Update and thanks

Lisa13Q
Lisa13Q Member Posts: 677
in Ovarian Cancer #1
What a nightmare day..........baseball size tumor on her liver.....FINALLY, FINALLY, a doctor who was straight with her and who called a program in her town, which has palliative care, bridge care and hospice all in one.........Mom is very sad but kind of knew.....I am relieved that she is going to get the care she needs........she still wants to fight.....so fight on as far as I'm concerned as long as we have the team behind her to make her comfortable during the fight........Thanks to you all for responding....it means so much to come here and see responses......for now, she is going back to my sister's house at her request, and we are going to celebrate the fact that my nephew, mom's grandson, won the citizen of the year award at his school today!!

Comments

  • Cindy Bear
    Cindy Bear Member Posts: 569
    #2
    roller coaster
    Cancer is a helluva ride isn't it Lisa... I am sorry about the liver tumor but it sounds like your mom is pretty feisty and this local program sounds like a godsend... I totally understand, how refreshing and liberating honesty is when you're dealing with this stuff.. I so wish my mother's drs. had been more honest with us, but it's partly our fault I guess... we didn't press for the truth.. Hugs and prayers for you and your mom and sister and nephew...
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #3
    That sucks, Lisa. I know
    That sucks, Lisa. I know it's not totally unexpected, but it still sucks. Will they do any treatment at all?

    I too am glad you finally have some solid answers. The not knowing is almost worse than the hard, cold truth.

    Wish I could give you real hugs.

    Carlene
  • kayandok
    kayandok Member Posts: 1,202 Member
    #4
    Bummer!
    Thank you for your update, Lisa. I am so sorry for you and for your mom and your family!!! Glad you are feeling some relief about her care, and that your mom is still fighting! Love that tough-cookie side of her! As grim as the news is, it is good that you do have some honest facts to deal with.
    Lisa, do take care of yourself too.
    Prayers for all of you,
    kathleen
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #5
    kayandok said:

    Bummer!
    Thank you for your update, Lisa. I am so sorry for you and for your mom and your family!!! Glad you are feeling some relief about her care, and that your mom is still fighting! Love that tough-cookie side of her! As grim as the news is, it is good that you do have some honest facts to deal with.
    Lisa, do take care of yourself too.
    Prayers for all of you,
    kathleen

    If she still wants to fight, interventional radiology?
    I'm so sorry that you're going through this, Lisa. There are a number of palliative treatments for liver mets through interventional radiology that are often used to manage liver mets because they can be easier on you than chemo. You might want to just throw that out there as an option and get a reaction from her care team. (((Lisa)))). Take extra good care of yourself through this; you are under a lot of stress even though you are handling it well.
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #6
    Thanks to you all
    The Gyn/Onc has to read her scans/this information and let us know what she thinks. We didn't do the CT scan in the city at Sloane...we did it at a local ER. One of the other issues is that there are clots apparently as well in the veins that run to and from the liver. So, we really need for the Gyn/Onc to read these and get back to us..>>>I think we were smart to go to the local hospital today and get these tests. We avoided a long trip into the city and a nightmare experience in "The Pit" at Memorial Hospital...and we got a great doctor I thought. I'm spinning...it was a long day trying to maneuver through the family dynamics of denying the severity of this...Now I hope the gyn/onc steps up to the plate....radio blastamy....although when we spoke with her on the phone, she seemed to think Mom was too weak for any type of procedure like that, but I'll ask....I am overwhelmed right now with too much...I am praying that her doctor at Sloane takes charge and comes up with a plan for us....I don't know that I can keep staying on top of it and asking the right questions.....but then again I have no perspective anymore....I am exhausted.....I have to accept that for tonight my mother is much more comfortable with her new drugs...and she is......this responsibility is overwhelming for me right now....sometimes, I want her to go....and then when she feels better I can't stand the thought of her going.....she doesn't want to go.....will she ever ever get peace?
  • srwruns
    srwruns Member Posts: 343
    #7
    Lisa13Q said:

    Thanks to you all
    The Gyn/Onc has to read her scans/this information and let us know what she thinks. We didn't do the CT scan in the city at Sloane...we did it at a local ER. One of the other issues is that there are clots apparently as well in the veins that run to and from the liver. So, we really need for the Gyn/Onc to read these and get back to us..>>>I think we were smart to go to the local hospital today and get these tests. We avoided a long trip into the city and a nightmare experience in "The Pit" at Memorial Hospital...and we got a great doctor I thought. I'm spinning...it was a long day trying to maneuver through the family dynamics of denying the severity of this...Now I hope the gyn/onc steps up to the plate....radio blastamy....although when we spoke with her on the phone, she seemed to think Mom was too weak for any type of procedure like that, but I'll ask....I am overwhelmed right now with too much...I am praying that her doctor at Sloane takes charge and comes up with a plan for us....I don't know that I can keep staying on top of it and asking the right questions.....but then again I have no perspective anymore....I am exhausted.....I have to accept that for tonight my mother is much more comfortable with her new drugs...and she is......this responsibility is overwhelming for me right now....sometimes, I want her to go....and then when she feels better I can't stand the thought of her going.....she doesn't want to go.....will she ever ever get peace?

    I am so sorry you and your
    I am so sorry you and your Mom are going through all this. Lots of thoughts with you.
  • kellyh33
    kellyh33 Member Posts: 287
    #8
    :(
    I wish I knew what to say. I am sending you hugs and praying your mom has some fight in her. It sounds like a wonderful program and i am sure they will be very helpful and will give to your mom what she needs.
    Keeping you both in my thoughts and prayers.
    Kelly
  • NCEllen
    NCEllen Member Posts: 115 Member
    #9
    Lisa13Q said:

    Thanks to you all
    The Gyn/Onc has to read her scans/this information and let us know what she thinks. We didn't do the CT scan in the city at Sloane...we did it at a local ER. One of the other issues is that there are clots apparently as well in the veins that run to and from the liver. So, we really need for the Gyn/Onc to read these and get back to us..>>>I think we were smart to go to the local hospital today and get these tests. We avoided a long trip into the city and a nightmare experience in "The Pit" at Memorial Hospital...and we got a great doctor I thought. I'm spinning...it was a long day trying to maneuver through the family dynamics of denying the severity of this...Now I hope the gyn/onc steps up to the plate....radio blastamy....although when we spoke with her on the phone, she seemed to think Mom was too weak for any type of procedure like that, but I'll ask....I am overwhelmed right now with too much...I am praying that her doctor at Sloane takes charge and comes up with a plan for us....I don't know that I can keep staying on top of it and asking the right questions.....but then again I have no perspective anymore....I am exhausted.....I have to accept that for tonight my mother is much more comfortable with her new drugs...and she is......this responsibility is overwhelming for me right now....sometimes, I want her to go....and then when she feels better I can't stand the thought of her going.....she doesn't want to go.....will she ever ever get peace?

    The next day..
    Lisa - it's morning of the next day. I hope there will be a little splice of peace and order in the day ahead for you. Sometimes we don't even have to plan the day as we're prone to do- the day will plan itself and you just go along with it and write the days' installment in your memory life journal. When you think back, you will see the positives even when the negatives seem so overwhelming. Sharing hugs and hand holding goes a long way. +++++++ (sending you some positive hope today) Ellen
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #10
    Lisa13Q said:

    Thanks to you all
    The Gyn/Onc has to read her scans/this information and let us know what she thinks. We didn't do the CT scan in the city at Sloane...we did it at a local ER. One of the other issues is that there are clots apparently as well in the veins that run to and from the liver. So, we really need for the Gyn/Onc to read these and get back to us..>>>I think we were smart to go to the local hospital today and get these tests. We avoided a long trip into the city and a nightmare experience in "The Pit" at Memorial Hospital...and we got a great doctor I thought. I'm spinning...it was a long day trying to maneuver through the family dynamics of denying the severity of this...Now I hope the gyn/onc steps up to the plate....radio blastamy....although when we spoke with her on the phone, she seemed to think Mom was too weak for any type of procedure like that, but I'll ask....I am overwhelmed right now with too much...I am praying that her doctor at Sloane takes charge and comes up with a plan for us....I don't know that I can keep staying on top of it and asking the right questions.....but then again I have no perspective anymore....I am exhausted.....I have to accept that for tonight my mother is much more comfortable with her new drugs...and she is......this responsibility is overwhelming for me right now....sometimes, I want her to go....and then when she feels better I can't stand the thought of her going.....she doesn't want to go.....will she ever ever get peace?

    I hope your Dr steps up
    There is a point I think where your Dr should be able to guide you in the right direction and take some of the pressure off of you.Your love for your Mom is so edvident and I am sure you are doing the best for her.
    You need to take care of yourself in order to be there for your Mom, I have two daughters and the thought of dying is not so bad but to know that they are going to be suffering like you is terrible. Get some rest if you can, I wish there was something I could do to help you.
    Colleen
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    #11
    kellyh33 said:

    :(
    I wish I knew what to say. I am sending you hugs and praying your mom has some fight in her. It sounds like a wonderful program and i am sure they will be very helpful and will give to your mom what she needs.
    Keeping you both in my thoughts and prayers.
    Kelly

    ((hugs)) Lisa you are so
    ((hugs)) Lisa you are so brave, look after yourself as well as your mum, praying they will make her as comfortable as possible.Take one day at a time , it must be torture seeing your poor mum going through this. god bless both of you xxx

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