Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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Itchy!
Hey I was wondering if anyone here has any tips on how to deal with the horrible, evil, annoying itching that you get with Hodgkins. I've tried all kinds of creams and anti-histamines like Benedryl. It's getting worse every day and starting to keep me up at night. I'd like to hear anything that worked for anyone else.…
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living in the cancer shadow
HI, I have been in remission for 8 years since being diagnosed with diffuse large b cell. Does anyone ever start thinking that there cancer has come back,even after so many years? This is neat to talk with other NHL'ers.
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Lack of support
This probably sounds petty, but I'm angry at the lack of support from some people in my life. My husband has been wonderful and many of the moms at my kids' school have been great and even my parents who haven't always been there for me have stepped up to the plate and have really surprised me. I guess the ones I am angry…
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Hodgkins symptoms
Hi, I have been reading that itchy skin and night sweats are symptoms. Where does the itchy skin occur? Does it look like poison ivy? I am having some symptoms and wondering if people could describe theirs a little more so I can see if I need to go to a doctor or not. Thanks.
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My Dad has Lymphamatoid Granulmatosis..help
G'day everyone, I live in Australia and my Dad (56) was diagnosed with Lymphamatoid Granulmatosis (LYG) approximately 14 months ago. He underwent several stages of Chemotherapy in the second half of 2002 and the cancer in his lungs did respond reasonably well. Chemo was stopped in Nov 2002 to pursue a course of treatment…
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diffuse large b cell primary mediastinal
Hi, My husband (40 yrs old) is battling dlbc primarily mediastinal NHL. He has gone through 6 treatments of chop + rituxan and appears to have a complete response. He goes back to the doctor for a PET scan and an MRI in late May. Is there anyone out there with a similar diagnosis? Would you share your experience? Thank…
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my research
Hello Everyone! I am doing my own amateur *research* on the types of medicines and chemotherapy people have had or are currently taking. If you wouldn't mind giving me the names and even the dosage, but I will settle for just names of meds, I would really appreciate it! Please dont worry about spelling :-) You can email me…
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more symptoms of nhl?
my husband was diagnosed with low grade nhl Jan "03", Dr. thinks he may have had it for at least 2 yrs prior. Had large node removed from right groin, still one on right side of groin, smaller pea size (about 4-6) on left side of groin, had pea size in armpits also. ct's showed maybe quarter size on kidney with few smaller…
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i think it's back
Well, went to the er b/c there was some diarrhea problem with blood, and the er doc said it's probably viral. anyways, took x-rays, and went to get the results from the radiologist. well, he claims there may be a small soft tissue mass on his right kidney. I'm so worried, b/c he only has ONE kidney. going for a ct scan in…
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Oz2 and kathy
Hi Oz2 and Kathy.How are yo both doing? Everything is the same here(NJ)Iwent to see my doc on monday and my cbc was good. I also got a call from Hackensack hospital and I have 2 matches so far for my transplant. I aam going to HAckensack hospital on April 2nd to see the doc about the transplant and what is going on.Marion,…
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Chest Pains During Treatment
Hello, I'm 23 and was diagnosed with Hodgkin's Disease 2B and I am currently receiving ABVD. I'm on my 5th cycle and have three more treatments to go along with a month of radiation hopefully. Lately, I have been experiencing the same difficulty breathing that I had before I was diagnosed and I have a small cough too. The…
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Dads Hodgkins/worried if pet scan shows activity after 8th treatment.
Does anyone know if the relpase rate for stage IIA is the same for all other stages. My dad is going to have his 7th abvd treatment, we are all anticipating the 8th cycle , so they can perform a pet scan. My dad is really hoping for the cancer to be gone, I'm afraid if it is not, he is going to be upset, what can I tell…
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Radiation
Hey everyone. Hope all is well and everyone is winning their battles. I have had 9 doses of chemotherapy. There is only one little small spot left that is probably scar tissue..so now I will be starting radiation. It is in the high upper chest/lower neck area I believe. (I see the radiologist on Monday so I will know for…
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NH (Large and Small B Cell) Lymphoma of the Bone Marrow
My cancer began in the bone marrow of my hips as small B cell nonhodgkins lymphoma. I was 39. By the time they found it and 6 months later diagnosed it, some of the cancer cells had transformed to large b cell and had spread to various bones all over my body. I've had spinal fusion with cadaver bone, 4 open bone biopsies,…
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abdominal lymphoma / eating habbits
How can I encourage the eating habbits, and the will to want to fight this cancer for my father.
