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Ovarian Cancer

Has anyone gone on a vacation on a plane while on chemotherapy
Hi, I was just wondering if anyone has flown while undergoing chemotherapy. I would like to go away but there was an article in a cancer magazine advising people with cancer and flying to be very careful. Apparently, the problem comes about when their counts go down low and the air on a plane is not very good. My primary…
Question: Anyone removed ovaries pre-menopausal? Side Effects, please?
Hi -- I hope you are all doing well. I am from the bc forum and thought this question may be more appropriate for this forum. Has anyone here removed their ovaries pre-menopausal? My friend recently removed her ovaries. She is 33. She is experiencing severe hot flashes. If you have gone through this, pre-menopausal, does…
Insurance refusing to approve my taking of Avistan.
Has anyone else had their refuse to cover a drug? My dr. had told me Tuesday that they were refusing to approve it, but he felt as though it would be approved by my second treatment on July 19. I had my first treatment Tues. of Taxol and Carbo. Thanks Ladies. Carla
Phase III trial concluded that there is no benefit with maintenance paclitaxel to patients with EARL
(not sure what to make of this, but for those with EARLY STAGE OVC, this may be helpful. This just came out in May 2011:) A Randomized Phase III Trial of IV Carboplatin and Paclitaxel × 3 Courses Followed by Observation Versus Weekly Maintenance Low-Dose Paclitaxel in Patients With Early-Stage Ovarian Carcinoma: A…
Quilt Square Project - Final Call
Carlene and I made some lovely quilt squares and I am embrod. the names from the list we currently have on each square. This is a final call for names: if you want a square for yourself or a relative/friend please reply to this post. You can see previous posts by Carlene (aka Hissy_Fitz) for more information if you are new…
Hair loss
Hi all !! I am 2 weeks and 1 day out from my first chemo tx. My scalp has been very itchy and tender. My hair is starting to fall out. I noticed a lot in the drain from the shower this morning. I am going to have a shaving get together this weekend !! My bloodwork has been all good. My ca125 started at 4500- down to 1651.…
Plueral effusion
My cancer was diagnosed after I suffered double plueral effusion. I underwent 3 chest drains within 2/3 weeks of each other before I started on my chemo regime. 4 weeks into my treatment I was back in hospital having my 4th chest drain. The irony of this was like a kick in the teeth as I was a road runner and used to run…
PARP as a maintenance drug?
I am currently on a PARP trial after being declared platinum resistant after my first round of IV chemo. I have been on this trial for a little over a year. My doctor has been watching a tiny spot on my CAT scan that has remained unchanged all this time. I finally talked my doctor into a PET scan and the scan came back…
tina brown
I have been on and off the board for a few years now and finaly found some one with the same cancer. I have had chemo surgery and chemo. I was diag 4-08 my ca125 was 2500. Now it is 12 it has been going up a little at a time the lowest was 6. 10, 11,12. I go tomorrow for a blood test my dr say he would not worry until it…
Glad to be back home.........again.
Gorgeous NY doc said my CT scan was "perfect." CA125 is 9. He thinks I may have another UTI, however, and should have my bladder checked, just to make sure I don't have a prolapse. His thinking, since I have to have hernia surgery, is that I should have both at once, if bladder surgery is called for. Does this never end?…
Stage 3c
That was what we heard from the gyn/onco appt for my sister today. The types were mostly squamous cell and they did find a few clear cells which he said were so small in amount that it was irrelevant. She will have six cycles of taxol and I think Cistplatin? She will have to stay in the hospital overnight while one of them…
Taxol and Soy - Contraindication
I just received my new edition of Anticancer. In it the author refers to a study which indicates that soy products can interfere with the effectiveness of Taxol. He states that further research is needed, but recommends not cosuming soy for 4 or 5 days before and after a Taxol treatment.
One year ago today
One year ago today I talked myself into believing that the mass on my ovary wasn’t cancer. When I woke up in the recovery room and looked at the time, I knew I was wrong and terror set in. I was diagnosed with stage 3a, grade 3, clear cell ovarian cancer. I prayed that I didn’t have any post-op complications and could make…
How much is "a few more weeks" worth to you?
If you read Sarah Feather's blog (the Carcinista), you will recall that when her doctors had "the talk" with her, they said Taxol might buy her "a few more weeks." Sarah had vowed, after losing her hair three times, that she would not "go out" bald. Thus, she declined the Taxol. What would you have said? Would you have…
