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FYI - MY NEW JOURNEY AGAINST THE OVCA FIGHT! - 33 treatments of radiation, Has anyone had this?
It's been about 9 months of remission for me; however this has been my 3rd remission! LOL! Seriously, after my last cat-scan (prompted by my ca-125 count rising from 14-23), activity was present once again in those same two para-aortic lymph-nodes near my kidneys. So a pet-scan was ordered. This is what I don't understand,…
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Tingly fingers
Hi to my teal sisters Whenever I have a problem or question I always know where to come. I just know there will be one of you out there who can answer my questions. Question 1. "Has anyone experienced tingling and numbness to one or both hands AFTER chemo?" I often wake to 'pins and needles' in my left hand and arm and the…
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Lisa13Q Legacy Thread
Barbara53 here, proudly hosting this legacy thread for all the sisters who are holding Lisa13Q close in their hearts, and want to join in celebrating her mother's full and beautiful life. The photo here was one of Joan's favorites. Her obituary is posted below. Feel the joy. Mrs. Joan Levering Jack, of Palm Beach, Florida,…
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Ports....kind of in a panic...sort of alone
Licha's question about the 1st chemo and your response's got me thinking about ports. I am supposed to have 4-6 treatments of Cisplatin and something else. Each treatment is going to be spaced out about 3-4 weeks apart. I have crappy veins. Just to get blood work, most techs have to poke me more than once. I did not think…
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What's up with RedDreamer?
If you are on the board, just know that I am thinking of you and hoping that you are doing OK. I'm wondering what the verdict was regarding whether or not you were going in for chemo, too. (((hugs))) LQ
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EC145 new chemotherapy for platinum resistant cancer
Very exciting news from Endocyte, Inc.: http://www.msnbc.msn.com/id/43099665 EC145 is the first drug to demonstrate a significant improvement in PFS (progression-free survival) in a randomized study in patients with platinum-resistant ovarian cancer. The results are particularly important for these patients because there…
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Choices
Had my appt. with the chemo doctor yesterday and gyn/onc today. After a three month break from chemo, this after surgery and six rounds of carboplatin/taxol and a scan that showed a few small possible tumors in the abdomen. My CA 125 went up from 22.7 to 103, so I'm having a ct scan on Monday to see better what's…
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LEESA IS OUT OF SURGERY AND DOING WELL!!!
This was her husband's FB post: Leesa is doing well. She's in the PACU, and is alert, oriented, and following commands. We were joking about how many times she's going to be asked who the Prez is... so I suggested a unique answer. When I saw her, the nurse asked, and she responded, "Not Ron Paul - darn it". A very good…
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Thank you Carlene! You are the Angel!
You snapped be back to reality a bit when I got your text. For some reason, I have been more depressed, aggravated and angry since I was diagnosed 8/2006. I’m just fed up with all the surgery & treatments. Physically, I have bounced back ok and function like I live a full life (NOT) because I work full time but that’s just…
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My hair is coming out again after16 months past chemo
Anyone else had their hair come out past chemo? It has been almost 16 months sinice my last chemo and my hair is coming out by the handfull again.
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Question and need a pick me up.
For all you ladies who have or have been going thru chemo did you get scans during the process? My oncolgist told me that after my 6 rounds of chemo they will then give me a scan to see if the coast is clear. My gyn/ onc said they got the big stuff just some residual left on my liver and the chemo will kill it. I have 2…
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Hello Everyone . Journal Entry Number who knows....
Good Morning everyone.....first, I want to thank each and every one of you for every post you have made to me over the past 2 years....I am printing some of them up for who knows what reason, but it seems to soothe me....I promise I won't shred them when I'm done...I can't really remember the past few days....we are…
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Lung Nodules
I am just curious if anyone else has reoccurance ovarian cancer in the lungs? Every since my initial surgery four years ago, the cancer has shown up only in my lungs as very tiny nodules. Two were removed and they were ovarian cancer. The various chemo treatments I've been getting do reduce the size of these nodules, but a…
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Leesa G
I guess this is the week for bad news, girls. All I can say is, it's a good thing I don't have an abundance of liquor in the house. Ken, Leesa's husband, posted earlier on Facebook that she was in the hospital. I was reluctant to post anything here without his permission, but he sent me this message tonight: Hi Carlene, Of…
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Was this doctor in the wrong?
