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Bcell with immune system complcns in pulmonary, eyes
Richard, now 47, diagnosed May2001 after loaf-bread size tumor in stomach. UCLA hotshots left it untreated except for brief May2002 round of rutuxin withone additional experimental drug, an immune system booster oligonucleotide. No change in tumor but by July 02 he noticed increasing difficulty breathing and chalked it up…
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8 years later and my port is out!
Well it has been 8 1/2 years since my last treatement and all is good. I had my port out on Friday morning. After the surgeon calling for a fleet of tow trucks and a small crane it slipped out. All in all not too bad 2 days and 25 vicodine later I feel great. God speed to quick revoveries for everyone. Robert
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Any one been thru this more than once
I was wondering if anyone has been thru a BMT more than once. I would like to hear your sucess stories. I AM VERY SCARED TO THINK I MAY HAVE TO DO THIS AGAIN. Please email me with any info. Thanks,looking forward to hearing from anyone Arica, strngchic8@yahoo.com
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Having a BMT and it didn't work
I had hodgkins disease in 1999. I thought I got it taken care of in September of 2000. The area was in my lungs and throat and spleen. Now its near my liver and pancreas. I have 5-6 massess and the largest was 8 cm now its 4. It is going down but will it go away? Well, I called my doctor and he told me to get with my…
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newly dx mantle cell
Hi, my father (65) was just dx with mantle cell lymphoma stage 4 - he is going to go to md anderson in houston for experimental treatment of intensive chemotherapy and rituximab - we kids (38,33,32,31) have no idea what to expect from the treatment ? how much care will he need ? someone with him 24-7 ?? my mother died 5…
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Cardiac damage from Doxorubicin
Hello, again! It's been almost 4 months since finishing ABVD for IIa. An echocardiogram was done before treatment and another after, and the recent one is showing an "ejection rate" of 40%. (My previous one showed 55%) The nurse says it's due to the Doxorubicin (Adriamycin) and that it may need to be monitored. I had…
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bone marrow biopsy
i'm having bone marrow biopsy fri. in my hip,and would like to know other peoples experiece w/this and what to expect before during & after...thanks
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Port comming out after 8 years! YIKES!
I have had my port in for 8 years, I was diagnosed at the age of 26 in 1996 Hodgkins Nodular Sclorosing IIA. The fix: 6 cycles MOPP/ABV 6 weeks Rad and no issues since.... I guess it never bothered me enough to ask to take it out and my Dr. would put it off every vist for 3 years so I forgot about it..... It is like a…
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Response to treatment
From your experiences, pls tell me how long did it take for a visible response to standard Chemo treatment..When can I see a noticeable change in size of tumor? 1/2 after [how many] cycles? 1/4 after [how many] cycles? Disappeared after how many?
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When to Scan??
My mother had NHL large B cell and received 6 cycles of CHOP/Rituxan. She is now considered to be in remission. She hasn't had a CT scan since last October as her MD says there isn't a need for it and that a scan may only discover a relapse a few weeks before she would feel symptoms anyway as it is very aggressive. What…
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wbc's too low
Hello, I have Hodgkins stage III and have had one dose of ABVD. I was given Nulasta injection x1 and last week my wbc's were too low for chemo. It was 2.1 I have not had any further injections and I am scheduled to go back tomorrow for chemo. I am a nervous wreck concerned that my wbc's won't be back up. They said that my…
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Can Scar Tissue be Mistaken as Activity/Uptake on a Pet Scan?
Just wondering (yes, wondering again...always on my mind). Can scar tissue be mistaken as activity/uptake on a pet scan? I did not think that scar tissue shows up on a pet. Anyone know? My next pet scan is scheduled for June 1st. Seems like a LONGGGGG time from now, so bear with me on my constant posting. I am nervous…
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Pet Scan Update: Sarcoidosis Dx
Hello, I've posted here before about "activity" on two pet scans following 6 cycles of abvd. The activity seemed to increase rather than decrease with each Pet Scan. So, of course I was mentally preparing for a stem cell transplant. HOWEVER, I had a biopsy of the mediastinal nodes which revealed "Sarcoidosis", no signs of…
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Pregnancy Heart Problems
I have been in remission for 10 years and am now 4 months pregnant. I saw my OB on Friday and we discussed my cancer treatment in detail. When she learned that I had adriamycin (ABVD) in addition to radiation to my chest, she said that I needed to see a cardiologist this week. I'm really concerned and was wondering if…
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loss of hand strength & arm weakness
has anyone experienced loss of strength in their arm and hand as a result of radiation? the dr thinks this may be the problem with my hand as i have just recently lost all my strength in it and i have difficulty even holding a fork. i had cobalt and chemo in 1973 for HD stage IV. p
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Anyone?
