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Hello Everyone . Journal Entry Number who knows....
Good Morning everyone.....first, I want to thank each and every one of you for every post you have made to me over the past 2 years....I am printing some of them up for who knows what reason, but it seems to soothe me....I promise I won't shred them when I'm done...I can't really remember the past few days....we are…
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Lung Nodules
I am just curious if anyone else has reoccurance ovarian cancer in the lungs? Every since my initial surgery four years ago, the cancer has shown up only in my lungs as very tiny nodules. Two were removed and they were ovarian cancer. The various chemo treatments I've been getting do reduce the size of these nodules, but a…
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Leesa G
I guess this is the week for bad news, girls. All I can say is, it's a good thing I don't have an abundance of liquor in the house. Ken, Leesa's husband, posted earlier on Facebook that she was in the hospital. I was reluctant to post anything here without his permission, but he sent me this message tonight: Hi Carlene, Of…
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Was this doctor in the wrong?
On another board, a member posted that she had posed a question to her oncologist's wife (an internist, I think), a doctor she had consulted professionally for other issues. She asked (and I'm paraphrasing here) a question about the future "for someone like me." The doctor responded that the cancer "will kill you." "Right…
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Kindle and IBooks
This may not seem important to some, but I have found that many people going through Chemo and Doctors Appt. that don't know you can download free Kindle and I book Apps on your touch screen phone, a 3rd or 4th generation I pod touch or even an older laptop. They also have free book downloads that may not be Stephen King…
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Lisa13Q said "thanks for all the wonderful posts"
She wrote a post this morning but it got eaten by the cyber moster, who obviously does not like Fang Fish. Lisa is doing the best she can, all things considered. She is at her mom's and finds comfort in surrounding herself with her mom's things. It's been really hard, of course. Her mom fought very hard, right up to the…
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Scattered my sisters ashes today
My sister Darlene's birthday would have been today, so her children choose today to spread her ashes at her favorite place. Ii couldn't make the trip so all of us that live at Arizona all let yellow ballons into the air at exactly 8 pm in her memory. Yellow was her favorite color. My nephew went to her farewell and when he…
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So sad to hear about Nancy
I was so sad to hear about Nancy. I've always found her to be a very special person. I haven't been on this discussion group very long but everytime I had a question, and asked Nancy, she always responded. I was so hoping she could beat this and I knew when we didn't hear from her for awhile that something wasn't right.
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a question regarding hair loss during recurrent ovc
I wanted to ask for anyones personal experience/opinion. I am starting treatment for recurrent ovc. During my initial trtmt, I never shaved my head. I had it cut really short before treatment, then when it started to fall out it was gradual...clumps now and then. I just wore hats and scarves to cover and contain any…
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onto the next chemo
Hi everyone, I am hunkered down in my easy chair, waiting for the typhoon to pass over my house (coming in from the Philpines and hitting Japan today) and catching up on the boards. I'm happy to see some new names pop up. After a short chemo break and much discussion/research/long travels to Tokyo etc etc and prayers (I…
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Will have my first chimo Tuesday, please need advised
What should I keep with me duting my first chimo next Tuesday, I had hystrectomy 4 weeks ago, dr. remove 95% of cancer but still there is a 5% that need chimo. I will have Paclitaxel and on Wednesday Platinol. I have app Monday to cut my hair, I am from Guatemala and they will be here Monday fro 2 months, also my sister is…
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Any experience with navelbine chemo?
Hey all, its been a long time since I have posted on here. I still read all of your posts frequently. As a recap-my mother was diagnosed with stage IV ovarian in january 2010 at 57 years old. She has had some tremendous battle! She has never had a debulking surgery since the docs say that it is too advanced.... but none of…
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What is up with all the old threads???
Dear CSN members... If you are tempted to respond to some ancient thread that you found while searching the site, please take a minute to make sure you aren't resurrecting photos and comments from members who have passed away. It's very painful for some of us, and very creepy, as well, to log on and see what appears to be…
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My 1 year cancer free anniversary is tomorrow 5-28
My one year anniversary of being cancer free is tomorrow 5-28 I am so happy to be able to live another year and to still be in remission, I give God all the glory. Hugs Lynda
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Its Over
Mom is gone..omg....i can't even begin ... omg...
