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The Hospice Conversation
First, no, I'm not ANYWHERE needing hospice care. I still plan on returning to school, cancer free, on August 22nd. However, it occurred to me that it would be easier to get honest responses from my husband if I broach the subject of hospice while I'm still healthy. (It's hard to tell a very very sick person that it would…
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Claritin to help with Neupogen side effects?
I noticed that one or two of you mentioned taking Claritin the day of your neupogen shots....I assume this abates some of the side effects. Can someone verify/deny this? I'm in treatment and have had to take the neupogen shots from the get go (4 each chemo session). I am getting increased bone/joint pain which I attribute…
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Had a great foot massage yesterday
Stopped by Face in the Mirror yesterday and Particia gave me the best foot massage I have ever had. She is going to let me come once a week for a massage, she says it will help the neuropathy in my feet. If you get a chance to stop by face in the mirror, i highy recommend them. Hugs to all Lynda
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I have a date for hernia surgery
August 9th. Unfortunately, I won't know until I wake up if he could do the repair via a laparoscopy route or not. If I luck out and get the lap procedure, I will be home the next day. An open abdominal surgery will mean a week in the hospital. I have a 14 inch incision and he plans to reinforce the whole thing with mesh. I…
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Starting chemo again!
I finished my last dose of carbo/taxol 5 or 6 weeks ago and my CA125 is now slightly over 1000. Apparently the chemo stopped working after the fifth infusion and my cancer began growing again whilst I was still receiving chemo. Which means I suppose that the last 6 months have largely been wasted. All I got out of it has…
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I'm back :)
Hello!!! It's been a long time, huh? So, unfortunately I haven't got a chance to check in on anybody, I took a break from here for a while, I needed time to myself, sort everything out and whatnot. For those of you that aren't Facebook friends with me, I chopped my longgg hair off. Poof. Gone. I had more than 15 inches…
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DNA
Someone told me Chemo can change your DNA, is that true?
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Low white blood count and diet?
Today I went back for lab work. My second treatment was July 19. My white counts were pretty low. They gave me an antibiotic to take for a week as a precautionary measure. Are there any foods I can eat to help build this count up as much as possible? Thanks ladies, you're the best! Carla
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Dr. David Servan-Schreiber - RIP
author of "Anti-Cancer: A New Way of Life" Obituary: Dr. David Servan-Schreiber Empowered Cancer Patients http://www.cmu.edu/news/blog/2011/Summer/obituary-david-servan-schreiber.sh tml (very sad news)
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Insurance Issues and Costs
Hello Everyone- I just stumbled over this website and SO HAPPY!!! I was diagnosed with Endometriosis Cancer October 2010. I was unemployed at the time and still have not found a permanent job. However, my COBRA just ended and it has been a challenge to find health insurance. (Obama does have a reduction for COBRA-- Mine…
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CA 125 up to 19900 while on doxil
I'm freaking out! My ca 125 is 19,900 and I've been on doxil since dec. I had liver rfa in august in attempt to treat 2nd recurrence (ca 125 was 60). Had liver rfa and when checked in oct. It was 10000. Dr. decided to wait and recheck - it was even higher so we started doxil and it started coming down getting as low as 140…
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Christine B How are you???
Hi Christine, Haven't seen you on here in quite a while and was missing you. Hope all is well. ((((hugs)))) Linda
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Ovarian cancer and Endrometrosis
Is there a link between ovarian cancer and endrometrosis? (I have no idea how to spell that word LOL! Hopefully you ladies will know what I am talking about) I have read where several women with end. also developed ovarian cancer. My sister talked to a couple of nurses who said they had never heard of that. I know I read…
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RETURN TO CHEMO
Well my Teal sisters, I am back in Chemo. CT/PT scan shows something very small, no surgery, best approach is chemo. I am getting Avastin, Gemzar and Carboplatin. Anyone else doing or have done this. My Ca125 went from 9 to 24.5 then 50, so Dr. jumped right on it. Here I thought it was going to be my last 3 month checkup…
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End of maintenance chemo and CA125 numbers
CA125 has stayed 3 and below though out maintenance treatment. The last one is Aug.18. The question is: Should I EXPECT a rise? Is the chemo keeping the number artificially low? Cindy
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I met one of our teal sisters today!!
