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Lymphoma (Hodgkin and Non-Hodgkin)

new to chat room, have questions
I'm totally new to this type of communication, but would love to be in touch with others taking care of someone with nonhodgkins lymphoma, so I'm giving this a try.
nausea & metal taste from rads
Hi everyone, My dad is experiencing some mild nausea and a metal taste in mouth from his radiation is this a common side effect. He's only had 3 treatments, his he going to feel worse as he continues his treatments.
I'm so tired!
I've been in remission now for a little less than a year and I'm still so tired! I underwent chemo and radiation during treatment and understand that being tired may be completely normal but for so long? Has anyone else experienced this and when did it go away?
Weight Gain after ABVD
I know alot of people gain weight during chemo. I didn't. However, I haven't had treatment for 4 months and these past couple of weeks I have been gaining like crazy. Are the steriods just now kicking in or what? When can I expect them to be out of my body?
Hello
Hi this is my first time entering this ..My mother has been fighting nhl for the last four years.When she first developed it is was high grade then it came back as low grade and now it has come back again.This time the doctor is tslking about stem cell high dose chemo.Have any of you had this ?
thanks for all your support
I want to thank everyone for all there caring, loving, encouraging support. Words cannot express my feelings to everyone who replied to my questions and worries. Believe it or not, this site has helped me cope so much better with my dads cancer. I educated myself alot about Hodgkins, which also helped. I was always telling…
dads pet & cat clean
Hi everyone, my dad had 8 completed 4 cycles of ABVD for Stage IIA hodgkins. He is now ready to have 20 radiation treatments starting on Tuesday. We are worried, my dad is having radiation to the mantle field. He had nodes in neck and armpit, why do they have to do the entire chest? We hope he tolerates this well, we are…
alcohol
Anyone know when you can start drinking after chemotherapy? I am 21 year-old and I would like drink alcohol and to be brutally honest get drunk occasionally. I always feel so left out when I go out with my friends.
Life after Hodgkins
Hi all, I am happy to have found this website. I had hodgkins disease in 1985 and went thru mantle radiation for three months and had my spleen removed. My hodgkins started in the lymph nodes in my neck. I havent had a reoccurance since. alot of scares but they have all turned up negative. I am to feeling the after affects…
radiation side effects?
I was diagnosed with HD in 1995 went through radiation was in remission rediagnosed in 1997 went through chemo. On June 30,03 it will be five years scince I completed my treatments. Now I have a fibroadenoma in my right breast. They say it is probably benign. I know women who have chest radiation are at high risk for…
Pet-Scan
Hey Everyone, I just got word today that my Pet-Scan looked good. There was no sign of activity! I am so relieved! I think tonight I will celebrate! Sandi
Started Stanford V...Feeling better than I thought I would - am I crazy?
I started the Stanford V treatment this past Wednesday and I had some bad effects two days prior but am feeling generally well other than being tired. I wanted to write to see if this is "normal" or how others felt while on Stanford V - did you feel different week to week? :) lisa
Walking Pneumonia after Chemo
Hello , Six months after chop , Rituxin/chemo. I have walking pneumonia. Doctor say chemo reduces your immune system. An average cold can easily turn into pneumonia. My question is : Is there anything that you can take to build up your immune system after chemo? They found the pneumonia after doing a full cat scan. Thank…
Employment
I am applying for a program to become a provisonally licensed teacher and included with the application you must submit a personal statement about why you are interested to work in an urban/rural area and how you can help your students achieve a high level of success. Within my statement I make a comparison with my battle…
If you need a friend or just want to talk.
Hi my name is Julie, I am a non hodgkins lymphoma survivor of 4 years. I am 32 years old and live in Columbus Ohio. My cancer was on my spinal cord, and I went through surgery, chemo, and radiation. Since I had cancer on my spinaL cord I losgt the use of my legs and had to go through alot of therapy to learn to walk again.…
newly diagnosed