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Question...scratching head
I was debulked and show "technically" cancer free. The PET scan was clear yet I am too have chemo. Is this regular...normal...any good? I thought the goal was to be at this stage with no more treatment to live a "normal" life?!?!!?
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Study on CA125 and risk of recurrence
This is a very interesting study on CA125 and risk of recurrence. http://annonc.oxfordjournals.org/content/20/2/294.full Briefly, it says that women who experienced an absolute increase in CA125 of more than 5 points over their nadir value are more likely to recur. This number was achieved by subtracting the nadir CA125…
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Monika (Mopar) deserves an award
As far as I can tell, Monika is one of the longest surviving members of this discussion board. God bless you, Monika, for enduring the loss of so many members & still staying in touch. I read your post where you doctor wouldn't say you were in remission (over 7 years ago) and you are still here. Yay! for you, girl! I'm…
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Topotecan and hair loss
Hi I was wondering if anyone knows whether you lose you hair with Topotecan? This is the chemo I will probably going on next and I would like to know whether I get to keep my hair or not Thanks Tina xx
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Any kind of financial help for international ovca patients???
Hello all My mom was just diagnosed with ovca. She lives in Nepal, Southeast Asia. I am the youngest daughter and I have been living in the US for 8 years. Her doctor has asked her to come coming Thursday to discuss about staging of her cancer and the treatment options. I have asked my sister who lives in Nepal to send me…
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Feeling a little sad today :(
I am feeling rather sad today regarding my Mom. I wonder why so many others are getting better and Mom is not. I got to peek at her CA 125 numbers last month before she started the doxil. After 21 treatments her numbers are still 5000+ and the lowest they ever were was 3000+. She deserves to be well and not to have this…
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CAAT diet for cancer therapy
I found some fascinating information on dietary amino acid restriction in cancer therapy on the following web site: http://www.apjohncancerinstitute.org/index.htm CAAT = Controlled Amino Acid Therapy (amino acids are the building blocks of protein). The CAAT diet appears to be founded on some legitimate research. I am very…
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Scared and need advise...
Hi Everyone - I have been looking around this site for a while, and am inspired by your strength and support. I have NOT been diagnosed with OC, and hope that I am not, but here is my story. Any thoughts are appreciated. I am a 31 yo mother of 3 who has been experiencing OC symptoms for about 10 days. Very gassy, burning…
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Happy Memorial Day!
Hope all of you have a great holiday weekend. I thank God for another holiday with my family! Never stop fighting ladies :) Blessings, Natalie
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Hissy_Fitz on Dr. Oz
I saw a familiar face in the Teal Ribbon intro to the Doctor Oz show that's on right now-will we have a feature about her?
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Stage IV second opinion
Hello All! Wondering about my diagnosis: Pathology of plueral fluid, diffuse omental stranding on CT, CA 125 3100 No biopsy No ultrasound pelvic. (does this seem right?) I just got a PICC port today and start chemo tomorrow. Today is the first time anyone sat down and spoke with me about what to expect. At diagnosis, both…
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Sick
I am sick. I have diaphrea and nausea. I am on Avastin every 3 weeks. I think it might be the flu. What can I take. I was up all last night and today. It is not stopping. Help please Linda
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Nancy591
I pray for all my sisters but want to shout out to Nancy591 today. I hope you are feeling more comfortable. Mary
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Almost there.....
Mom's breathing has slowed down.....she is sleeping peacefully.....I don't feel anyone coming to get her...I don't feel God.....I don't want her to be alone as she moves on to the other world....we are here for her on this side...but I am fearful there isn't anyone on the other waiting for her.....I had no idea I would…
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Cancer Therapy
My wife had been diagnosed with Ovarian cancer in 1972 when she presented with a left DVT(deep vein thrombosis) and pulmonary embolism. Workup which was triggered by this presentation revealed that she did have an ovarian carcinoma for which she underwent total abdominal hysterectomy and received leukeran treatment for…