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Stage 3 Light chain multiple myeloma
My husband was diagnosed in April 2010 with Stage 3 light-chain multiple myeloma after several months of debilitating back and rib pain. He was seeing pain specialists, had kyphoplasty and was getting treatment for "spongy" muscles. He kept going downhill and finally went back to our family doctor who ran a lot of tests.…
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MM in the spinal fluid
I was diagnosed w/mm in Sept 08. Stage 3. I've undergone several sessions of chemo with positive results and a transplant in march this year. I've been experiencing problems with my shoulds/arms. The nerves that drive the muscles in my shoulders have stopped working. My Dr. says that in about 1% of mm cases the disease…
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Survival Rate??
first i want to say that it was weird how i found this site. i had gotten an email from a Dr. in the family who said that my mom's survival rate was about 2-5 yrs with the stem cell transplant. I have a friend who's dad has MM also and he was diagnosed 12 years ago. So i was confused who to believe. I did some online…
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Eat Indian Food- Fight M.M.
http://story.news.yahoo.com/news?tmpl=story2&ncid=1285&e=11&u=/nm/20030313/hl_nm/curry_cancer_dc&sid=95862963 NEW YORK (Reuters Health) - An ingredient in the curry spice turmeric may help suppress and destroy a blood cancer, early lab research shows--suggesting yet another health benefit from this long-heralded substance.…
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Hello all. I am new here. was dx nov 08
HI my name is karen i was dx nov 08 stage 1a no bone problem i am a light chain I live in South carolina..i started meds feb 09 velcade & rev & dex. did that till june 08 then they did a repeat pet/ct scan they found lung cancer small cell large cell it was only 1/4cm i had my left upper lube taken out it had not gone…
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Need Answers
I have been DX with one plasmacytoma, with I am getting treatment for 1st week of rad. down only 4 more to go. I was told that my blood count to cancer cells is about 10-11% and after the radiation treatment I will not need treatment for now , he told me not ito join any serviers group, cause I will not need them yet! I…
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cancer treatment centers of america
anyone have experience with these hospitals
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complex karyotype
Diagnosed with MM May 2010. Completed 4 cycles of Dex/Velcade/Revlamid and feel really very good. Neurapthy has gone away. I am scheduled for SCT at Emory in Atlanta in about 3 weeks. The catheter goes in next week. My Doc seems unwilling to give any precise prognosis. Has anyone out there with high risk mm completed a SCT…
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Multiple Myeloma with Amyloidosis
I was diagnosed with multiple myeloma with amyloidosis in 2002. I had a stem cell transplant on 08/07 with was only 40% successful. The amyloidosis has affect vital organ, my kidney (now I am a dialysis patient), it is in my liver but my liver it working okay at this time. I have had fluid drained from around my heart and…
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Pancreatic Cancer
Hello everyone: I just found this board and I was reading some of the MM page. My stepfather has had Multiple Myeloma for 6 years. When he was first diagnosed he was given less than 6 months to live. He tried several different chemo's and Velcade is what worked for him the best. It's lying dormant now and has for about 2…
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Fear
Anyone out there have good news about Myeloma?
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Anyone Diagnosed With MYELOFIBROSIS?
I was diagnosed in 2008 and it has been a long, hard fight!!! Check my profile and Let's Talk!!!
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How to cope
My dad found out last Friday that he has MM. He is 53 years old. He goes back tomorrow (Friday) to Mayo Clinic to talk about tx options, etc. Basically I'm just wondering how people that have MM or family/friends even begin to get through this. I'm devasted and I can't imagine what my dad is going through. This isn't…
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My mother having cancer
My mother had breast cancer 7 years ago and that was very hard to go through. Then 2 years ago they found out that she has multiple myeloma, she was in stage 4. Her body at that time was doing good with the medication then her body rejected it. Luckyly her counts where up and she could have the stem cell transplant. In Feb…
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Platelet count
Dr. Tan, who was on call for my mom's regular GP, Dr. Whitaker, called our home on 16th of January. He provided information that her bloodwork from 15 January indicated a concern on his part that her platelet count was 25. On 4 January her count was 71. This caused concern for Dr. Tan and he said we should relay this…
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Support with Cleansing, Essential Oils for chemo and side effects
My mother was diagnosed with MM 10 years ago. She underwent chemo, intravenous and oral. She last year( April 09) went through a stem cell transplant and as of this December her counts were on the rise. She is about to endure Velcade! I am wondering, has anyone prepared their body for chemo??? And please share what you…
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No Transplant
Does a person have a very good chance if they go into remmission and don't have a SCT? I was just wonder because I may not have one. I hope to get into remission. Has any one done this? I really like to hear from someone. Thanks
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Is Multiple Myeloma considered "chronic"?
