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Newest number...it's all good
Had my CA125 done today, and it's 12 - a one point decrease from last month. I will take it, and not complain. Carlene
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Chemo and Advil side effects
It's been awhile since I've been on this website. You have been so helpful and reassuring to me that I now have a question that might sound silly. I have arthritis in my legs and at times the pain is terrible. My Dr. knows this so it really never entered my mind that taking cisplatin and cpt 11 may cause some leg pain. I…
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Is this a symptom of menopause?
I had my surgery on May 18. I'm 48. I am hungry ALOT!! Is being this hungry a symptom of menopause? I know that a lot of women gain weight in menopause. Thankfully, so far so good, no hot flashes or mood swings. However, I realize those could follow later. I am on Zoloft (well generic) Anyway, I recently read (perhaps on…
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Question: Does anyone ask their drs office for copies of blood work, & reports?
Hi everyone, just wondering if anyone sees their medical oncologist and ask for copies of any blood work or scans that they have taken. I never did when I first had cancer and I've read alot where it says that people should get copies of anything done. I've been asking my onc office to please send me copies of my blood…
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Screening Does Not Reduce Ovarian Cancer Mortality
Screening Does Not Reduce Ovarian Cancer Mortality Elsevier Global Medical News. 2011 Jun 3, K Wachter Annual screening with the CA 125 blood test and transvaginal ultrasound for ovarian cancer did not reduce the risk of dying from the disease for women with average risk, according to results of a multicenter screening…
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New Picture
I am going to try to take a decent pic today to replace the current one. I am no longer the woman in the pic, I am no longer in treatment ( last Avasitin was monday) and I am 30 pds heavier( I ate my way thru chemo ) and yesterday was a year since my diagnosis ! I also have curly fuzz/hair now . I just wanted to say…
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Low on white blood cells
Hi, I do not know if this is the accurate name in english but mum gets very low on white blood cells after chemo which cause dangerous infections. Anything you can do to prevent it? Have any of you been treated with the same symptoms? Thanks, Millie
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I begin my chemo next Tuesday (28th) any advice?
What should I take with me? I am SO nervous about this. I will have my port put in Monday morning. Thanks in advance for your help :)
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Chemo Sensitivity Test
Dear Ladies, Since I will have second debulking surgery on 7/22 (it will be a HIPEC surgery), I have decided to send the cancer cell sample to the lab for chemo sensitivity test. I have been told by a friend who is a medical oncologist in Ohio about this testing. He refers his patient to the lab to do the test to narrow…
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pray for mum please.
mum is in hospital again, she was drained on wednesday and they perforated her bowel, she is on antibiotics and is stable but the surgeon said this could change within a matter of hours.He then went on to say that it would be very challenging to operate on her if they can't control it with antibiotics.Fingers crossed it…
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Fast heart rate?
My sisters heart rate has been in the 140's since her surgery. It is supposed to be between 60-100. And, she has a fever of 101. They are doing blood cultures and a chest x-ray. Did any of you experience this after your surgery?
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chemo bucket??
I never heard of this but I was talking to other cancer survivors from 5or6 years ago and they had buckets by their chairs during chemo tx. There wasn't Emend back then When I told them never threw up they were truly amazed. They said the chemo room was very smelly. Having cancer is bad enough but I am grateful for the new…
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Hair falling out.....um..not on head..maybe crass of me but
Giggle....ok, I have been dreading the whole hair falling out aspect. I have my favorite hair dresser on notice that as soon as I notice it falling out, I am running over. I am having it chopped ultra short or shaving it off. I am not letting cancer or chemo have total control of it. Despite having that I am taking control…
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Leesa 3.0 about to commence production!
Brief but happy update! CA125 prior to brain surgery was 284, now it's down to 35! Looks like brain mets does cause a rise in the cancer marker. We'll still keep an eye on it though. Whole brain radiation starts on Monday. Bad news, will lose hair again. Worse news...it may not grow back. However, in the grand scheme of…
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would you believe I lost my wig!!
Last time I saw it was on my head. Can't blame chemo brain since I have been of chemo for 2 months. I was at work and I became very warm so I took it off and put on my hat. Oh well I hate that thing anyway but I need it for at least a few more weeks as my hair is coming back and is about an inch long. I am embarised if one…
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Has anyone actually had the HIPEC treatment with recurrent ovarian cancer
I've been doing alot of reading about the HIPEC treatment and was wondering if anyone on this board has actually gone thru this treatment. Can it be done when all other chemotherapies have more or less failed? If anyone has had it, were the side effects bad, and what were the results? Thanks.
