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Info about surgery and rehab
Hi There. I am going for a hysterectomy - done laprascopically (sp?). I'm just wondering what to expect, how I will be and what my mobility will be like. Any idea how long I would be off work, not able to care for myself, my kids, etc. Dr said I would be in hospital for about 2 days. Should I be cooking for the next few…
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If you lost your mom to this disease....
I am just venting. Tomorrow is exactly one year that my mom lost her hard fought battle with this god forsaken disease. She fought HARD. She was not ready to go. She loved us (her children) and her grand babies SO MUCH that she really was not ready to leave us. But the fact is that she fought this disease, that was stage…
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HIPEC treatment
Hey ladies. I just went to the HIPEC treatment web site. There is a webinar on this on June 15 @ 7:00 central time. It says from a dr. and patient perstpective. It could prove to be a very interesting thing to watch. I think it said you need to register. Just wanted to let everyone know. Jackie
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Back of Hand or inside elbow?
Hello everyone, I don't visit this sight too often but I have a small problem/question. As some of you may already know, my ovarian cancer came back after almost 5 years in remission! I started carbo March 25, 2011. I have small veins and it is very difficult for the nurse, not to mention the soreness and discomfort I feel…
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Still an overachiever!
So, you know how OVCA doesn't usually met to the brain? My little friend, is apparently quite the pioneer in this field and wandered right off into my left frontal lobe! First, let me thank you all for the prayers and thoughts recently. Surgery went well, and my staples will be removed on Tuesday. There were two lesions.…
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Last vaccine trial injection
I had the last of the series yesterday, came home last night and felt great. I walked 2 1/2 miles after speinding 7 of the last 12 hours on a plane. Then about 5 AM I woke up with horrible chills and such terrible body aches, I didn't know what part hurt the most. Imagine the worst case of flu you ever had, times 10. This…
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A question about HIPEC
Hi, I've been seeing quite a few things about HIPEC treatment. Has anyone ever had this treatment. My gyn/oncologist told me that it is a very rough treatment for a person to go through and could have alot of side effects. Just wondering if anyone on board has had this particular treatment yet. Thanks.
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1st Week post chemo
The first days were a fog of steroids and exhaustion. I was tired, comatose, and twitchy at the same time. It was amazing the amount of energy that it took to justshift in bed. Those first days were sheer terror, too. I was scared. The exhaustion was at a level I had not reached before and did not think was possible. Sigh,…
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Forgive me ladies
I just need to vent. I have been in remission since November 2010 and have felt great except for aches and pains. I have been going to an exercise program as well as yoga one day a week. I'm sure it will pass but I am feeling lonely and restless. I retired from my job at the end of November 2010 even though I had not…
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When illnesses collide
Hi, **** The following is probably more venting than anything else so it's ok to not read further if you're feeling down yourself ***** ............................. I can think of no other area to place this in, so here goes. I have peritoneal cancer, so far all is going very well. Still responding well to Carbo/Taxol…
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New to Website/ 2 year SURVIVOR
My name is Leslie, and I am a 2 year Survivor...I was diagnosed with OvaCa Stage 2 in August of 2005. I was 34 years old at the time, and I underwent a total hysterectomy as well as having my ovaries, fallopian tubes, cervix, omentum and 9 Lymph nodes removed, (the good news was that the disease had not spread), and ALL of…
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HN125 new anti-OVCA therapy
This information is the result of preliminary research that will take years to trickle down to benefit any of us. Nevertheless, it is pretty exciting for me to find this as I am still somewhat of a "chemophobe." For those of you who get blurry-eyed when reading scientific research, let me break it down for you: Basically,…
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Please Read
My mother (age 56 years) has been detected with breast cancer in 2005. It was operated and then the 4 chemo cycles were done. In 2010 ovarian cancer she was diagnosed with ovarian cancer. CA 125 count was more than 650. It was a stage IIIC cancer and metastasis was in abdomen. The cancer was operated and 6 chemo cycles are…
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this makes me sick!!!