My husband has IgG Multiple Myeloma and is approximately 18 months into his treatment with Thalomid and Decadron plus Zometa. He is fairly worn out most of the time and having to have lens implants due to what the Decadron did to his eyes. We recently had a discussion with his oncologist on his treatment plan when the…
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Bone marrow biopsy
I usually frequent the "colon cancer" discussion group. Now that I have been "cancer free" for almost a year now, my husband is facing a possible diagnosis of multiple myeloma. He has his bone marrow biopsy on Wednesday. I remember hearing people say that this is extremely painful. Apparently, he will receive NO sedation.…
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Severe Leg Pain
My mother was recently diagnosed with MM at age 72. She has had 8 out of 10 radiation treatments, and will begin chemotherapy in two - three weeks. On December 15th she began radiation therapy on three areas of her back to shrink tumors. On December 16th she had a bone marrow biopsy. When she went in for the biopsy, she…
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MM
I have been diagnosed and treated for skin and prostate cancer and am undergoing tests for multiple myeloma. I served 3 tours in SE Asia (aka, Vietnam) and wonder if anyone out there has experienced the same illnesses (as they are called). I am 66 years old and getting a little tired of having to fight the VA for…
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Myelofibrosis
Hello, I am new to the cancer survivors network and actually, I do not have cancer. I am here for information on my father's diagnosis. He recently was diagnosed with myelofibrosis and was sent to the Mayo clinic for a clinical trial. He has started a form of chemotherapy called CC 4047. The doctor at the Mayo clinic…
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MM in 88 year old
Hello all, My elderly uncle lives with my husband and I. He has been going to the doctor for the last several months because of abnormal blood and urine tests. He has had xrays, scans, MRI's and such. After 3 differest specialists, we landed at the hematologists. Apparently they think he may have MM. Last week he had a…
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Diagnosed with MM where do I begin
Hi everyone. Thanks for sharing such profound,insipring personal stories. what a bless! A week ago my mom was discovered with multiple myeloma! needless to say the world just crumbled down on us. Anyways after the initial shock and denial i started searching for any source of info. i can get my hand on and that's how I…
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My Leukemia, Lymphoma, HD, and MM Site
Hi Everyone, My name is Michael and I am a leukemia survivor. Was diagnosed with acute lymphoblastic leukemia Pre-B cell when I was 21. I am 29 now, and have been in remission for about 7 years. Actually, yesterday was my 8 year anniversary of my diagnosis!! 8 years, yeah! Anyway, I just want to let you all know about my…
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myelofibrosis
I have Myelofibrosis, 37, male Good Health for now. Anyone that has this disease, have you taken any diatary suppliments to combat the disease? Are you young like me and have this disorder? I took Amino Acids during weight training in my early 19 - 20's (stupidity). Anyone else? Connection?
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velcade side effects
Hi, I'm Patty, 52, and am starting velcade/thalidomide treatment next month. I'm writing to see if anyone can give me an idea of what side effects to expect, (nausea, loss of appetite, hair loss, etc.) I've gotten different answers from the drs. I would appreceiate any input. Thanks
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Recently diagnosed
I am a 47 year old male. I was diagnosed with Stage I a few weeks back and have started treatment with Rev/Dex 25mg/40mg. My numbers were about as close to normal as possible accept for the M-spike and the lesion on a fractured rib which seems to have trigerred the treatment. I fractured the rib in dec 07 but it appeared…
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psychological treatment/hope of the future
Dear friends, I was diagnosed Jan 2002 with multiple myeloma, CD20+ and am being treated here in Las Vegas with a connection to a "guru" of multiple myeloma at Cedars-Sinai in CA, Dr. James Berenson. Have had treatment of Rituxan, Decadron and now on Prednisone as a maintainance drug. Plasma originally 70% now 7% and…
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thank you thalidomide
HELLO AGAIN, I WANT TO TELL EVERYONE THAT THALIDOMIDE SEEMS TO BE HELPING MY FATHER WONDERFULLY, HE IS FINALLY GETTING BACK TO BEING HIMSELF AFTER A HORRIBLE THREE MONTHS. HE DID VAD TWO CYCLES AND SPENT A GOOD MONTH AND A HALF IN THE HOSPITAL AND WAS TOTALLY A MESS, HE STARTED TAKING THALIDOMIDE ABOUT TWO MONTHS AGO AND…