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Multiple Myeloma

Hi--husband going through tests for Multiple Myeloma
Hi..I don't where to begin except that I have been crying for 2 days and feel so alone..For the past year my husband has had test after test for undiagnosed vertigo..Some funky bloodwork led to further tests and scary initial discoveries..The most worrisome have been an M spike in the serum. From what I gather it is on the…
I don't know how to deal with this one!
In December 2011, I received a phone from my husband and he informed me that he has myeloma or carcinoma or something like that. So, I got off phone and started to read a few things about it. Still not sure if that is what he really has. Then, I saw INCUREABLE and after his 5 heart attacks, diabetes and one of the toughest…
Smoldering multiple myeloma
My sister was told today she has a form of cancer called Smoldering multiple myeloma. I was wondering if anyone has it or knows any information about it.Her doctor said there is not a cure for it but it is treatable.She is looking the best place to go for treatment. My sister is 68 years old and I love her with all my…
diagnosed at 21
I am a 21 year old female and I was recently diagnosed with Multiple Myeloma this past March. I had never even heard of this type of cancer until then. I have been in and out of hospitals for the past 8 years and the doctors all told me I had blood clots in my spinal area and legs but they never bothered to test for…
MM with severe heart disease
My husband was dx last week at the VA with MM,he is 65,the Dr told us it was from exposure to agent orange when he was in Viet Nam, he had a light heart attach right after he got out of the service when he was in his early 20's which we know think may have been AO also,at the age of 42 he had a quadruple bypass and has had…
Advice for a friend
Hi- I have a friend who was dx with Multiple Myeloma about a year ago. The Dr. say that it is "smoldering" but will eventually be full blown. What does this mean? Months, years...I am trying to gather as much info as I can in order to be of help. So anything you can share with me is greatly appreciated!! Thank you!
I need some assistance please
My immunofixation serum was run twice and it come back with a a poorly defined area of restricted protein mobility is detected and is reactive with IgM and lambda antisera. My Immunoglobulin A is 22L, RDW is 18.7H and my b12 is 2000H and I take no supplements for b12. Please help I am going a little crazy. Teri
Immunofixation Serum interpretation
I have two lab result in which I got the same response. My Doc is contemplating sending me to an oncologist and so here is what my result reads. "A poorly defined area of restricted protein mobility is detected and is reactive with IgM and labda antisera." Also have B12 is 2000H extremely high Immunoglobulin A is 22L which…
Plasmacytoma
Hi im Rory from the philippines, I was diagnosed with a Solitary Plasmacytoma tumor in my right maxillary region 2 years ago and I underwent surgery and radiotherapy, lately I was diagnosed with a recurrence. The spot where it recurred was from one of my salivary gland and lymph node on my left submandibular region, I just…
Myelofibrosis
Hello- I stumbled upon this board last night and thought I would write. I am 59 years old and was diagnosed with myelofibrosis in November of 1996. I don't know how I have lasted for almost 15 years. In the beginning, of course, I panicked. My husband and I were living in the Boston area then and I immediately went to Dana…
Lost someone to multiple myeloma
Hi, I saw the site on an ad and considering I lost my grandfather to mm, I thought it would be nice to join the site. It has been about 8 years since my grandfather passed away and I know that it is hard for people not only to deal with, but even harder if you have it. If anyone wants to talk because they have a loved one…
Revlimid
Hi, I have just started in a clinical drug study program with Revlimid. My doctor seems to think I may be on the drug rather than the placebo by the way my blood tests are reacting. My question is side effects: Dizziness, headaches, fatigue, tremors and others. Is anyone on Revlimid, and are these associated side effects?…
Revamid
Is anyone using Revamid...if so is your insurance company paying for it. Thanks...Carmelo
M-Myeloma
I was identified of having MM in 2003. My problem actually began in 2001/I have solitary plasma cytoma at that time. It developed into MM in 2003. Everyone kind of gave up except me. At the near end , 2005, I was offered a stem cell transplant to be paid by DOD. I didn't have a choice so I accepted. In addition, I did not…
Multiple Myeloma
