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Can't a girl EVER catch a break?
Just broke a tooth - a tooth with a crown on it, at that. No idea how much this will cost me, since it broke off BELOW the gum line. I called my dentist (don't you just love a dentist who gives out his cell phone number?) and he said he thinks it's a tooth that I had a root canal done on last year, and hopefully the root…
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Dogs Sniff Out Cancer
Oh, how I wish this were already a practical reality! http://www.npr.org/blogs/health/2011/02/02/133407830/dogs-earn-more-cred-for-sniffing-out-cancer?sc=fb&cc=fp
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Dear Lisa 13Q, Your reply to Linda helped me.
I know that your reply was to Linda, but I wanted you to know that I have taken it to heart for myself. Thank you for saying "..I'm not trying to minimize here, but this disease has a way of taking over when it truly hasn't taken over. Let's say, though, for the sake of argument that it's what you say, ok, well…
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MSKK and the holy grail (vaccine for OC)
We just got home....boy, was that a day to remember, and NOT in a good way! We left our house about 4:30 to catch a 6:10. The flight itself was uneventful and getting to SK's Cancer Center on E 53rd was as easy as walking out of the terminal and into the line at a taxi stand. We did get ripped off by a cab driver. I am…
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Trip to NYC was a no go....rescheduled for Thursday
Well, wouldn't it just figure....we arrived at the airport at 5AM for a 6:10 flight that was canceled, and instead of just telling us to go back home, they're all canceled, they just kept rolling us over to the "next flight". MSKCC had already advised me that I needed to be there by 5PM, films in hand, to get the CT scan…
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Thyroid problems and OVCA
I was wondering if any of you ladies suffered with thyroid problems prior to being diagnosed with OVCA?? I have read (somewhere) that there is some research out there where they are looking in to a link between thyroid problems and OVCA. I have an underactive thyroid which was well treated for many years until about 9-10…
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Did you know anyone with Ovarian Cancer, BC?
Until I was diagnosed and began to reach out for a connection with other women who were battling ovarian cancer, I had never met one single person who had, or had had, the disease. My neighbor was recently diagnosed, but except for her, the only OC patients I know are still those I've met because of my own diagnosis. How…
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Getting off paini meds
My daughter finished her chemo just before Christmas. Now she is trying to get off all the pains. She will not talk to her doctor about it because she is afraid she will have on her medical record a dependance on pain medicine. Does anyone have any input in this matter. Thanks, Linda
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CA125
I was diagnosed with stage 3 ov cancer May 2006. Had the chemo treatments and surgery and more chemo. My CA125 tests have been now at every 6 months. Usually a 6 or 8. Changed health plans Jan 1, 2011. My last ca125 test was an 8 and that was Dec 2010. Had it done last week at new location and it was 213. I repeated the…
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Linda has competition.......
My ca125 went up 1000 points in 5 wks. 1000!!!!! Holy cow. Unfortunately I read this news online last night right before I went to bed. I don't think I will be checking my labs anymore....well....maybe not on a Friday night anyway. THANK YOU LisaQ13 for talking to me last night. It really helped me from escalating into a…
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Low-grade fever
I have a low-grade fever. I haven't been in treatment since ... wow, I can't remember .. maybe 3 months. My onc didn't put me back into chemo because I was trying to get into MD Anderson (I have an appt. Feb. 15). But I've had a low grade fever for the last two days and today my right sacro-iliac joint is killing me. I…
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Avastin & ca125
Still waiting for a response from my doc in NYC but I read this on another board: "I read somewhere that if you are on Avastin, CA 125 number may not be the best indicator of how you are doing. Is it true? if so, does CA 125 stay elevated even if you are making a progress or does it stay low even if there is no clear…
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What do people usually have CT scans or PET/CT scans
I've been reading alot of discussions where people go for CT/PET scans. When my gyn/onc sent me for a scan he always did a PET/CT because he said it was a better tool. Now I go to MSKCC and they only seem to do CT scans. Has anyone gone to MSKCC and had a PET/CT scan? Do any of you feel it is a better tool for diagnosing…
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Carlene
Have a safe trip. and check in often. hugs, kat
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Root Canal Survey
If you have or had cancer and DO NOT have a root canal, i'd like to hear from you. There is a theory being tossed around out there that there is a link between root canal in specific teeth and breast and ovarian cancer. I am just curious whether anyone without a root canal gets this disease. Thanks in advance. Kate
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After Chemo Joint and Muscle Pain
I am experiencing a lot of joint and muscle pain after my sixth round of chemo (Taxotere and Carbo). Does anyone have any tips on what will help with this? I am trying to exercise, but honestly it's hard when you feel like a walking Frankenstein. The pain is mostly in my back and hips. I know this is a common side effect,…
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Chemo cancelled again due to low platelets
Went in for my 6th chemo this morning and got canceled because of low platelets and another count that determines ability to fight off infection. Will try again next week. This happened for my 5th chemo also and after a week my platelets rose from 63,000 to 265,000. Hope this happens again. I'm so down because my initial…
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MD Anderson CC survey re follow-up care for those with no recurrence
I follow Gyn Onc Foundation on Twitter and received this link today re a survey MD Anderson Cancer Center is doing on follow-up care for patients who have not had a recurrence if anyone is interested in participating. GYNCancer Your Opinion Requested http://conta.cc/fUjaP3 via #constantcontact Annie
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Need advise about doxil, carboplatin treatment
This will be my 3rd treatment this week of carbo/doxil. I got the usual side effects mentioned here. Mouth sores, and blisters but also around the second week in my tougue and lips swell up making it hard to even get down the meds to help with this let alone any food. Other than ensure. etc. Have any of you had this? So…
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getting off pain mediction
Any input on how to get off of pain meds after chemo?
