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Stupid Google
Ok..I'm an idiot. Need some encouraging words after googling brain metastes prognosis. (word of advice...don't do it!) I know.I'm stupid. I figure if the numbers were REALLY that bad, someone would have told me something! On the up side. Treatment 2 is done, 13 to go. Glowing Crab Feast is scheduled for Saturday and Life…
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Positive results from my last chemo
Just had my final check up after my 6 cycles of carbo/taxol and I feel so relieved. I was so nervous waiting in the doctors waiting room :( My CA125 has halved (211 - 122) and eventhough it is still quite high my doctor is really pleased as it started off at 1,288. My Ct scan is clear so they are happy to leave me alone…
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Treatment for OVCA & bone metastases
ASCO 2011: Phase II Cabozantinib Trial in Patients with Advanced Solid Tumors and Bone Metastases By Anna Azvolinsky, PhD | May 24, 2011 -------------------------------------------------------------------------------- Data from a phase II study of cabozantinib (XL184) in patients with advanced solid tumors show that the…
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my worst fear has been confirmed today :(
Christ although I knew this was coming my fear has been confirmed (I just was kinda hoping it would be ok) The cancer is spreading :( . Doxil is failing mum. I just can't believe it. Mum is home from hospital now and has the district nurse coming in everyday. When she told me this afternoon , we shed tears , but she said…
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Git it done and over with
Ok, so the hair in the unmentionable places started going first. Last night, I noticed that the hair on my head was shedding way more than usual. I kind of lost it. I had a mini mental break down. I found a hair cuttery place that was open after 7 pm and off I went. My favorite gal was done for the night and I did not want…
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shortness of breath
I am scheduled for my 4th round of carbo/taxol tomorrow and most of my side effects have been discussed by one or more of you ... low wbc low rbc etc. I get the neuprogen shots to boost the white blood count but thus far my red blood count (Hemog. and hermaticrits) seems to be a tad above the level for getting either a…
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Newest number...it's all good
Had my CA125 done today, and it's 12 - a one point decrease from last month. I will take it, and not complain. Carlene
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Chemo and Advil side effects
It's been awhile since I've been on this website. You have been so helpful and reassuring to me that I now have a question that might sound silly. I have arthritis in my legs and at times the pain is terrible. My Dr. knows this so it really never entered my mind that taking cisplatin and cpt 11 may cause some leg pain. I…
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Is this a symptom of menopause?
I had my surgery on May 18. I'm 48. I am hungry ALOT!! Is being this hungry a symptom of menopause? I know that a lot of women gain weight in menopause. Thankfully, so far so good, no hot flashes or mood swings. However, I realize those could follow later. I am on Zoloft (well generic) Anyway, I recently read (perhaps on…
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Question: Does anyone ask their drs office for copies of blood work, & reports?
Hi everyone, just wondering if anyone sees their medical oncologist and ask for copies of any blood work or scans that they have taken. I never did when I first had cancer and I've read alot where it says that people should get copies of anything done. I've been asking my onc office to please send me copies of my blood…
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Screening Does Not Reduce Ovarian Cancer Mortality
Screening Does Not Reduce Ovarian Cancer Mortality Elsevier Global Medical News. 2011 Jun 3, K Wachter Annual screening with the CA 125 blood test and transvaginal ultrasound for ovarian cancer did not reduce the risk of dying from the disease for women with average risk, according to results of a multicenter screening…
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New Picture
I am going to try to take a decent pic today to replace the current one. I am no longer the woman in the pic, I am no longer in treatment ( last Avasitin was monday) and I am 30 pds heavier( I ate my way thru chemo ) and yesterday was a year since my diagnosis ! I also have curly fuzz/hair now . I just wanted to say…
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Low on white blood cells
Hi, I do not know if this is the accurate name in english but mum gets very low on white blood cells after chemo which cause dangerous infections. Anything you can do to prevent it? Have any of you been treated with the same symptoms? Thanks, Millie
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I begin my chemo next Tuesday (28th) any advice?
What should I take with me? I am SO nervous about this. I will have my port put in Monday morning. Thanks in advance for your help :)
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Chemo Sensitivity Test
Dear Ladies, Since I will have second debulking surgery on 7/22 (it will be a HIPEC surgery), I have decided to send the cancer cell sample to the lab for chemo sensitivity test. I have been told by a friend who is a medical oncologist in Ohio about this testing. He refers his patient to the lab to do the test to narrow…
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pray for mum please.
mum is in hospital again, she was drained on wednesday and they perforated her bowel, she is on antibiotics and is stable but the surgeon said this could change within a matter of hours.He then went on to say that it would be very challenging to operate on her if they can't control it with antibiotics.Fingers crossed it…
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Fast heart rate?
