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Lymphoma (Hodgkin and Non-Hodgkin)

New To Group
Hi everyone. I have been reading a lot of the posts on here for the last few days. I was diagnosed in September 2009 with Diffuse B cell NHL. I went in for rutine surgery to remove my ovaries and woke from surgery cut from hip to hip instead of the four one inch incisions that I was expecting. They had found that one of my…
Advise about scans while in remission
Hi everyone, I saw my oncologist yesterday. She reaffirmed my status as complete remission -- yay -- and then surprised me by telling me that I don't need to have any further scans. I was really surprised to hear that. I asked her about it and she told me that the latest best practice for my type of cancer - dlbcl/double…
BEACOPP
Hey guys- I was just wondering if anybody here was treated with BEACOPP. I had my last treatment 4 years ago, and I'm still wondering if anyone has had any of the long term side effects that they mentioned (infertillity, early menopause, leukemia). It was so new and so unknown when they gave it to me, and they only use it…
Advise about scans while in remission
Hi everyone, I saw my oncologist yesterday. She reaffirmed my status as complete remission -- yay -- and then surprised me by telling me that I don't need to have any further scans. I was really surprised to hear that. I asked her about it and she told me that the latest best practice for my type of cancer - dlbcl/double…
Biopsy advice please
I first want to say that I considered for a long time whether to post here or not. I know many of you are going through very real battles with lymphoma and I respect that. I have lurked the web for a long time on various forums trying to find information that would help guide me, but this is by far the group that is most…
The Scan was with me!
All, It feels odd for me posting good news. The doctor said that the radiologists report shows one node with minor cancer activity. My doctor is qualitified to read PET and CT scans so he took a look at them too. He said the activity is minor and significantly less than the last PET scan. He feels that "it is on it's way…
Been awhile
Hi i know its been many months since i posted but dealing with zevalin and getting back on my feet took a bit longer than expected. Was nice of Merry and another sweet person who contacted me to see how i was, so i thought i would come here and say hello, been spending my time reading and writing some poems, i go for my…
Fun Question
You guys are great at coming up with interesting words and phrases (IE: Lymphomaversary). I figured I'd toss out an interesting challenge to everyone. Here's a little background: My bro-in-law texted me asking me about my schedule for this week. I told him that I had PET/CT scans earlier this week and am meeting with…
Diagnosis
After a very long month, we finally have a diagnosis. My husband has Hodgkins lymphoma. Although he told us in September that this was what he thought it was, it was very hard to have it confirmed. The main mass is in his lung, and the least invasive biopsy came back negative. We had a biopsy done on some swollen lymph…
Crazy town
Hey guys. Got some bad news but not about me. My fnhl cancer treatment is going great so far Thank God ! Going back for round four starting tomorrow. So the bad news (wish I was making this up) and im still a bit in shock. My brother has been having a lot of headaches, just generally feeling bad, etc, falling (which he…
Walking in honor and memory tonight
Hey everyone just wanted to drop by and check in. For those that don't know me I am in remission from DLBCL. After 11 rounds of chemo and an auto trans I have been living life without cancer for almost a year and half!!! Tonight I will be walking in the leukemia lymphoma society light the night event. I will walk as a…
First Rituxan Maintenance DONE!!!
Fellow Lymphomaniacs, I just wanted to let you know that I kicked that first Rituxan treatments butt today...It was a rough fight, not really.. I was a might bit concerned when the oncologist office called me yesterday to tell me that my B-12 level was at like 230, which is apparently too low. Oh well, they gave me a shot…
NHL - Follicular Lymphoma - R-CVP
Hello, I am starting R-CVP on 9-4-2013. Has anyone gone through this? Any feedback? Thanks
Follow up CT.
Hi everyone!! Just wanted to do a quick check in. Had a follow up CT and checkup at Mayo yesterday and I remain in complete remission. I have now graduated to the 1 year follow up club. Blessings and good luck to all. Mary
Early Remission DLCBL symptons?
Just over a week ago my hubby was given the all clear and told no chemo, no radiation and a 3 mo followup. CT scan, no PET. He had gained weight and felt well but then he had just came off his last taper of prednisone. A couple of days ago he was had fluid swishing around his abdomen and he ended up throwing up at 2:00am.…