A friend of mine's mother has just been dz with Multiple Myeloma. I know very little about this cancer. Can you help me help her mother? I am on this site becasue I have stage iv colon cancer. Sometimes people think because you become a survior you are an expert on all cancers. I know very little. If you can direct me to…
poor vision and dexamethasone
Have been on 40mg dexamethasone since Feb 2010, am told its the reason for my deteriorating poor vision. I now have new lenses which is helping little. what else can i do. At the its going am likely to go blind shortly.
Newly Diagnosed, SCT
I was diagnosed in April. I have had a rod placed in my right Humerus. I have had a treatment with Zometa but no treatments for the myeloma. I have been refered for Stem cell transplant at University of MD. Could anyone give me any insight into the transplant?
Multiple Myeloma
Good Day, My mother has been living with multiple myeloma for the past 3 1/2 years. Recently the chemotherapy was not yielding the kind of results necessary to keep the white blood cells in the fighting mode. Last week, my mom was admitted in hospice care (Gilchrist). The health professionals and staff are wonderful.…
Caregiver Coping
My dad was just diagnosed yesterday with MM. He is a relatively healthy 51 year old man with no chronic issues/diseases. This comes at a total shock. I am angry with everything, every one, anything, etc. I'm not angry with my dad, but I'm 'angry with the world'. My faith has been shaken, and I know that now is when you…
Anger and Short Fuse
I have been in remission since May 2009 and am on a 3 year maintenance of Velcade, dexamethasone, and Revelmid. I've notice my personality has changed for the worse. I seem to have anger issues (not violent ones), very short fused, and tend to be very blunt when talking to people instead of considering what I say may hurt…
Rory and Lou
Thank you for your answers and suggestions. At this point my friend is asymptomatic, smoldering myeloma, so next blood and bone scans in six months. I did share the information about the blog with her and it turns out she's been taking turmeric (sp?) for several months. Thank you both again for your help. marge
Diagnosis Questions
Hi, I would like to ask anyone who has active MM. I recently reviewed my blood test (serum electrophoresis) and BMB results and Im a bit confused, I was diagnosed with solitary extramedullary plasmacytoma back in 2007 and last november 2009 I had a biopsy (sample was from a swollen lymph node) and the doctors say it's a…
MM question
Is multiple myeloma really plasmacytomas that are in multiple sites? Do plasmacytoma tumors occur in all MM patients?
immpower
Does anyone have information about immpower. Are there studies being conducted on how effective it may be on treating multiple myeloma?
Friend recently diagnosed
Good morning, A very good friend of mine was recently diagnosed with myeloma. She doesn't seem to be proceeding with treatment, and isn't really forthcoming with alot of information. She was so supportive of me when I went thru breast cancer treatment, what can I do to be the most supportive of her during this time? Thanks…
Mouth Pain
I am a 58 year old man who was diagnosed with multiple myeloma and CLL in August 2009. In the Fall of 2009, I did three rounds of Revlimid which did lower my MM cancer level significantly. In December 2009, I did a stem cell transplant which lowered my current cancer level to almost 0. My problem began in January 2010 when…
Myeloma is back
Anyone out there that has reccuring multiple myeloma sure would like to know how your doing, my husbands myeloma has started back up again, curious to how someone is responding to second bout of this cancer.......Thankful for any info....
MM cancer
My mother had flu about a month and a half ago ,then she started to feel very bad pain in her back and high fever she was taken to the hospital and they injected tranquilizer to her. She had high blood pressure and blood sugar which she never had. She was treated and blood pressure and blood sugar came back to normal. But…
Multiple Myeloma - Zometa reaction
I was diagnosed to have multiple myeloma Stage I ( Smouldering )two years ago. Not being treated right now. However, I am getting Zometa infusions every month. I was told that some patients get flu-like symptoms and mild fever (Less than 100.5)following the infusions. I had two infusions so far. At both times I had high…
Muscle spasms
My husband has multiple myeloma and cracked another rib yesterday. Today he is having severe muscle spasms in that area. Do you have any remedies that could help?

Multiple Myeloma

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