i was diagnosed 03/08/04 with h.d.nodular sclerosing. ive had a bunch of tests to find out what stage im in-i go for my bone marrow biopsy & pet scan 03/22 and start chemo 03/23. so far my symptoms have just intensified with time-tired most of the time, but sometimes i have pretty good days. biggest problem is:itchy dry…
LOOKING for Survivors Facing the SAME effects
My domestic partner (Michael) is a 45 year old man whom suffered from Hodgkin's Decease when he was 17 years old. He underwent removal of his spleen and received radiation treatments and lived a cancer free life and was very active even managed to complete 21 marathons, and was a coach/trainer with The Leukemia & Lymphoma…
swimming & hair loss
Am a girl 15, dx with Hodgkin's in 2/2004. Finished chemo 4/20/04. Lost most hair on head by March, but surprised when eyebrows, lashes and rest of hair fell out after swimming in pool last week. I do still have the new 1/4 in. downy hair that just started coming in but am afraid swimming will cause damage to that too. Am…
4 cycles & Rad stage IIA Nod. Scl.
My dad completed 4 cycles of ABVD and will have 4 weeks of radiation. He was found to be in a early stage with nodes in neck and armpit. My question is Has anyone completed 4 cycles for Stage IIA, non-bulky nodular sclerosis?
Recurrence of Nodular Lymphocyte Predominant HD
Hi everyone, Does anyone here have any experience with a recurrence of this type of HD? I was initially diagnosed with this type back in 1997 and after receiving 2 cycles of chemo (ABVD) and radiation everything seemed well for years. There were no unusual symptoms, bloodwork was fine, etc. I've now just had a recurrence…
After Effects
Since Ive completed treatment which was in March- I have been having dull pains that occur in my chest (mainly) and in the neck (sporatically). Ive also had occasional numbing throughout my arms and legs. Ive spoke with my oncologist and she said this is after effects of radiation and "not to worry". Has anyone else had…
Prednisone taper
Anyone getting off prednisone? I was on it since February and I just took my last one last thursday. I am VERY tired and my muscles ache terribly. Anyone have a similar experience?
Radiation!!
Hey everyone. As all of you have helped in the past, I need help again. I am just finishing radiation in my neck and chest. Yesterday and today are the first days I am feeling a problem with it, but it is scaring me. My neck and chest feel kinda tight. I am ok with breathing. When I eat, it feels like the food has to push…
chest pain
I am almost done with my chemo treatment before starting radiation. I am having pain in the middle of my chest when I take a deep breath any bigger then normal at rest breathing. I will ask my Dr. when I see him, but does anyone know if this is a side effect that will go away? Mike
Stanford Five Treatment vs. ABVD
I had my first visit today and my oncologist is recommending the Stanford five treatment (12 weeks of chemo, once per week, receiving different chemicals on odd and even weeks) instead of the ABVD 2x's per month for 6 months. Does anyone know about this treatment or where I can find information on it? THANKS IN ADVANCE!!!
Tumor on Ovary?
I was diagnosed with NHL in October 2001. They found it the day that I had my daughter (C-Section). I had 6 rounds of CHOP chemo and Rituxan, and I have been in remission since. I was wondering if anyone else has had a tumor on their ovary? My doctor said it was very rare.
dads hodgkins
Hi everyone, it was to good to be true, my dad was going to have his last chemo treatment, but his white blood count was too low, he received a shot of neulasta. We hope by next week he can have his last treatment. He will then have a 2week rest period prior to receiving his radiation. Can't wait for this to all be done.…
C-T Scan
My C-T scan came back fine, My Pet-scan got reschedued until next Wednesday. That is the scan that I am worried about. My last Pet-scan after treatment came back active. All C-T scans have been clean so far. I guess I just want someone to say I am cancer free. It has been thirteen months since I finished treatment and…
allogeneicTransplant
Has any one had a allogeneic transplant?
The Lil Things...
I just finished my 2nd dose of ABVD and I was wondering if someone could tell me what lil things I should be on the lookout for... By lil things I mean like reactions to the chemo such as stomach cramps, or my fingers being numb etc... What do you deal with and what should you call the dr on? I don't want to be a pest but…

Lymphoma (Hodgkin and Non-Hodgkin)

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