Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

chest pain
I am almost done with my chemo treatment before starting radiation. I am having pain in the middle of my chest when I take a deep breath any bigger then normal at rest breathing. I will ask my Dr. when I see him, but does anyone know if this is a side effect that will go away? Mike
Stanford Five Treatment vs. ABVD
I had my first visit today and my oncologist is recommending the Stanford five treatment (12 weeks of chemo, once per week, receiving different chemicals on odd and even weeks) instead of the ABVD 2x's per month for 6 months. Does anyone know about this treatment or where I can find information on it? THANKS IN ADVANCE!!!
Tumor on Ovary?
I was diagnosed with NHL in October 2001. They found it the day that I had my daughter (C-Section). I had 6 rounds of CHOP chemo and Rituxan, and I have been in remission since. I was wondering if anyone else has had a tumor on their ovary? My doctor said it was very rare.
dads hodgkins
Hi everyone, it was to good to be true, my dad was going to have his last chemo treatment, but his white blood count was too low, he received a shot of neulasta. We hope by next week he can have his last treatment. He will then have a 2week rest period prior to receiving his radiation. Can't wait for this to all be done.…
C-T Scan
My C-T scan came back fine, My Pet-scan got reschedued until next Wednesday. That is the scan that I am worried about. My last Pet-scan after treatment came back active. All C-T scans have been clean so far. I guess I just want someone to say I am cancer free. It has been thirteen months since I finished treatment and…
allogeneicTransplant
Has any one had a allogeneic transplant?
The Lil Things...
I just finished my 2nd dose of ABVD and I was wondering if someone could tell me what lil things I should be on the lookout for... By lil things I mean like reactions to the chemo such as stomach cramps, or my fingers being numb etc... What do you deal with and what should you call the dr on? I don't want to be a pest but…
Having hard time deciding what to do...
I posted below re: Stanford V vs. ABVD, but all research that I have done is that Stanford V is still in clinical trials. My oncologist seems to think that this will be the best method of curing me but I am beginning to have some doubts as to the regimen if it is in clinical trials - does anyone have any advice on how to…
Anyone develop lymphedema?
This is my first posting...I am 30 and was diagnosed with Hodgkin's stage IIA one year ago. I had a lymph node biopsied from under my left arm followed by ABVD. After my chemo I still had a lump under the right arm--the PET scan was negative, but my doc did a biopsy of the right arm mass and it was just scar tissue. We…
radiation
My dad is going to have radiation to his neck and armpit. Can anyone tell me what there experience was. Let me know the pros and cons. and what kind of questions to ask at the consultation. Thanks
Scans
Hi everyone, here is my question. I am going for a cat-scan and a pet-scan in May. I have had cat-scans every three months since March of 2003. All the cat-scans have been clean. I had one pet-scan in March of 2003 right after my treatment was complete. I should let you know I only had radiation therapy with no chemo. Well…
Continuing School
Has anyone continued to take college classes while still having ABVD treatments? My daughter will be having her last two treatments while just returning to college this fall. Do you think this is possible for her? Will she be able to focus? Her first treatment went well but we are delayed due to low WBC for the second…
Newly Diagnosed with Hodgkin's...
