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Multiple Myeloma

MGus
Blessings to all, I was diagnosed with having MGus last year. My levels are low for right now. I was referred to this site as I was seeking out a support group. With so much information out there, I'm curious to find out how one is coping with this? I still have not received my Covid shot and was wondering who did/did not?…
COVID 19 -Vaccines
Hello everyone- My Name is MG , I Diagnosed with MM - Lt Chains On March 2029. I wentt hrogh 5 Cicles of therapy , Than self Bone Marrow Transplant in october 2019- It was a success. Now- 14 Month Later, the Blood tests Shows Steady increase of The Cancer cells. Free Kappa Lt Chains. and I need to Go on Maintainess doses…
Insurance
My sister was diagnosed with MM in June 2020. She has gone thru chemo and a car t cell transplant. She has to go on remvilid for maintenance. She has to go on medicare in May because she is turning 65. I am trying to find the best insurance plan I can because the treatment is so expensive. I was wondering if anyone knows…
Bone marrow biopsy
Hello. I am seeking information on bone marrow biopsy for my mom. She is going on 84 yrs old and is in a weakened state due to a colon resection mistake that eventually led into septic shock. Long story make short, she endured much to correct the procedure and survived-something they didn't expect-yet she is not the same.…
New here, and scared to death (please help)
I had some routine labs done two weeks ago and my total protein was flagged as high and calcium was borderline high. Total protein: 8.6 Calcium: 10.2 I then did repeat blood work this week. Total protein 8.4 Calcium: 10.3 CBC panel normal. Hematology panel normal. Dr wants me to get blood work Monday to "rule out" multiple…
Nonstop Nosebleeds
Hi! My mom is battling MM and she is suffering nonstop nose bleeds. We have been to an Ears, Nose and Throat doctor twice this week and got her nose cauterized twice within two days and give Afrin, ointment and Saline. Mom’s platelets are extremely low right now and the dr said that only other option is to pack her nose to…
Steroids
I have just completed my second stem cell transplant and have started on my "maintenance" infusions. I am extremely sensitive to the steroids. Anyone else having issues as well?
Hi everybody
Hi everybody, I join this forum because my blood test results have shown signs of multiple myeloma (free kappa light chains have been detected) and I actually feel the symptoms. I only still have to go to one specialist for confirmation and disease level determination. Please I will need your support and advice. Is there…
not in remission, but going on with Revlimid 15 mg alone
Weird situation. Revlimid 15 mg, no remission. Been told that Dexamethasone causes depression in me. Prior to that, I needed to discontinue Velcade because of peripheral neuropathy. I don't feel bad besides over 10 hours of sleep within 24 hours. No back pain and no leg pain. I feel hanging in the air taking Revlimid…
Mom's Story
Hello MM Forum, I'm sad to report that my mom died yesterday due to compl. of MM. Why am I here? I wanted to share her story, for whatever that is worth to anyone. Also, I was hoping that someone here might comment on the specific circumstances of her passing. We are a little confused about what was happening in these…
Amitriptylinum
Hello All, I'm a Multiple Myeloma survivor. This post is though for all who suffer from pain related to cancer. Recently, browsing the internet I have found an abtract on Amitriptylinum, a medication that controls pain and depression. This is me among thousands. I rushed to my primary doctor and told him I had back pain…
crappy caregiver
I feel like the worst caregiver ever. I get so angry and upset so easily. I wish I had more Grace to handle all this but I've never had to take care of anyone before like this. I've always been single, healthy and highly independent. Then I met my husband 5 years ago and we moved in together. I love him deeply but he's…
24 hour urine test I am frustrated! Please help
Hi all, my name is andrea and I have been dealing with symptoms for over a year have seen rheumatologist, cardiologist and now hemotologist oncologist symptoms: swelling in right arm and hand turns purple joints hurt elbow knee right hip and hand and really bad lower back pain, exhausted all the time as well Did blood test…
Daratumumab
Hi, Just wondering if anyone has had experience with this drug. My husband was initially dx with MM over ten years ago and after 2 transplants, surgery, chemo, and several radiation treatments for various recurrances, then eventually a maintenance chemo routine for the past couple years he once again has active MM. There…
Just starting....
