Scan done, now we wait

Hey friends,

Well, the scan is done and now I do the thing I think we can all agree is the worst...i wait. I have an appointemnt Monday morning to hear the results. I hate this part. I envy those that get to have their scan and then find out the results the same day. I really dont know why my onc isnt able to do that, but o well. I feel good and im trying to stay positive of course, however that ugly little voice occasionally pops in my head. Its been 1.5 years since my auto transplant for DLBCL and this one is a milestone scan for me. You guys always seem to make the waiting time a little better.

Mike

Comments

  • Shoopy
    Shoopy Member Posts: 210
    Scanxiety

    Mike,

    You know that I'm about 2-3 weeks away from going through my own ASCT for DLBCL.  I want to let you know that I've read your posts from that 1.5 yrs ago.  Those posts greatly helped me understand what I'm about to go through.  We all know that scanxiety you're going through.  I'm sure everything will work out fine.  I will keep you in my thoughts and prayers!

    Karl

  • coachmike
    coachmike Member Posts: 155
    Shoopy said:

    Scanxiety

    Mike,

    You know that I'm about 2-3 weeks away from going through my own ASCT for DLBCL.  I want to let you know that I've read your posts from that 1.5 yrs ago.  Those posts greatly helped me understand what I'm about to go through.  We all know that scanxiety you're going through.  I'm sure everything will work out fine.  I will keep you in my thoughts and prayers!

    Karl

    Karl, i appreciate that. I

    Karl, i appreciate that. I want you to know that I will be praying for you as you take this step to kick cancers butt! You can do this and your gonna be so much better once its over.

    Mike

  • allmost60
    allmost60 Member Posts: 3,178 Member
    coachmike said:

    Karl, i appreciate that. I

    Karl, i appreciate that. I want you to know that I will be praying for you as you take this step to kick cancers butt! You can do this and your gonna be so much better once its over.

    Mike

    Hate waiting!

    Hi Mike,

    Boy howdy do we know how frustrating it is waiting for Scan results. I just wish they could put themselves in our shoes and see how it feels. I had a Vascular Ultrasound done on Tuesday and they said my doctor would call if anything further needed to be done. So...like you, I've waited for 2 days praying the phone doesn't ring with bad news at the other end. Kind of crazy to me. I'm going with the thought that NO news is GOOD news! Hang in there Mike, Monday will come....but just not fast enough! Prayers that your scan is clean! Best wishes...Sue

    (FollicularNHL-stg3-grd2-typ3-Dx 6/10-age 63)

  • jimwins
    jimwins Member Posts: 2,107
    Hey Mike

    Waiting is a pain.  Fortunately I usually get my results the same day so it's rarely an issue for the scans.  They are a teaching hospital and recently added on to the cancer center and updated so  I think they have everything in one building now including inpatient rooms, etc.  I've been meaning to visit the new floors and hopefully run into some of the great folks who worked with me during my treatments.

    Hang in there.  As Sue said, Monday will be here soon.  Please keep us updated or come here to chat.

    Jim

  • anliperez915
    anliperez915 Member Posts: 770
    Hi Mike

    Hi Mike,

    As others have said already, I will praying that your scan comes back clean! I know how hard it is for us to wait for our results. I also have to wait sometimes even more than a week for mine ugh the fustruation but meanwhile we can either twittle our thumbs oooorrr we can distract ouselves as much as possible....I choose distraction!!! hahaha! Hope you get so distracted this weekend that you won't even remember about monday until monday comes. Take care buddy and sending you a Huge Hug!

    Sincerely,

    Liz

  • coachmike
    coachmike Member Posts: 155

    Hi Mike

    Hi Mike,

    As others have said already, I will praying that your scan comes back clean! I know how hard it is for us to wait for our results. I also have to wait sometimes even more than a week for mine ugh the fustruation but meanwhile we can either twittle our thumbs oooorrr we can distract ouselves as much as possible....I choose distraction!!! hahaha! Hope you get so distracted this weekend that you won't even remember about monday until monday comes. Take care buddy and sending you a Huge Hug!

    Sincerely,

    Liz

    to make matters worse

    the wait is def awful as we all know. but to make matters worse, i woke up this morning feeling like crap. congestion little fever runny nose all make it worse bc of course the neurotic part of my mind wants to think that its the cancer coming back. i know that sounds crazy. i am doing my best to keep myself occupied and try to keep my mind off the appointement. you guys and your support are so awesome

  • Shoopy
    Shoopy Member Posts: 210
    coachmike said:

    to make matters worse

    the wait is def awful as we all know. but to make matters worse, i woke up this morning feeling like crap. congestion little fever runny nose all make it worse bc of course the neurotic part of my mind wants to think that its the cancer coming back. i know that sounds crazy. i am doing my best to keep myself occupied and try to keep my mind off the appointement. you guys and your support are so awesome

    Mike

    Hang in there buddy!

