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Question regarding two lymph nodes one behind ear and another in the right groin
Hi all, im not a cancer surviver but I am just wondering about a few things regarding my lymph nodes that are swollen any help would be appreciated. about 3 years ago I went through a cancer scare when I was having drenching night sweats and fatigue constantly sleeping and not feeling great. The doctors did a biopsy on an…
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Hey!!! R-CHOP Vs E-POCHR
i (34yrs,Male) have been diagnosed with high grade large diffuse b-cell lymphoma last month and i have had my second chemo of R-CHOP regimen. I have been doing alright with all the common side effects like losing taste buds, hair loss, general tiredness. I was trying to get a second opinion on my treatment regimen and was…
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Goodbye All
i am outta here. Wrong environment for a free thinking tolerant person.
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Mantle Cell Lymphoma and R-CHOP
Hello Everyone, My name is Angelia. I'm 56 years old. I was recently diagnosed with Mantle Cell Lymphoma stage 3 on Jan. 24, 2014. I also have a history of Lupus, Fibromyalgia, Sjogren's, Raynard's and Plumonary Fibrosis. I started the R-CHOP regimine on March 3, 2014. I will be recieving this treatment every 21 days for 8…
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My two cents
Most of you know me and I rarely get on a soap box about anything. I try to be supportive and humorous when I can. Recent events and posts (some removed) and DRAMA have weighed heavily on my mind and I have to speak. We are all victims of cancer. To me, the purpose of this site is to provide positive support and caring for…
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$400.00......down the hatch
Bill's pills came today. They rushed delivery by UPS. The drug company called yesterday from MI and told us our portion would be $2000 plus and $500/mo after that. Bill and I both thought at the same time, we have to call Xia, the financial wizard at our cancer center. She said they weren't supposed to call us until they…
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Back from Stanford
In our hotel room that is. What a good idea to stay over! We would be in bumper to bumper and not home till 8 or 9 at least. Now we are getting ready to walk across the street for Thai food. It is pretty much what we thought, we mainly just hurried up to wait but they were very accomodating. The doctor told us it is a no…
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Scanxiety
Hi All.. Well time for my testing and six month check up and of course I'm feeling it. Anxious and pre-occupied with thinking about possible outcomes. Silly I know since worrying isn't going to help or change anything. I just seem to feel this way every time I have a check up. I know you all get this. Others try to…
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Biopsy completed..
Hi guys, Well...the biopsy went great...no pain and no patch! My eye is still blurry and a bit irritated, but Dr. said it will start to clear up as the day progresses. Now we do the "waiting" game for the pathology report..UGH! I will share back as soon as I hear anything. Hope everyone has a good week. Love to all...Sue…
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News
Hi all, just wanted to say hi and to let you know that I am still reading the posts but have little time to reply. My newest granddaughter has arrived and I have been spending all my time at my daughters home helping her and the baby. She lives a few towns away so lots of driving for me. I adore all my grandchildren and…
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"How Doctors Think"
I am scheduled for an electrocardiogram on April 8. My new NP thinks my inability to breathe and my staggering when walking may be heart failure from Adrimycin . Based upon the dose I received, I have a 18% chance of heart damage from Adrimycin, which is a drug used in ABVD, CHOP, and several other combination therapies.…
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Oncology visit today
Hi Everyone, I have FNHL stage 4 and have been in remission 5 years in December 23,2014 Had my blood work done today and my wbc was 3.6 and my platelets dropped from 171 3 months ago to 126. Matter of fact all my levels dropped some. Wondering what it might mean. The oncologist did not seem too worried. But I am so darn…
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Worried
My daughter, who has been cancer free for two years last month went to the doctor yesterday. He said she had pneumonia, and started her on antibiotics right away. He also ordered an xray and CT. He said that he is corncerned that the tumor might be back in her chest, but he did say that he might be pneumonia. We are so…
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Humor?
After a recent discussion here, I have decided to call my bathroom the Jim rather than the John. It sounds so much better if I say I went to the Jim first thing this morning.
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Rituxan Interactions
Since several of us are receiving Rituxan therapy, I would like to encourage everyone taking Rituxan to carefully read the drug interactions list. Other than the well known live virus vaccines you will find that several common herbs and food supplements are listed. This list includes echinacea, vitamin E, zinc and several…
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In Limbo
I'm a 30yr old white female. I was diagnosed with Alk-pos anaplastic large cell lymphoma back in October. I have just finished my 6 rounds of CHOP. In one month I will have a follow up PET scan and will know more about where we stand with things. The doctor has already mentioned doing radiation to the tumor I had on my…
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Hello after a while - update
Hi friends. Life got really tough. Those who read my earlier posts and responded and consoled me, thank you! I believe in my latest post I updated you all that after the 10 days of the ICU and the month hospitalization (due to C-diff which lead to sepsis) at our local hospital my mom was diagnosed with a second cancer of…
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emotions
Hi all, first id like to start out by saying that i was diagnosed in january 2013 with non hodkins large bcell lymphoma. when my dr told me that i had cancer i was scared shitless! they started me on rchop treatment. a week later i had a bone marrow biopsy and the drs determined that i had 2 mutations in my cells instead…
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How Much Do You Drink?
And no, I'm not asking about booze (per se). I wonder how much fluid you drink in a day, including water, coffee, tea, milk, juice, sodas, and also any booze. I am still having problems with low blood sodium. After my first chemo, my sodium dropped to medical emergency levels and I wound up in ICU. My levels still haven't…
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Education Program: Mantle Cell Lymphoma
I got a mailer yesterday announcing a free telephone/web education program sponsored by the Leukemia & Lymphoma Society on the topic of Mantel Cell Lymphoma Update on Treatment. The program is on Thursday, April 3, 2014. To register, visit their site at http://www.lls.org/ Even if you don't take advantage of this education…
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Weak Right leg, Hurts when I walk and at Times I fall
Hi Every-one this is my 1st post. I will get to my point. I was diagnosed with non hodgkins Lymphoma 8 years ago and in 2013 I started treatment with chemo after 12 treatments it did not work, next I was treated with 20 sessions of radiation. The radiation did shirking the tree lymph nodes on my right leg. Moving forward…
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planned maintenance on CSN this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
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Hello friends, remember me? I hope so.. I am back and need some help/words of encouragement
Hello friends! It has been about a year since I have posted on here, because I finally got the news I was hoping for after 7 long months of different doctors and biopsies. I thankfully was diagnosed with “over active lymph nodes” and not the scary C word. Since last year a lot has changed! I no longer am a single girl! I…
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Karl (Shoopy...How are you?
Hi Karl, We are all wondering how you are doing? Check in when you can, or feel up to it. Keeping you in my prayers. Love...Sue (FNHL-stg3-grd2-typA-Dx 6/10-age 63)
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Diffuse large B-cell follicular lymphoma
I was diagnosed with diffuse large B-cell Non-Hodgkin's Lymphoma in July 2012. The sub-class is a rare but aggressive "double-hit" translocation, as a result of two concurrent mutations: BCL2 & c-MYC. Consequently, the tumor was doubling in area every two weeks. I started treatment in August 2012. My regimen consists of…
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Max Alocohol and NLPHL
Hi max, Bill. and all other friends I want to know can we have some beer. What reaction it will have on us. May I have your opinion. Suresh
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not so bad
I 'm so sorry I did not post sooner. After the appt we had to go to Sacramento to pick up a new modem, so I wrote on my phone on the way down. I finished and was proofreading and poof my message was gone! AArgh! Bill just now got the computer running again. Well, the news is ok. The pet showed the nodes lit up., the…
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What do yoga mats,shoe rubber and Subway have in common????
The answer is...... They have the some of the same ingredients in the bread ,the yoga mats and the shoe rubber. I just can't figure out why we get cancer and why cancer is on the rise. Maybe they should call for a $100,000,000 Federal investigative committee to find out. Whoops !!! Is this to political since the FDA has…
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Training for school
Friends....just wanted to share that I had an epic 6 hours in the ER the other day, observations only...dang it!! I got introduced to the Dr and then to a bleeding artery in a woman's head immediately thereafter. I am not trying to gross you out, I promise. We saw 28 patients within a six hour period and I swear to you…
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PET scan results
Well the results from the PET scan just confirm that it is an active cancer, same area just a bit lower than the last time, i talked with my Oncologist and we agreed that i will wait for 3 months and take another scan as i am not mentally ready to go thru hell again. It has been a little over a year since my last chemo…