just following up on my earlier posts. hope to hear from people with similiar cases
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follicular lymphoma
Hello, I am 26 yrs old and was dignosed Sept 04. I just finished my 2st treatment which was 5 rounds of CVP woth Rituxan. My 1st scan showed that the lymphnodes decreased to half their size which gave me alot of hope but the 2nd scan showed no change. THe Dr. told me that it could be scar tissue left over and that I would…
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surviving in fear
I was diagnosed in 1991 with stage 2B HD. I went though 8 weeks of radiation therapy. Just when everything seemed to get back on track, I had a reoccurrence in
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Recurrence
My husband has a recurrence 5 years to the day of remission. He has Large B-cell. Anyone know the survival rates of a recurrence?
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Newly diagnosed
I'm 27 and newly diagnosed with Hodgkin's stage 2A. I found out on Feb 1, and have already had two chemo treatments. I didn't bounce back the second time as quickly as I did the first time. Is it going to continue getting worse? My treatment was on Tuesday and I was feeling pretty much back to my old self by saturday. I…
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Need HOPE, options, perspectives from others on NHL
Hi My brother was diagnosed with aggressive form of Large B-cell with CNS involvement in July 2004. Had standard CHOP (8 cycles)and 4 cylces of Methotrexate for brain involvement from July to Dec '04. Was declared in remission after 4 cycles of CHOP in Oct '04 but cancer relapsed in January '05. After 3 weeks of radiation,…
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Pregnancy -- how long to wait?
Hi all -- I was diagnosed with Hodgkin's 2B last October and finished ABVD on March 10. I also had 13 radiation treatments post ABVD to my upper chest and neck. I'm going back to my doctor for my three month check-up on June 16th. My husband and I are very eager to start a family. We have already put things off due to my…
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Hopeless situation....need info on alternative treatments
Brother sent home with not much time....we are still hopeful and he is strong...need ANY INFO ON EXPERIMENTAL/ ALTERNATIVE treatments....have heard of 714X from canada and trying it....WHAT ELSE IS THERE?
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News
What do you guys think about this story. Should she have a choice?http://home.bellsouth.net/s/editorial.dll?eeid=4583969&eetype=article&render=y&ck=
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STem Cell Transplant
Hey all! I hope everyone is doing fantabulous! I was wondering if anyone would like to tell me their experiences with a bone marrow transplant. I'm going to have one, and am a bit nervous. Mine's an unrelated, although the match is terrific. thanks, Hollynn_007@hotmail.com
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PET SCAN
Hello- I will be going for a PET SCAN in just a few weeks? What is it like? How do I have to Prepare? Jen
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Lung Damage (?) Bleo....
Hello, I have completed chemo. It consisted of 4 1/2 cycles of ABVD and then 1 1/2 cycles of AVD, because I had some breathing troubles the Bleomycin was omitted. Now my ct scan shows some "scattered patchy infiltrates in the upper lobes" which was approiximately 4 mos post bleo. I do not have any breathing problems…
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Still Fatigued 2 1/2 years after Treatment
Hi, I had a stem cell transplant 2 1/2 years ago. The main problem I still have is that I am still tired. My doctors can't find anything wrong with me. The only thing they say is I probally have depression then. I been taken anti-depressents for a month and still tired w/ no changes. I don't think I am depressed. Anyone…
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Hodgkins and Pregnant
Hi Everyone! My name is Jennifer and I am 26 years old and 31 weeks pregant with my first child. I was just told with in the last week that i have Hodgkins. I will be going for an MRI on thursday of this week and also for a bone marrow biopsy on friday. I am very scared and angry righy now. I would like to hear if anyone…