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Radiation
I am about to undergo radiation and I would like to hear about the experiences all of you have had. I have heard different things and I know ultimately it just depends on the person. But I still would like to hear about different experiences. I have heard that it depends on where you receive your radiation,,,has anyone…
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how to know if you've relapsed?
Hi! My dad has NHL-large diffuse b-cell. He underwent 7 treatments of R-chOP, nad 17 radiation treatments. His cancer started in the abdomen and he was classed as stage 3e. He finished all treatment in Dec. 2004, and in early March all blood work was normal. but now suddenly he has been having massive watery diarrhea. Can…
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insurance after remission
anyone know if there is any form of insurance available for NHL pts. after you've been in remission? thanks for any help.
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dad went to hospital
My dad had his 5th chemo treatment, he's been very nervous and is not comfortable with the way he's feeling. He has really bad fatigue, seems to have more bad days than good. He woke up thursday a.m. the day after his treatment and he told my mom he was not feeling well, so he ended up overnight in the hopsital. They did…
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How do I get my dad to ingest food and liquids?
Hello,My dad was just recently diagnosed with Non-Hodgkin's Lymphoma. The doctors have told us that the cancer is not in any of his organs or bone marrow, but is a tumor mass pressing on his stomach. He is 81 and was not eating very much for about a month before this was detected 3 weeks ago. As a result he is weak and…
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NICE TO CHAT WITH NHL FOLKS
I HAVE BEEN READING ALL THE DIFFERENT MESSAGES WITH THE NHL GROUP. IT'S NICE TO HEAR OTHERS WITH NHL RESULTS . I HAVE BEEN IN REMISSION SINCE NOV 2003. WONDERING HOW LONG OTHERS HAVE BEEN IN REMISSION. I HAVE NHL LOW GRADE / STAGE 1 / SMALL FOLLICULE / CLEAVED. I WAS TREATED 8 TIMES WITH CHEMO / RITUXIN CHOP . HOW LONG…
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T-cell
My peripheral T-cell lymphoma, diagnosed in October 2001, reoccurred one month after complete remission following CHOP treatment. I am now taking two rounds of ICE chemotherapy, to be followed by stem cell transplant. I am weighing whether to use my own stem cells or someone else's that would be a match. Has anyone had…
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stem cell transplant that did not work
Any one that has had a autologus stem cell transplant that did not work and is now going to have a allogeneic transplant
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After treatment
My radiation treatments ended last month and I seem to be having more difficulty now than with all of the chemo. My chemo lasted for 12 weeks and I had 17 days of radiation and boy, did it kick my ****. I still have a sore throat. I lost my voice for 3 1/2 weeks. I am so tired and draggy. I still cannot eat certain foods.…
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chemoshortened
Has anyone ever had there regimen of ABVD shortened. If you are in remission at the 4th cycle, what are 2 more cycles doing. What if you just had 1 more cycle and try to avoid unnecessary treatment. Does anyone understand what I'm saying.
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Can Someone Please Help!
Ok, I had my 6 cycles of ABVD and had a CAT scan and my oncologist said that everything looked great. He set me up with a radiation oncologist and I will have four weeks of rad. My radiation oncologist has scheduled a Pet Scan so that he can make sure the areas that came up as scar tissue on the CT scan don't have any…
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my sister was diagnosed with hodgkins
hey there my sister was diagnosed with hodgkins they think first stage. she has to go for a pet scan bone marrow check lung test ekg and has to have a catheter she is 20 years old and real scared we all are so she is looking for support... and so am I she has 6 cycles of abvd no radiation yet her email is…
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hodgkins while being pregnant!
6weeks after giving birth to my son i found out i had hodgkin's disease. during my pregnancy i did have symptoms, but my doctors said i was just going through pregnancy, and that i was fine. my son is going to be 2 in april. i coming up on my 2 year anniversary and the doctor said i can start trying again iam very scared…
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waiting for results
I found two lumps in my lymph node (neck area) and had a biopsy last week. I am waiting for the results and I am very scared. I have a history of breast and thyroid cancer. The only symptoms I've had are painless lumps in the lymph nodes, tired and last summer I would get chills in 100 degree weather and would have to…
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HODGKINS DISEASE
I have just been diagnosed with lymphoma. I am scared. I have 2 babies to care for
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