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Insurance options
My lifetime limit for transplant is 250k. My autogolus BMT for MM was approx 150-200k. I am a stay home mom and am covered by my husband's insurance. If I need another transplant I am afraid my insurance balance won't cover it. Any suggested options besides changing jobs and insurance?
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Father diagnosed with MM
My father is 67 years old and has just been diagnosed with MM. Even at 67 he could outwork most people but he started having some problems. He started getting short of breath in Oct 02. A tread mill test was done to check his heart followed by a heart cath. No blockages were found only a small restriction. He was given…
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how long will side effects last?
I had 9 treatments of cytoxan over 7 months.I am now on a maintenance dose of 50 mg Prednisone every other day.I was wondering if anyone can tell me how long the fatigue etc from the chemo should last.I would like to go back to work.
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Young MM patients
Hi. My sister was diagnosed with MM in 1996 at the age of 34. At the time, she had a tumor removed from her leg and had radiation. Since, she has had a stem cell transplant, chemo, more radiation, steroids, etc. She is doing well for having had MM for 8 years. I have found that it is rare for someone so young to have MM. I…
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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roller coaster
My 65 year old mother was diagnosed with MM in October '02. In 12/02 she was told that it wasn't MM. Now she just got told that it is MM. I feel like I am on a roller coaster. Can anyone tell me what to expect, and what treatments are available? Thanks Su
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Amyloid
Just wanted to let you know that if you received an amyolid diagnosis with or without multiple myeloma that my husband has survived the transplant. I know this is such a rare, rare disease that you maybe searching for info. Be glad to help you if I can.
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Multiple Myeloma experiences
Reading the notes posted by everyone, at looks like we should compare the treatments that we have received. I notice one person is taking the Dex------- don't remember the complete spelling, but we call it decodron. my husband is on this same medicine, but it's only a part of his treatment. The completed treatment has the…
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Taking Thalidomide
After 7 chemo treatments last year that took the cancer in my marrow down to 15%, my doctor put me on 200 mg. of Thalidomide daily. But i am having side effects...my fingertips and toes are numb, and the rest of my feet and fingers are semi-numb. He has reduced the dose twice, and now i am only taking 50 mg.a day. But he…
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Survivor in 3-4 year remission?
March 25 will be my 4-year date of diagnosis. Am doing well in remission, always anxious about recurrence. Any thoughts?
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complications from multiple myeloma
HI I AM NEW TO THIS SITE. MY DAD WAS DIAGNOSED WITH MM IN FEB. 2003. IN THE PAST TWO MONTHS IT HAS BEEN HELL. HE HAS STAGE 3 AND IT IS VERY AGGRESSIVE ACCORDING TO HIS DR. HE HAS HAD TWO VAD TREATMENTS SO FAR, THE LAST ONE 3/28 FOR FOUR DAYS AND THEN HE NEVER LEFT THE HOSPITAL DUE TO BREATHING DIFFICULTY. HE WAS…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Multiple Myeloma Treatment
My husband (48) was diagnosed with multiple myeloma in January of this year. He has stage III. They are wanting to place a hickman cath tomorrow and start him on VAD treatment. He previously was taking the chemo pills. He has a 45% retraction rate as far as his heart and his lung capacity is only 52%. They then want to do…
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MM
Hi, I am a 32 year old mother of three who was diagnosed with MM on Dec.31,02. I am in the process of doing VAD therapy and am working towards an AUTO transplant in the very near future. I would welcome any information that anyone might have on this topic as I am finding it difficult to get much info reagarding this…
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Stem cell transplants
I am a 50 year old woman who was diagnosed with stage 3 MM in July 2001. As i wrote in a previous message, i am currently taking thalidomide after having 7 rounds of chemo over a year ago. At that time i still had 15% cancer in my marrow and was told by a specialist that i should get a transplant. However he said the stem…
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support and help for MM
My name is Su, and my mother just got diagnosed with MM. She has been an oncology nurse for 23 years, and teaches I Can Cope groups. Back in the day, they did not use any precautions when giving chemo, etc. We think that is where this came from. She see's the specialist on 12/23, but her current oncologist doesn't think…
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bone deterioration
Has anyone in his group survived massive bone and neck deterioration????
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Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net
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multiple myeloma
Hello friends.... my father was diagnosed with this particular cancer, if you would like to talk with me please please feel free to do it I am at..styntuch@adelphia.net welcome all who want to talk....godspeed..
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My Mom
My Mom has MM and has had a stem cell transplant in T.O. That did not last!..10 months later she's dignosed again with light trace of myeloma. We are thinking of using "ESSIAC". HAs anyone heard of it??..does it work? if it works where can I find the "real" thing??.......any info anyone?? Thanks for your replies Sam…
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Need Info on MM for Work
I am a male high school student who works on Saturdays at a Law Firm. My boss has asked me to get some information on MM and make a document with some information. She (my boss) asked me to get some information regarding chat rooms and treatment plans for MM. If anyone could give me some information by 3:00 PM on Saturday…
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myeloma
there is hope- but got to find out what to do next- i know vitmin help. and every time i over work blood count drop.So i take naps-I have hot flashes and at that time things goes wrong . DR. dont know it I should take harmone
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non-chemo
a few months ago, I was diagnosed wit multiple myeloma. For several reasons, I decided NOT to have chemo. or radiation. Is there anyone out there with the same circumstances. I would like to hear from someone else who has made this same decision for whatever reason. Thanks. Sonnitikki
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HYPERCALCAEMIA
Has anyone had any experience with hypercalcaemia? From what I can learn, it affects a lot of people who have multiple myeloma.I have a severe "CASE" of it. Any information anyone can give me, would be greatly appreciated. Thanks. sonitikki
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My History with MM
I have posted on my web page here, my stats. It all started in January 2001 If any others have comments, suggestions or experiences, I would like to know more about MM. It is new and a bit confusing I am 79 and otherwise in good health. Thanks Marty
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HEALTHTALK INTERACTIVE-MULTIPLE MYELOMA EDUCATION NETWORK
This Web sight has a lot of information and discussion on the treatment of multiple myeloma. In addition, it talks about treating MM with thalidomide which has fewer side effects. I urge you to pull up the sight. If you have any trouble e-mail me at texbuddy2@aol.com.