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Frontal Hybrid Chemotherapy
I'm trying to find people who have received Frontal Hybrid" combination drug therapy for hodgkins disease. I believe that the treatment is specific to The Christie Hospital in the UK but there may be others out there using this treatment now. My reason for trying to find others is that I am suffering from a progressive…
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Chest pain a year out?
I finished 4 cycles of ABVD for Stage II a year ago, then had 3 weeks of radiation...the last couple of weeks I have had some sharp pains in the upper left part of my chest. It doesn't last very long; just a sharp stab and then it's gone. I know ABVD and radiation can damage your heart and lungs; my fear though is that the…
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Stanford V patients with Prednisone taper -
How did you feel once you started tapering the prednisone? I am in a world of pain all over and am wondering if this is the chemo or the pred - any thoughts? TIA, Lisa
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dads hodgkins
Hi everyone, my dads doing well. He finished his last radiation treatment 10 days ago. My question is when do the taste buds come back, he still finds it difficult to taste anything.
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Chemo Embolism with Pulmonary HD
has anyone had a chemo embolism and is it any better than radio and normal chemo? what are the risk factors? has anyone with pulmonary HD (and having been recurrent HD case) had this treatment. It's now being done in germany, I am trying to find out info for my boyfriend's brother. Thanks for any help
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how long can chemo be delayed???
My dad has HD IIA nod. Sclerosis. He suffered from a Pulmonary Embloism. He is doing much better, but they have delayed his chemo, they want him to be physically better to continue 2 more treatments and then have radiation for 10 minutes every day for a month. Whats the longest anyones chemo has been delayed. I'm worried…
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new site
Hi Guys and Gals! I was contacted by the Webmaster of a new Lymphoma Resource website. He asked me to put a link on my website. I just uploaded the new link. Here it is: http://www.lymphoma-net.org Here is my URL: http://www.geocities.com/leukemia_lymphoma/ Hope this helps! God bless you all. -Michael (leukemia survivor)
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New Site
Hi Guys and Gals! I was contacted by the Webmaster of a new Lymphoma Resource website. He asked me to put a link on my website. I just uploaded the new link. Here it is: http://www.lymphoma-net.org Here is my URL: http://www.geocities.com/leukemia_lymphoma/ Hope this helps! God bless you all. -Michael (leukemia survivor)
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Pursuing new career
Hi All. A young man that is part of my community is battling hodgkins. All is going well. Outlook great. While he has been out of work, he has been contemplating pursuing a hobby and making it a career - mechanics. He is a HS dropout. I have been encouraging him to get his ged, and to then maybe pursue some technical…
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Breast Cancer After Hodgkin's
Hi everyone, My name is Alicia. I was treated for HD in 1991 with a combination of radiation and chemo (ABVD). I was recently diagnosed with Breast Cancer. IS there anyone else out there that's gone through the same thing? I'm trying to make some treatment decisions and am looking to correspond with others in my situation.…
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weight gain
Im 22 and about to start my third cycle (5th treatment) of ABVD. At first I had really severe nausea and could barely eat, and lost about 5 lbs in the first week after a treatment, only to be gained back the second week, no matter what I did. Now I still get nausea after treatment but not really in a way that affects my…
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Give me the skinny on radiation treatments!
I have to have 25 treatments to the chest and to one node in my throat. I went in for a nupegen shot and the nurse at the hospital totally went off on radiation and said it will be way worse than chemo and that I will experience really bad esopogus and throat pain and that I won't be able to do much during treatments - Um,…
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Young Cancer Survivor Board
Theres a new board looking for young people,check it out.
