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Multiple Myeloma

Pancreatic Cancer
Hello everyone: I just found this board and I was reading some of the MM page. My stepfather has had Multiple Myeloma for 6 years. When he was first diagnosed he was given less than 6 months to live. He tried several different chemo's and Velcade is what worked for him the best. It's lying dormant now and has for about 2…
Fear
Anyone out there have good news about Myeloma?
Anyone Diagnosed With MYELOFIBROSIS?
I was diagnosed in 2008 and it has been a long, hard fight!!! Check my profile and Let's Talk!!!
How to cope
My dad found out last Friday that he has MM. He is 53 years old. He goes back tomorrow (Friday) to Mayo Clinic to talk about tx options, etc. Basically I'm just wondering how people that have MM or family/friends even begin to get through this. I'm devasted and I can't imagine what my dad is going through. This isn't…
My mother having cancer
My mother had breast cancer 7 years ago and that was very hard to go through. Then 2 years ago they found out that she has multiple myeloma, she was in stage 4. Her body at that time was doing good with the medication then her body rejected it. Luckyly her counts where up and she could have the stem cell transplant. In Feb…
Platelet count
Dr. Tan, who was on call for my mom's regular GP, Dr. Whitaker, called our home on 16th of January. He provided information that her bloodwork from 15 January indicated a concern on his part that her platelet count was 25. On 4 January her count was 71. This caused concern for Dr. Tan and he said we should relay this…
Support with Cleansing, Essential Oils for chemo and side effects
My mother was diagnosed with MM 10 years ago. She underwent chemo, intravenous and oral. She last year( April 09) went through a stem cell transplant and as of this December her counts were on the rise. She is about to endure Velcade! I am wondering, has anyone prepared their body for chemo??? And please share what you…
No Transplant
Does a person have a very good chance if they go into remmission and don't have a SCT? I was just wonder because I may not have one. I hope to get into remission. Has any one done this? I really like to hear from someone. Thanks
Is Multiple Myeloma considered "chronic"?
My husband has IgG Multiple Myeloma and is approximately 18 months into his treatment with Thalomid and Decadron plus Zometa. He is fairly worn out most of the time and having to have lens implants due to what the Decadron did to his eyes. We recently had a discussion with his oncologist on his treatment plan when the…
Bone marrow biopsy
I usually frequent the "colon cancer" discussion group. Now that I have been "cancer free" for almost a year now, my husband is facing a possible diagnosis of multiple myeloma. He has his bone marrow biopsy on Wednesday. I remember hearing people say that this is extremely painful. Apparently, he will receive NO sedation.…
Severe Leg Pain
My mother was recently diagnosed with MM at age 72. She has had 8 out of 10 radiation treatments, and will begin chemotherapy in two - three weeks. On December 15th she began radiation therapy on three areas of her back to shrink tumors. On December 16th she had a bone marrow biopsy. When she went in for the biopsy, she…
MM
I have been diagnosed and treated for skin and prostate cancer and am undergoing tests for multiple myeloma. I served 3 tours in SE Asia (aka, Vietnam) and wonder if anyone out there has experienced the same illnesses (as they are called). I am 66 years old and getting a little tired of having to fight the VA for…
Myelofibrosis
Hello, I am new to the cancer survivors network and actually, I do not have cancer. I am here for information on my father's diagnosis. He recently was diagnosed with myelofibrosis and was sent to the Mayo clinic for a clinical trial. He has started a form of chemotherapy called CC 4047. The doctor at the Mayo clinic…
MM in 88 year old
Hello all, My elderly uncle lives with my husband and I. He has been going to the doctor for the last several months because of abnormal blood and urine tests. He has had xrays, scans, MRI's and such. After 3 differest specialists, we landed at the hematologists. Apparently they think he may have MM. Last week he had a…
Diagnosed with MM where do I begin
Hi everyone. Thanks for sharing such profound,insipring personal stories. what a bless! A week ago my mom was discovered with multiple myeloma! needless to say the world just crumbled down on us. Anyways after the initial shock and denial i started searching for any source of info. i can get my hand on and that's how I…
