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Home sweet home!
Hi Guys, Feels like I've been gone forever! We are finally home from our cross country road trip. Total miles we traveled was 6,035. We had a wonderful time and enjoyed every minute. I have been feeling great with nothing to complain about. My next check up and blood work will done the first week in December. No scan until…
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did anyone begin with enlarged underarm lymph nodes, one 2.5cm?
I had an ultrasound and they are waiting to repeat in 4 months or so..............I am a breast cancer survivor...... just worried. Thanks, Carol
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new cancers
Have any of you developed "new" cancers after having NHL? My brother had NED for over 10 years and 2 years ago he developed rectal cancer. Now it has metastasized to his lungs and liver. Do the chemo drugs cause other cancers later in life? Just wondering...
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The Last Post !!!!
3 times in the last month my post have been pulled because of political overtones. I was only trying to give everyone a heads up of what is in the future for us as far as health care goes. Needless to say I believe Freedom of Speech has been taken away as demonstrated by the post being removed. If I can't say what I feel…
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The most beautiful word...
Remission!! Don't go back to my onc for 6 months! Whoo Hoo!!!!!!! Dealing with the collateral damage from chemo. Gut continues to be a big issue but...I'm in Remission!! So I have hit a high spot on this crazy journey. I'm running with it! :) I pray you all hear that beautiful word too. Blessings, Donna NMZ NHL Stage IV Dx…
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BREAKING THROUGH CANCERS SHIELD
http://www.nytimes.com/2013/10/15/health/breaking-through-cancers-shield.html?hp&_r=1&
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Lymphoma*versary
I am having an anniversary (lymphoma-versary). At the end of September, last year, I was told I had lymphoma and scheduled for a biopsy to confirm. Three days later, it was confirmed. And 2 days after that I saw my oncologist for the first time. That day, I had an ultrasound, 11 vials of blood drawn, and a (unprepared for,…
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nonhepatosplenic gammadelta T-cell lymphoma
Hello everyone, i was diagnosed with stage 4 peripheral t-cell lymphoma unspecified in May 2013 after a year of suffering with nasal congestion that did not respond to frontline and secondary treatments. I also had a small rash on my left temple that was originally diagnosed as sarcoidosis, but turned out to be part of the…
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Hodgkins & Non-Hodgkins Lymphoma survivors
Hi, I am a 12 year survivor of advanced Hodgkins Disease Lymphoma. I had nodular sclerosing type of tumors, about 30 in my chest and neck. When diagnosed I was stage 3 with type B symptoms if I remember correctly and about 26 years old. I received chemo for about 12 weeks and then another 12 weeks than radiation for…
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muscle cramps
Finished chemo for CLL a year ago - total remission (YAY!), but have serious muscle cramps now - mostly legs and feet, mostly at night. Drugs were Rituxan, Revlimid, and Cytoxan - anyone have similar experience/after effects?
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New Word
Recently, I said to my husband, "You know that expression 'scatter-brained'? I know what it means". He said, "Um. . .yeah". Yesterday, I heard a new word for it--Chemonesia.
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Stem Cell - High Dose CEB (or CVB not sure)
Hi all, Need a little help here. I'm meeting with doctor tomorrow to discuss my stem cell transplant next month. Remember, I've been through 2 R-CHOP, 3 R-DHAC, 1 R-ICE (second scheduled for a couple weeks from now). They believe my DLBCL is becoming chemo resistant. The plan to start the SCT in early November. SCT starts…
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How are you Liz?
Como esta mi amiga chicita en El Paso? My spanish is very rusty so please forgive that. Hope you're doing well - haven't heard from you in awhile "ten toes smiling"
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Halloween costume
This is a picture of our beautiful 4 yr. old granddaughter, Katie. She's off to see the wonderful wizard of OZ in her Dorothy costume. She needs her basket and TOTO to complete the look though. Mom and Dad are searching for it. Next year she'll have a baby brother or sister to join her with trick or treating (older son).…
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SENATE HOLDING UP CLINICAL TRIALS
I sent the following to my senator this afternoon: Senator: I have been hearing about children whose chances for clinical trials have been halted by Congress. I am so very tired of the political games you all are playing. Senator: I have cancer and am saddened by what you are NOT DOING for sick people, people whose chances…
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Question
Has anyone heard of a very rare condition called Reactive Mesenteritis which can be a side effect of lymphoma?
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Hello, New Here !
Hey ! New here. Reading your posts helps with a lot of questions I have. Thanks ! I am Jason, 40 years old, diagnosed with stage 3B FNHL in May this year. I just did my third round of Bendamustine/Rituxan. So far little side effects. I go Tuesday for my first PET scan to see if its working, kind of worried !? If its doing…
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Cancer sucks!
I wish I recieved better news today. The doc read last week's PET scan this morning. While we've made progress there are still 3 lymph nodes showing active cancer. He believes these are R-DHAC resistant cancer cells. He is starting me on R-ICE today. I'll do two cycles 3 weeks apart and rescan. He is going to talk with the…
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Recurrance of NHL
Has anyone out there had more than two reappearances of NHL and is there anyone in there late sixtys, early seventies who has survived this and can tell me about your treatment etc. Myron
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PET SCAN
I had a Dr. appt. today. had blood work and a port flush. Everything came back fine. I asked the Dr. about another PET Scan since my last one was last November. He said no reason for a scan unless something changes with blood work or lymph nodes happen to swell. Something doesn't sound right. I know scans are not good for…
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Greetings to Shoopy
How's it going today, Karl? Are you still at Area 51? I was wondering about the RICE--any weird dreams or hallucinations? You sound perfectly stable. When will you go home? I know you will have to be extremely careful about infection. I hope it is all going well for you. I just wanted you to know I'm thinking about you…
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DLBCL and LDN ( low dose naltrexone)
Hi. My Dad was recently diagnosed with DLBCL. We don't know the stage yet because he needs to have more tests, but the Dr. says he's at least a stage 2 (with symptoms of sore abdomen, some fatigue and lost a little weight). The Dr wants to get him started next week on his treatment plan (standard therapy, including chemo)…
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Loaded with questions.
Hi everyone, I have just recently joined this forum and many of the comments I have seen here are quite helpful. I am not a patient but am the daughter of one. My father has been diagnosed with CNS Lymphoma and I being a teenager have absolutely no idea what lies ahead. I have plenty of questions to ask evry piece of…
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Early Birthday Wishes, Sue
HAPPY BIRTHDAY SUE !!! I know it's a bit early, but wanted to be the first to wish you a wonderful birthday. Your travel plans sound like so much fun. Enjoy every minute and take in all the beauty around you. When you are in Calif at your sisters, if you have time, give me a call and maybe we can meet for some coffee and…
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Hi everyone, I'm new
A year ago my husband got a cough that just wouldnt go away. He went to urgent care and they did an xray. They prescribed him a steriod because they said he had pneumonia. In December it was back again, so they treated him as they did in September, excluding the xray. He found a new primary care doctor and was referred to…
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Chemo Induced Peripheral Neuropathy with restless leg syndrome
Fellow Lymphomaniacs... Just wondering if anyone else suffered or suffers from this? Mine started out as a sore back, moved to sore hip, progressed to numbess in my toes and fingers and the entire body having that restless leg type syndrome. Now, I am at the point where I am getting foot cramps and my entire arms are going…
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R-CVP versus Bendamustine-Rituxan
Which one is the "best" I was given a choice. Now I am hesitant Care to share your experiecnce. Many blessings to you
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Is Sue Lost at Sea???
I starting to get worried. Do you think maybe a gigantic salmon got Sue. JOHN
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Just looking for some advice about my 3 year old son...
I'm new to this site and joined because I just wanted some advise from others and I want to say that my son is currently not diagnosed with cancer and is under a doctors care! My son is 3 will be 4 this December and i will give a little of his history from this year. Early January he had gotten the flu 3 times and…
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GKH and eye problems
GKH, In an earlier post you mentioned you were having eye issues. Just wondering what kind of eye problems are you having. I have developed dry eyes and was wondering if it was related to the chemo or not. John