Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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after treatment home environment
Our son-in law will be coming home from hospital and we need to create a "clean" environment...three children under 5....?? How can this work, we need some help.
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Question On what looks like Bug Bites On Legs
Hi being treated for Hodjkins and have what look like bug bites on my legs, has anyone else had or know of this??
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HODGKINS TREATMENTS
Has anyone had their Hodgkins treatments of ABVD shortened related to normal ct scans? My oncologist said that she will shorten the chemo and give 2 cycles more after a 'clean' ct scan. What do you think about this? I will be following up with radiation and have a pet scan as well. I am a stage 4AX (Bulky) initially
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Anger Management
I'm on my 3rd cycle of ABVD (HD dtage IIB) and think I'm coping pretty well - positve attitude, yoga, gym, bit of work, going out with friends - all that, but...I find myself getting into, or feeling like going into temper tantrums and pretty mundane issues. I'm 25 now, but sometimes I get so wrked up I feel like and back…
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The Workplace
I would like to know about anyone's experience with having cancer and the workplace. I just started a new job and I don't feel as though I should tell them about having cancer because I have finished my chemotheraphy and have some radiation to go. I think that it will have a negative effect rather than a positive effect.…
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thanks for support to recently diagnosed
I know this sounds awful but It is nice to know that there are lots of people who know exactly how you are feeling and what you are going through. Thank you to all of you who responded it means a lot to me and I pray for all of you as I do myself. I must admit that despite a few outbreaks of tears and stress I am quite…
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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Almost finished with treatment, have questions...please read! Thanks.
I have been treating with ABVD for the past few mos. I only have 3 more chemos (1 1/2 cycles) However, most recently the Bleomycin was deleted because I had some lung damage from it. Today I met with a radiology oncologist and he frowned upon radiation. I was a stage 3 and have been told from the beginning that I would…
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after treatments, Back pain again
Hello everyone, I have already fininish my treatment on nov. 20 , 2004 after that I was with the normal side effects from Chimo and Radiation after a month I start gaining more energy, but 2 weeks ago my back pain start again and the rash, and freeze hands too, the Onco say it's because the radiation, but He is going to do…
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In Remission, having symptoms, nothing on CAT scan.
Hi Everyone, I had 12 treatments (I guess that's three cycles?) of ABVD for Nodular Sclor. I have only been in remission for three months. The CAT scan and PET scan indicated no more cancer back in mid May. For a month I felt fabulous, full of energy, I told people I hadn't felt that great in years. But now I am getting…
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cough and stomach pain
Hey all I hope everyone is enjoying this holiday season! I just had a quick question. I am suddenly coughing and getting stabbing pain in my stomach. The stomach thing has been on and off for about a month. I never experienced symptoms last time except extreme fatigue. I finished my radiation treatment(all I had) in March…
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Throat radiation eating
Hello All! I hope everyone is doing well (at least as well as can be expected) I am wondering if anyone has had as bad of a time as I am having with radiation. I have just finished 10 treatments to my throat and neck and my doctor has postponed treatment because my throat area has too much inflamation. I was in severe pain…
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Young women who have gone through chemo
A personal question for you - how long did it take for your menstural cycles to return to normal - or did they? Thank you, Lisa
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No sex drive
I am a 57 year old female, I had non hodgkins follicular cancer in 2002-2003 and a stem cell transplant in 6/03. I can handle the many side effects from the chemo and transplant, but am having a real hard time dealing with not being able to make love to my husband, he is so patient but I am not. Any advice???
