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Up and down
Since I posted my first post about how low I was feeling, some things have improved. The depression/low mood has lifted quite a lot - I haven't felt the "being poured down a drain" feeling for several days now. I still have some anxiety, and have to psych myself up to doing things that were second nature to me before the…
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Checking In...
First off I apologize to you guys for being away from the board for so many MONTHS :( I got back from my 2nd trip to the Mayo Clinic mid-July and the one year anniversary of losing my 38 year old brother to lung cancer came. I didn't handle that anniversary well & kind of shut down for awhile... I hope this finds all of…
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Mucositis - HELP
Hello everyone, i am 2/3 througnewish radiation to my face and have mucositis. It ia very painful and I was wondering if any of you have suggestions regarding how to deal with the pain. Thanks!
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A Question
Hello. I am a member who came on here awhile ago. I have had two clean PET scans, one in December of 2012 and one in July of 2013. My next scan will be in January. I am in remission for Non-Hodgkins Lymphoma Diffuse B Cell. My last chemotherapy of RCHOP was October, 2012. I have a question to put out there. I had been…
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The waiting game...
Hi everyone! I am so sorry for asking these questions since I know I'm not the only one asking them. I also know you guys can't diagnose anything. I just feel like I'm driving myself nuts and I felt like I needed to talk to someone who understands at least a little. About two months ago after a workout I got extremely out…
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Excisional biopsy today after pos FNA report rt groin
After having a +FNA report of rt groin, my surgeon took out groin node immediately ( same week). surgery went well & he tells my family it's benign but he has to send it off for path report. My question is, how would he know it was benign by looking? I thought lymphoma was dx By path report only??? any replies greatly…
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Reaching out - lonely
Hi, I've been reading back through the discussions on this board for the last couple of days. You sure are supportive group! I'm very glad that you're here! I created an account today because I'd like to join the group and because I realize that I need some support. In Oct 2012 I was diagnosed with "B cell lymphoma…
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follicular transformed as diffuse large B cell HELP!
Hi all, Writing from California. Hi to those I've talked to before. Some usernames I recognize and get happy to see. I return here in a bad state after two years. my loving mother who means the world to her three daughters was diagnosed with follicular lymphoma grade 3A (i think) in 10/2010. she underwent 4 cycles of B-R…
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New To Group
Hi everyone. I have been reading a lot of the posts on here for the last few days. I was diagnosed in September 2009 with Diffuse B cell NHL. I went in for rutine surgery to remove my ovaries and woke from surgery cut from hip to hip instead of the four one inch incisions that I was expecting. They had found that one of my…
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Advise about scans while in remission
Hi everyone, I saw my oncologist yesterday. She reaffirmed my status as complete remission -- yay -- and then surprised me by telling me that I don't need to have any further scans. I was really surprised to hear that. I asked her about it and she told me that the latest best practice for my type of cancer - dlbcl/double…
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BEACOPP
Hey guys- I was just wondering if anybody here was treated with BEACOPP. I had my last treatment 4 years ago, and I'm still wondering if anyone has had any of the long term side effects that they mentioned (infertillity, early menopause, leukemia). It was so new and so unknown when they gave it to me, and they only use it…
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Advise about scans while in remission
Hi everyone, I saw my oncologist yesterday. She reaffirmed my status as complete remission -- yay -- and then surprised me by telling me that I don't need to have any further scans. I was really surprised to hear that. I asked her about it and she told me that the latest best practice for my type of cancer - dlbcl/double…
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Biopsy advice please
I first want to say that I considered for a long time whether to post here or not. I know many of you are going through very real battles with lymphoma and I respect that. I have lurked the web for a long time on various forums trying to find information that would help guide me, but this is by far the group that is most…
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The Scan was with me!
