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HN125 new anti-OVCA therapy
This information is the result of preliminary research that will take years to trickle down to benefit any of us. Nevertheless, it is pretty exciting for me to find this as I am still somewhat of a "chemophobe." For those of you who get blurry-eyed when reading scientific research, let me break it down for you: Basically,…
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Please Read
My mother (age 56 years) has been detected with breast cancer in 2005. It was operated and then the 4 chemo cycles were done. In 2010 ovarian cancer she was diagnosed with ovarian cancer. CA 125 count was more than 650. It was a stage IIIC cancer and metastasis was in abdomen. The cancer was operated and 6 chemo cycles are…
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this makes me sick!!!
I saw on the news that a woman with stage 4 breast cancer is going to lose her kids to the father who lives in Chicago!!! The judge is a woman too. I can not believe she could do this to a sick woman. she said if the mother could move to Chicago she can share custody, but she can't right now. Her dr and tx are near her and…
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Fluid Buildup
I have a very good question here. How can you be dehydrated, but your ankles and feet are swollen. My mom was on Lasix in the hospital. I called her cancer doc and he put her back on it, but I did not realize that she was dehydrated. I also asked for something to boost her appetite in which the doctor did give her…
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Card shower for 80 yr old ovarian cancer survivor
Hi everyone, My mom turns 80 on July 11 and since she just finished her last chemotherapy for ovarian cancer she is too weak and sick to have a party. I have asked all my friends to send a card for a card shower, but I thought cards from women who have been through the same thing could offer words of encouragement. Please…
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Getting ready for neighborhood yard sale
I gotta lot of books on natural healing & cancer prevention that are leaving my house. Maybe someone else can use them now. I was so focused on preventing breast cancer as I figured that disease was high risk for ALL women why should I be any different? I guess my situation could be worse as I know some people are dealing…
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Doxil
Had my second Doxil infusion May 19th. After the first one my CA-125 went from 704 to 1520. I was told this it typical. No side effects the first time, but this time I have a mouthful of sores and a rash around my bra area. Just wondering if anyone here has had success with Doxil and what the side effects were. And is the…
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My Mother's service is today...SHAME ON MSKCC>>Her doctor never even called us to say anything. How
Hi everyone....I am sending slide show to Hissy Fitz to distribute somehow....Thanks for everything...I feel like I am going to throw up....Mom's oncologist for almost 2 years never even called to say "my condolences"....not once....nothing....this after our last visit there involved waiting 4 hours for chemo, while Mom…
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Daughters of mums with ppc?
Hi all, looking for you who have mums with ppc which in treatment is very similar to ovarian cancer. I am looking for support, trading questions and results, thoughts, and happy hopes for the future with our mums. My mum is diagnosed with ppc in stage IV. She is hospitalized at the moment but set up for rehab soon. No…
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Ca 125
what does it mean if before chemo my mom had a ca125 of 75. I thought that was low considering she has stage 4. Now she had it checked today after two chemos and it is 10. i don't think this could be accurate. can someone explain all this to me?
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Sarah, the Carcinista.....Things I Don't Have to Worry About Anymore
For all of you who do not belong to the Inspire board, or did not follow Sarah's blog, I am curring and pasting this posthumous entry, from Sarah and her husband. Sarah and I sat together on the couch looking at her computer, trying to make sense of things. At the moment, she was in a place of clarity, somewhere between…
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Molecular Profiling/Clearity Foundation
Has anyone had experience with molecular profiling and/or the Clearity Foundation? I emailed my oncologist and here was his reply (so I think I need to get as much information about it as I can before I proceed.) His reply: There are many tests right now for ovarian cancer are not considered to be ready for general use…
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Muscle issues
I had Ovarian Cancer, and had chemo for 6 months. Now I am having problems with my muscles. It makes 2 years this month since I had a treatment. I was just wondering if anyone else has had a muscle problem from the Chemo Treatments. Thank You
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studies - request for help
My mom was diagnosed with stage 4 primary peritoneal/ovarian cancer 2 years and 2 months ago at the age of 62(although she turned 63 within weeks of her diagnosis). Her presenting symptom was pleural effusion - she thought she had pneumonia and it ended up to be cancer. She has been in chemo for all but 3 months of the…
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Nancy's Obituary
Here is a link to Nancy's obituary. http://www.recordonline.com/apps/pbcs.dll/article?AID=/20110605/NEWS0301/306059990/-1/NEWS03 Her family has requested that memorials in Nancy's honor be made to Memorial Sloan-Kettering Cancer Center Ovarian Cancer Unit, PO Box 27106, NY, NY 10087 Carlene
