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Ovarian Cancer

Just got home from the OVCA walk/run
I sooooo wish that each and every one of you could have been there today. They raised over $20,000 in pledges. This event is in it's third year and growing in leaps and bounds... we had over 600 runners and walkers. My ONC and most of his office ran. My family (ranging from 5 to 63) all made it over the finishline and…
Nancy is with the angels now
I will post something later. I just can't right now. Carlene
I just had my first treatment of Carbo/Taxol on Tuesday. Now I'm SO sleepy..
How long does this last? I didn't get up this morning until 8:40 which is late for me. I told my sister I was still sleepy. She asked me why I didn't stay in bed longer. I told her that I was hungry :) Anyway, I went back to bed at 9:30 and slept until 1:00. I don't feel as weak as I did this morning. However, I feel…
Happy days.
Welll after being told the chemo was failing, today we have been told that the ct scan shows no new growth!!!!! hooray , happy days. So the plan of action is for mum to have the doxil on thursday, as she was previously. However, the consultant did say that as her ascites had filled up after only a week, it could be a sign…
how many doxil infusions have you had???
After visiting the consultant today , he has said they only give 6 doxil treatments in the UK as there is no evidence that anymore is beneficial. I seem to recall someone posting on here that they had had about 18 doxil treatments? maybe I am wrong , but after he said it , I thought I don't care if it is just holding it at…
Last night I had a dream........
I was a boxer and a teacher. In the midst of a boxing match, my fellow teachers came to tell me about the state testing results. They told me, my kids needed me, because other people were giving up on them. Additionally, I had LONNNNNNNNG, luxurious dark brown hair in my dream, and I was kicking butt as a boxer! (But still…
Getting port taken out
Has anyone here had their port taken out yet? I get mine out next week and wonder if it hurts Hugs Lynda
National Ovarian Cancer Alliance
Is anybody going to the NOCA Conference in Washington, D.C. next weekend?
Happy 4th, my loves
Here's hoping that all my sisters are able to enjoy this holiday and see some fireworks, eat a hot dog or smores and enjoy family and friends. (((HUGS))) Maria PS: Carlene... we miss you, girl... are you out there celebrating with a BIG TEXAS bar-be-que?
My T-shirts came today :)
for the July 4th, Teal There's a Cure walk/run that's held in my hometown. My husband had them printed for me. They're teal with TEAM FISHKIN on the front and a huge 5 on the back for my five year survival anniversary. We got them for the granddaughters/sons/daughter-in-laws/chemo buddies/friends and of course for us.…
ascites
In March of this year, I had one and a half litres of fluid drained from my abdomen. I was diagnosed with Primary Peritoneal Cancerfrom an analysis of the fluid and my medical history but in May, when I had a laparoscopy to confirm the diagnosis, there didn't appear to be any there. My abdomen feels heavy (which is always…
HIPEC Surgery and/or OVAX Trial
Hi. I'm going to have the HIPEC surgery in two weeks, which will be followed up by an ovarian vaccine trial called OVAX. Anyone out there heard of someone having either one? Thanks, Julie
Question for Julie (Surviving and Thriving) re; HIPEC surg last April
Hi Julie, I happened to read one of your posts from last april in which you said you were going to get the HIPEC treatment in mid April. I was thinking of looking into that also. Did you get the treatment? Did it work, and were you able to tolerate it? I'd be very interested to know anything about this treatment. Thanks.
Resveratrol (Japanese knotweed)
I think a few of the board members have spoken of taking resveratrol. There seems to be conflicting information about the phytoestrogen component of the stuff. One source (www.livestrong.com) seems to think that it is bad for estrogen-sensitive cancers while another reports that it may be helpful. Here's a link to the…
Sensitive Subject
I had my debulking staging surgery on the 19th of April, have had two treatments, first was taxol/carboplatin, second was taxotere/carbo. I am still experiencing a watery orange/pink vaginal discharge. Anyone else have this? I have searched the topic in several ovcn web sights with no results. Thanks ladies, love having…
Sister is out of surgery
My sister had her hysterectomy and debulking today. The surgeon said he removed all the cancer he could see and feel. He also had to re-sect some of her intestine and ended up removing about a foot of it. He also removed her appendix, omentum and sucked out a bunch of small tumors around her diaphragm etc. He said ovarian…
