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CALLING ALL 2OR MORE TIME HODGKINS PEOPLE.
HI, I'M 22 AND POSTED QUESTION RIGHT UNDER THIS ONE. I WAS WONDERING IF ANYONE HAS HAD HODGKINS MORE THAN ONCE. AND WILL I EVER BE CURED FROM THIS GOD AWFUL DIEASE. I HAD A BMT AFTER IT CAME BACK(5MOS REMIS). NOW MY DR. SAYS IT MAY BE BACK. ALTHOUGH I FEEL FINE. IT'S IN MY CHEST AGAIN. SO LOOKING FORWARD TO SOMEONE WHO IS…
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neupogen
Hello. I am new to this board. I have a question about Neupogen. I have been having terrible side effects from this medication (i.e. bone pain/headaches). So bad in fact that when my nurse called today to tell me to start another 3 day dose I started to cry. Has anyone ever tried Neulasta? How do the side effects compare…
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pet/ct
Hi IAM 21 SOON TO 22. I HAVE HODGKIN 2X. I ALSO HAD A BONE MARROW TRANS. MY FIRST PET/SCAN CAME BACK OK. WHEN I WENT A MONTH AGO SOMETHING SHOWED UP .ONE OF THE NODES WAS ENLARGED. THE DR. SAID HE IS NOT SURE WHAT IT IS. I HAD A LUNG BIOSPY AND AM WAITING ON RESULTS.I FEEL GREAT AND MY BLOOD WORK WAS FINE. I'M VERY SCARED…
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telling new friends
i just started my son in kindergarden and he has new friends and play dates..i scared to tell any of the moms that i have cancer(hd IV) & going through chemo . i dont want my son to loss his new friends.i ve been lucky w/ chemo ,no hair loss..almost no side effects. you would never think i was sick by looking at me. i want…
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Secondary Cancers
Ive read of a few of you having secondary cancers after battling Hodgkins and I was just curious as to how many of you out there have been diagnosed with a secondary cancer - nonrelated to Hodgkins? This is just out of curiousity because I know that cancer survivors can be more prone to getting diagnosed. Im a year and…
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cancer from radiation treatments
I am 45. When I was 19 I had Hodgkin's Disease. I had a spleenectomy and radiation treatments. Last year I found out that I had Breast and Thyroid cancer. They are both a long-term side effect of the radiation. I had a bi-lateral mastectomy, a thryoidectomy and 6 mos of chemo.I lost my breasts, lost my hair and gained a…
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Bcell with immune system complcns in pulmonary, eyes
Richard, now 47, diagnosed May2001 after loaf-bread size tumor in stomach. UCLA hotshots left it untreated except for brief May2002 round of rutuxin withone additional experimental drug, an immune system booster oligonucleotide. No change in tumor but by July 02 he noticed increasing difficulty breathing and chalked it up…
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8 years later and my port is out!
Well it has been 8 1/2 years since my last treatement and all is good. I had my port out on Friday morning. After the surgeon calling for a fleet of tow trucks and a small crane it slipped out. All in all not too bad 2 days and 25 vicodine later I feel great. God speed to quick revoveries for everyone. Robert
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Any one been thru this more than once
I was wondering if anyone has been thru a BMT more than once. I would like to hear your sucess stories. I AM VERY SCARED TO THINK I MAY HAVE TO DO THIS AGAIN. Please email me with any info. Thanks,looking forward to hearing from anyone Arica, strngchic8@yahoo.com
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Having a BMT and it didn't work
I had hodgkins disease in 1999. I thought I got it taken care of in September of 2000. The area was in my lungs and throat and spleen. Now its near my liver and pancreas. I have 5-6 massess and the largest was 8 cm now its 4. It is going down but will it go away? Well, I called my doctor and he told me to get with my…
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newly dx mantle cell
Hi, my father (65) was just dx with mantle cell lymphoma stage 4 - he is going to go to md anderson in houston for experimental treatment of intensive chemotherapy and rituximab - we kids (38,33,32,31) have no idea what to expect from the treatment ? how much care will he need ? someone with him 24-7 ?? my mother died 5…
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Cardiac damage from Doxorubicin
Hello, again! It's been almost 4 months since finishing ABVD for IIa. An echocardiogram was done before treatment and another after, and the recent one is showing an "ejection rate" of 40%. (My previous one showed 55%) The nurse says it's due to the Doxorubicin (Adriamycin) and that it may need to be monitored. I had…
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bone marrow biopsy
i'm having bone marrow biopsy fri. in my hip,and would like to know other peoples experiece w/this and what to expect before during & after...thanks
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Port comming out after 8 years! YIKES!