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port
Hello beautiful teal sisters !! I had my port installed today. I was scared, but it really wasn't bad. I have a power port that can withstand the ct scans with power injectors. I don't know if thats something new or not. It actually took almost as much time to get me and the room prepped as it did for the doc to do the…
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Dear Zinaida
I read one of your responses and your bio. I am so glad that you are in some type of remission. My diagnosis was almost the same as you, except I was 2A and didn't have it spread to the breast. I also was on Carbo/Taxo the 1st time and 2nd time. Unfortunately mine came back again in 2008. I tried carbo/gemzar, but became…
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Home After Hospital Stay
My mom was first diagnosed with Ovarian Cancer Stage 4 in 2009. She had the tumor debulking surgery and fluid drained off of her lungs. She has been through 2 or 3 rounds with chemo that responded for the cancer. This last illness has really taken a toll on my mom. Her lungs were filled up with fluid almost to the point of…
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new treatment
I am getting ready to fight my 3rd battle with this awful disease that just snuck up on me again when my ca125 was 22 almost 2 months ago and now I have ascites and a golfball side tumor in my left side. I am very scared and hope the new clinical trial they put me on will work. One of the drugs will be cytoxan I think…
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The Chair
I love you ladies. The port and numbing cream worked beautifully. My fear of sitting here and hooking up to the machine was manageable. I shed a tear or two and admitted to the nurse I was scared. She said they were there to help. She was great. Right now I am finishing up the first bag of fluids. Then they start the…
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HIPEC Testimony
Dear Friends, I have made my decision to go with HIPEC (please visit http://www.hipectreatment.com/ if you haven't studied this treatment) to treat my first recuurent OC. (Please read my profile for my desease history.) I will do it by end of July because I have booked Alaska Cruise and that is one of the "have to do with…
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Hi, Ho, HI, Ho it's off to chemo I go
Hi Loves, Heading out the door for my next chemo.... it's been i8 months now that I'm chemoing for my 1st reccurrance. Today it's cisplatin/gemzar and next week just the gemzar. Just wanted to say that if I'm AWOL for few days, I'm dialing up Netflix, reading and being downright b*tchy from gads of steroids........ I think…
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carboplatin
I posted this under ovarian cancer though I have primary peritoneal. I can't understand why mine doesn't have its own space because there are people here with the same thing. Is there some way a new area could be created? Primary peritoneal cancer is treated like ovarian cancer and if there were two areas, I could use both…
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CAAT Diet/Treatment
Hello, Has anyone been on the CAAT Diet? I am considering it for my mom who has stage iv ovarian.
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debulking surgery
Hello ladies. I posted here about a month ago. I had my surgery on 5/9/11. I had an awful time with this surgery. I was in hospital for 12 days. Doc removed my rt. ovary and entire omentum which was where the cancer was. He told me that he got about 95% but I am going to need some type of chemo. Today I went for a f/up…
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My Sister's Physical Pain
Hi. On May 17th my sister Karen, age 46, had suboptimal debulking surgery after 6 rounds of neoadjuvant chemo. (DX 12/10, stage 3C). They removed her omentum, ovaries and tubes. They said that they couldn't get the uterus out because the bladder is attached? Anyway, 3 weeks post-op and her abdominal pain is increasing. She…
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Who knew? MSKCC has a Thrift Shop
I was poking around on the Memorial Sloan-Kettering site, trying to see if I could make a memorial donation in Nancy's memory via the internet, when I came across this: This spacious thrift shop on the Upper East Side of Manhattan is known for being the beneficiary of the highest quality donations of designer and vintage…
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Ascites - Stage IV Ovarian
Hello Everyone, I am a new member. My mom was diagnosed with Stage IV OVCA back in 2007. She had a total hysterectomy followed by chemo treatments. She has been in remission 3 times, and has been on 3 or 4 difference meds. Her most recent was Gezmar, with no response. She is going in today to start Topotecan. I am really…
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Nancy
As many of you now know, my mother is no longer with us. As hard as it is for me to take the time to right this, but I know it's what she would have wanted. She would want everyone to know that she did not die in pain, and that she never once gave up. She left no stone unturned, in reguards of treatments to take. She tried…
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Re: Getting Ducks in a Row
I am with you LQ. I am going to get started with a couple projects I've been meaning to do while I am feeling well. PS: I would appreciate prayers today as I'm having a ct scan this evening to see what's happening with a rise in my CA125 from 22.7 to 103 after a three month break from chemo. Thank you, Chris