My sisters heart rate has been in the 140's since her surgery. It is supposed to be between 60-100. And, she has a fever of 101. They are doing blood cultures and a chest x-ray. Did any of you experience this after your surgery?
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chemo bucket??
I never heard of this but I was talking to other cancer survivors from 5or6 years ago and they had buckets by their chairs during chemo tx. There wasn't Emend back then When I told them never threw up they were truly amazed. They said the chemo room was very smelly. Having cancer is bad enough but I am grateful for the new…
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Hair falling out.....um..not on head..maybe crass of me but
Giggle....ok, I have been dreading the whole hair falling out aspect. I have my favorite hair dresser on notice that as soon as I notice it falling out, I am running over. I am having it chopped ultra short or shaving it off. I am not letting cancer or chemo have total control of it. Despite having that I am taking control…
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Leesa 3.0 about to commence production!
Brief but happy update! CA125 prior to brain surgery was 284, now it's down to 35! Looks like brain mets does cause a rise in the cancer marker. We'll still keep an eye on it though. Whole brain radiation starts on Monday. Bad news, will lose hair again. Worse news...it may not grow back. However, in the grand scheme of…
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would you believe I lost my wig!!
Last time I saw it was on my head. Can't blame chemo brain since I have been of chemo for 2 months. I was at work and I became very warm so I took it off and put on my hat. Oh well I hate that thing anyway but I need it for at least a few more weeks as my hair is coming back and is about an inch long. I am embarised if one…
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Has anyone actually had the HIPEC treatment with recurrent ovarian cancer
I've been doing alot of reading about the HIPEC treatment and was wondering if anyone on this board has actually gone thru this treatment. Can it be done when all other chemotherapies have more or less failed? If anyone has had it, were the side effects bad, and what were the results? Thanks.
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2nd opinion seems as flippant as the first
Hi all Was initially diagnosed with Stage IV ovarian based on pathology of pleural fluid and a pelvic exam a little over a month ago. Have had 2 rounds of chemo and have time for a second opinion. CT showed peritoneal fat stranding but no mass--all else normal. Just got back from MD Anderson. They did a pap and a…
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Debulking
Please tell me about your recovery from the debulking surgery. I want to know what to expect after my sister's surgery. She has heard that she won't be able to anything for weeks. She is more optimistic though.
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Medicare
Just found out that I'm eligible for Medicare coverage. Those of you who have Medicare: have your chemo treatments always been covered? What about the iv anti-nausea meds? Any information you ladies can give would be greatly appreciated! I've got a lot of investigative work to do. Blessings, Natalie
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An option to consider for liver mets: Interventional Radiologist
I am meeting with an Interventional Radiologist Wednesday to discuss treatment options for my extensive liver metastesis. I just wanted to throw this out as an idea for those of you who may have liver mets and are running out of effective chemo options. We had to really press hard for a referral from my oncologist, but the…
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OC Cells Bully Their Way In
I just saw this story in New Scientist about how OC cells "bully" their way into other tissues, and it reminded me of the theory behind the call to boost one's D3 blood levels. That theory, postulated by the scientist who first noticed a correlation between the sunshine states and lower incidences of some cancers, is that…
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newly diagnosed
Hi all! I am a newly diagnosed ovarian cancer patient stage 1c. I had a suspicious cyst that was found on a ct scan. My gyn was 90% sure it was an endometrioma but said the only way to be sure is to do surgery. On May 24th I underwent a laparoscopic hysterectomy robotic assisted. I was told everything was fine-no cancer.…
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Please help me!
Hello, My friend is 47 years old. She has a mass growing from her ovary into her colon about the size of a baseball. She has been referred to an oncologist because her dr. said it didn't look good. They originally gave her a test which came back negative, but the dr. says these tests can give off false negatives. She is…
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ca125 is normal, is it possible to be cancer?
Hi There...I am on the breast ca and thryoid ca boards. I am now having a hysterectomy in August due to large ovarian cysts that have not gone away. Just wondering if anyone on this board had a normal ca125 test, but still had a cancer diagnosis. I have many symptoms - heavy cycles, pain during sex, frequent urination,…