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Throat radiation eating
Hello All! I hope everyone is doing well (at least as well as can be expected) I am wondering if anyone has had as bad of a time as I am having with radiation. I have just finished 10 treatments to my throat and neck and my doctor has postponed treatment because my throat area has too much inflamation. I was in severe pain…
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Young women who have gone through chemo
A personal question for you - how long did it take for your menstural cycles to return to normal - or did they? Thank you, Lisa
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No sex drive
I am a 57 year old female, I had non hodgkins follicular cancer in 2002-2003 and a stem cell transplant in 6/03. I can handle the many side effects from the chemo and transplant, but am having a real hard time dealing with not being able to make love to my husband, he is so patient but I am not. Any advice???
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Radiation induced Pneumonia
Has anyone ever heard or had radiation induced pneuomina? I have a cough that and some scarring on my right lung in which the oncologist has been watching closely. He says there could be a couple of things causing the cough. One of the suggestions was that because the scarring was so severe a mild pneumonia caused by…
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CT SCAN RESULTS AFTER 3 ABVD TREATMENTS
I was diagnosed as a stage 3A bulky nodular sclerosis. After 3 treatments, at 2A, my oncologist wanted to do a ct scan earlier than later. I was totally floored and pleased with the results! My left neck, left chest (7.5 cm area) my spleen and my liver were all affected. The latest ct scan reveals that my neck, spleen and…
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After-Effects of Chemo
What has everyone experienced? I can't describe it, but sometimes I just feel like I am not here. Being a new mom, type A, remember everything type of person, this is SOOOOOOOO not conducive to my life style. Any thoughts, experiences or guidance on how to combat this and how long does it last? Is this something that I…
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Losing weight
Need some advise. I lost 40 pounds when I was sick, have since gained it all back and having a real hard time losing anything. I think my metabolism changed after all the chemo and my stem cell transplant. Any advise on what to do, I am at wits end.Thanks.Barbara L, from Ca
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retuxan
Hi,I'm 6 1/2 years out with NHL sm.cell follicular indolent.My immune system is not running right.Tomorrow I start retuxan,4-6hour treatments,once a week.First,time I've been treated with anything.Your opinion isn'tvery high on retuxan,folks.I can't do chemo because I'll have nothing left of my immune system.
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nasopharygeal cancer
I need reassurance from survivors of this cancer . What are the greatest side effects that you live with now? My husband was diagnosed with the cancer and they plan to insert a tube into his abdomen to plan ahead for any future problems he may have with swallowing. Has anyone had this done?
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hair loss/ growth
Hi, I'm Leslie, 39 years old, and I have just finished 3 rounds of chemo. I will be going for radiation treatment next. I have a question about the hair loss. I know eveyone is different, however, I am confused. My hair has thinned somewhat, and I don't know if it will fall out completely after my last and final…
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Recurrence of non-hodgson's lymphoma
Can someone give me details on salvage therapy and the statistics of having higher dose chemo and bone marrow ransplant
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tonsils
I just found out that your tonsils are a lymphnode. I never realized they were. Well Monday morning I am having mine removed due to chronic tonsilitis. I am starting to get nervous that they may contain hodgkins. Please pray that they don't!!!!!!
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low grade lymphoma
Hi all i am new my husband was just dianogised with this and i was wonder if any of you knew of a web site that a man i don't know if he is a doctor or not the doctor told us about it she said he has a lot of info on this type of cancer she could not remember his last name first is thomas maybe last loughlin??? any help…
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Radiation side effects
Hi, my name is Leslie. I just finished my ABVD chemo for Hodgkins and will begin radiation on my neck and throat (I guess it is what they call the the mantle area) next week. I will be getting radiation for 2 weeks. I have read the message boards and have a pretty good idea about the side effects ( sore throat, loss of…
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new oncologist
Hey Everyone, I just had a question about my new oncologist. My old oncologist left and it has forced me to find a new doctor. My old doctor ordered ct-scans every three months and that usually followed with pet-scan. The new doctor doesn't like to do so many scans, so he is just going to do a chest exray. I had hodgkins…
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Flu Shot
I wonder if people who had cancer earlier this year can get the flu shot. It seems like every place is running out. Has anyone out there been successful?
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My Dads got it help me speed up his treatment!
Hello I'm new here,My father has been diagnosed as having some kind of Lymphoma. He has been in alot of pain for 3 months but was told that he had arthritis in his back. Well after months of suffering he had a Ct guided byopsy last week to determin the type of cancer. Last night his doctor called and told him he has a…
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What to expect
My journey started with what I thought was a heart attack. After three days in the hospital and OK on my 39 yr old heart...I was adivsed that numerous "nodules" showed up on the CT scan. These chest pains, nodules around my heart/lungs along with horrible night sweats, have my doctor wanting to test for HD. He is…
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??? About Rare type Large B Cell NHL...
Brother (late 30') has diagnosis of Large B Cell NHL, however, oncologist says he doesn't need rituxin as his CD20 test came back negative....given rituxin is fairly standard, we are concerned, but doc says he doesn't need it...however, he does have rare type where the cancer cells are dervied from a "plasma cystic…
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stage 1 aggressive large b cell lymphoma
I was diagnosed with aggressvie large b cell lymphoma. My symptoms were only bumps on my head. I was wondering if there is anyone else out there that has had this same symptom? I have had my first chemotherapy treatment which is CHOP plus Rituxan.
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sleeping probs
Every since I started chemo ( I finished 7 months ago) I can't sleep. I feel really tired but not at night. I do very relaxing activites before bedtime. Is it the steriods? I don't think it is stress and I am very active during the day. Does anyone else have this problem? What do you do about it?
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drugs
Science Friday will be discussing the Drug Companies and whether they are interested in Cures or Profits tomorrow. The program usually airs at 10 AM in my area;check your local PBS station. bud
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Chemo At It's Worst
My husband has NHL Stage 3, both small & large B cell. He has had 3 treatments with Rituxan (before docs discovered the Large cell as well) and 7 treatments of CHOP with one more to go this week. He's terribly ill. Absolutely no energy, having trouble walking, very very weak, just developed Bell's Palsy, and has pain from…
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systemic mastocytosis diagnosis
I was diagnosed with NHL in January and have undergone chemotherapy. My last bone marrow biopsy noted "systemic mastocytosis." I have an appointment with my doctor in a couple of weeks and will discuss this with him, then. In the meantime, I was wondering if anyone out there knows anything about this. When I read about it…
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MY PET CAME BACK FREE OF CANCER!!!
I got the results yesterday - I guess I am officially a survivor now! :) Lisa
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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blood clots
Did anyone have trouble with blood clots due to the Hodgkin's?
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should I be worried
Hey Everyone, I just have a question. For about a month or so I have had a pain under my right arm. I don't think there is anything there, but it won't go away and sometimes seems worse than others. My last pet-scan was June and things looked good. I have an appointment with my doctor on September 9th. I was just wondering…
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foggyhead
After my dads 5th treatment of ABVD, he has started to feel hung over or feels like his heads in a fog. What it that, will it go away. He was dehydrated, but that has been treated. Is the rest of his treatment is he going to feel like this. He feels crappy all the time. He's not anemic and his white blood count is hangin…
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Funny stories
My friends and I were recalling my chemo days last night and I have a funny story I thought I would share with you all. After I finished chemo I decided to do some clothes shopping. I got all dressed up and carefully combed out my wig and put it on so I could shop at some of the ritzier stores. I picked out some things and…