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stem cell transplants
Does anyone have any positive things to report about stem cell transplants?My Mom's friend went through chemo last year and now,according to her doctor,she needs a stem cell transplant due to a recurrence of Hodgkin's.I thought I might forward some good news to her.Thanks for any help. Randy
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Opinion on scans
Im set to be scanned within the next few weeks for my 6 month check and I havent been scanned since Feb. - during radiation. My doctor is ordering a CAT to be done and I was just wondering if this is commen b/c I received a PET during staging and havent had one since. Are CAT scans efficient enough to detect without the…
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Memory Problems/Ginkgo Biloba
Hi I still have alot of problems with my memory after chemo. I have just started taking Ginkgo Biloba which is supposed to help. Has anyone tried this or have any other suggestions for improving memory? Thanks
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Recurring Hodgkin's Disease - treatments
I am on this site tyring to find out some information for my friend who is about to start her 4th series of treatment. She had chemo and radio the first time, chemo and a stem cell transplant (her own spem cells) the second, chemo the third and the disease came back within 4 months of the last chemo. Her doctors here in N…
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Need advice 2 years later
I was diagnoised withnhl in 1997 .I did rituxin first relapse 8 months later did it again relapse 6 months later Started chemo once a week ended up with another lump in neck so they upped the chemo.# months later you guessed it This time we did radiation on my neck .I think 35 days.6 months later here I go again .The good…
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(long) after treatment-symptoms at 8 weeks, help?
Hello all, was hoping for some feedback on beloved's current situation. Not sure how to support him. Okay the rundown: Non-Hodgkin's lymphoma: small football shaped tumor in lymph duct, inoperable, due to upper GI region. From mid December to mid April, had series of chemo, radiation: CHOPS and Ritux. Left with tumor/scar…
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new to chat room, have questions
I'm totally new to this type of communication, but would love to be in touch with others taking care of someone with nonhodgkins lymphoma, so I'm giving this a try.
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nausea & metal taste from rads
Hi everyone, My dad is experiencing some mild nausea and a metal taste in mouth from his radiation is this a common side effect. He's only had 3 treatments, his he going to feel worse as he continues his treatments.
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I'm so tired!
I've been in remission now for a little less than a year and I'm still so tired! I underwent chemo and radiation during treatment and understand that being tired may be completely normal but for so long? Has anyone else experienced this and when did it go away?
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Weight Gain after ABVD
I know alot of people gain weight during chemo. I didn't. However, I haven't had treatment for 4 months and these past couple of weeks I have been gaining like crazy. Are the steriods just now kicking in or what? When can I expect them to be out of my body?
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Hello
Hi this is my first time entering this ..My mother has been fighting nhl for the last four years.When she first developed it is was high grade then it came back as low grade and now it has come back again.This time the doctor is tslking about stem cell high dose chemo.Have any of you had this ?
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thanks for all your support
I want to thank everyone for all there caring, loving, encouraging support. Words cannot express my feelings to everyone who replied to my questions and worries. Believe it or not, this site has helped me cope so much better with my dads cancer. I educated myself alot about Hodgkins, which also helped. I was always telling…
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dads pet & cat clean
Hi everyone, my dad had 8 completed 4 cycles of ABVD for Stage IIA hodgkins. He is now ready to have 20 radiation treatments starting on Tuesday. We are worried, my dad is having radiation to the mantle field. He had nodes in neck and armpit, why do they have to do the entire chest? We hope he tolerates this well, we are…
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alcohol
Anyone know when you can start drinking after chemotherapy? I am 21 year-old and I would like drink alcohol and to be brutally honest get drunk occasionally. I always feel so left out when I go out with my friends.
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Life after Hodgkins
Hi all, I am happy to have found this website. I had hodgkins disease in 1985 and went thru mantle radiation for three months and had my spleen removed. My hodgkins started in the lymph nodes in my neck. I havent had a reoccurance since. alot of scares but they have all turned up negative. I am to feeling the after affects…
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radiation side effects?
I was diagnosed with HD in 1995 went through radiation was in remission rediagnosed in 1997 went through chemo. On June 30,03 it will be five years scince I completed my treatments. Now I have a fibroadenoma in my right breast. They say it is probably benign. I know women who have chest radiation are at high risk for…
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Pet-Scan
Hey Everyone, I just got word today that my Pet-Scan looked good. There was no sign of activity! I am so relieved! I think tonight I will celebrate! Sandi