My 30 yr old daughter is new for hodgkins. We are still in the staging process and would like to know what to expect. How long does it take for the chemo to make her sick? How long before she loses her hair? If she does. She is afraid but being brave, I am doing anything i can to help her. Any suggestions would be…
anyone have belomycin omitted
My dad had his 6th chemo treatment and had quite a set back. He had a blood clot in his lungs, the clot was treated with blood thinners and he is doing great, he is a week overdue for his chemo and they are going to discontinue the Bleomycin and give him just AVD. They want to do 2 more treatments total of 8. My dad had…
Fear
Hi. I am 33 and was diagnosed with Hodgkin's stage 4b last September. I have undergone 6 months of ABVD. The gallium scan after treatment indicated there may still be a node with cancer in my chest. I am awaiting a PET scan to determine whether there is residual cancer. If there is then I will need an autologous bone…
Damn medical bills
I finished treatment in February and I am extremely frustrated with my medical bills and the places I received treatment from. I am still trying to get over from all of the side effects and they are already sending notices that they will send the account to collections. I called all of them and told them that I cannot work…
difference in immune system after Cancer
hi there all, my name is Charlene. I had stage 4 NHL. I had tumors in ovaries, kidney, liver, and up and down aorta. Also NHL in bones and in lymph nodes. In remission now for 7 months. Thank God and my miracle worker of a doctor. I am developing allergies that I never had before. Has anyone had something similar or would…
Headaches after Chemo treatments are over
My mom finished her last ABVD treatment in December and for the past month she's been having daily headaches. She had a CT scan and that came out clean, she's had her eyes checked and her doctors don't think it's related to allergies, so she's wondering if it might somehow be related to chemo. Has anyone else experienced…
Seperated with Stage IV NHL
I was diagnosed with small cleaved cell follicular Non-Hodgkins Lymphoma in 1997. It was stage IV when I was diagnosed because it was in my bone marrow. I went through 7 chemo treatments of CHOPS. My marriage ended in 2000 and I felt like my life was over. I drew alot of strength to deal with my disease from my happiness…
fertility after Hodgkin's
I was diagnosed with HD when I was 12. I am now 32. I received chemo and radiation. I was told that I would probably be infertile. I was on birth control pills since I was 20 and really never thought about my infertility. Last year, my husband and I decided to try to get pregnant. I went off the pill and that month I got…
Maintenance Rituxan
What drives the decision to start the maintenance Rituxan regimen? Is it some pathological or physiological change or condition? Or is it just a decision reached between you and the oncologist? Thanks in advance.
When will I relapse!!!!!
Diagnosed January 2003, follicular NHL Grade IV (in marrow). 6 courses of Chemo (Rituxan, Cyclophosphamide, Fludarabine). I've been in remission since July 2003; still constantly tired, no energy. Feel like I have this HUGE hammer over my head waiting to fall at any moment. Seems like everyone relapses.
Hair
I completed 6 months of ABVD 3 weeks ago. Any ideas on how long before my hair starts to grow back???? Thanks :)
Hodgkins/Nausea
I have been finished with my treatment (3 sesions of chemo and 17 radiation treatments) now for 4 months. At this time it looks like they have gotten all the cancer out. My problem is , that I throw up everyday and have been on Zofran to control the nausea. Various new tests have been ordered to rule out any more…
remission after being in stage 3
I was wondering if any of the NHL large diffuse b-cell pts. if any of your Dr.s were hopeful in staying in or being in remission for more than 2 years after this Chop-R treatment. I mean our onco. just kinda says well you never know, I was wondering if anyone else's doctor provided you with hope from previous cases? I mean…
Nerve Damage after Biopsy
A biopsy was done in July '03 to test a node in my groin area, which confirmed the non hodgkins cancer. After the standard chemo treatments I was declared in remission in November '03. Fantastic! Ever since the surgery though, I have extreme pain which starts at incision and radiates to my knee. Oncologist and my regular…
Larry: 1 Lymphoma: 0
So far so good! I'm about 3 months off of the last of my treatments and I feel great! My energy level isn't quite as enthusiastic, but I'm hoping it gets back there. It has improved quite a bit in the past two months. I used to walk 1 mile at a 20 min/mile pace and be tired. Now I can do 3 at almost a 15 minute pace! So…
Marion and Kathy
Hi hope you are both doing well. Went to see the doc yesterday about the transplant .They will be testing the 2 matches and checking with the insurance company to see if and how much they will pay and I will be starting 4 treatments of chemo soon to shrink the tomers I have to get ready for the transplant. The doc informed…
NHL - Idiotype Vaccine Study
I was diagnosed Nov 2002 and am currently in watch & wait. I have been recommended to go into the Idiotype Vaccine Study. I have B Cell, Level III, Stage 4, and many lymph nodes with bone marrow involvement. I am 48 years old. I will be getting 6 months of CVP Chemo every 3 weeks, then a 6 month rest period. If all is…
Relapse after Stem Cell Transplant.
Hi all am new here,has anyone had a stem cell transplant (autologus) and it never worked?Had one this time last yr and Ct in July showed nodes still there,was told it is scar tissue(not happy with the reply)so had a PET in Dec last yr,showed cancer still present,Dr thinks my intermediate nhl large diffuse B cell was hiding…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards