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Lymphoma (Hodgkin and Non-Hodgkin)

Latest Pet Scan
We got our end of chemo pet scan today :( My husband finished his 6 rounds of ABVD on Monday, April 7th. He got his PET scan Thursday and we received the results today. His cancer has gotten worse and the fluid has begun to fill around his lungs again. He has done such an awesome job and he looks wonderful. The doctor said…
Day -7 through Day 0
Howdy! I'm keeping this short but obviously my stem cell transplant has started. Day -7 through Day -2 was filled with high dose chemo. I am told I experienced worse than most because I'm coming right in from another chemo. Lucky me. Most of the issues were just diarrehea and overwhelming fatigue. Day -1 was 'flush day'.…
Double hit lymphoma remission but fluid in lungs????
Ex husband has been in remission for a little over 6 months. Several weeks ago he had a cough. Dr gave prescription and inhaler. No improvement. Today cat scan was done and fluid was discovered on his lungs!!! He left dr with oxygen!!! Flying back to Houston Sunday to see cancer dr. Could this be secondary cancer??? Please…
lymphoma plus heart surgery
Hello folks: Have not been here for awhile since I have been recently trying to survive heart surgery, which took place on January 21. Mitral valve replacement and aortic valve replacement, 6 hour operation. Finished two years of Rituxin infusions before the surgery, and the oncologist said that things look very good, but…
I started a nlphl blog.
Since there seems to be no way to add pictures and csn technical assistance seems nonexistance, I just wanted you wonderful people to know I started a blog at www.olympiajeff148.blogspot.com I think pictures make things much more personal. I will be trying to make a post each week with a picture, and my experience that…
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
First Chemo This Thursday (May 1)...Any Advice
I have my first chemo treatment of ABVD-R this Thursday. Any tips for the 8 hours I have to sit there. Should I bring snacks? Should I take constipation or nausea medication this week? Should I fatten up this week with lots of ice cream (while still eating healthy)? Should I take the nice sunny days off? I want to hear…
Rituxan Maintenance #7
You would think I could take this all in stride by now. I am doing well. I feel good. Strangers around me would never know. Those who do know think it is all over, that it doesn't matter any more. My hair is back. I am walking just fine. My appetite is great. My blood counts are normal again. I feel so blessed and happy.…
Good news...finally!
Hi guys, My Oncologist said I do NOT have to start chemo for the chest and cheek tumors. It is non aggressive( at this time) so we are going with "watch and wait" for now. We will check the tumors every 3 months with a CT scan. My Blood work looked great, so we will also do follow up blood panels every three months. The…
Mass in right eye...
Hi friends, Just thought I'd tell you that I will be having biopsy surgery on my right eye,Tuesday morning at 7:15. First of January a small spot in the corner of my right eye..(tear duct) showed up and has slowly grown to quite a large mass over the last 3 months. It is causing blurred vision, headaches and pressure…
CT Scan results....
Hi Guys, My CT Scan results came in the mail today. It showed an enlarged right paratracheal lymph node measuring 2.3 x 1.4 centimeters in size. Appearance is suspicious for recurrent lymphoma. So...basically this means, the cheek, eye and now the right paratracheal node in the chest wall is where the cancer is located. NO…
Radiation
Has any one else had breathing problems after radiation? I have been in remission for 7 years now and this year my breathing has gotten worst. It affected me only some times before but it much more now. Like when I use cleaning products, doing my job at work, pulling heavy things with hand jack and other daily activities.…
Results from Eye Biopsy
Hi guys, Well...it isn't good. The report reads: Microscopic Diagnosis: Right Medial Conjunctival Mucosa Extensively Infiltrated By Malignant Lymphoma, B-cell type,Diffuse,Low Grade. Abnormal B-cell Population Consistant with B-cell Lymphoma of likely Follicle Center Origin. Stains reveal strong expression of CD79a, CD20,…
Alexandra, how's the Parp going?
Thinking of you and hoping all is going well so far! Susan
Fasten Your Seatbelts
So the original plan was for my brother to donate his stem cells on the 28th and 29th of this month. I would had started the high dose chemo part of the transplant on May 5th. Of course, things never go as planned with me. But wait...normally things get delayed...postponed...this time...they aren't! They decided to move…
