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Multiple Myeloma

New Findings ? Need Help! Please !
Good morning everyone I am unsure if the catagory is on this discussion board. I am 34 years old, full time job and full time wife & mommy to my 2 wonderful children and school part time. In February i was sent to Hemo/Onc due to DVT, bone pain, night sweats, headaches, dizziness, fatigue and can't no longer go up a flight…
What immunotherapy means for multiple myeloma
Although multiple myeloma is still widely considered incurable for most patients, as immunotherapy research matures, that might well change. (source mmdevelopments.org)
Found out sons father has stage 3 what do I do?!?
On Wednesday I found out my ten year old sons father has Stage 3 multiple myeloma. I am really lost here and don't even know what to write right now. We don't even have any answers really. where can I go for correct information or just a place to ask questions?
Stem Cell transplant or Chemo forever
My mother is 69, just diagnosed with MM 8\2016. Its been rough on her. After her 2nd treatment she ended up in the hospital. Her Marrow was 90% cancer protein. They had to do 2 rounds of plasma Pheresis. When she was released she could no longer walk without assistance…. After 2 months of pain they finally ran tests and…
Using A Rabbit Virus To Treat Multiple Myeloma
Treating multiple myeloma (MM) with myxoma virus (MYXV) eliminated a majority of malignant cells in preclinical studies, report investigators. Furthermore, introduction of MYXV had no impact on the bone marrow compartment and elicited a strong immune response that eradicated disease in some animals. (source…
New Treatments To Extend Life For Multiple Myeloma Patients
Multiple myeloma patients are now living more than three times as long thanks to new, more effective treatments, and some of the most exciting things are the development of new drugs. (source, details - mmdevelopments.org)
Mylofibrosis
90 years old w/ Multi Myeloma
My mom found out she has Multi Myeloma at 90..in Feb 2016.. She has opted out of treatment.. She is very tired.. No other symptoms As of now...Blood work first taken was 3.5.. Two weeks later 3.8... She is under Hospice now.. Doctor gave her up to two months to live..She was very sick with bladder infection now that that…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Selinexor for Relapsed/Refractory Multiple Myeloma
recent news item - Patients with relapsed/refractory multiple myeloma (RRMM) for whom prior treatment with lenalidomide, pomalidomide, bortezomib, and carfilzomib fail have few treatment options. Selinexor (KPT-330) is a selective inhibitor of nuclear export (SINE) under development for the treatment of RRMM and other…
Has anyone tried the drug Zelboraf
Just wondering if anyone has used or on the Chemo Zelboraf?
SUPPORT
I posted a question early in October and have been disappointed to not receive any responses. I am a breast cancer survivor and I got so much support from this website when I was going through treatment in 2010. I returned when my brother was diagnosed with Multiple Myeloma and had a stem cell transplant to get some advice…
Struggling --- would appreciate your help
Hi there - I am new to this discussion board but not new to the site. I was previously on here in support of my mom who was diagnosed with colon cancer over 5 years ago. She is now in remission thank GOD; however, my father was diagnosed last month with stage 2 multiple myeloma. He has the Bence Jones Protein kind ... I am…
multiple myeloma diagnosis
Hello. I was diagnosed with multiple myeloma in February, 2012, after experiencing excruciating back pain for 1 month. Two plasmacytomas had destroyed almost all of my T-4 vertebrae, and my spine was surgically stabiliazed with rods/screws. I underwent 12 sessions of radiation and am now doing chemotherapy as there are two…
Free Educational Conference in Phila, PA 11/18/2016
I wanted to share the following information with all who may be in the Philadelphia, PA area and interested in attending in person (or via livestream for those not in the area or not able to attend in person): OPEN TO THE PUBLIC: FREE Educational Conference - Focus on Leukemia, Lymphoma, Myeloma, and Bone Marrow/Stem Cell…
Revlimid, Dexamethasone, confusion
