Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Has anyone Had "Non Germinal" Large Diffuse B-Cell Lymphoma
Has anyone else had Large Diffuse B-cell Lymphoma that was dianosed as "Non-Germinal" I know it is rare compared to Germinal and I am curious if anyone else had that? I had to take another drug Revlimid for ten days after each of my six treatments to compensate for it being Non-Germinal. This is why they called my…
Freaking Out Waiting on Answers
Hi everyone, Hoping I can get some feedback from knowledgeable peers. 37 male nonsmoker. Super healthy and active. Noticed 2 palpable superclaviclar nodes on right side about 3 weeks ago. Could have been there longer but unsure. GP ran blood tests and showed normal WBC but lymphocytes high. Sent me for an ultrasound which…
Results of my Pet Scan
Hi All I had my Pet Scan yesterday. Today had oncologist appointment. All my lymph nodes have shrunk. Some 50%, some 75%. Thats in a months time. I still have lymphoma but no treatment at this time. Will monitor me every three months like some of you are being monitored every three months. Today is a positive which will be…
An update for you kind folks
Hi guys, I had posted here several times in the last couple of weeks, and everyone was very helpful and calming. I just had my results appointment with my doctor today and thought I'd let you all know how it went. All is seemingly good, barring some anatomically strange elements which evidently shouldn’t be causing…
CT VS MRI VS PET
Hello all, I'm sorry to ask what might be an ignorant question. I've never been diagnosed with lymphoma, but I'm very concerned about the way I've been tested in the past. My symptoms are enlarged lymph nodes all around my neck, even one that I can actually see. Some have been there for years without changing, whereas…
ACS sister site "WhatNext"
It has apparently been taken down. EDIT: Went to a different terminal and there it was. I've been watching One Step Beyond re-runs I guess.
lymphoma massage therapy
I am the primary caretaker of someone who has had hodgkins for 5 years now..She has gone through transplant and approximately 5-7 types of chemo & radiation. She gets massage therapy 1x/week and was recently offered lymphoma massage. Has anyone ever experienced this or have been adviced to do it or not to do it...If you…
Long Term HD survivors
Hi All, I would really like to talk with other long term survivors of Hodgkin's Disease. I was treated in 1971 and I am looking for other survivors treated then or even later. Please contact me directly at zame@earthlink.net thanks!
Radiation, Reflux, LES / Long-term Effect
Hello everyone: me: 1988 Nodular sclerosing HL Stage 2. Treated with RT to jaw, neck, chest, abdomen over the course of 3 months. issue: Around 1998 I became aware of acid-reflux issues primarily in the evening if I ate too late. Past 5-7 years it has worsened. I don't experience the searing pain of acid in my esophagus…
Just found out my Hodgkin’s lymphoma is “unfavorable”
I had a consult with a radiologist on Friday, and at some point, it was mentioned that my SED rate was high enough to put me in the "unfavorable" category (103, I think it was), which surprised me. Up until that point, I'd thought that this was really no big deal, that as far as cancer goes, my kind is one of the least…
New to forum - mother has Non-Hodgkin
Hello all I have been looking for a place to talk to people concerning my mom and her cancer diagnosis. About 5 years ago my mom was treated for Non-Hodgkin's lymphoma. I believe she had R-CHOP, but not sure. She was fine for a while until this time last year when she had to get the treatment again. This past Sunday I had…
Returning to board
It's been many months since I have been on this board. I replaced my laptop last summer. I kept all the links but couldn't find my notes to get the password. Today doing some cleanup and low & behold it was right next to my desktop. (DUH). Now to catch up.