  • Waiting

    I always just go to the imaging center and get my  CD and radiologist report. Its often available the same day, definitely the next day. Its yours. They have to give it to you. I have never had any questions. I sign and they give it to me.

  • coachmike
    coachmike Member Posts: 155
    unknown said:

    Waiting

    I always just go to the imaging center and get my  CD and radiologist report. Its often available the same day, definitely the next day. Its yours. They have to give it to you. I have never had any questions. I sign and they give it to me.

    thats a great idea i never

    thats a great idea i never though of that

     

    well im off to my oppointment and will know the results very soon

     

    thank you all for your thoughts and prayers

  • coachmike
    coachmike Member Posts: 155
    Drum Roll Please!!!!!

    NO CANCER EVIDENT!!!!!! Love those words. The scan only showed the sinus infection that i had which is why i was feeling a little crappy over the weekend. The crazy thing is when i asked about my next scan in six months, the onc eluded that we may not be doing scans for quite some time, rather blood work every so often. Its been almost two years since the stem cell transplant...has anyone else heard of that? So blessed and so honored to have you guys be such a great support system. Thank you all!

  • Shoopy
    Shoopy Member Posts: 210
    coachmike said:

    Drum Roll Please!!!!!

    NO CANCER EVIDENT!!!!!! Love those words. The scan only showed the sinus infection that i had which is why i was feeling a little crappy over the weekend. The crazy thing is when i asked about my next scan in six months, the onc eluded that we may not be doing scans for quite some time, rather blood work every so often. Its been almost two years since the stem cell transplant...has anyone else heard of that? So blessed and so honored to have you guys be such a great support system. Thank you all!

    LOVE IT!!!

    Excellent news, Mike!!!!!  I am so happy for you!  Great job!

  • jimwins
    jimwins Member Posts: 2,107
    coachmike said:

    Drum Roll Please!!!!!

    NO CANCER EVIDENT!!!!!! Love those words. The scan only showed the sinus infection that i had which is why i was feeling a little crappy over the weekend. The crazy thing is when i asked about my next scan in six months, the onc eluded that we may not be doing scans for quite some time, rather blood work every so often. Its been almost two years since the stem cell transplant...has anyone else heard of that? So blessed and so honored to have you guys be such a great support system. Thank you all!

    Great News

    That's wonderful news!  I think I caught your sinus crap dang it!  I just feel yucky today and we're getting sort of wet snow and I had to run errands,   Back now and think I'm going to take a long lazy nap :).

    Yippee on the news!

    Jim

     

  • allmost60
    allmost60 Member Posts: 3,178 Member
    coachmike said:

    Drum Roll Please!!!!!

    NO CANCER EVIDENT!!!!!! Love those words. The scan only showed the sinus infection that i had which is why i was feeling a little crappy over the weekend. The crazy thing is when i asked about my next scan in six months, the onc eluded that we may not be doing scans for quite some time, rather blood work every so often. Its been almost two years since the stem cell transplant...has anyone else heard of that? So blessed and so honored to have you guys be such a great support system. Thank you all!

    "YES"!

    Hi Mike,

     Well, that's just wonderful news! As far as your doctor eluding to less frequent Scans, I would take that as a good thing and trust his judgement. Less scans is always better in my doctors opinion. I go once a year for a scan and every 4 months for blood work and check up. I still get my port flushed every month, but that's a quick in and out at my clinic. A little trick I do when my sinuses start acting up...cup your hand and fill with warm salty water and then sniff the salty water up each nostril...(sniff hard). I sniff it up both nostrils at once and then hold my head over the sink while it drips out. Repeat with just plain (no salt)warm/semi hot water...and then blow your nose really well. When blowing your nose, blow gently, both sides at the same time. Try not to put pressure on your ears and sinuses by blowing hard or pinching off the nostrils. I do this 3 times a day...morning, noon and night. You can buy saline sprays, but why waste the money when this works the same. Keeps the membranes in your nose moist, and cleans out particles of dust,bacteria, germs etc that irritate the sinuses. Can't hurt to try. Smile Anyways...keep in touch, and enjoy your good news!

    Best wishes...Sue  (FNHL-stg3-grd2-typA-Dx 6/10-age 63)