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Study on CA125 and risk of recurrence
This is a very interesting study on CA125 and risk of recurrence. http://annonc.oxfordjournals.org/content/20/2/294.full Briefly, it says that women who experienced an absolute increase in CA125 of more than 5 points over their nadir value are more likely to recur. This number was achieved by subtracting the nadir CA125…
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Monika (Mopar) deserves an award
As far as I can tell, Monika is one of the longest surviving members of this discussion board. God bless you, Monika, for enduring the loss of so many members & still staying in touch. I read your post where you doctor wouldn't say you were in remission (over 7 years ago) and you are still here. Yay! for you, girl! I'm…
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Topotecan and hair loss
Hi I was wondering if anyone knows whether you lose you hair with Topotecan? This is the chemo I will probably going on next and I would like to know whether I get to keep my hair or not Thanks Tina xx
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Any kind of financial help for international ovca patients???
Hello all My mom was just diagnosed with ovca. She lives in Nepal, Southeast Asia. I am the youngest daughter and I have been living in the US for 8 years. Her doctor has asked her to come coming Thursday to discuss about staging of her cancer and the treatment options. I have asked my sister who lives in Nepal to send me…
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Feeling a little sad today :(
I am feeling rather sad today regarding my Mom. I wonder why so many others are getting better and Mom is not. I got to peek at her CA 125 numbers last month before she started the doxil. After 21 treatments her numbers are still 5000+ and the lowest they ever were was 3000+. She deserves to be well and not to have this…
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CAAT diet for cancer therapy
I found some fascinating information on dietary amino acid restriction in cancer therapy on the following web site: http://www.apjohncancerinstitute.org/index.htm CAAT = Controlled Amino Acid Therapy (amino acids are the building blocks of protein). The CAAT diet appears to be founded on some legitimate research. I am very…
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Scared and need advise...
Hi Everyone - I have been looking around this site for a while, and am inspired by your strength and support. I have NOT been diagnosed with OC, and hope that I am not, but here is my story. Any thoughts are appreciated. I am a 31 yo mother of 3 who has been experiencing OC symptoms for about 10 days. Very gassy, burning…
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Happy Memorial Day!
Hope all of you have a great holiday weekend. I thank God for another holiday with my family! Never stop fighting ladies :) Blessings, Natalie
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Hissy_Fitz on Dr. Oz
I saw a familiar face in the Teal Ribbon intro to the Doctor Oz show that's on right now-will we have a feature about her?
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Stage IV second opinion
Hello All! Wondering about my diagnosis: Pathology of plueral fluid, diffuse omental stranding on CT, CA 125 3100 No biopsy No ultrasound pelvic. (does this seem right?) I just got a PICC port today and start chemo tomorrow. Today is the first time anyone sat down and spoke with me about what to expect. At diagnosis, both…
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Sick
I am sick. I have diaphrea and nausea. I am on Avastin every 3 weeks. I think it might be the flu. What can I take. I was up all last night and today. It is not stopping. Help please Linda
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Nancy591
I pray for all my sisters but want to shout out to Nancy591 today. I hope you are feeling more comfortable. Mary
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Almost there.....
Mom's breathing has slowed down.....she is sleeping peacefully.....I don't feel anyone coming to get her...I don't feel God.....I don't want her to be alone as she moves on to the other world....we are here for her on this side...but I am fearful there isn't anyone on the other waiting for her.....I had no idea I would…
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Cancer Therapy
My wife had been diagnosed with Ovarian cancer in 1972 when she presented with a left DVT(deep vein thrombosis) and pulmonary embolism. Workup which was triggered by this presentation revealed that she did have an ovarian carcinoma for which she underwent total abdominal hysterectomy and received leukeran treatment for…
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Latest message from Nancy
Nancy sent me a long text this evening. She told me I could post it for all of you. Wanted to let you know I am feeling much better. Fluid has lessened around my feet and groin. I had a cath placed into my abdomen to drain it. I am scheduled for lupron next month and hope to be ready for a new chemo regimen the following…
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My doctor's responses to questions about Taxol maintenance
Today was number 7 of my 12 Taxol maintenance infusions. I took the opportunity to ask my doctor some questions, regarding the protocol for this treatment. Does anyone ever have a recurrence on consolidated treatment? No Then why not just keep giving it? Several reasons for this. It's not considered "good medicine" to pump…
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Clinical Trial AMG 386 and Doxil
Hi Everyone, my name is Natalie and I'm knew to this site. I was wondering if anyone has had experience with the clinical drug AMG 386 and Doxil. I'm starting with these treatments next month and I really don't know what to expect. Thanks in advance for any helpful advice or insite to this matter. Nat671
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newly diagosed
I was diagnosed in april. I had cancer in both ovaries and in my uterus. I was tld at first that it was just a tumor the blood test came back neg. Dr done a hystorectomy and found the cancer. I start chemo next week and I am scared to death. I am moody and out os sorts is this kind of reaction normal. any suggestions on…
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Ovarian Cancer Stage IV
Myself don't have cancer but my friend has. She is only 37 years old and was diagnosed on 29 April 2011 with stag IV ovarian cancer. She is already admitted into Palliative Care and is growing weaker by the minute. I don't understand it. Reading other peoples stories it seems that hers was caught at the end and there is…
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Update.....no new food products today....