Batting 2 for 2...
Hi Guys, Well...the biopsy results from the pea size lump in my right cheek came back yesterday and it also tested positive for Follicular NHL...60% infiltrated. Had my CT Scan yesterday morning of my pelvic, stomach, neck and head, but won't get the results until Friday or possibly Saturday. I have them mail me a copy. I…
Hospital or in home hospice
Today is a bad day for mom, but she doesn't know. She's very disoriented today. UTI symptoms often mimic dementia I was told by her social worker this morning. I called her onc because of the possible UTI and to let her know my mom hasn't completed the course of antibiotics for the mastitis in her left breast. She says we…
Procrit
Has anyone taken it? I've read all the side effects and was hoping to get some personal feedback on effects and benefits. Thank you, Dez
I have a question
Has anyone here with non hodgkins lymphoma ever get bruising for no apparent reason, no pain no lumps and you know you havent hit anything or bumped into anything?
Shoopy Latest
It's been a while since I've given everyone an update on my situation. For the newbies...a short recap: Dx as Diffused Large B-Cell Lymphoma (Activated B-Cell) in May 2013. After 2 cycles of R-CHOP, it was determined that I was refractory. My cancer is not only extremely aggressive but also chemo resistent. I then went…
MattButts - how ya doing?
Haven't heard from you in a few days. Just wanted you to know you're being thought of. Say "Hi"' if you get a chance and feel up to it. Hugs and positive thoughts, Jim
Dry mouth since receving R-CHOP for Non-Hodgkin Lymphoma
My wife has an extreme case of dry mouth since starting R-CHOP treatment. She has received 6 of 8 treatments. The dry mouth has gotten so severe that there were deep cracks in the surface of her tongue and even in the inside of the cheeks. I am looking for any suggestions on what has worked for anyone else. She has tried…
Question regarding two lymph nodes one behind ear and another in the right groin
Hi all, im not a cancer surviver but I am just wondering about a few things regarding my lymph nodes that are swollen any help would be appreciated. about 3 years ago I went through a cancer scare when I was having drenching night sweats and fatigue constantly sleeping and not feeling great. The doctors did a biopsy on an…
Hey!!! R-CHOP Vs E-POCHR
i (34yrs,Male) have been diagnosed with high grade large diffuse b-cell lymphoma last month and i have had my second chemo of R-CHOP regimen. I have been doing alright with all the common side effects like losing taste buds, hair loss, general tiredness. I was trying to get a second opinion on my treatment regimen and was…
Goodbye All
i am outta here. Wrong environment for a free thinking tolerant person.
Mantle Cell Lymphoma and R-CHOP
Hello Everyone, My name is Angelia. I'm 56 years old. I was recently diagnosed with Mantle Cell Lymphoma stage 3 on Jan. 24, 2014. I also have a history of Lupus, Fibromyalgia, Sjogren's, Raynard's and Plumonary Fibrosis. I started the R-CHOP regimine on March 3, 2014. I will be recieving this treatment every 21 days for 8…
My two cents
Most of you know me and I rarely get on a soap box about anything. I try to be supportive and humorous when I can. Recent events and posts (some removed) and DRAMA have weighed heavily on my mind and I have to speak. We are all victims of cancer. To me, the purpose of this site is to provide positive support and caring for…
$400.00......down the hatch
Bill's pills came today. They rushed delivery by UPS. The drug company called yesterday from MI and told us our portion would be $2000 plus and $500/mo after that. Bill and I both thought at the same time, we have to call Xia, the financial wizard at our cancer center. She said they weren't supposed to call us until they…
Back from Stanford
In our hotel room that is. What a good idea to stay over! We would be in bumper to bumper and not home till 8 or 9 at least. Now we are getting ready to walk across the street for Thai food. It is pretty much what we thought, we mainly just hurried up to wait but they were very accomodating. The doctor told us it is a no…
Scanxiety
Hi All.. Well time for my testing and six month check up and of course I'm feeling it. Anxious and pre-occupied with thinking about possible outcomes. Silly I know since worrying isn't going to help or change anything. I just seem to feel this way every time I have a check up. I know you all get this. Others try to…

Lymphoma (Hodgkin and Non-Hodgkin)

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