New Treatment Schedule Alimta/Carbo
It’s been quite some time since I’ve been here but thought I would put this out there since I don’t see a lot about this combination for OVCA but it is a popular drug for lung cancer. Here is a quick summary. I was dx on 8/2006 and only had 1 short remission for a few months 1 year after the initial surgery and chemo. I’ve…
PPC board
Hi everyone I have emailed CSN with a request for them to develop a PPC board. Whilst I have enjoyed talking to all of the ladies on this Ovarian Cancer board, I would like a specific PPC board set up as there are differences between the 2 cancers. So this is just to alert anyone who may be interested in lobbying CSN to…
Genetic tesing ?
My oncologist wants me to be genetically tested. Since there is no family history he doesn't believe it's genetic. My sister's gynecologist says that it's important for me to be genetically tested. I also have a 20 yr. old daughter. My sister is almost 42. My question is this, how is this paid for? Do insurance companies…
Cancer and Diet
When one researches this on the internet, boy do you get a lot of different answers. I asked my oncologist about it, he said just eat well balanced meals. He told me to not be extreme. He said I would need calories to deal with the chemo. I'm just hoping the chemo doesn't destroy my appetite :) One site said avoid fruit…
Tesetaxel: Oral taxane chemo
This drug is still in clinical trials but it was fast-track approved for gastric cancer: Tesetaxel is a novel oral semi-synthetic taxane. The drug stabilises microtubules, inducing potent cytotoxicity in a wide range of tumour cell types. Certain taxanes have been approved by the FDA for the treatment of breast (BC), lung,…
First Chemo today.....SCARED advice please!
I was diagnosed with OC IIIC in early June. Surgery on June 8th. Pre-OP CA125 of 1150. Post OP CA125 down to 141. I start the Tax/Carb chemo in a few hours. Everything seems like a blurr. Thanks to my new insomnia i have found this message board and it is nice to know that so many others have hopeful stories. I hate the…
Short term memory loss
It has now been 3 months since my last chemo (That just sounds like an introduction to Alcoholics Anonymous!!) and I am finding I have acute short term memory problems. It can be quite embarassing as I am a teacher and I cannot remember my students' names. I can also be having a conversation with someone and I find I am…
Love for Lena
My Mother is a 38 year old mother of 6 boys including myself. She was first diagnosed with ovarian cancer while in the hospital giving birth to my youngest brother, now 2 years old. She is a strong woman, and has put up one heck of a fight considering the extremity of her cancer. The cancer has spread to her back as well…
Another Taken
My mom is now gone and lost her battle with this horrible cancer. She went very peacefully and was not suffering or gasping for air while dieing. If I had it to do all over again, I would do it in a heartbeat. Even though it only took a few minutes for her to go home, I could not bring myself to pull that vent off of my…
Why did I get a disease that usually hits Caucasian women from 60-64? I am only 32
I am 32 and I was 31 when I was diagnosed with a cancer that is common in Caucasian white females between the age of 60-64. I am 32 African American female. What happened???
BRCA 1 / BRCA
Hi can anyone inform me how much is the cost for this study in the USA (in a reliable laboratory). I'm seriously thinking on taking it but in Mexico is costs around 4,500 USD and my insurance won`t pay it. So maybe I might take it is USA. Thanks. Liz
Peritoneal message board
Yipeeeeeeeeeeeeeeeeeee we now have a Peritoneal messaging board :) It is lovely to have this messaging board so that all the people with either PPC or secondary Peritoneal Cancer can go to for specific help, support and advice. I understand that it will run on a trial basis so the administrators can gauge how popular it is…
Wishing for...a LazyBoy
Was away from my office for one week due to chemo, and returned on Wednesday. Been cheerfully working, busy and productive, but just now "hit the wall" and took a discussion board break. And now, I will plop on my office floor and take a short siesta, using a roll of paper towels for a pillow. Wishing I had a comfy…
CA 125 way up :(
Hello Ladies, Mom is on her second/third line treatment. She did 7 rounds of carboplatin and 13/15 weeks of a clinical trial. April 21st she started Doxil. June 16th she had her third infusion. Today Mom had a CT scan which of course we don't know the results of but we suspect is not working. When Mom started this hellish…

Ovarian Cancer

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