
Link between diabeties and Ovca
Was listening to the newa and they say there may if you have dm you may very likely get ovca. I never heard of this before but it makes sense since ca. cells thrive on sugar. Are any of you diabetic, I am unfortunately. I keep my aic at 6, which is well controlled but during chemo it is high due to decadrone. I still have…
need urgent advise
hello Ladies! i need your advise on 3 issues. #1 -2 weeks ago i had my first carbo/taxol and next week i am due again. last tonight i have developed toothache and feels like my cheeck is swallen.it is my problem tooth. i know for sure there is no nerve - r.canal was done long time ago. most likely it is some infection. i…
Wife is Scared
She gets CA125 results on Wednesday and gets her 5th Taxol maintenance treatment on Thursday. She is really worried this time because she has felt some abdominal cramping starting late last week and has experienced some side pain for the last two days. She told me today she thinks the monster is back. Question: She had a…
Mom's PET scan showed
NO cancer. I'm so elated and over the moon, but, at the same time freaked out and scared to death. Also, somewhat confused....she had a PET scan done after seven infusions of carbo/taxol because her last CA125 went up a few points instead of down. Started at 1700 and last one was in the low 80s. It's not reached the "NED"…
Is there any examples of women in their 90's being treated for ovarian cancer?
My 94 year old mother was unfortunate enough to suffer undiagnosed stage 3 or 4 ovarian cancer when she died. We did not know it until after death by autopsy. She had a 2.5 inch tumor in her right ovary that had spread. I would like to know of the experiences of other women in their 90's that have had surgery and…
Location Location Location
Making hot spicy herbs as part of the diet can be beneficial. For instance, in Indiana, a Hispanic male is 6 times less likely to die from cancer as a black male even though blacks are only 30% more likely to get cancer in IN. (All stats in this comment are computed on an aged-adjusted basis from the CDC - Center for…
Posting of my discussion and appearing on a search engine
Hi everyone, I just got off of the phone with the American Cancer Society. I was doing a ASK.com search last night and I noticed that a discussion I posted on the ACS network appeared. I wasn't sure what it was, so I clicked on it and was surprised it was, in fact a discussion posted by me. I advised the ACS that I did not…
Can't a girl EVER catch a break?
Just broke a tooth - a tooth with a crown on it, at that. No idea how much this will cost me, since it broke off BELOW the gum line. I called my dentist (don't you just love a dentist who gives out his cell phone number?) and he said he thinks it's a tooth that I had a root canal done on last year, and hopefully the root…
Dogs Sniff Out Cancer
Oh, how I wish this were already a practical reality! http://www.npr.org/blogs/health/2011/02/02/133407830/dogs-earn-more-cred-for-sniffing-out-cancer?sc=fb&cc=fp
Dear Lisa 13Q, Your reply to Linda helped me.
I know that your reply was to Linda, but I wanted you to know that I have taken it to heart for myself. Thank you for saying "..I'm not trying to minimize here, but this disease has a way of taking over when it truly hasn't taken over. Let's say, though, for the sake of argument that it's what you say, ok, well…
MSKK and the holy grail (vaccine for OC)
We just got home....boy, was that a day to remember, and NOT in a good way! We left our house about 4:30 to catch a 6:10. The flight itself was uneventful and getting to SK's Cancer Center on E 53rd was as easy as walking out of the terminal and into the line at a taxi stand. We did get ripped off by a cab driver. I am…
Trip to NYC was a no go....rescheduled for Thursday
Well, wouldn't it just figure....we arrived at the airport at 5AM for a 6:10 flight that was canceled, and instead of just telling us to go back home, they're all canceled, they just kept rolling us over to the "next flight". MSKCC had already advised me that I needed to be there by 5PM, films in hand, to get the CT scan…
Thyroid problems and OVCA
I was wondering if any of you ladies suffered with thyroid problems prior to being diagnosed with OVCA?? I have read (somewhere) that there is some research out there where they are looking in to a link between thyroid problems and OVCA. I have an underactive thyroid which was well treated for many years until about 9-10…
Did you know anyone with Ovarian Cancer, BC?
Until I was diagnosed and began to reach out for a connection with other women who were battling ovarian cancer, I had never met one single person who had, or had had, the disease. My neighbor was recently diagnosed, but except for her, the only OC patients I know are still those I've met because of my own diagnosis. How…
Getting off paini meds
My daughter finished her chemo just before Christmas. Now she is trying to get off all the pains. She will not talk to her doctor about it because she is afraid she will have on her medical record a dependance on pain medicine. Does anyone have any input in this matter. Thanks, Linda
CA125
I was diagnosed with stage 3 ov cancer May 2006. Had the chemo treatments and surgery and more chemo. My CA125 tests have been now at every 6 months. Usually a 6 or 8. Changed health plans Jan 1, 2011. My last ca125 test was an 8 and that was Dec 2010. Had it done last week at new location and it was 213. I repeated the…
Linda has competition.......
My ca125 went up 1000 points in 5 wks. 1000!!!!! Holy cow. Unfortunately I read this news online last night right before I went to bed. I don't think I will be checking my labs anymore....well....maybe not on a Friday night anyway. THANK YOU LisaQ13 for talking to me last night. It really helped me from escalating into a…
Low-grade fever
I have a low-grade fever. I haven't been in treatment since ... wow, I can't remember .. maybe 3 months. My onc didn't put me back into chemo because I was trying to get into MD Anderson (I have an appt. Feb. 15). But I've had a low grade fever for the last two days and today my right sacro-iliac joint is killing me. I…
Avastin & ca125
Still waiting for a response from my doc in NYC but I read this on another board: "I read somewhere that if you are on Avastin, CA 125 number may not be the best indicator of how you are doing. Is it true? if so, does CA 125 stay elevated even if you are making a progress or does it stay low even if there is no clear…
What do people usually have CT scans or PET/CT scans
I've been reading alot of discussions where people go for CT/PET scans. When my gyn/onc sent me for a scan he always did a PET/CT because he said it was a better tool. Now I go to MSKCC and they only seem to do CT scans. Has anyone gone to MSKCC and had a PET/CT scan? Do any of you feel it is a better tool for diagnosing…
Carlene
Have a safe trip. and check in often. hugs, kat
Root Canal Survey
If you have or had cancer and DO NOT have a root canal, i'd like to hear from you. There is a theory being tossed around out there that there is a link between root canal in specific teeth and breast and ovarian cancer. I am just curious whether anyone without a root canal gets this disease. Thanks in advance. Kate
After Chemo Joint and Muscle Pain
I am experiencing a lot of joint and muscle pain after my sixth round of chemo (Taxotere and Carbo). Does anyone have any tips on what will help with this? I am trying to exercise, but honestly it's hard when you feel like a walking Frankenstein. The pain is mostly in my back and hips. I know this is a common side effect,…

Ovarian Cancer

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