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Peritoneal message board

Tina Brown
Tina Brown CSN Member Posts: 1,036 Member
edited June 2011 in Ovarian Cancer #1
Yipeeeeeeeeeeeeeeeeeee we now have a Peritoneal messaging board :)

It is lovely to have this messaging board so that all the people with either PPC or secondary Peritoneal Cancer can go to for specific help, support and advice.

I understand that it will run on a trial basis so the administrators can gauge how popular it is before they let it run permantly. So therefore, please use it.

I have met so many lovely ladies on the OVCA boards and will continue to visit and post and see how you are all doing.

Thanks to everyone who lobbied for it.



Tina xxxxxx
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Comments

  • eward
    eward CSN Member Posts: 210
    #2
    Thanks to YOU, Tina!

    Thanks to YOU, Tina!
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  • westie66
    westie66 CSN Member Posts: 642
    #3
    eward said:

    Thanks to YOU, Tina!

    Thanks to YOU, Tina!

    Peritoneal Cancer Discussion Board
    Great! There are a few people on the stomach cancer discussion board that really have peritoneal cancer so I'll alert them.
    Now, everyone, what are the different treatments you are under for your particular kind of peritoneal cancer (primary and/or secondary). Mine is secondary peritoneal cancer following gallbladder cancer (gallbladder and its cancer gone as well as part of liver so all that is left are nodules (malignant) on the peritoneum) and I'm being treated with what is called FOLFOXFIRI (oxaliplatin/irenotecan/leuco something or rather/5FU every 2 weeks. Some nasty side effects that we've been able to control.
    Cheryl
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  • Mum2bellaandwilliam
    Mum2bellaandwilliam CSN Member Posts: 412
    #4
    westie66 said:

    Peritoneal Cancer Discussion Board
    Great! There are a few people on the stomach cancer discussion board that really have peritoneal cancer so I'll alert them.
    Now, everyone, what are the different treatments you are under for your particular kind of peritoneal cancer (primary and/or secondary). Mine is secondary peritoneal cancer following gallbladder cancer (gallbladder and its cancer gone as well as part of liver so all that is left are nodules (malignant) on the peritoneum) and I'm being treated with what is called FOLFOXFIRI (oxaliplatin/irenotecan/leuco something or rather/5FU every 2 weeks. Some nasty side effects that we've been able to control.
    Cheryl

    Yay that is fantastic news ,
    Yay that is fantastic news , welldone Tina and all the other ladies and gents who sent MSGS, it seems we have been listened to!
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  • kayandok
    kayandok CSN Member Posts: 1,202 Member
    #5
    Yay!
    Well done Tina! And the rest of you!
    k
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  • wanttogetwellsoon
    wanttogetwellsoon CSN Member Posts: 147
    #6
    kayandok said:

    Yay!
    Well done Tina! And the rest of you!
    k

    Zippeedeedodah!
    Tina...
    Well done. It's great that they responded and it might make a big difference to people who have this disease to have it acknowledged in its own right.

    Love

    Sue
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