All, It feels odd for me posting good news. The doctor said that the radiologists report shows one node with minor cancer activity. My doctor is qualitified to read PET and CT scans so he took a look at them too. He said the activity is minor and significantly less than the last PET scan. He feels that "it is on it's way…
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Been awhile
Hi i know its been many months since i posted but dealing with zevalin and getting back on my feet took a bit longer than expected. Was nice of Merry and another sweet person who contacted me to see how i was, so i thought i would come here and say hello, been spending my time reading and writing some poems, i go for my…
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Fun Question
You guys are great at coming up with interesting words and phrases (IE: Lymphomaversary). I figured I'd toss out an interesting challenge to everyone. Here's a little background: My bro-in-law texted me asking me about my schedule for this week. I told him that I had PET/CT scans earlier this week and am meeting with…
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Diagnosis
After a very long month, we finally have a diagnosis. My husband has Hodgkins lymphoma. Although he told us in September that this was what he thought it was, it was very hard to have it confirmed. The main mass is in his lung, and the least invasive biopsy came back negative. We had a biopsy done on some swollen lymph…
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Crazy town
Hey guys. Got some bad news but not about me. My fnhl cancer treatment is going great so far Thank God ! Going back for round four starting tomorrow. So the bad news (wish I was making this up) and im still a bit in shock. My brother has been having a lot of headaches, just generally feeling bad, etc, falling (which he…
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Walking in honor and memory tonight
Hey everyone just wanted to drop by and check in. For those that don't know me I am in remission from DLBCL. After 11 rounds of chemo and an auto trans I have been living life without cancer for almost a year and half!!! Tonight I will be walking in the leukemia lymphoma society light the night event. I will walk as a…
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First Rituxan Maintenance DONE!!!
Fellow Lymphomaniacs, I just wanted to let you know that I kicked that first Rituxan treatments butt today...It was a rough fight, not really.. I was a might bit concerned when the oncologist office called me yesterday to tell me that my B-12 level was at like 230, which is apparently too low. Oh well, they gave me a shot…
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NHL - Follicular Lymphoma - R-CVP
Hello, I am starting R-CVP on 9-4-2013. Has anyone gone through this? Any feedback? Thanks
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Follow up CT.
Hi everyone!! Just wanted to do a quick check in. Had a follow up CT and checkup at Mayo yesterday and I remain in complete remission. I have now graduated to the 1 year follow up club. Blessings and good luck to all. Mary
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Early Remission DLCBL symptons?
Just over a week ago my hubby was given the all clear and told no chemo, no radiation and a 3 mo followup. CT scan, no PET. He had gained weight and felt well but then he had just came off his last taper of prednisone. A couple of days ago he was had fluid swishing around his abdomen and he ended up throwing up at 2:00am.…
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ANY GOOD R-CHOP EXPERIENCES
Just wondering if anyone out there has had a fairly good experience with r-chop.I am not refering to the final results. All I read is how sick everyone feels while in treatment. I start mine this coming week and am sorta scared. I know everyone reacts differently. Thanks
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Excisional biopsy today after pos FNA report rt groin
After having a +FNA report of rt groin, my surgeon took out groin node immediately ( same week). surgery went well & he tells my family it's benign but he has to send it off for path report. My question is, how would he know it was benign by looking? I thought lymphoma was dx By path report only??? any replies greatly…
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Infusaport removal
9/23/13 I had ny port placed 12 years ago to receive chemo, CHOP. I have lymphoma, NHL, and the last time I needed it for treatment was 2012. I decided to have it removed, and read other testimonies how it was a breeze, and they were feeling so much "lighter" in their shoulder now. After the operation 3 days ago, my right…
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Nights Sweats
Folks, I have a quick question for you. By now you know I've gone through an alphabet soup of treatments trying to kill this chemo resistant DLBCL and get my "dairy air" into SCT. I've had 2 R-CHOP, 3 R-DHAC, and now 1 R-ICE with a second treatment coming up in a little over a week. I had some pretty bad night sweats when…
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Strange side effect of chemo...
This is a strange one...at least to me. Several weeks ago I completed 6 rounds of chemo for a large abdominal tumor (DBCL stage IV with the only other involvement being in the bone marrow). The post chemo CT scan shows me in full remission. My oncologist wants me to have 15 sessions of radiation starting next week to…
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Hope all is well with everyone!
Hello my family and friends, I honestly have been extremely busy with school, work, and flying back and forth to Denver for Kyle. I am running arond like a chicken without a head! Haha, it's okay though. I am taking it one day at a time. So much has seemed to have happened within the last I wrote on here. I always try to…
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To Almost 60
What a nice long vacation you had. Sounds like you are glad to be home. I don't know many folks here now and it feels a bit strange. I wanted to say hello and find out how you are. Love, Mary