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Multiple Myeloma

What to expect ? Anyone tried Faspro?
My mother was just recently diagnosed with advanced MM. She is 77 yrs old. She was started on steroids and short developed a MM tumor in her eye and can’t see in the left eye. She was recently started on Faspro(daratumumab). Now her condition seems worse. She’s very weak, unstable on her feet, lethargic, looks skinnier,…
MM with Secondary Cancer
Hello, My dad was diagnosed in 2013 with MM, this is his journey in a nutshell... . He has the additional complication of 17p deletion. In September 2014 he undertook a stem cell transplant but has never gone into remission. Over the years he has been on every drug on offer but still never got remission. In 2021, dad was…
Parent with MM
Hello, my dad was recently diagnosed with multiple myeloma. Understandably, the diagnosis has been hard on my family. My dad has never been one to talk about his emotions or ask for help. He is also a doctor. I’m afraid that he is holding back his emotions. I know that if the diagnosis has had this big of an impact on me…
How to help a sick friend
Please help me. I need some advice. I have a very dear friend who is a survivor of throat cancer. He was recently diagnosed with multiple myeloma and is going through some very extreme and rough treatments. I have always let him know that I’m here for him texting every day just sending love and support. Until recently he…
Want to give up
I have had multiple myeloma for three and one half years. It was caught very late, despite my going to the doctor about my symptoms for four years. I have had many treatments including a stem cell transplant. But, despite the fact that I am now in a remission, I do not feel better. The treatments damaged my heart, lungs,…
Relapsed refractory myeloma question
Hi everyone, my mom was diagnosed with relapsed multiple myeloma in February 2020. She had been on Daratumumab and Pomalyst about eight months, but was taken off the Pomalyst due to extreme fatigue and neutropenia and put on Ixasomib (Ninlaro) plus Daratumumab plus Dexamthasone. She’s been on this for 6 months. This has…
Please need your help
I am heartbroken. My father went through nasal cancer in 2013. I became a member of this site to get advice, tips, ideas on how to help my father through all of this. My dad recently was found to have a tumor on his forehead that went through to the other side of skull (no brain or organ involvement). After the biopsy,…
Lookng for local support groups in the DMV area
Hi, I've been in chemo treatment for 3 months now and, I'm lookng for local cancer support groups in the DMV area. I also have other medical conditions that complicate my MM, and interferes with my healing process and my ability to walk without continuous pain. My family have been very supportive, but do not understand…
Sleepy, tired, exhausted, forgetful, yes sometimes depressed
Hi Everyone, Does anyone have a suggestion, or the best trick besides healthy lifestyle, I personally follow, on how to alleviate TIREDNESS when taking Revlimid as maintenance therapy or plain therapy as it's for me? I won't give up writing (and reading) since they are my preferred indoor activities. Chemotherapy…
Hello there!
Hello, I am a very close friend to someone with MM and wanted to know if there is someone here who has goe through Chemo, radiation, and stem cell transplant that I can connect with ? Thank You
New - Kappa Light Chain numbers
Hi. Quicks history. I suffer from many chronic illnesses. A few years ago I was being watched for MGUS when my KAppa light chain was around 25 and ratio was around 1.9. my hemo at the time said after being watched for a year I was fine. That was 2019. Fast forward to now. I am much sicker now. Have had to have bladdder out…
COVID 19 -Vaccines
Hello everyone- My Name is MG , I Diagnosed with MM - Lt Chains On March 2029. I wentt hrogh 5 Cicles of therapy , Than self Bone Marrow Transplant in october 2019- It was a success. Now- 14 Month Later, the Blood tests Shows Steady increase of The Cancer cells. Free Kappa Lt Chains. and I need to Go on Maintainess doses…
Bone marrow biopsy
Hello. I am seeking information on bone marrow biopsy for my mom. She is going on 84 yrs old and is in a weakened state due to a colon resection mistake that eventually led into septic shock. Long story make short, she endured much to correct the procedure and survived-something they didn't expect-yet she is not the same.…
New here, and scared to death (please help)
I had some routine labs done two weeks ago and my total protein was flagged as high and calcium was borderline high. Total protein: 8.6 Calcium: 10.2 I then did repeat blood work this week. Total protein 8.4 Calcium: 10.3 CBC panel normal. Hematology panel normal. Dr wants me to get blood work Monday to "rule out" multiple…
Nonstop Nosebleeds
