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Help with Seeking out 2nd Opinion
My husband underwent a FSA biopsy of the para aortic node yesterday. This was after receiving elevated LDH blood test, elevated liver enzymes and two CTs showing bilateral enlarged pretracheal, axillary nodes and "prominent retroperitoneal, porta hepatis and para aortic lymphadenopathy." He also has an enlarged spleen. The…
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Neuropathy after chemotherapy
Hi! I had three months of ABVD for stage IIB Hodgkin's lymphoma and one year later and my neuropathy is actually getting worse. My hands go purple and white at the tips, and hurt, especially if they are cold. Anyone else get this? Thanks
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SERIOUS SITUATION DEVELOPED
Hello folks: I have had a big "knot" in my stomach for most of the past year. Had an Endoscopy and it appears to be stress related due to mainly lymphoma and heart problem worries. My life basically came to a standstill. Have been concentrating on eating as much as possible. Don't want to be skinny minny. Difficult.…
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Selfie
I asked Jim where his picture went, that I missed it. I was just cartooning a picture of myself (for another purpose) and decided to show it off. It isn't really a Selfie (the 2013 Word of the Year) my husband took it with his phone last summer. As you can see, my hair was just starting to grow in well and I am sporting a…
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Pet-ct report, suspicious for Intrathecal lymphoma or possible inflammatory process.
Pet-ct on Jan 10 report was good until the last part. This is a new one for me. The report suggest a followup mri or spinal tap. The onc is setting up a mri, thank God, instead of a spinal tap which I've never had. It just sounds uncomfortable. Basically there was a bright spot on the scan in the L4 spinal canal. Has…
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Update elevated WBC
Hi, I just got a call from the doctor, he said I'm at 12 again. He said because of your Dad we can send you to a hematologist. That's an option. I said to hiit could it be from stress he said no not in a chronic form. I saidon't not sick I don't have any infection going on. He said yeah you are fine so we can send you to a…
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Needing some support and advice
Hey Guys Been a while since ive been here. Hope all of you are doing very well. Well its been about a year and half since ive been in remission from my DLBCL! Hard to believe. I have a scan coming up in two weeks which of course brings scanxiety with it. However I need some advice. Here goes, ive been fighting a cold for…
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Asparagus- A cancer cure?
I received a e-mail from a friend yesterday entitled "Asparagus-Who Knew" The article talked about was called "Asparagus For Cancer" printed in the Cancer News Journal,December 1979. I'm going to Google it to see if that article still exists. It implies that eating cooked asparagus can help a person with lymphoma,bladder…
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Dry Mouth and Radiation
I have non-hodgkins lymphoma in my neck. I have finished chemo R-CHOP and have gone through 10 of 25 radiation treatments. How do I deal with the dry mouth and inability to eat? Any advise would be more then welcome. Also am curious about how long the dry mouth condition lasts after the radiation is completed. Thanks so…
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long term effects of radiation
Hi. Im new here. I'm 41 years old. I had global radiation for Hodgkins in 1989 when I was just 16. Then in 2009 had a double mastectomy for breast cancer. I am having more and more effects from the radiation and my docs don't seem to have a firm understanding of the long term effects of radiation. It started with the…
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Post hematology/oncology visit
I hope everyone is doing well. Had a long day.. Had my appt for chronically elevated WBC. Bottom line they drew blood to check for CML, Chronic myelogenous leukemia. She said I should not be worried, she doesn't thinkI have it, but at the same time there are people diagnosed at my WBC levels. Please Take care of…
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Getting Older !!!
As I have grown older I have learned that it is impossible to please everyone, but I have learned as I have gotten older pi$$ing everyone off is a piece of cake (as some already know). I hope everyone has a great year and this year brings nothing but good news to everybody. John
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CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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HELP
Hi, I'm new here. Have NHL, had my 5th round of chemo one week ago, today! just to let you know a little about myself so you will understand my question and need for advice. I am 39yrs old, diagnosed at age 38, after changing doctors. Had the same doc for 4yrs, kept getting sick, my old doc would treat me for a sinus…
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Zevalin
I have been diagnosed in 04 with FNHL, and did surgery twice on each side of my neck. I did 22 radiation treatments in 04, and was ok for almost one week away from 5 years. It came back in 09, at which time surgery and 8 rounds of chemo it was stage 4 with bone marrow involvement. Then I did Zevalin and I am still not…
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Scan
Hello Everyone, l had my Cat Scan done Tuesday and they called me to let me know it was ok. In those words. But I see the Oncologist on Tuesday. I am going to talk to him about fever spiking now and then of late. So I dont know what to make of that. I have not posted in a while, I have FNHL stage 4 with bone marrow…
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New Drug Update - Personal Experience
Howdy all! If you remember from my last post my doctor started me on Revlimid (25mg) because he saw a slight uptick in cancer activity in two small areas. I was ready for stem cell transplant however the doctor said they prefer the cancer to be decreasing in activity if not non-existant. I've already had a ton of chemo (2…
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Aaron, How are you doing?
Hey Aaron, I've been thinking of you since your last post saying you might be back in the chair. How are you feeling? When do you find out? Shar
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Active duty Marine Corps
Hi, I am an active duty Marine with 20 years served. I am currently a little over a month in remission fro DLBC Non-Hodgkins Lymphoma. I gained about 20lbs from chemo and I'm due to reenlist before May. I don't have the energy to excersise like I used to but I was able to take and pass both the CFT and PFT. I am overweight…
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Out of energy
My brother had the transplant in June. He's 61, single. He had Mantle cell lymphoma. It's now November and he's on the phone crying that he has no energy to make food for himself. He's very depressed and lonely. I see him once a week or more and talk to him 3-4 times a day. He feels better after but he returns to a…
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Can We Talk Chemo Brain?
Yesterday, I had a Rituxan maintenance infusion and talked to my Doctor, AGAIN, about my brain. He asked me some questions about last night, yesterday, last week, etc. After I answered the questions, he pointed out that I could remember these things. That was when I realized he was "testing" my memory. I told him I wasn't…
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Depression
This might sound stupid but how do you tell your doctor that you have depression and you need some anti-depressants? I looked all the symptom up on the internet and all of them matched what I feel like. I am the type of person that it is hard to tell others my feeling I keep them all in side. Some people just say to come…
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New here...I need advice for my dad's CNS Lymphoma treatment
I have been looking over the Primary CNS Lymphoma discussion board from the shadows for several months as my dad has been diagnosed with CNS lymphoma. He has had 3 treatments with DepoCyt via his Ommaya Reservior. These treatments lead to a headache the first day following treatment, then nausea & vomiting the second day…
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Hair loss with ABVD
I was diagnosed with Hodgkins Lymphoma stage 3A Oct 4 th 2013. I am currently on ABVD...minus the B because my lungs have not passed lung function test as I had pneumonia when this all started as well. They say however that won't effect anything. They also told me that I would lose my hair. I had hair down past the middle…
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rituximab
Has anyone had rituximab as a treatmant? How did your lymphoma react? I am going to start treatmant this week, and would realy like to go into remission for once. I have had non hodgkins lymphoma for over 3 years. Thanks LaMar Wall lamarwall@yahoo.com
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anyone have a healthy baby after adriamycin
I posted awhile ago about pregnancy and possible surrogacy, I had Hodgkin Lymphoma when I was 18, I am now 25. I am healthy overall but pretty much have been bombarded with all the possible long term effects from chemo/radiation. Acquired hypothyroidism, thickening on my lungs, iron deficiency, a clotting disorder,…
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Exactly one year ago . . .
One year ago today, I finished my final round of ABVD and I'm so happy to say that so far everything is looking good! My friend gave me a bottle of champagne back at the beginning of the year and I didn't open it, but hubby and I are going to crack it tonight and celebrate. I am sooo grateful to have had a year free of…
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Anxious and Afraid
So, I just got the email I’ve been dreading since July of last year… it's time for my sixth month PET scan. Words can't describe how anxious I am right now. I was diagnosed with stage 3A Hodgkin's Lymphoma this time last year. I've been in remission since July and these past sixth months of zero doctor appointments have…
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The latest
It's sort of a "mixed bag". On Monday I had the bone marrow harvest where they drill into the hip bone to suck out the stem cells. Yes...it hurt! The good news is that we now have enough stem cells to proceed for the transplant. The last hurdle was the CT and PET scans which I had yesterday and today. I met with my…
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Life Is Good
2 1/2 years ago I had good reason to believe I would not ring in 2014. Here it is, January 1, 2014. I am sitting in front of a roaring fire with my wife and two dogs, all of whom adore me, drinking 15 year old single malt scotch and eating the best fruit cake I have ever tasted. We all die but the real secret is to live in…