ANY GOOD R-CHOP EXPERIENCES
Just wondering if anyone out there has had a fairly good experience with r-chop.I am not refering to the final results. All I read is how sick everyone feels while in treatment. I start mine this coming week and am sorta scared. I know everyone reacts differently. Thanks
Excisional biopsy today after pos FNA report rt groin
After having a +FNA report of rt groin, my surgeon took out groin node immediately ( same week). surgery went well & he tells my family it's benign but he has to send it off for path report. My question is, how would he know it was benign by looking? I thought lymphoma was dx By path report only??? any replies greatly…
Infusaport removal
9/23/13 I had ny port placed 12 years ago to receive chemo, CHOP. I have lymphoma, NHL, and the last time I needed it for treatment was 2012. I decided to have it removed, and read other testimonies how it was a breeze, and they were feeling so much "lighter" in their shoulder now. After the operation 3 days ago, my right…
Nights Sweats
Folks, I have a quick question for you. By now you know I've gone through an alphabet soup of treatments trying to kill this chemo resistant DLBCL and get my "dairy air" into SCT. I've had 2 R-CHOP, 3 R-DHAC, and now 1 R-ICE with a second treatment coming up in a little over a week. I had some pretty bad night sweats when…
Strange side effect of chemo...
This is a strange one...at least to me. Several weeks ago I completed 6 rounds of chemo for a large abdominal tumor (DBCL stage IV with the only other involvement being in the bone marrow). The post chemo CT scan shows me in full remission. My oncologist wants me to have 15 sessions of radiation starting next week to…
Hope all is well with everyone!
Hello my family and friends, I honestly have been extremely busy with school, work, and flying back and forth to Denver for Kyle. I am running arond like a chicken without a head! Haha, it's okay though. I am taking it one day at a time. So much has seemed to have happened within the last I wrote on here. I always try to…
To Almost 60
What a nice long vacation you had. Sounds like you are glad to be home. I don't know many folks here now and it feels a bit strange. I wanted to say hello and find out how you are. Love, Mary
First Treatment
Hey everyone, My husband is scheduled to have his first treatment on Monday. He will be getting ABVD. We have been waiting for this, but as it gets closer, I'm becoming more nervous. We have not had our counseling with the nurse yet to walk us through the road map, that will be on Monday as well. As we were setting up all…
Happy Halloween!
Here's a little funny for you today: Happy Halloween! Two brooms were hanging in the closet and after a while they got to know each other so well, they decided to get married. One broom was, of course, the bride broom, the other the groom broom. The bride broom looked very beautiful in her white dress. The groom broom was…
Treatment dilemma
i have successfully completed 6 rounds of rchop for stage lV dlbcl nhl and am in remission. My oncologist wants me to have radiation treatment to lessen the chance of reoccurrence. I have a consultation with an oncology radiologist tomorrow and am wondring if anyone has suggestions as to what I should be asking during this…
Book being published NHL Two Time Survivor
I want to share my story to help inspire people who have Cancer in their life somehow. I was 28 when Diagnosed with Non-Hodgkins Lymphoma (Cancer of the Immune System). I did Chemotherapy for six months. Because of the chemotherapy, a blood clot formed in my heart and I needed Open Heart Surgery. A year later was told the…
Medicare Options
I'm reaching out to you guys hoping to get some input on deciding how to handle Medicare which starts for me next month. I met with a Medicare Counselor yesterday and though he was a very nice and interesting person, I'm still indecisive/confused about which way to go. I've been on disability for two years and medicare…
Home sweet home!
Hi Guys, Feels like I've been gone forever! We are finally home from our cross country road trip. Total miles we traveled was 6,035. We had a wonderful time and enjoyed every minute. I have been feeling great with nothing to complain about. My next check up and blood work will done the first week in December. No scan until…
did anyone begin with enlarged underarm lymph nodes, one 2.5cm?
I had an ultrasound and they are waiting to repeat in 4 months or so..............I am a breast cancer survivor...... just worried. Thanks, Carol
new cancers
Have any of you developed "new" cancers after having NHL? My brother had NED for over 10 years and 2 years ago he developed rectal cancer. Now it has metastasized to his lungs and liver. Do the chemo drugs cause other cancers later in life? Just wondering...

Lymphoma (Hodgkin and Non-Hodgkin)

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