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Follow up CT.
Hi everyone!! Just wanted to do a quick check in. Had a follow up CT and checkup at Mayo yesterday and I remain in complete remission. I have now graduated to the 1 year follow up club. Blessings and good luck to all. Mary
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Early Remission DLCBL symptons?
Just over a week ago my hubby was given the all clear and told no chemo, no radiation and a 3 mo followup. CT scan, no PET. He had gained weight and felt well but then he had just came off his last taper of prednisone. A couple of days ago he was had fluid swishing around his abdomen and he ended up throwing up at 2:00am.…
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ANY GOOD R-CHOP EXPERIENCES
Just wondering if anyone out there has had a fairly good experience with r-chop.I am not refering to the final results. All I read is how sick everyone feels while in treatment. I start mine this coming week and am sorta scared. I know everyone reacts differently. Thanks
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Excisional biopsy today after pos FNA report rt groin
After having a +FNA report of rt groin, my surgeon took out groin node immediately ( same week). surgery went well & he tells my family it's benign but he has to send it off for path report. My question is, how would he know it was benign by looking? I thought lymphoma was dx By path report only??? any replies greatly…
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Infusaport removal
9/23/13 I had ny port placed 12 years ago to receive chemo, CHOP. I have lymphoma, NHL, and the last time I needed it for treatment was 2012. I decided to have it removed, and read other testimonies how it was a breeze, and they were feeling so much "lighter" in their shoulder now. After the operation 3 days ago, my right…
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Nights Sweats
Folks, I have a quick question for you. By now you know I've gone through an alphabet soup of treatments trying to kill this chemo resistant DLBCL and get my "dairy air" into SCT. I've had 2 R-CHOP, 3 R-DHAC, and now 1 R-ICE with a second treatment coming up in a little over a week. I had some pretty bad night sweats when…
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Strange side effect of chemo...
This is a strange one...at least to me. Several weeks ago I completed 6 rounds of chemo for a large abdominal tumor (DBCL stage IV with the only other involvement being in the bone marrow). The post chemo CT scan shows me in full remission. My oncologist wants me to have 15 sessions of radiation starting next week to…
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Hope all is well with everyone!
Hello my family and friends, I honestly have been extremely busy with school, work, and flying back and forth to Denver for Kyle. I am running arond like a chicken without a head! Haha, it's okay though. I am taking it one day at a time. So much has seemed to have happened within the last I wrote on here. I always try to…
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To Almost 60
What a nice long vacation you had. Sounds like you are glad to be home. I don't know many folks here now and it feels a bit strange. I wanted to say hello and find out how you are. Love, Mary
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First Treatment
Hey everyone, My husband is scheduled to have his first treatment on Monday. He will be getting ABVD. We have been waiting for this, but as it gets closer, I'm becoming more nervous. We have not had our counseling with the nurse yet to walk us through the road map, that will be on Monday as well. As we were setting up all…
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Happy Halloween!
Here's a little funny for you today: Happy Halloween! Two brooms were hanging in the closet and after a while they got to know each other so well, they decided to get married. One broom was, of course, the bride broom, the other the groom broom. The bride broom looked very beautiful in her white dress. The groom broom was…
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Treatment dilemma
i have successfully completed 6 rounds of rchop for stage lV dlbcl nhl and am in remission. My oncologist wants me to have radiation treatment to lessen the chance of reoccurrence. I have a consultation with an oncology radiologist tomorrow and am wondring if anyone has suggestions as to what I should be asking during this…
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Book being published NHL Two Time Survivor
I want to share my story to help inspire people who have Cancer in their life somehow. I was 28 when Diagnosed with Non-Hodgkins Lymphoma (Cancer of the Immune System). I did Chemotherapy for six months. Because of the chemotherapy, a blood clot formed in my heart and I needed Open Heart Surgery. A year later was told the…
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Medicare Options
I'm reaching out to you guys hoping to get some input on deciding how to handle Medicare which starts for me next month. I met with a Medicare Counselor yesterday and though he was a very nice and interesting person, I'm still indecisive/confused about which way to go. I've been on disability for two years and medicare…
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Home sweet home!
Hi Guys, Feels like I've been gone forever! We are finally home from our cross country road trip. Total miles we traveled was 6,035. We had a wonderful time and enjoyed every minute. I have been feeling great with nothing to complain about. My next check up and blood work will done the first week in December. No scan until…
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did anyone begin with enlarged underarm lymph nodes, one 2.5cm?
I had an ultrasound and they are waiting to repeat in 4 months or so..............I am a breast cancer survivor...... just worried. Thanks, Carol
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new cancers
Have any of you developed "new" cancers after having NHL? My brother had NED for over 10 years and 2 years ago he developed rectal cancer. Now it has metastasized to his lungs and liver. Do the chemo drugs cause other cancers later in life? Just wondering...
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The Last Post !!!!
3 times in the last month my post have been pulled because of political overtones. I was only trying to give everyone a heads up of what is in the future for us as far as health care goes. Needless to say I believe Freedom of Speech has been taken away as demonstrated by the post being removed. If I can't say what I feel…
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The most beautiful word...
Remission!! Don't go back to my onc for 6 months! Whoo Hoo!!!!!!! Dealing with the collateral damage from chemo. Gut continues to be a big issue but...I'm in Remission!! So I have hit a high spot on this crazy journey. I'm running with it! :) I pray you all hear that beautiful word too. Blessings, Donna NMZ NHL Stage IV Dx…
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BREAKING THROUGH CANCERS SHIELD
http://www.nytimes.com/2013/10/15/health/breaking-through-cancers-shield.html?hp&_r=1&
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Lymphoma*versary
I am having an anniversary (lymphoma-versary). At the end of September, last year, I was told I had lymphoma and scheduled for a biopsy to confirm. Three days later, it was confirmed. And 2 days after that I saw my oncologist for the first time. That day, I had an ultrasound, 11 vials of blood drawn, and a (unprepared for,…
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nonhepatosplenic gammadelta T-cell lymphoma
Hello everyone, i was diagnosed with stage 4 peripheral t-cell lymphoma unspecified in May 2013 after a year of suffering with nasal congestion that did not respond to frontline and secondary treatments. I also had a small rash on my left temple that was originally diagnosed as sarcoidosis, but turned out to be part of the…
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Hodgkins & Non-Hodgkins Lymphoma survivors
Hi, I am a 12 year survivor of advanced Hodgkins Disease Lymphoma. I had nodular sclerosing type of tumors, about 30 in my chest and neck. When diagnosed I was stage 3 with type B symptoms if I remember correctly and about 26 years old. I received chemo for about 12 weeks and then another 12 weeks than radiation for…
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muscle cramps
Finished chemo for CLL a year ago - total remission (YAY!), but have serious muscle cramps now - mostly legs and feet, mostly at night. Drugs were Rituxan, Revlimid, and Cytoxan - anyone have similar experience/after effects?
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New Word
Recently, I said to my husband, "You know that expression 'scatter-brained'? I know what it means". He said, "Um. . .yeah". Yesterday, I heard a new word for it--Chemonesia.
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Stem Cell - High Dose CEB (or CVB not sure)
Hi all, Need a little help here. I'm meeting with doctor tomorrow to discuss my stem cell transplant next month. Remember, I've been through 2 R-CHOP, 3 R-DHAC, 1 R-ICE (second scheduled for a couple weeks from now). They believe my DLBCL is becoming chemo resistant. The plan to start the SCT in early November. SCT starts…
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How are you Liz?
Como esta mi amiga chicita en El Paso? My spanish is very rusty so please forgive that. Hope you're doing well - haven't heard from you in awhile "ten toes smiling"
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Halloween costume
This is a picture of our beautiful 4 yr. old granddaughter, Katie. She's off to see the wonderful wizard of OZ in her Dorothy costume. She needs her basket and TOTO to complete the look though. Mom and Dad are searching for it. Next year she'll have a baby brother or sister to join her with trick or treating (older son).…
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SENATE HOLDING UP CLINICAL TRIALS
I sent the following to my senator this afternoon: Senator: I have been hearing about children whose chances for clinical trials have been halted by Congress. I am so very tired of the political games you all are playing. Senator: I have cancer and am saddened by what you are NOT DOING for sick people, people whose chances…
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Question
Has anyone heard of a very rare condition called Reactive Mesenteritis which can be a side effect of lymphoma?