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Radiologist appointment...
Hi guys, Finally got a date to see the radiology Oncologist...Thursday at 2:00. I assume...(not smart to do )... he will schedule my MRI for the following week. Once that is done and we get those results, I should know more which way we will go with treatment....radiation or chemo. My right eye tears up constantly, but…
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Scan Today - SCANXIETY
Well, as usual I have scanxiety about my 6 month checkup today. I could use some hugs, laughter and maybe hear from some of you folks who haven't posted in awhile. I know some of you are going through relapse, treatment, and stem cell transplants and you are in my thoughts. Some of you are in remission or perhaps "cured"…
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New Oncologist
Hi Guys, Sorry for the delay in posting, but with the big move, unpacking and getting in to see a new doctor, my plate "done runeth over" , with little to no energy left at the end of the day for computer time!! But...with that being said, we are now completely settled in the new house and it feels very homey and…
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Happy Mother's Day
Happy Mother's Day !!!
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Sue, did you make it to Oregon? ;)
Hope you're doing well and loving your new home!
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First day of chemo over!!
First day went ok. I was in a bed which was nice since the session lasted over 9 hours. I had some minor alergic reactions that were dealt with and a little nausea that night. But I'm at work today!! Thanks for all the thoughts and prayers. They work!! I have a prayer list too. If any of you need prayer, send me a message.…
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recurance or new?
Hi, My BFF has just been diagnosed with NHL for the 2nd time. The first time was in 2000. She went through the chemo and surgeries and at this point we "assumed" she had beaten it. A few weeks ago she developed a small lump on her chest and didn't like the looks of it so she had it removed. The biopsy revealed large cell…
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Packed up and ready to move!
Hi Guys, Well...after tomorrow afternoon/early evening, my internet, phone and cable will be disconnected, so I'll be unable to participate in the group. However...our service at the new house in Oregon will be installed and up and running by late afternoon Saturday, so it will be a brief shutdown period. "yeah"! I'm so…
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Latest Pet Scan
We got our end of chemo pet scan today :( My husband finished his 6 rounds of ABVD on Monday, April 7th. He got his PET scan Thursday and we received the results today. His cancer has gotten worse and the fluid has begun to fill around his lungs again. He has done such an awesome job and he looks wonderful. The doctor said…
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Day -7 through Day 0
Howdy! I'm keeping this short but obviously my stem cell transplant has started. Day -7 through Day -2 was filled with high dose chemo. I am told I experienced worse than most because I'm coming right in from another chemo. Lucky me. Most of the issues were just diarrehea and overwhelming fatigue. Day -1 was 'flush day'.…
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Double hit lymphoma remission but fluid in lungs????
Ex husband has been in remission for a little over 6 months. Several weeks ago he had a cough. Dr gave prescription and inhaler. No improvement. Today cat scan was done and fluid was discovered on his lungs!!! He left dr with oxygen!!! Flying back to Houston Sunday to see cancer dr. Could this be secondary cancer??? Please…
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lymphoma plus heart surgery
Hello folks: Have not been here for awhile since I have been recently trying to survive heart surgery, which took place on January 21. Mitral valve replacement and aortic valve replacement, 6 hour operation. Finished two years of Rituxin infusions before the surgery, and the oncologist said that things look very good, but…
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I started a nlphl blog.
Since there seems to be no way to add pictures and csn technical assistance seems nonexistance, I just wanted you wonderful people to know I started a blog at www.olympiajeff148.blogspot.com I think pictures make things much more personal. I will be trying to make a post each week with a picture, and my experience that…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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First Chemo This Thursday (May 1)...Any Advice
I have my first chemo treatment of ABVD-R this Thursday. Any tips for the 8 hours I have to sit there. Should I bring snacks? Should I take constipation or nausea medication this week? Should I fatten up this week with lots of ice cream (while still eating healthy)? Should I take the nice sunny days off? I want to hear…
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Rituxan Maintenance #7
You would think I could take this all in stride by now. I am doing well. I feel good. Strangers around me would never know. Those who do know think it is all over, that it doesn't matter any more. My hair is back. I am walking just fine. My appetite is great. My blood counts are normal again. I feel so blessed and happy.…
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Good news...finally!