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2nd opinion seems as flippant as the first
Hi all Was initially diagnosed with Stage IV ovarian based on pathology of pleural fluid and a pelvic exam a little over a month ago. Have had 2 rounds of chemo and have time for a second opinion. CT showed peritoneal fat stranding but no mass--all else normal. Just got back from MD Anderson. They did a pap and a…
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Debulking
Please tell me about your recovery from the debulking surgery. I want to know what to expect after my sister's surgery. She has heard that she won't be able to anything for weeks. She is more optimistic though.
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Medicare
Just found out that I'm eligible for Medicare coverage. Those of you who have Medicare: have your chemo treatments always been covered? What about the iv anti-nausea meds? Any information you ladies can give would be greatly appreciated! I've got a lot of investigative work to do. Blessings, Natalie
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An option to consider for liver mets: Interventional Radiologist
I am meeting with an Interventional Radiologist Wednesday to discuss treatment options for my extensive liver metastesis. I just wanted to throw this out as an idea for those of you who may have liver mets and are running out of effective chemo options. We had to really press hard for a referral from my oncologist, but the…
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OC Cells Bully Their Way In
I just saw this story in New Scientist about how OC cells "bully" their way into other tissues, and it reminded me of the theory behind the call to boost one's D3 blood levels. That theory, postulated by the scientist who first noticed a correlation between the sunshine states and lower incidences of some cancers, is that…
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newly diagnosed
Hi all! I am a newly diagnosed ovarian cancer patient stage 1c. I had a suspicious cyst that was found on a ct scan. My gyn was 90% sure it was an endometrioma but said the only way to be sure is to do surgery. On May 24th I underwent a laparoscopic hysterectomy robotic assisted. I was told everything was fine-no cancer.…
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Please help me!
Hello, My friend is 47 years old. She has a mass growing from her ovary into her colon about the size of a baseball. She has been referred to an oncologist because her dr. said it didn't look good. They originally gave her a test which came back negative, but the dr. says these tests can give off false negatives. She is…
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ca125 is normal, is it possible to be cancer?
Hi There...I am on the breast ca and thryoid ca boards. I am now having a hysterectomy in August due to large ovarian cysts that have not gone away. Just wondering if anyone on this board had a normal ca125 test, but still had a cancer diagnosis. I have many symptoms - heavy cycles, pain during sex, frequent urination,…
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ovarian cysts / ovarian cancer.....is there a link?
I'm interested to know how many of you have had cysts prior to diagnosis. I am asking because I have been missing periods on and for 6 months and now i am having them when i shouldn't,only had this once on my most recent cycle. I went for an ultasound about 3 cycles and they said there was a cyst, but it looked normal.I am…
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Mom Needs Prayer Part 2
I have a good question here. I don't have all the answers to this one. How do you mend a broken heart??? My mom was admitted into the hospital 7:00 am yesterday and they transferred her to the hospital that specializes in heart problems. I was told by the doctor that she may have had a heart attack. I was told when they…
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Mom Needs Prayer
My mom is back in the hospital again. She is short of breath and doctors don't know why. She was just admitted this morning. The doctors are going to try to figure out what is going on. The doctor may have released her too early from the first go around with the pnemonia when she was in the hospital for it. Hopefully,…
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Immuno suppressed and narcotic farts
So, I am still working my way through the first week post chemo. My ears are ringing like no tomorrow. They feel really off. I have an inner ear disorder and this just feels like it is making it way worse. The constipation is still a problem. I label the topic narcotic farts, because bowel/gas movements are just so…
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New here
I had surgery on May 18. I will begin chemo most like the last week of this month. I am in stage 3c Clear cell. I am VERY scared and worried. I had to make myself stop reading on-line because I was feeling as though I had no hope to survive this. I am 48. In April 2010 I lost my husband to a massive heart attack. I have…
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Who's crafty?
My local NOCC chapter is soliciting squares for one or more ovarian cancer quilts, to be raffled off at our September 5K. All proceeds will go to ovarian cancer research and awareness. Any of you who might be interested in making a square, either for yourself or in memory of someone else, please let me know and I will get…