My Leukemia, Lymphoma, HD, and MM Site
Hi Everyone, My name is Michael and I am a leukemia survivor. Was diagnosed with acute lymphoblastic leukemia Pre-B cell when I was 21. I am 29 now, and have been in remission for about 7 years. Actually, yesterday was my 8 year anniversary of my diagnosis!! 8 years, yeah! Anyway, I just want to let you all know about my…
myelofibrosis
I have Myelofibrosis, 37, male Good Health for now. Anyone that has this disease, have you taken any diatary suppliments to combat the disease? Are you young like me and have this disorder? I took Amino Acids during weight training in my early 19 - 20's (stupidity). Anyone else? Connection?
velcade side effects
Hi, I'm Patty, 52, and am starting velcade/thalidomide treatment next month. I'm writing to see if anyone can give me an idea of what side effects to expect, (nausea, loss of appetite, hair loss, etc.) I've gotten different answers from the drs. I would appreceiate any input. Thanks
Recently diagnosed
I am a 47 year old male. I was diagnosed with Stage I a few weeks back and have started treatment with Rev/Dex 25mg/40mg. My numbers were about as close to normal as possible accept for the M-spike and the lesion on a fractured rib which seems to have trigerred the treatment. I fractured the rib in dec 07 but it appeared…
psychological treatment/hope of the future
Dear friends, I was diagnosed Jan 2002 with multiple myeloma, CD20+ and am being treated here in Las Vegas with a connection to a "guru" of multiple myeloma at Cedars-Sinai in CA, Dr. James Berenson. Have had treatment of Rituxan, Decadron and now on Prednisone as a maintainance drug. Plasma originally 70% now 7% and…
thank you thalidomide
HELLO AGAIN, I WANT TO TELL EVERYONE THAT THALIDOMIDE SEEMS TO BE HELPING MY FATHER WONDERFULLY, HE IS FINALLY GETTING BACK TO BEING HIMSELF AFTER A HORRIBLE THREE MONTHS. HE DID VAD TWO CYCLES AND SPENT A GOOD MONTH AND A HALF IN THE HOSPITAL AND WAS TOTALLY A MESS, HE STARTED TAKING THALIDOMIDE ABOUT TWO MONTHS AGO AND…
Mylenoma on calf
In May 2008, my dermatologist took a biopsy of a suspicious mole that had practically "disappeared" from the back of my right calf. Test results showed that I had a stage 4 melanomia. My rating was actually "4.73" and I opted for surgery. My doctor removed a 4x2-inch section from my calf. It has taken an incredibly LONG…
Weight loss
I was diagnosed with MM last October 2008. I'm 57 years old, and just finishing my third course of Revlimid. My appetite is good, but I've lost a total of 14 lbs since my diagnosis. I don't understand how the calories are being burned so quickly with a normal to larger caloric diet. I am working out using the cross trainer…
MM & Old Age
My father 74, was diagnosed with MM last Spring of '03. The Oncologist were hopeful that they can put my dads cancer in remission. Extensive high dose of cancer treatment, then bone marrow transplant to put his cancer in remission. He was on strong full dose of chemo, plus Decadron. Last July, he suffered a seizure,…
waldenstroms
My dad has a rare blood cancer called waldenstromsmacroglublinemia and was wandering if any one has experience with this disease?
after valcade??
hello,i'm sigal.my 76 years old father has finished 6 cycles of valcade,dexa'.all this time he is taking thalidimide 200 mg a day. the doctor says theré's remission says to stop taking all of this.i asked about doing some kind of maintenance with the valcade-he says there isnt any resource about it, but the dicision is…
Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
Relapse MM - treated with velcade again?
My Dad was diagnosed with myeloma two days after his 60th birthday in August 2005.The diagnoses absolutely devastated the whole family although we all stayed strong for each other.It amazing the strength you get when something like this happens.Dad was subsequently treated with radiation as he had a compressed spinal cord…
Anyone else on Revamid?
Just wanted to hear from others on Revamid. Thanks. DrSteve
Plasmacytoma
I am 43 year male active duty Air Force member. On 2/5/07 I had a tumor removed from my C1 vertebra and was told I have Plasmacytoma. I am looking for anyone who has had a plasmacytoma, has dealt with being in the military and having cancer (my enlistment ends 10/07) looking for the best treatments or type of treatments…

Multiple Myeloma

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