Dearest Dearest Ladies: Thank you all for your wonderful responses to my last post...It has been a grueling few days....Mom finally has 24 hour care and seems to be resting comfortably for now....with lots of medication.....she is surrounded by her loving family and grandchildren, who she loves dearly....She continues to…
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ENDOMETRIOSIS HISTORY?
Hi, Ladies: I would be curious to get some feedback from all of you. Any of you have endometriosis prior to your cancer dx? I was diagnosed with endo in 1973 after several years of suffering. At that time, there wasn't a lot of info out there, and there really still isn't. However, around the time I was diagnosed I…
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TEST FOR DIM?
Some time ago when we were discussing different homeopathic/nutritional supplements we all take, someone mentioned that there is a recommended blood test to take before you start taking DIM, which is anti-estrogen. If someone recalls what this was, or if you're the person who posted the info, can you post it again? Thanks…
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Some Good news
We saw the doctor with mom this afternoon and he said it looks as though she has had a delayed reaction to the chemo. The ascites was drained almost 4 weeks ago and has not come back!!! He was so pleased and I cannot even tell all of you the small seed of elation that started to form in my chest. I know this cancer is…
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Opinions please
Hi all, I have been lurking around for a while now and posted a few times, I have been amazed and humbled by so many on here, such strength and determination and such love and care for others. The reason I am asking for peoples opinions is this........ My lovely mum has recently finished chemo and had good results from…
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Should I not be eating sugar??
Hello friends, I've noticed while reading through the posts that many of you are saying "no sugar". Have your Dr.'s told you to cut sugar out of your diet? Mine has never mentioned it; and I am a sugar-holic, now facing my 3rd recurrence. (yes, it's back again. I meet with the Dr. the end of Jan to discuss chemo #3).…
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Sister Diagnosed with OVCA Stage 3C in Dec. 10
Hi everyone. I have been poking around this board since this past December but only joined today. My younger sister Karen (46 years old) was diagnosed with stage 3C ovarian cancer on Dec. 4th 2011. She is being treated at MSKC in NYC. Because of the extent of the disease on diagnosis, she started with 3 rounds of…
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Wings Coming Soon
It is with deep sadness that I write to let you all know that Mom's wings are on their way...I hear they are going to be all different colors of blue...with turquoise and aqua....and lots of sapphires........I really don't have much more to say except that I hope her suffering is over soon...I predict that she will leave…
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Our AWOL sisters have checked in.....
I have heard from Annie (Annecris), Joanie (JLoe), and Marty (Mawty) and am pleased to report that they are all doing well. Annie, as I posted elsewhere, is busy planning her wedding, where she will be dancing a special dance with NED. Marty, who has had 2 1/2 years of chemo so far, is feeling great, too. She may have to…
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Ca125 up- Dr wants to keep the chemo going??
How long do you continue the same chemo even when your ca125 is going up?? My onc. wants to continue with the same low dose avastin/taxol, even when the past 2 months my ca125 is up from 27 to 35 to 43. Dont you see a trend here? I had a cat last month which showed improvement from last years. There is a questionable…
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Just diagnosed with ovc, need advice
Hello all I cannot stop crying ever since I got a phone call about my mom"s ovarian cancer. My parents live in Nepal, south east Asia. Mom had the surgery done for biopsy but the physician has asked my mom to return to the hospital in couple of days to discuss what stage it is and may be some treatment option. I"m really…