I'm back.....
I took a little trip out of town with my daughter, for her birthday. It was kind of a last minute thing. We left on Tuesday and came back Friday. I'm tired, but glad we had the chance to make some memories. Today was my middle son's birthday, so I made a "from scratch" chocolate ganache cake and we had chicken and steak on…
2nd round of chemo
Hi All, I finished my second round of chemo on Wednesday of this week. It is kicking my butt. I am exhausted. I have to get woken up to eat and drink. I am working very little. I need to work as much as I can...financially there is no other option. Nausea levels are worse this go round...I did not think that was possible.…
Just got home from the OVCA walk/run
I sooooo wish that each and every one of you could have been there today. They raised over $20,000 in pledges. This event is in it's third year and growing in leaps and bounds... we had over 600 runners and walkers. My ONC and most of his office ran. My family (ranging from 5 to 63) all made it over the finishline and…
Nancy is with the angels now
I will post something later. I just can't right now. Carlene
I just had my first treatment of Carbo/Taxol on Tuesday. Now I'm SO sleepy..
How long does this last? I didn't get up this morning until 8:40 which is late for me. I told my sister I was still sleepy. She asked me why I didn't stay in bed longer. I told her that I was hungry :) Anyway, I went back to bed at 9:30 and slept until 1:00. I don't feel as weak as I did this morning. However, I feel…
Happy days.
Welll after being told the chemo was failing, today we have been told that the ct scan shows no new growth!!!!! hooray , happy days. So the plan of action is for mum to have the doxil on thursday, as she was previously. However, the consultant did say that as her ascites had filled up after only a week, it could be a sign…
how many doxil infusions have you had???
After visiting the consultant today , he has said they only give 6 doxil treatments in the UK as there is no evidence that anymore is beneficial. I seem to recall someone posting on here that they had had about 18 doxil treatments? maybe I am wrong , but after he said it , I thought I don't care if it is just holding it at…
Last night I had a dream........
I was a boxer and a teacher. In the midst of a boxing match, my fellow teachers came to tell me about the state testing results. They told me, my kids needed me, because other people were giving up on them. Additionally, I had LONNNNNNNNG, luxurious dark brown hair in my dream, and I was kicking butt as a boxer! (But still…
Getting port taken out
Has anyone here had their port taken out yet? I get mine out next week and wonder if it hurts Hugs Lynda
National Ovarian Cancer Alliance
Is anybody going to the NOCA Conference in Washington, D.C. next weekend?
Happy 4th, my loves
Here's hoping that all my sisters are able to enjoy this holiday and see some fireworks, eat a hot dog or smores and enjoy family and friends. (((HUGS))) Maria PS: Carlene... we miss you, girl... are you out there celebrating with a BIG TEXAS bar-be-que?
My T-shirts came today :)
for the July 4th, Teal There's a Cure walk/run that's held in my hometown. My husband had them printed for me. They're teal with TEAM FISHKIN on the front and a huge 5 on the back for my five year survival anniversary. We got them for the granddaughters/sons/daughter-in-laws/chemo buddies/friends and of course for us.…
ascites
In March of this year, I had one and a half litres of fluid drained from my abdomen. I was diagnosed with Primary Peritoneal Cancerfrom an analysis of the fluid and my medical history but in May, when I had a laparoscopy to confirm the diagnosis, there didn't appear to be any there. My abdomen feels heavy (which is always…
HIPEC Surgery and/or OVAX Trial
Hi. I'm going to have the HIPEC surgery in two weeks, which will be followed up by an ovarian vaccine trial called OVAX. Anyone out there heard of someone having either one? Thanks, Julie
Question for Julie (Surviving and Thriving) re; HIPEC surg last April
Hi Julie, I happened to read one of your posts from last april in which you said you were going to get the HIPEC treatment in mid April. I was thinking of looking into that also. Did you get the treatment? Did it work, and were you able to tolerate it? I'd be very interested to know anything about this treatment. Thanks.
Resveratrol (Japanese knotweed)
I think a few of the board members have spoken of taking resveratrol. There seems to be conflicting information about the phytoestrogen component of the stuff. One source (www.livestrong.com) seems to think that it is bad for estrogen-sensitive cancers while another reports that it may be helpful. Here's a link to the…

Ovarian Cancer

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