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Radiation induced Pneumonia
Has anyone ever heard or had radiation induced pneuomina? I have a cough that and some scarring on my right lung in which the oncologist has been watching closely. He says there could be a couple of things causing the cough. One of the suggestions was that because the scarring was so severe a mild pneumonia caused by…
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CT SCAN RESULTS AFTER 3 ABVD TREATMENTS
I was diagnosed as a stage 3A bulky nodular sclerosis. After 3 treatments, at 2A, my oncologist wanted to do a ct scan earlier than later. I was totally floored and pleased with the results! My left neck, left chest (7.5 cm area) my spleen and my liver were all affected. The latest ct scan reveals that my neck, spleen and…
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After-Effects of Chemo
What has everyone experienced? I can't describe it, but sometimes I just feel like I am not here. Being a new mom, type A, remember everything type of person, this is SOOOOOOOO not conducive to my life style. Any thoughts, experiences or guidance on how to combat this and how long does it last? Is this something that I…
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Losing weight
Need some advise. I lost 40 pounds when I was sick, have since gained it all back and having a real hard time losing anything. I think my metabolism changed after all the chemo and my stem cell transplant. Any advise on what to do, I am at wits end.Thanks.Barbara L, from Ca
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retuxan
Hi,I'm 6 1/2 years out with NHL sm.cell follicular indolent.My immune system is not running right.Tomorrow I start retuxan,4-6hour treatments,once a week.First,time I've been treated with anything.Your opinion isn'tvery high on retuxan,folks.I can't do chemo because I'll have nothing left of my immune system.
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nasopharygeal cancer
I need reassurance from survivors of this cancer . What are the greatest side effects that you live with now? My husband was diagnosed with the cancer and they plan to insert a tube into his abdomen to plan ahead for any future problems he may have with swallowing. Has anyone had this done?
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hair loss/ growth
Hi, I'm Leslie, 39 years old, and I have just finished 3 rounds of chemo. I will be going for radiation treatment next. I have a question about the hair loss. I know eveyone is different, however, I am confused. My hair has thinned somewhat, and I don't know if it will fall out completely after my last and final…
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Recurrence of non-hodgson's lymphoma
Can someone give me details on salvage therapy and the statistics of having higher dose chemo and bone marrow ransplant
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tonsils
I just found out that your tonsils are a lymphnode. I never realized they were. Well Monday morning I am having mine removed due to chronic tonsilitis. I am starting to get nervous that they may contain hodgkins. Please pray that they don't!!!!!!
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low grade lymphoma
Hi all i am new my husband was just dianogised with this and i was wonder if any of you knew of a web site that a man i don't know if he is a doctor or not the doctor told us about it she said he has a lot of info on this type of cancer she could not remember his last name first is thomas maybe last loughlin??? any help…
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Radiation side effects
Hi, my name is Leslie. I just finished my ABVD chemo for Hodgkins and will begin radiation on my neck and throat (I guess it is what they call the the mantle area) next week. I will be getting radiation for 2 weeks. I have read the message boards and have a pretty good idea about the side effects ( sore throat, loss of…
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new oncologist
Hey Everyone, I just had a question about my new oncologist. My old oncologist left and it has forced me to find a new doctor. My old doctor ordered ct-scans every three months and that usually followed with pet-scan. The new doctor doesn't like to do so many scans, so he is just going to do a chest exray. I had hodgkins…
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Flu Shot
I wonder if people who had cancer earlier this year can get the flu shot. It seems like every place is running out. Has anyone out there been successful?
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My Dads got it help me speed up his treatment!
Hello I'm new here,My father has been diagnosed as having some kind of Lymphoma. He has been in alot of pain for 3 months but was told that he had arthritis in his back. Well after months of suffering he had a Ct guided byopsy last week to determin the type of cancer. Last night his doctor called and told him he has a…
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What to expect
My journey started with what I thought was a heart attack. After three days in the hospital and OK on my 39 yr old heart...I was adivsed that numerous "nodules" showed up on the CT scan. These chest pains, nodules around my heart/lungs along with horrible night sweats, have my doctor wanting to test for HD. He is…
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??? About Rare type Large B Cell NHL...
Brother (late 30') has diagnosis of Large B Cell NHL, however, oncologist says he doesn't need rituxin as his CD20 test came back negative....given rituxin is fairly standard, we are concerned, but doc says he doesn't need it...however, he does have rare type where the cancer cells are dervied from a "plasma cystic…
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