Hi! My mom is battling MM and she is suffering nonstop nose bleeds. We have been to an Ears, Nose and Throat doctor twice this week and got her nose cauterized twice within two days and give Afrin, ointment and Saline. Mom’s platelets are extremely low right now and the dr said that only other option is to pack her nose to…
Steroids
I have just completed my second stem cell transplant and have started on my "maintenance" infusions. I am extremely sensitive to the steroids. Anyone else having issues as well?
Hi everybody
Hi everybody, I join this forum because my blood test results have shown signs of multiple myeloma (free kappa light chains have been detected) and I actually feel the symptoms. I only still have to go to one specialist for confirmation and disease level determination. Please I will need your support and advice. Is there…
not in remission, but going on with Revlimid 15 mg alone
Weird situation. Revlimid 15 mg, no remission. Been told that Dexamethasone causes depression in me. Prior to that, I needed to discontinue Velcade because of peripheral neuropathy. I don't feel bad besides over 10 hours of sleep within 24 hours. No back pain and no leg pain. I feel hanging in the air taking Revlimid…
Mom's Story
Hello MM Forum, I'm sad to report that my mom died yesterday due to compl. of MM. Why am I here? I wanted to share her story, for whatever that is worth to anyone. Also, I was hoping that someone here might comment on the specific circumstances of her passing. We are a little confused about what was happening in these…
Amitriptylinum
Hello All, I'm a Multiple Myeloma survivor. This post is though for all who suffer from pain related to cancer. Recently, browsing the internet I have found an abtract on Amitriptylinum, a medication that controls pain and depression. This is me among thousands. I rushed to my primary doctor and told him I had back pain…
crappy caregiver
I feel like the worst caregiver ever. I get so angry and upset so easily. I wish I had more Grace to handle all this but I've never had to take care of anyone before like this. I've always been single, healthy and highly independent. Then I met my husband 5 years ago and we moved in together. I love him deeply but he's…
24 hour urine test I am frustrated! Please help
Hi all, my name is andrea and I have been dealing with symptoms for over a year have seen rheumatologist, cardiologist and now hemotologist oncologist symptoms: swelling in right arm and hand turns purple joints hurt elbow knee right hip and hand and really bad lower back pain, exhausted all the time as well Did blood test…
Daratumumab
Hi, Just wondering if anyone has had experience with this drug. My husband was initially dx with MM over ten years ago and after 2 transplants, surgery, chemo, and several radiation treatments for various recurrances, then eventually a maintenance chemo routine for the past couple years he once again has active MM. There…
Just starting....
Hi All, My husband was recently diagnosed with high risk MM. Started Dex and Rev today. Velcade next week, twice a week. We applied for financial help through HealthWell which paid for the Rev. That stuff would have cost us $2k per month even with our insurance. Im going to be the caregiver, I have no idea what to expect.…
Anyone with MMMT
My friend was just diagnosed with MMMT Cancer, by surprise, what can I do to assist and help her get through Chemo with less side effects.
Painful Biopsy Is No Longer Necessary For Multiple Myeloma Patients
A new technique was invented by MIT Engineers to circumvent the painful biopsy procedure when diagnosing multiple myeloma. (source: mmdevelopments.org)
Stop eating
my dad have multiple Myeloma the last stage , my dad is strong he is fighting to live. I believe he’s tired ,he stop eating and now don’t want any more Meds. My Mom also a strong Woman she is his caretaker and doing all she can to make him as comfortable as possible. my da become mean sometimes and then real nice .He get…
A story of hope & IMETELSTAT - Treatment for MDS & MF
Hello Patients, Survivors, Caregivers, Family Members and Medical Professionals of cancer. I am here to tell the story of my best friend who passed away several years ago from various forms of sarcoma. By the time it was over probably too many to even keep track of. This is not only a story of sorrow but most importantly…
Story of Survival
Okay, so for those waiting on bated breath to hear the story I’ve been yapping about, surrounding my own brush with “cancer”, such as it is . . . insignificant, I admit, when compared to everyone else’s challenges on this site . . . . here it is. In the midst of the story I shared on the “About Me” tab of mine . . . I went…
My husband refuses help
Hi, I'm new to this forum, and I'm so glad I found it. My husband was diagnosed with Multiple Myeloma 8 years ago! He has not taken any meds or had any proceedures done in all these years. He is very stiff and tired and has lost a lot of weight. He is down to 121 now from 142. He is basically skin and bones. He is refusing…

Multiple Myeloma

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