On another board, a member posted that she had posed a question to her oncologist's wife (an internist, I think), a doctor she had consulted professionally for other issues. She asked (and I'm paraphrasing here) a question about the future "for someone like me." The doctor responded that the cancer "will kill you." "Right…
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Kindle and IBooks
This may not seem important to some, but I have found that many people going through Chemo and Doctors Appt. that don't know you can download free Kindle and I book Apps on your touch screen phone, a 3rd or 4th generation I pod touch or even an older laptop. They also have free book downloads that may not be Stephen King…
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Lisa13Q said "thanks for all the wonderful posts"
She wrote a post this morning but it got eaten by the cyber moster, who obviously does not like Fang Fish. Lisa is doing the best she can, all things considered. She is at her mom's and finds comfort in surrounding herself with her mom's things. It's been really hard, of course. Her mom fought very hard, right up to the…
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Scattered my sisters ashes today
My sister Darlene's birthday would have been today, so her children choose today to spread her ashes at her favorite place. Ii couldn't make the trip so all of us that live at Arizona all let yellow ballons into the air at exactly 8 pm in her memory. Yellow was her favorite color. My nephew went to her farewell and when he…
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So sad to hear about Nancy
I was so sad to hear about Nancy. I've always found her to be a very special person. I haven't been on this discussion group very long but everytime I had a question, and asked Nancy, she always responded. I was so hoping she could beat this and I knew when we didn't hear from her for awhile that something wasn't right.
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a question regarding hair loss during recurrent ovc
I wanted to ask for anyones personal experience/opinion. I am starting treatment for recurrent ovc. During my initial trtmt, I never shaved my head. I had it cut really short before treatment, then when it started to fall out it was gradual...clumps now and then. I just wore hats and scarves to cover and contain any…
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onto the next chemo
Hi everyone, I am hunkered down in my easy chair, waiting for the typhoon to pass over my house (coming in from the Philpines and hitting Japan today) and catching up on the boards. I'm happy to see some new names pop up. After a short chemo break and much discussion/research/long travels to Tokyo etc etc and prayers (I…
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Will have my first chimo Tuesday, please need advised
What should I keep with me duting my first chimo next Tuesday, I had hystrectomy 4 weeks ago, dr. remove 95% of cancer but still there is a 5% that need chimo. I will have Paclitaxel and on Wednesday Platinol. I have app Monday to cut my hair, I am from Guatemala and they will be here Monday fro 2 months, also my sister is…
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Any experience with navelbine chemo?
Hey all, its been a long time since I have posted on here. I still read all of your posts frequently. As a recap-my mother was diagnosed with stage IV ovarian in january 2010 at 57 years old. She has had some tremendous battle! She has never had a debulking surgery since the docs say that it is too advanced.... but none of…
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What is up with all the old threads???
Dear CSN members... If you are tempted to respond to some ancient thread that you found while searching the site, please take a minute to make sure you aren't resurrecting photos and comments from members who have passed away. It's very painful for some of us, and very creepy, as well, to log on and see what appears to be…
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My 1 year cancer free anniversary is tomorrow 5-28
My one year anniversary of being cancer free is tomorrow 5-28 I am so happy to be able to live another year and to still be in remission, I give God all the glory. Hugs Lynda
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Its Over
Mom is gone..omg....i can't even begin ... omg...
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Question...scratching head
I was debulked and show "technically" cancer free. The PET scan was clear yet I am too have chemo. Is this regular...normal...any good? I thought the goal was to be at this stage with no more treatment to live a "normal" life?!?!!?
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Study on CA125 and risk of recurrence
This is a very interesting study on CA125 and risk of recurrence. http://annonc.oxfordjournals.org/content/20/2/294.full Briefly, it says that women who experienced an absolute increase in CA125 of more than 5 points over their nadir value are more likely to recur. This number was achieved by subtracting the nadir CA125…
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Monika (Mopar) deserves an award
As far as I can tell, Monika is one of the longest surviving members of this discussion board. God bless you, Monika, for enduring the loss of so many members & still staying in touch. I read your post where you doctor wouldn't say you were in remission (over 7 years ago) and you are still here. Yay! for you, girl! I'm…
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Topotecan and hair loss
Hi I was wondering if anyone knows whether you lose you hair with Topotecan? This is the chemo I will probably going on next and I would like to know whether I get to keep my hair or not Thanks Tina xx