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Lymphoma Newbie
Hi. I'm newly diagnosed with Stage III Hodgkins Lymphoma, maybe Stage IV. The bone marrow biopsy was inconclusive and I ain't lettin' 'em do another! Ouch! I just started ABVD chemotherapy yesterday and so far I haven't had any untoward side effects. (I know, give it time...) This is my second battle with cancer. Last year…
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Unexpected
We went to Bill's oncologist routine visit to check his ct report and to hear that he was still in remission (2 yrs) and get ready for his last rituxan infusion tomorrow. Well.......it didn't turn out exactly that way. They found a 3x8 cm cluster of lymph nodes in his abdomen that were not there before. He is scheduled for…
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PRESCRIPTIONS
PRESCRIPTIONS are becoming a real hassle for me. I have plenty of refills, but when I go to get them refilled I hear, The insurance company has not cleared and have to give it a few days. The perfect answer when you don't have a few days because you are out of medications. The only other option is to pay out of pocket.…
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Squamous cell carcinoma in pharynx - stage 4
Hi all, I recently had surgery to remove a swollen lymph gland and a lateral tonsil. They biopsied it and found squamous cell carcinoa. Unfortunately after xraying my teeth it was determined that they want to remove 3 lower molars and the mates above saying that any dental work after 6 weeks of radiation treatment would be…
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Stopping in with a quick question
Hi. My name is Shawn. I am a "regular" on the Head and Neck board. My dear brother just recently finished up tx for tonsil cancer. Now my brother-in-law is battling Diffuse Large Cell Lymphoma. He is having trouble with a low WBC, which I realize is normal with chemo patients, but we were told that they are giving him a…
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Stoping in to say Hi
Hey everybody..... Just stopping in to say Hi and check up on everyone I hope this finds everyone happy and healthy XXXOOO Carie
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A poem i wrote
I wrote this poem this past summer it is about my feelings dealing the the demon i call cancer. And so I smiled As sweet as can be In the face of the monster Called my reality I have seen all my demons Have gone toe to toe And from this battle, I will win, that I do know Refuse to give in, will continue my fight I have so…
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3rd times a charm?
Hi, its been awhile since i was here last, a lot has happened since i posted here last year. I had the Zevalin chemo last January 2013, which was not affective, i have relapsed again, twice now, and i am not sure what the future holds. I had the CT scan that showed a new mass, and i will have the PET scan Wednesday the…
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Last Scheduled Infusion
I get R tomorrow for the 23rd time tomorrow. That ends my 2 year maintenance regime. My onc's plan is to go get a PET scan and then decide whether to simply watch and wait, do something like R-CHOP or to continue with Rituxan. Last scan the only thing was a 10% enlargement of my liver. But I am having skin lesions and a…
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Snow Storm
To all the posters that live in the South as I do. Snow storm is upon us right now and hope it doesn't kill our power. Try to stay safe. Never seen anything like this !!! Snow,ice,freezing rain...John
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I don't know what to do...Nodule 9,6 mm Mediastinum.
Hi! I'm new to the forum. I don't know where to post this topic. I came here to look for information and opinions. I have had several symptoms and signs, that the last years have advanced, but the doctors I had seen have been of very little or any help. I wanted to ask If somebody could tell me or has had the same: I had a…
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Scan done, now we wait
Hey friends, Well, the scan is done and now I do the thing I think we can all agree is the worst...i wait. I have an appointemnt Monday morning to hear the results. I hate this part. I envy those that get to have their scan and then find out the results the same day. I really dont know why my onc isnt able to do that, but…
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Nodule 9,66 mm mediastinum
Hi! I'm new to the forum. I don't know exactly where to post this topic. I came here to look for information and opinions. I have had several symptoms and signs, that the last years have advanced, but the doctors I had seen have been of very little or any help. I wanted to ask If somebody could tell me or has had the same:…
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Young girl has documented her Hogdkin Lymphoma experiences on Youtube
http://www.youtube.com/user/meggersk/videos Sorry if this has been posted before.
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Chemo Brain - I saw the Neurologist Today
About a month ago, I posted about my ongoing frustration with Chemo Brain--Chemonesia. Today, I saw the Neurologist. He gave me a test in which 30 was the "passing" grade. I made 27. He diagnosed me with 331.83 MCI (Mild Cognitive Impairment). He ordered tests of B12 and Thyroid function to rule out those possibilities. It…
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Marginal Zone Lymphoma
Hello, my mother at 90 is finally at the stage of her marginal sone lymphoma that symptoms needed addressing. She has finished her four weeks ( once a week) of rituxin and her platelets are still low. How long does it take for the rituxin and steroids to impact the bodys making and keeping healthy platelets ? Thanks
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Exploding Head Syndrome
I've avoided mentioning an unusual problem I have been having for a time. It seems to have started around the time I started chemo but I haven't found any reference that chemo can cause this to happen. For me I started hearing loud ringing like different types of phone tones as I was almost asleep. It would be like a phone…
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How are you, Sue?
Hi Sue, I just wanted to let you know that I was thinking of you today. Hopefully your tests are over and you are home and feeling fine. Sending you love and hugs, Lisha
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The Welcome back from Vacation Parade
Hey Everybody, I just got back from organizing the, "WELCOME BACK FROM VACATION PARADE." I am sure everybody is back now. The posting site is starting to grow grass between the post. I am getting so bored I even welcome our flagger back. WELCOME BACK EVERYBODY!!!!
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Post Flagging again
Would you believe several of the post were flagged and pulled that I mentioned Health care in. Not all but several so far. Don't you just love it when one person thinks they control the board. Thank you, again. People that is a shame !!! There is just no freedom of speech any longer. God help our children in what this…
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NHL survivor - has anyone had a double masectomy because of mantel radiation to prevent breast cance
Hi, I'm a stage 2b NHL survivor. I was diagnosed in 2007 and had 8 rounds of R-Chop and 35 treatments of mantel radiation. I know the radiation increases our risk of breast cancer by a lot and I am already seeing the changes and starting to have little problems. Has anyone had a preventative double masectomy to reduce your…
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late side affects due to radiation treatment
Hi there, I am new here and searching for answers, Here is my story. I was diagnosed with Hodgkin's stage 2A lymphoma in the winter of 1997. After a staging laparonomy which the drs took out my spleen, they determined that my cancer was above the diaphram. I was treated with 5 weeks or radiation. I had no symptoms that I…
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Lymphoma advances ?
Just wondering if anybody has heard of any real advances in Lymphoma treatment. I used to hear things now and then, but lately I have not heard anything. I have heard somewhere that a cure is close, but so is the moon compared to Neptune. That's not meant to be funny. Just making a point as to what is meant by close. I…
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Stopping by
Hi sweet friends, Just stopping by to say hello and wish you all a very happy healthy new year ahead. I try to keep up with all of you, but find myself tired and overwhelmed at times. My fatigue seems to still rule over me, but I do my best to keep going and keep my spirits up. Some days are a bit harder than others, but…
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Do you remember what your counts were when you were diagnosed?
What was your WBC, RBC, and Platelets?
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Help with Seeking out 2nd Opinion
My husband underwent a FSA biopsy of the para aortic node yesterday. This was after receiving elevated LDH blood test, elevated liver enzymes and two CTs showing bilateral enlarged pretracheal, axillary nodes and "prominent retroperitoneal, porta hepatis and para aortic lymphadenopathy." He also has an enlarged spleen. The…
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Neuropathy after chemotherapy
Hi! I had three months of ABVD for stage IIB Hodgkin's lymphoma and one year later and my neuropathy is actually getting worse. My hands go purple and white at the tips, and hurt, especially if they are cold. Anyone else get this? Thanks
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SERIOUS SITUATION DEVELOPED
Hello folks: I have had a big "knot" in my stomach for most of the past year. Had an Endoscopy and it appears to be stress related due to mainly lymphoma and heart problem worries. My life basically came to a standstill. Have been concentrating on eating as much as possible. Don't want to be skinny minny. Difficult.…
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Selfie
I asked Jim where his picture went, that I missed it. I was just cartooning a picture of myself (for another purpose) and decided to show it off. It isn't really a Selfie (the 2013 Word of the Year) my husband took it with his phone last summer. As you can see, my hair was just starting to grow in well and I am sporting a…
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Pet-ct report, suspicious for Intrathecal lymphoma or possible inflammatory process.
Pet-ct on Jan 10 report was good until the last part. This is a new one for me. The report suggest a followup mri or spinal tap. The onc is setting up a mri, thank God, instead of a spinal tap which I've never had. It just sounds uncomfortable. Basically there was a bright spot on the scan in the L4 spinal canal. Has…