Would appreciate feedback/advice
35 year old female here. For the past 2 years I have been experiencing episodes of tachy with my HR going up into the high 120's with minimal exertion (going up stairs, light housework). I have extreme sweating, espeically in warmer locations/outside I am dripping sweat. Just walking from the mailbox to the house, a mere…
Just diagnosed with Double/triple hit Lympoma
Hello all, Just had a visit (zoom) with an oncologist for the first time. There is more data to be gathered but it looks like I have triple hit Lymphoma. The first diagnosis is based on an FNA and the oncologist wants to have his people look at it - but he doesn't expect the diagnosis to change. I had a Pet Scan yesterday…
New member....emotions all over the place
Hi. I Am new here. I saw a dermatologist in May, after discovering a lump on my scalp. She said it was a Pilar cyst and nothing to worry about. Within weeks, it started to grow and I returned to the dermatologist. She was alarmed, did a biopsy, and one week later, on July 20, she called to say I had diffuse large B cell…
It’s back
Hi, In July 2017 I was diagnosed with aggressive large B cell stage 2 lymphoma. I had 6 rounds of R Chop. I had been NED since December 2017. I was treated by an oncologist. I was told I could have the port removed. Fast forward to October this year. I had been running a low grade fever every night. In November the temp is…
New Forum Member Jim
Greetings Survivors, Instead of lurking for a month or two I just thought I'd introduce myself in this forum right from the start. I used to be a member of cancerforums.net but that community seems to have moved and I'm not sure if it's still a viable forum with a reasonable amount of interaction between members. A quick…
Just diagnosed with DLBCL in the stomach
I was just diagnosed with DLBCL in the stomach. I live in connecticut and consulted with a local oncologist who recommended R-CHOP based on the path report from an independent lab. The report said that there will be an addendum because they need to do further analysis to determine if it is double or triple hit and also to…
Post R-CHOP (worried about my sister)
Hello everyone, I've been reading this platform from afar for a while. This is the my first time sharing my story; My sister who's 20 yo was diagnosed with non hodgkin's lymphoma, DLBCL, almost 4 months ago. The diagnosis was the most depressing part of all. Since two of the first biopsies were false negative. So doctors…
Just found out DLBC. Looking for tips.
Hello everyone. I found this site looking for information to prepare for our journey ahead. This week I just found out my mother was diagnosed with DLBC on the pancreas. We initially got the terrible news that there was a tumor on the pancreas which means game over. Spent 2 days sleepless thinking how it might be only a…
DVT
Treatment time?
Peripheral T-cell lymphoma
Just joined the group ... would love to hear from anyone in similar situation -- or just anyone interested in chatting. In 2005, I was diagnosed with aggressive Peripheral T-cell lymphoma. It displayed in two area, in a lymph gland just above my collar bone and on my shoulder. The shoulder display was removed by a deep…
Round III
Based on a chest CT this week, I likely have relapse of some form. Docs working on scheduling a biopsy to confirm or rule out. "It pays to stay current."
Late relapse of DLBCL Facing R-ICE and ASCT
After a long absence, and without invitation, it is back. Late in 2012, I felt something on my neck that kept growing. It was diagnosed as DLBCL and in early 2013, I went through R-CHOP followed by radiation. All was clear until early June, 2020 when I felt a similar lump on the other side of my neck. After 2 months of…
Just diagnoses NHL B Cell Mesentery 49 years of age
Hello group, Unfortunatly I was diagnoses a few weeks ago with NHL B Cell Stage 2 , thankfully this was after my gall bladder went out. Otherwise it would most likely not have been known for a while. I am starting treatment December 17th and 18th. The treatment is Immunal infusion and chemo. Day 1 Rituxan & Bendomustine 6…
Tips for DA-EPOCH-R?
Discovered a mass in my chest on the 11th of this month Went through CTs, MUGA - all the prep scans and tests, and had biopsies that week. Results came in Thursday (took 7 days) and I got the diagnosis Fri - Primary Mediastinal large b-cell Lymphoma. The mass is wrapped around my aortic arch and my vena cava. Doctor is…
Can anyone ..
who has had the CAR-T therapy please comment on it? I would be very grateful as my onc visit yesterday he told me he suspects I am on my 3rd relapse. I have scans etc scheduled for early November. Thanks and please let me know what you think of CAR-T. I know a lot of people, about 20%, find it fatal. What about the other…
Life Time Chemo Treatment?????????????
Hello, I am posting as a "New Member". I just finished treatment for cancer of the Tonsill's. Tongue. My subject heading has to do with my Cousin's cancer. I am not fully aware of his illness. Mainly due to, "I've had my own" cancer to deal with. I do know he suffers with Lymphoma. I do know he has been treated with chemo.…
Giving Thanks
Happy Thanksgiving! I want to give thanks to all my fellow warriors in this forum. I give thanks for all your kind words, knowledge, support, that shoulder to vent (cry) on. In this turmoil that we've faced I'm truly thankful that I found you. Have a Blessed Thanksgiving Hugs GG
VA disability for Mantle Cell Lymphoma (Vietnam Service)
I have just been diagnosed with Mantle Cell Lymphoma. Apparently it is directly related to my service in Vietnam. Has anyone had any experience in filing a VA claim? I am going to the DAV this morning and file the initial claim to get the date of claim locked in, and will talk to them about the procedure for getting VA…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards