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Post R-CHOP (worried about my sister)
Hello everyone, I've been reading this platform from afar for a while. This is the my first time sharing my story; My sister who's 20 yo was diagnosed with non hodgkin's lymphoma, DLBCL, almost 4 months ago. The diagnosis was the most depressing part of all. Since two of the first biopsies were false negative. So doctors…
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Just found out DLBC. Looking for tips.
Hello everyone. I found this site looking for information to prepare for our journey ahead. This week I just found out my mother was diagnosed with DLBC on the pancreas. We initially got the terrible news that there was a tumor on the pancreas which means game over. Spent 2 days sleepless thinking how it might be only a…
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DVT
Treatment time?
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Peripheral T-cell lymphoma
Just joined the group ... would love to hear from anyone in similar situation -- or just anyone interested in chatting. In 2005, I was diagnosed with aggressive Peripheral T-cell lymphoma. It displayed in two area, in a lymph gland just above my collar bone and on my shoulder. The shoulder display was removed by a deep…
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Round III
Based on a chest CT this week, I likely have relapse of some form. Docs working on scheduling a biopsy to confirm or rule out. "It pays to stay current."
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Late relapse of DLBCL Facing R-ICE and ASCT
After a long absence, and without invitation, it is back. Late in 2012, I felt something on my neck that kept growing. It was diagnosed as DLBCL and in early 2013, I went through R-CHOP followed by radiation. All was clear until early June, 2020 when I felt a similar lump on the other side of my neck. After 2 months of…
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Just diagnoses NHL B Cell Mesentery 49 years of age
Hello group, Unfortunatly I was diagnoses a few weeks ago with NHL B Cell Stage 2 , thankfully this was after my gall bladder went out. Otherwise it would most likely not have been known for a while. I am starting treatment December 17th and 18th. The treatment is Immunal infusion and chemo. Day 1 Rituxan & Bendomustine 6…
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Tips for DA-EPOCH-R?
Discovered a mass in my chest on the 11th of this month Went through CTs, MUGA - all the prep scans and tests, and had biopsies that week. Results came in Thursday (took 7 days) and I got the diagnosis Fri - Primary Mediastinal large b-cell Lymphoma. The mass is wrapped around my aortic arch and my vena cava. Doctor is…
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Can anyone ..
who has had the CAR-T therapy please comment on it? I would be very grateful as my onc visit yesterday he told me he suspects I am on my 3rd relapse. I have scans etc scheduled for early November. Thanks and please let me know what you think of CAR-T. I know a lot of people, about 20%, find it fatal. What about the other…
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Life Time Chemo Treatment?????????????
Hello, I am posting as a "New Member". I just finished treatment for cancer of the Tonsill's. Tongue. My subject heading has to do with my Cousin's cancer. I am not fully aware of his illness. Mainly due to, "I've had my own" cancer to deal with. I do know he suffers with Lymphoma. I do know he has been treated with chemo.…
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Giving Thanks
Happy Thanksgiving! I want to give thanks to all my fellow warriors in this forum. I give thanks for all your kind words, knowledge, support, that shoulder to vent (cry) on. In this turmoil that we've faced I'm truly thankful that I found you. Have a Blessed Thanksgiving Hugs GG
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VA disability for Mantle Cell Lymphoma (Vietnam Service)
I have just been diagnosed with Mantle Cell Lymphoma. Apparently it is directly related to my service in Vietnam. Has anyone had any experience in filing a VA claim? I am going to the DAV this morning and file the initial claim to get the date of claim locked in, and will talk to them about the procedure for getting VA…
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Is it possible?
I originally posted in the head and neck cancer subforum because everything in Dr. Google initially had me thlinking I have a laryngeal problem but I don't know what's wrong and my symptoms, according to Dr. Google make me think maybe I fit in here. I refer to Dr. Google because real life doctors and medical care is…
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Non treated Lymphoma hair loss
I'm currently being monitored like many others with lymphoma. Since being diagnosed Nov 2, 2020 actually maybe a month or so before I've been losing more hair then usual. I was sick the whole month of Oct with an infection treated with antibiotics. I've read a lot about chemo/radiation hair loss but there isn't much on non…
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Biopsy this next week
I'm 72 yr old female. I've been sick over two weeks with swollen glands an infection what I thought type of cold. Went to ER Friday Oct 16 2020. Had numerous test done. Results indicate possible lymphoma. I'm to call oncologist tomorrow Monday for biopsy. Needles to say this is scary but I'm going to fight with all my…
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Wine,,I guess it’s a No No
Hi All I haven't had a glass of wine since Aug/Sept. I've been reading some articles say it may hinder any necessary treatment. Other articles say otherwise. So a glass of wine should not be consumed correct? Thank You GG
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Peripheral Tcell Lymphoma
I was diagnosed with Stage 3 Peripheral Tcell Lymphoma. I have had 4 rounds of CHOP and my latest pet scan shows 99.9% remission. I have two more treatments and one last pet scan to see results. I will then go for an evaluation for a stem cell replacement. Has Anyone out there gone through this similar process? Any stories…
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NERVOUSSSS
Hi all. Welcome to the club that no one want to join, right? Went to my PCP second week of September with swollen glands (neck, axillary, groin) as well as fatigue and mild, intermittant lower back pain. She ordered some bloodwork, urine, and had me return two weeks later. Normocytic anemia, but otherwise normal. Neck and…
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Stem cell booster
Well just returned from MD Anderson last week. The great news is we are 6 months out from Stem Cell and still NED. They gave me the rest of my stem cells to hopefully help my bone marrow decide to start working a little better. My WBC and really everything has had problems since the stem cell transplant. They said should…
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Triple Hit Lymphoma
My mom was dx with THL in June 2017; she underwent six rounds of chemo and as of her last check in at the cancer center (11/29) she was in remission . That being said, today at her follow up with her pcp (she has been in heavy duty pain meds since two weeks out of chemo due to severe pain in her head and port hole area on…
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Looking for peace of mind
Hey everyone! im here because I’m looking for peace of mind. At the end of March I discovered I had an enlarged lymph node right by my carotid artery. I initially didn’t think anything of it as I assumed maybe I had some sort of infection. But after it remained earged for a a few weeks I decided to get it checked out. The…
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What were your lymphoma symptoms?
I have nodular lymphocyte predominant HL, in a "stable" state... meaning it's not gone, but also not progressing all too quickly. For the past year, I have had symptoms that include random itching, especially in extremities and in and around my eyes (weird), fatigue, and just a general feeling of being unwell, which is…
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past members posts=education
Hi Havent posted in awhile,actually forgot the log in password..oops I started on here when a traditional support group was not my fit.I started reading posts and would go farther and farther back in time reading posts and gaining a lot of knowledge.Its amazing what was going on in the world 10 years ago as these members…
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SMZL
Anyone out there with SMZL?
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Good news!
Hi everyone, I received good news today, my indolent mantle cell lymphoma is in full remission for the first time since diagnosis three years ago. My oncologist said the PET scan detected 'no active disease'. I've been in a clinical trial since February at the James Cancer Center in Columbus Ohio. Just wanted to share some…
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Emotional support group recommendations
I am a Hepatosplenic T-cell NHL survivor of 6 years. It was a very hard journey and I'm still feel like I'm struggling. I have started to have a fear of relapse and I'm not sure why. I need to find a good support group where I can vent my fears to those who understand. My family is supportive but I don't think that they…
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Just found out my Hodgkin’s lymphoma is “unfavorable”
Oops, looks like I double-posted, not sure how to delete one.
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15 years out and here again
Dx 2004 nodullar sclorosis hodgkins. 6 cycles ABVD and hit remission. Followed for 10 years and 5 years ago stopped seeing oncology. Fast forward to two weeks ago I had a stroke. Spent 2 nights in the hospital, luckily, no permanent damage. But, in the MRI or CT of the head/neck (looking for clots), they saw the edge of…
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Newly diagnosed MCL
Hi there. My husband (47 years old) was just diagnosed with Mantle Cell Lymphoma. We are waiting on PET scans and staging, but I read it's usually advanced. It all started with a swelling in his upper eyelid. I am terrified of this and the doc has shared no cure, only treatment. He has no other symptoms, and I am not sure…
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Bendamustine/Treanda w/ Rituximab
Will be going on Bendamustine+Rituximab as second line for recent NLPHL relapse. Any tips going into treatment for those who've been on B/R? I have heard that constant hydration is a must. Thanks, Tom in Philadephia