It was cafewoman and she is amazing. I feel like I have known her for a very long time. We sat on a bench near the Niagara river and had a cooltreat on a hot day 88 degrees. I think we should all try to have mini-meets with our sisters. I live in New York so any one who can meet, the more the merrier. Thank you Colleen for…
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HIke takes a toll
Went on a hike with my Living Strong group this morning. I worked out yesterday and my legs were already a little sore. Well now I am experiencing a consistent ache in the joint at the top of my left thigh. I am going to take tylenol and just try to feel good that I am getting out and doing something physical. I am still…
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Subscribe Comments for no offense to anyone, i neeeeed clinical, non inspirational answer , bottom l
July 21, 2011 - 1:25am > I have been asking for a detailed description of what to expect, physically , on progression of a dying patient. I have always walked my life in gratitude and love.I am not ready to die....but I know that I am. With never having more than 4months remission.I am fearful of the unknown part. I am…
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Brain Mets and Ovarian Cancer
Ok, so I thought I would post some information about Ovarian Cancer that Mets directly to the brain with no stops in between, for future readers. I'll start with some stats and some background and then discuss the treatments that I have had and the treatment that remains, along with side effects. First the background: I've…
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TRPV6 channel blocker: non-toxic OVCA treatment
Taken from: http://www.soricimed.com/technology/oncology A major challenge to modern medicine is the diagnosis and treatment of cancers. Developments of new insights into the biology of cancer have provided new strategies for the management of these diseases. It has become clear over the last number of years that the…
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Temporary Disability/Lay Off
I have been fighting stage two ovarian cancer for four years with chemo on and off over the years. I am recovering from 9 rounds of chemo and need to recoup due to fatigue and memory problems. I live in New Jersey and will go out on temporary (short) term disability in a week and just received a lay off notice from the…
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Just met with 3 year survivor with no reoccurance
I work in a wellness setting and just met with a woman who got dx with Ovarian 3C in 2007 and after tx, she has not had a reoccurance. Just had a recheck done last week and CA-125 is good. There is some good news out there---thought I would share. I did not ask about her tx (but wanted to) because it was not the focus of…
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Update from a few weeks ago. My insurance has approved Avaistan.
I had my first treatment with it on Tues. Other than fatigue and bad taste in my mouth, I'm doing okay from it. I also had Taxol/Carbo. This was my second treatment. 2 down; 4 to go!
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Just need to vent
So it's my 3rd day post 6th chemo and I am achey and sore and in the middle of moving and I am tired. I try to stay positive but everything is pissing me off. I try to put on a front that I am okay because I don't want to burden any body, but I am finding it more difficult and I am trying to relax, but can't. Because I am…
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Mom, 54, losing the will to fight / live
Hello, I am 28 years old, and my Mom was diagnosed in the last month with ovarian cancer that had metastasized to the colon and spleen. She was shocked and heartbroken, but she agreed to go for a major surgery at a very well known hospital. She had a debulking surgery done last week, removing 5 lbs of tumors. They had to…
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How many rounds/treatments of chemo has everyone had?
Yesterday my Mom had her 24th chemo in a year. She was so anxious and weepy yesterday. Her iron counts were good at 106 but her nerves have been shot so she wasn't eating very well. Unfortunately she lost 6 lbs in a month so she is now sitting at 83 lbs. I had a long talk with her and my Dad about her food intake and…
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Who knew????
Venom in the saliva from a shrew kills OVCA cells. Seriously. This is going into clinical trials soon. http://www.watchmojo.com/tv/Grab/CBC/4167949/ Carlene
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My CT came back clean
I had a CT scan today, and already got the results It was clean, and I am stoked as can be Have not slept well all week, so hopefully, i can start getting a decent nights sleep
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Clearity Foundation - tumor blueprinting
This foundation tests ovarian cancer tumors to determine the best course of treatment for that specific tumor. I don't know how this differs from the tumor assay many doctors run, but I believe it is more specific than those tests. http://www.clearityfoundation.org/clearity-overview.aspx I understand that the foundation…
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Question for long term survivors with a single occurrance of OVCA
I know there are a number of you on this board who are two or three or more years out from the end of their treatment. I am curious as to what your CA-125 did a year or more out from the end of your treatment. Did it rise a bit, or stay rock solid where it was at the end of chemo? Mine was <1 at the end of chemo, and…