Hello, I am a new member here. My mother has had multiple myeloma for 24 years. She has a plasmacytoma in her spine since 2009 that has reoccured twice. She was on Velcade up until now, and she has just completed her first cycle (21 days) of Revlimid. Over the last few days I have sensed she is not quite herself, and she…
girlfriend after bone marrow transplant
About 7 months ago, my girlfriend became part of the 1% of her age (30) and gender to get diagnosed with Multiple Myeloma. She's been through a lot.. the chemo, bone marrow transplant and to top it off.. a hip replacement next month. She's been the light of my life- and everyone elses lives for years because of her…
Fathers who could care less about your condition!
Sadly,my twin brother was recently diagnosed with multiple myeloma - a blood cancer & neither my father nor stepfather could seem to care less!!!:(. Unfortunately,my mother passed away from lung cancer 2 1/2 years ago.It's been about 2 years since I saw my stepfather & about 2 1/2 years or more since I saw my father &…
CORTICOSTEROIDS DEXAMETHASONE AND PREDNESONE
Research indicates the corticosteroid drugs Prednesone or Dexamethasone quickly shut down the adrenal glands and cause a muscle wasting condition called Cushings. Did your MD warn you about the serious side effects of catabolic steroids?
So hurt and disappointed
I was in the hospital for 12days after high dose chemo and a stem cell transplant. My brother and sister did not even visit me. I thought they cared about me. I visited each of them when they had much shorter hospital stays for much more benign conditions. It just made me realize how unimportant I am to them.... I just…
Experience with & side effects of Revlimid?
Can anyone share with me their personal experience using Revlimid for Follicular Non Hodgkin Lymphoma. I’m especially interested in the side effects. This is my third relapse in six years and my doctor says to only expect a 30-40% success rate and the side effects as he describes them are nasty. Going back to chemo and…
Cemo does not work!!!!!
My Husband has Muliple Myeloma, he got it from Agent Orange in Viet Nam. I joined the dicusstion group for one reason and that reason is to tell Cemo and Radiation do not work. There have been cures for Cancer since the 1920s. My husband was on that posison for 4 years did he get any better NO. This last year his cancer…
Dendritic cell vaccination
Have just watched most of Ty Bollinger's 'The Truth About Cancer' and learned about dendritic cell therapy. Has anyone done this? How are you now? I don't know if this is good for MM or not. Your own cells are used to make a vaccine that wakes up the T-cells to destroy the cancer cells or other abnormal cells. Normal cells…
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Friend recently diagnosed with Multiple Myeloma - advice welcome
I have a friend who was diagnosed in June 2014 with Multiple Myeloma. He is working on getting treatment. So far, he has been taking chemo pills (revlamide). Now he is going to Little Rock for further treatment, recommended by the PCP in Fort Smith. In Little Rock he was told about stem cell treatment. Has anyone here…
Is anyone dealing with diverticulitis with your Myeloma chemo?
I am concerned how/ whether to go forward with SCT and get the high dose Melphalan or cytoxin because of the effect it will have on my intestines. With a history of severe diverticulosis and the constipation/ diarrhea battle already going on with my VRD meds I can see there will be even further bowel irritation and even…
Happy Mothers Day Quotes
Happy Mothers Day Quotes http://www.mothersdayquotesz.com/
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
New Recommendations For Use Of MRI In Diagnosing Myeloma
Recommendations for the use of magnetic resonance imaging (MRI) in multiple myeloma are presented in a consensus statement published online Jan. 20, 2015 in the Journal of Clinical Oncology. Meletios A. Dimopoulos, MD, from the National and Kapodistrian University of Athens School of Medicine in Greece, and colleagues used…
Precision Medicine in Multiple Myeloma
The American Society of Hematology published a statement this week on the White House’s proposed 2016 budget for a new Precision Medicine Initiative. The White House is asking Congress to approve $31.3 billion in NIH funding for a new Precision Medicine Initiative to identify genetic drivers of disease to provide more…

Multiple Myeloma

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