I have had my port in for 8 years, I was diagnosed at the age of 26 in 1996 Hodgkins Nodular Sclorosing IIA. The fix: 6 cycles MOPP/ABV 6 weeks Rad and no issues since.... I guess it never bothered me enough to ask to take it out and my Dr. would put it off every vist for 3 years so I forgot about it..... It is like a…
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Response to treatment
From your experiences, pls tell me how long did it take for a visible response to standard Chemo treatment..When can I see a noticeable change in size of tumor? 1/2 after [how many] cycles? 1/4 after [how many] cycles? Disappeared after how many?
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When to Scan??
My mother had NHL large B cell and received 6 cycles of CHOP/Rituxan. She is now considered to be in remission. She hasn't had a CT scan since last October as her MD says there isn't a need for it and that a scan may only discover a relapse a few weeks before she would feel symptoms anyway as it is very aggressive. What…
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wbc's too low
Hello, I have Hodgkins stage III and have had one dose of ABVD. I was given Nulasta injection x1 and last week my wbc's were too low for chemo. It was 2.1 I have not had any further injections and I am scheduled to go back tomorrow for chemo. I am a nervous wreck concerned that my wbc's won't be back up. They said that my…
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Can Scar Tissue be Mistaken as Activity/Uptake on a Pet Scan?
Just wondering (yes, wondering again...always on my mind). Can scar tissue be mistaken as activity/uptake on a pet scan? I did not think that scar tissue shows up on a pet. Anyone know? My next pet scan is scheduled for June 1st. Seems like a LONGGGGG time from now, so bear with me on my constant posting. I am nervous…
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Pet Scan Update: Sarcoidosis Dx
Hello, I've posted here before about "activity" on two pet scans following 6 cycles of abvd. The activity seemed to increase rather than decrease with each Pet Scan. So, of course I was mentally preparing for a stem cell transplant. HOWEVER, I had a biopsy of the mediastinal nodes which revealed "Sarcoidosis", no signs of…
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Pregnancy Heart Problems
I have been in remission for 10 years and am now 4 months pregnant. I saw my OB on Friday and we discussed my cancer treatment in detail. When she learned that I had adriamycin (ABVD) in addition to radiation to my chest, she said that I needed to see a cardiologist this week. I'm really concerned and was wondering if…
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loss of hand strength & arm weakness
has anyone experienced loss of strength in their arm and hand as a result of radiation? the dr thinks this may be the problem with my hand as i have just recently lost all my strength in it and i have difficulty even holding a fork. i had cobalt and chemo in 1973 for HD stage IV. p
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Anyone?
just following up on my earlier posts. hope to hear from people with similiar cases
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follicular lymphoma
Hello, I am 26 yrs old and was dignosed Sept 04. I just finished my 2st treatment which was 5 rounds of CVP woth Rituxan. My 1st scan showed that the lymphnodes decreased to half their size which gave me alot of hope but the 2nd scan showed no change. THe Dr. told me that it could be scar tissue left over and that I would…
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surviving in fear
I was diagnosed in 1991 with stage 2B HD. I went though 8 weeks of radiation therapy. Just when everything seemed to get back on track, I had a reoccurrence in
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Recurrence
My husband has a recurrence 5 years to the day of remission. He has Large B-cell. Anyone know the survival rates of a recurrence?
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Newly diagnosed
I'm 27 and newly diagnosed with Hodgkin's stage 2A. I found out on Feb 1, and have already had two chemo treatments. I didn't bounce back the second time as quickly as I did the first time. Is it going to continue getting worse? My treatment was on Tuesday and I was feeling pretty much back to my old self by saturday. I…
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Need HOPE, options, perspectives from others on NHL
Hi My brother was diagnosed with aggressive form of Large B-cell with CNS involvement in July 2004. Had standard CHOP (8 cycles)and 4 cylces of Methotrexate for brain involvement from July to Dec '04. Was declared in remission after 4 cycles of CHOP in Oct '04 but cancer relapsed in January '05. After 3 weeks of radiation,…
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Pregnancy -- how long to wait?
Hi all -- I was diagnosed with Hodgkin's 2B last October and finished ABVD on March 10. I also had 13 radiation treatments post ABVD to my upper chest and neck. I'm going back to my doctor for my three month check-up on June 16th. My husband and I are very eager to start a family. We have already put things off due to my…
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Hopeless situation....need info on alternative treatments
Brother sent home with not much time....we are still hopeful and he is strong...need ANY INFO ON EXPERIMENTAL/ ALTERNATIVE treatments....have heard of 714X from canada and trying it....WHAT ELSE IS THERE?