Hi guys, My Oncologist said I do NOT have to start chemo for the chest and cheek tumors. It is non aggressive( at this time) so we are going with "watch and wait" for now. We will check the tumors every 3 months with a CT scan. My Blood work looked great, so we will also do follow up blood panels every three months. The…
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Mass in right eye...
Hi friends, Just thought I'd tell you that I will be having biopsy surgery on my right eye,Tuesday morning at 7:15. First of January a small spot in the corner of my right eye..(tear duct) showed up and has slowly grown to quite a large mass over the last 3 months. It is causing blurred vision, headaches and pressure…
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CT Scan results....
Hi Guys, My CT Scan results came in the mail today. It showed an enlarged right paratracheal lymph node measuring 2.3 x 1.4 centimeters in size. Appearance is suspicious for recurrent lymphoma. So...basically this means, the cheek, eye and now the right paratracheal node in the chest wall is where the cancer is located. NO…
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Radiation
Has any one else had breathing problems after radiation? I have been in remission for 7 years now and this year my breathing has gotten worst. It affected me only some times before but it much more now. Like when I use cleaning products, doing my job at work, pulling heavy things with hand jack and other daily activities.…
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Results from Eye Biopsy
Hi guys, Well...it isn't good. The report reads: Microscopic Diagnosis: Right Medial Conjunctival Mucosa Extensively Infiltrated By Malignant Lymphoma, B-cell type,Diffuse,Low Grade. Abnormal B-cell Population Consistant with B-cell Lymphoma of likely Follicle Center Origin. Stains reveal strong expression of CD79a, CD20,…
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Alexandra, how's the Parp going?
Thinking of you and hoping all is going well so far! Susan
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Fasten Your Seatbelts
So the original plan was for my brother to donate his stem cells on the 28th and 29th of this month. I would had started the high dose chemo part of the transplant on May 5th. Of course, things never go as planned with me. But wait...normally things get delayed...postponed...this time...they aren't! They decided to move…
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Batting 2 for 2...
Hi Guys, Well...the biopsy results from the pea size lump in my right cheek came back yesterday and it also tested positive for Follicular NHL...60% infiltrated. Had my CT Scan yesterday morning of my pelvic, stomach, neck and head, but won't get the results until Friday or possibly Saturday. I have them mail me a copy. I…
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Hospital or in home hospice
Today is a bad day for mom, but she doesn't know. She's very disoriented today. UTI symptoms often mimic dementia I was told by her social worker this morning. I called her onc because of the possible UTI and to let her know my mom hasn't completed the course of antibiotics for the mastitis in her left breast. She says we…
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Procrit
Has anyone taken it? I've read all the side effects and was hoping to get some personal feedback on effects and benefits. Thank you, Dez
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I have a question
Has anyone here with non hodgkins lymphoma ever get bruising for no apparent reason, no pain no lumps and you know you havent hit anything or bumped into anything?
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Shoopy Latest
It's been a while since I've given everyone an update on my situation. For the newbies...a short recap: Dx as Diffused Large B-Cell Lymphoma (Activated B-Cell) in May 2013. After 2 cycles of R-CHOP, it was determined that I was refractory. My cancer is not only extremely aggressive but also chemo resistent. I then went…
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MattButts - how ya doing?
Haven't heard from you in a few days. Just wanted you to know you're being thought of. Say "Hi"' if you get a chance and feel up to it. Hugs and positive thoughts, Jim
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Dry mouth since receving R-CHOP for Non-Hodgkin Lymphoma
My wife has an extreme case of dry mouth since starting R-CHOP treatment. She has received 6 of 8 treatments. The dry mouth has gotten so severe that there were deep cracks in the surface of her tongue and even in the inside of the cheeks. I am looking for any suggestions on what has worked for anyone else. She has tried…