I saw on the news that a woman with stage 4 breast cancer is going to lose her kids to the father who lives in Chicago!!! The judge is a woman too. I can not believe she could do this to a sick woman. she said if the mother could move to Chicago she can share custody, but she can't right now. Her dr and tx are near her and…
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Fluid Buildup
I have a very good question here. How can you be dehydrated, but your ankles and feet are swollen. My mom was on Lasix in the hospital. I called her cancer doc and he put her back on it, but I did not realize that she was dehydrated. I also asked for something to boost her appetite in which the doctor did give her…
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Card shower for 80 yr old ovarian cancer survivor
Hi everyone, My mom turns 80 on July 11 and since she just finished her last chemotherapy for ovarian cancer she is too weak and sick to have a party. I have asked all my friends to send a card for a card shower, but I thought cards from women who have been through the same thing could offer words of encouragement. Please…
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Getting ready for neighborhood yard sale
I gotta lot of books on natural healing & cancer prevention that are leaving my house. Maybe someone else can use them now. I was so focused on preventing breast cancer as I figured that disease was high risk for ALL women why should I be any different? I guess my situation could be worse as I know some people are dealing…
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Doxil
Had my second Doxil infusion May 19th. After the first one my CA-125 went from 704 to 1520. I was told this it typical. No side effects the first time, but this time I have a mouthful of sores and a rash around my bra area. Just wondering if anyone here has had success with Doxil and what the side effects were. And is the…
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My Mother's service is today...SHAME ON MSKCC>>Her doctor never even called us to say anything. How
Hi everyone....I am sending slide show to Hissy Fitz to distribute somehow....Thanks for everything...I feel like I am going to throw up....Mom's oncologist for almost 2 years never even called to say "my condolences"....not once....nothing....this after our last visit there involved waiting 4 hours for chemo, while Mom…
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Daughters of mums with ppc?
Hi all, looking for you who have mums with ppc which in treatment is very similar to ovarian cancer. I am looking for support, trading questions and results, thoughts, and happy hopes for the future with our mums. My mum is diagnosed with ppc in stage IV. She is hospitalized at the moment but set up for rehab soon. No…
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Ca 125
what does it mean if before chemo my mom had a ca125 of 75. I thought that was low considering she has stage 4. Now she had it checked today after two chemos and it is 10. i don't think this could be accurate. can someone explain all this to me?
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Sarah, the Carcinista.....Things I Don't Have to Worry About Anymore
For all of you who do not belong to the Inspire board, or did not follow Sarah's blog, I am curring and pasting this posthumous entry, from Sarah and her husband. Sarah and I sat together on the couch looking at her computer, trying to make sense of things. At the moment, she was in a place of clarity, somewhere between…
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Molecular Profiling/Clearity Foundation
Has anyone had experience with molecular profiling and/or the Clearity Foundation? I emailed my oncologist and here was his reply (so I think I need to get as much information about it as I can before I proceed.) His reply: There are many tests right now for ovarian cancer are not considered to be ready for general use…
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Muscle issues
I had Ovarian Cancer, and had chemo for 6 months. Now I am having problems with my muscles. It makes 2 years this month since I had a treatment. I was just wondering if anyone else has had a muscle problem from the Chemo Treatments. Thank You
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studies - request for help
My mom was diagnosed with stage 4 primary peritoneal/ovarian cancer 2 years and 2 months ago at the age of 62(although she turned 63 within weeks of her diagnosis). Her presenting symptom was pleural effusion - she thought she had pneumonia and it ended up to be cancer. She has been in chemo for all but 3 months of the…
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Nancy's Obituary
Here is a link to Nancy's obituary. http://www.recordonline.com/apps/pbcs.dll/article?AID=/20110605/NEWS0301/306059990/-1/NEWS03 Her family has requested that memorials in Nancy's honor be made to Memorial Sloan-Kettering Cancer Center Ovarian Cancer Unit, PO Box 27106, NY, NY 10087 Carlene
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port
Hello beautiful teal sisters !! I had my port installed today. I was scared, but it really wasn't bad. I have a power port that can withstand the ct scans with power injectors. I don't know if thats something new or not. It actually took almost as much time to get me and the room prepped as it did for the doc to do the…
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Dear Zinaida
I read one of your responses and your bio. I am so glad that you are in some type of remission. My diagnosis was almost the same as you, except I was 2A and didn't have it spread to the breast. I also was on Carbo/Taxo the 1st time and 2nd time. Unfortunately mine came back again in 2008. I tried carbo/gemzar, but became…
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Home After Hospital Stay
My mom was first diagnosed with Ovarian Cancer Stage 4 in 2009. She had the tumor debulking surgery and fluid drained off of her lungs. She has been through 2 or 3 rounds with chemo that responded for the cancer. This last illness has really taken a toll on my mom. Her lungs were filled up with fluid almost to the point of…
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new treatment
I am getting ready to fight my 3rd battle with this awful disease that just snuck up on me again when my ca125 was 22 almost 2 months ago and now I have ascites and a golfball side tumor in my left side. I am very scared and hope the new clinical trial they put me on will work. One of the drugs will be cytoxan I think…