Feeling frustrated

VickiReed
VickiReed Member Posts: 66
in Ovarian Cancer #1
I was supposed to start the clinical trial last week but I couldn't get my insurance to put it in writing that they would pay for the meds. I had all the new tests and scans done. My CA-125 is up to 114 and climbing. The tumors are growing in number and in size. It is so scary. I had plueral effusion back when they diagnosed me and now that I have finished my first rounds of chemo and am platium resistant, the tumors are growing in leaps and bounds and has popped back up in my lung and is affecting my lymph nodes. I have an appt set again for Thursday and am hoping and praying that between my insurance and the drug companies that someone will step up to the plate and fund the trial.(Doxil, Avastin and Torisel). I am also hoping the side effects aren't unbearable. On the bright side having treatment delayed a week has allowed me to have the first ripe tomato out of the garden.(BLT's) Yum! Seems strange to not be allowed to eat them along with strawberries and blueberries and peppers. all my favorites. Lucky we are in Texas and will have an abundance of melons soon... I am going off work while I try this treatment. I have so much trouble sleeping and those 10 hour days have taken their toll. I can't get into a healing mode when I am burning the candle at both ends. Take care fellow warriors and all the wonderful caregivers out there!
Vicki

Comments

  • jonnie71
    jonnie71 Member Posts: 26
    #2
    feeling frustrated
    I am sorry for your frustrations. I am new, so I can't really give you any advise, but i wanted you to know you are in my thoughts and also in my prayers (hope that doesn't offend you). I envy your bravery... stay strong,
    jonnie
  • kikiz
    kikiz Member Posts: 94
    #3
    jonnie71 said:

    feeling frustrated
    I am sorry for your frustrations. I am new, so I can't really give you any advise, but i wanted you to know you are in my thoughts and also in my prayers (hope that doesn't offend you). I envy your bravery... stay strong,
    jonnie

    Sorry to Hear about Insurance problems.
    I am sorry to hear about your insurance problems. I am not quite sure what you can do either since I am not in for any trials.

    On another note, I am Jealous of the fresh tomato since I have yet to see any real good ones yet here in Kansas.

    Lori
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #4
    Dear Vicki
    I am sooo sorry about all the red tape and insurance....it ISS frustrating....I wonder where you are being treated....At Sloane, they did take care of all that craziness for us...our frustration was their wait times and over scheduling.....that was frustrating..I think, overall, this entire disease is one big frustration and there needs to be a better way...as far as side effects go, Mom had virtually none from avastin....the biggest one reported for that is high blood pressure.....doxil tends not to be too hard to handle but there is possibility of hand/foot syndrome......I am certain you are up for it though because you are a warrior and I am sure you have Fang Fish blood in you.....Fang Fish are good at fighting!!!
  • VickiReed
    VickiReed Member Posts: 66
    #5
    Finally
    THe insurance company finally came through and are picking up the tab. Yea! Taking the Avastin treatment right now and praying
    For great results.
    Vicki
  • VickiReed
    VickiReed Member Posts: 66
    #6
    Finally
    THe insurance company finally came through and are picking up the tab. Yea! Taking the Avastin treatment right now and praying
    For great results.
    Vicki
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #7
    VickiReed said:

    Finally
    THe insurance company finally came through and are picking up the tab. Yea! Taking the Avastin treatment right now and praying
    For great results.
    Vicki

    Good Luck Vicki
    Avastin is a great drug..

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