Hi All, My husband was recently diagnosed with high risk MM. Started Dex and Rev today. Velcade next week, twice a week. We applied for financial help through HealthWell which paid for the Rev. That stuff would have cost us $2k per month even with our insurance. Im going to be the caregiver, I have no idea what to expect.…
Anyone with MMMT
My friend was just diagnosed with MMMT Cancer, by surprise, what can I do to assist and help her get through Chemo with less side effects.
Painful Biopsy Is No Longer Necessary For Multiple Myeloma Patients
A new technique was invented by MIT Engineers to circumvent the painful biopsy procedure when diagnosing multiple myeloma. (source: mmdevelopments.org)
Stop eating
my dad have multiple Myeloma the last stage , my dad is strong he is fighting to live. I believe he’s tired ,he stop eating and now don’t want any more Meds. My Mom also a strong Woman she is his caretaker and doing all she can to make him as comfortable as possible. my da become mean sometimes and then real nice .He get…
A story of hope & IMETELSTAT - Treatment for MDS & MF
Hello Patients, Survivors, Caregivers, Family Members and Medical Professionals of cancer. I am here to tell the story of my best friend who passed away several years ago from various forms of sarcoma. By the time it was over probably too many to even keep track of. This is not only a story of sorrow but most importantly…
Story of Survival
Okay, so for those waiting on bated breath to hear the story I’ve been yapping about, surrounding my own brush with “cancer”, such as it is . . . insignificant, I admit, when compared to everyone else’s challenges on this site . . . . here it is. In the midst of the story I shared on the “About Me” tab of mine . . . I went…
My husband refuses help
Hi, I'm new to this forum, and I'm so glad I found it. My husband was diagnosed with Multiple Myeloma 8 years ago! He has not taken any meds or had any proceedures done in all these years. He is very stiff and tired and has lost a lot of weight. He is down to 121 now from 142. He is basically skin and bones. He is refusing…
Marijuana use during chemo?
Hello everyone. This is my first time posting on here. I have been trying to find information on whether or not marijuana is ok to use while in chemo. Over my life I have seen several people use it during different types of chemo to help with nausea and to stimulate their appetite. I was diagnosed with MM about 4 months…
I'm burnt out
I can't take it anymore. I just wish one of us would die at this point.
CAR-T Cancer Approach Has Surprising Success in Multiple Myeloma
Doctors are reporting unprecedented success from a new cell and gene therapy for multiple myeloma, a blood cancer that's on the rise. Although it's early and the study is small -- 35 people -- every patient responded and all but two were in some level of remission within two months. In a second study of nearly two dozen…
New Diagnosis - Feeling Helpless
I'm new here. I know I'm going to ramble. I guess letting it out is good. My dad (68 years old) was just recently diagnosed with Multiple Melanoma Stage 3. His primary care dr dropped the ball. He's had symptoms for over a year. It wasn't until he went to the emergency in excruciating pain and the inability to walk did…
Support for Multiple Myeloma
Hello, anyone out there with this disease? I recently have started the journey with this disease. Diagnosed with MM in July due to abnormal protein in blood IGA. Compression fracture on spine found on bone scan and few spots elsewhere were noted in July 03. Hospitalized in August03 with severe back pain, two days later…
Tattoo
How soon after SCT can one get a tattoo? Is the risk too high due to bone weakness?
Researchers Uncover New Way To Enhance Function Of Immune Cells To Combat Multiple Myeloma
Researchers have uncovered a new way to enhance the function of a specific type of immune cell that destroys tumors in multiple myeloma, a form of bone marrow cancer considered incurable. In their study, the scientists blocked a hormone-related mechanism that suppresses these immune cells, restoring their ability to battle…
Gives up before necessary
My husband was diagnosed two years ago with multiple myeloma after his right hip and pelvis collapsed. He was in severe pain and underwent radiation for about three months. During that time I did everything for him. When the radiation was done and his tumor gone and he was no longer in pain or on pain meds he was left with…
Gone from a being a bride to a caregiver in 2 weeks
My husband and I got together July 2013. We had a loving, passionate relationship. And still do...most of the time. We are both in our mid 40's. We planned to marry down the road but then he started having health issues. He needed insurnace so we married sooner than later so I could add him to my insurance. 2 weeks after…

Multiple Myeloma

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