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Dear Carlene, Nancy, Linda, Sharon,Leesa, Colleen, and Teal Sisters,
I have been reading and posting, mostly reading and learning from all of you, since I joined in September. Carlene, you just posted a quotation from another OC post about the anatomy of hope that was inspirational for me, thank you! If you don't mind, I would like to know more about some of the other boards, discussion…
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tough week
Hi dear hearts... I've had one of those very tough weeks. The carbo/gemzar hit me especially hard and I've not even been able to respond to posts. I don't understand my body's different reaction from one infusion to another of the same combo. I'm upright this AM for the first in a week, but I can't even fathom that I'm…
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They're driving me CRAAAAAZY!!! - UPDATE
Just when I thought everything was all worked out, I get an email from Dr Sabbatini's NP. It says she has scheduled a CT scan for me on Feb 1st, the day before I get my first treatment. I email her right back....No, I had a CT scan done here just two weeks ago, at the suggestion of the trial nurse, and hand-carried both…
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Saw doctor today, sound right?
Today I saw the chemo/onc. before my 6th chemo on Monday.We were talking about next steps.I have Stage IV CA Metastatic to Pleura.Before my first chemo,I found a bump on my chest which turned out to be ovarian cancer.After the first chemo,it along with something in my neck could no longer be felt.The Dr.scheduled a CT of…
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Rising CA 125 score
Hi, am new to this site. Finished my first round of chemo - carbo/cisplatin/taxol in August and wound up with a CA 125 of 27 Have just had new test run at MDA in Houston and it is up to 92. Will have CT scan next week. Feeling great and no symtoms. Was examined last week and found no problems in examination. Am starting to…
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Rising CA 125 score
Hi, am new to this site. Finished my first round of chemo - carbo/cisplatin/taxol in August and wound up with a CA 125 of 27 Have just had new test run at MDA in Houston and it is up to 92. Will have CT scan next week. Feeling great and no symtoms. Was examined last week and found no problems in examination. Am starting to…
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Anyone heard from CafeWoman--Colleen?
I have been looking for an update regarding Colleen. As you guys recall, she had a cancerous kidney removed around the middle of the month. Has anyone spoken with her? Did I miss a posting here????? Worried about her. Wendy
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Is it possible to have OVCA with no palpable mass via pelvic exam?
Hello, I am a 47 year old bc survivor 2 years, and presently have most all symptoms of ovca. Today I went for a pelvic exam due to symptoms ( I only have one ovary and fallopian tube remaining-right ovary removed due to torsion, then later same year had hysterctomy (uterus and cervix removed) ). Gyn stated my ovary felt of…
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Great results for CA 125!
I am so happy. I had blood work yesterday and I just got the results of my CA 125. It is 5. It has been 7 since the chemo I had after surgery. This is the first result since I was released by the doctors. I wasn't super worried but of course I am relieved. I am trying to make the most of everyday even doing mundane things…
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The Anatomy of Hope.....from another poster, another OC board
"Each disease is uncertain in its outcome, and within the uncertainty, we find real hope, because cancer has not always read the textbook. This is the great paradox of true hope: Because nothing has been absolutely determined, there is not only reason to fear but also reason to hope. And so we must find ways to bridle fear…