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Lymphoma (Hodgkin and Non-Hodgkin)

stage 1 aggressive large b cell lymphoma
I was diagnosed with aggressvie large b cell lymphoma. My symptoms were only bumps on my head. I was wondering if there is anyone else out there that has had this same symptom? I have had my first chemotherapy treatment which is CHOP plus Rituxan.
sleeping probs
Every since I started chemo ( I finished 7 months ago) I can't sleep. I feel really tired but not at night. I do very relaxing activites before bedtime. Is it the steriods? I don't think it is stress and I am very active during the day. Does anyone else have this problem? What do you do about it?
drugs
Science Friday will be discussing the Drug Companies and whether they are interested in Cures or Profits tomorrow. The program usually airs at 10 AM in my area;check your local PBS station. bud
Chemo At It's Worst
My husband has NHL Stage 3, both small & large B cell. He has had 3 treatments with Rituxan (before docs discovered the Large cell as well) and 7 treatments of CHOP with one more to go this week. He's terribly ill. Absolutely no energy, having trouble walking, very very weak, just developed Bell's Palsy, and has pain from…
systemic mastocytosis diagnosis
I was diagnosed with NHL in January and have undergone chemotherapy. My last bone marrow biopsy noted "systemic mastocytosis." I have an appointment with my doctor in a couple of weeks and will discuss this with him, then. In the meantime, I was wondering if anyone out there knows anything about this. When I read about it…
MY PET CAME BACK FREE OF CANCER!!!
I got the results yesterday - I guess I am officially a survivor now! :) Lisa
Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
blood clots
Did anyone have trouble with blood clots due to the Hodgkin's?
should I be worried
Hey Everyone, I just have a question. For about a month or so I have had a pain under my right arm. I don't think there is anything there, but it won't go away and sometimes seems worse than others. My last pet-scan was June and things looked good. I have an appointment with my doctor on September 9th. I was just wondering…
foggyhead
After my dads 5th treatment of ABVD, he has started to feel hung over or feels like his heads in a fog. What it that, will it go away. He was dehydrated, but that has been treated. Is the rest of his treatment is he going to feel like this. He feels crappy all the time. He's not anemic and his white blood count is hangin…
Funny stories
My friends and I were recalling my chemo days last night and I have a funny story I thought I would share with you all. After I finished chemo I decided to do some clothes shopping. I got all dressed up and carefully combed out my wig and put it on so I could shop at some of the ritzier stores. I picked out some things and…
Frontal Hybrid Chemotherapy
I'm trying to find people who have received Frontal Hybrid" combination drug therapy for hodgkins disease. I believe that the treatment is specific to The Christie Hospital in the UK but there may be others out there using this treatment now. My reason for trying to find others is that I am suffering from a progressive…
Chest pain a year out?
I finished 4 cycles of ABVD for Stage II a year ago, then had 3 weeks of radiation...the last couple of weeks I have had some sharp pains in the upper left part of my chest. It doesn't last very long; just a sharp stab and then it's gone. I know ABVD and radiation can damage your heart and lungs; my fear though is that the…
Stanford V patients with Prednisone taper -
How did you feel once you started tapering the prednisone? I am in a world of pain all over and am wondering if this is the chemo or the pred - any thoughts? TIA, Lisa
dads hodgkins
Hi everyone, my dads doing well. He finished his last radiation treatment 10 days ago. My question is when do the taste buds come back, he still finds it difficult to taste anything.
Chemo Embolism with Pulmonary HD
has anyone had a chemo embolism and is it any better than radio and normal chemo? what are the risk factors? has anyone with pulmonary HD (and having been recurrent HD case) had this treatment. It's now being done in germany, I am trying to find out info for my boyfriend's brother. Thanks for any help
how long can chemo be delayed???
My dad has HD IIA nod. Sclerosis. He suffered from a Pulmonary Embloism. He is doing much better, but they have delayed his chemo, they want him to be physically better to continue 2 more treatments and then have radiation for 10 minutes every day for a month. Whats the longest anyones chemo has been delayed. I'm worried…
new site
Hi Guys and Gals! I was contacted by the Webmaster of a new Lymphoma Resource website. He asked me to put a link on my website. I just uploaded the new link. Here it is: http://www.lymphoma-net.org Here is my URL: http://www.geocities.com/leukemia_lymphoma/ Hope this helps! God bless you all. -Michael (leukemia survivor)
New Site
Hi Guys and Gals! I was contacted by the Webmaster of a new Lymphoma Resource website. He asked me to put a link on my website. I just uploaded the new link. Here it is: http://www.lymphoma-net.org Here is my URL: http://www.geocities.com/leukemia_lymphoma/ Hope this helps! God bless you all. -Michael (leukemia survivor)
Pursuing new career
Hi All. A young man that is part of my community is battling hodgkins. All is going well. Outlook great. While he has been out of work, he has been contemplating pursuing a hobby and making it a career - mechanics. He is a HS dropout. I have been encouraging him to get his ged, and to then maybe pursue some technical…
Breast Cancer After Hodgkin's
Hi everyone, My name is Alicia. I was treated for HD in 1991 with a combination of radiation and chemo (ABVD). I was recently diagnosed with Breast Cancer. IS there anyone else out there that's gone through the same thing? I'm trying to make some treatment decisions and am looking to correspond with others in my situation.…
weight gain
Im 22 and about to start my third cycle (5th treatment) of ABVD. At first I had really severe nausea and could barely eat, and lost about 5 lbs in the first week after a treatment, only to be gained back the second week, no matter what I did. Now I still get nausea after treatment but not really in a way that affects my…
Give me the skinny on radiation treatments!
I have to have 25 treatments to the chest and to one node in my throat. I went in for a nupegen shot and the nurse at the hospital totally went off on radiation and said it will be way worse than chemo and that I will experience really bad esopogus and throat pain and that I won't be able to do much during treatments - Um,…
Young Cancer Survivor Board
Theres a new board looking for young people,check it out.
stem cell transplants
Does anyone have any positive things to report about stem cell transplants?My Mom's friend went through chemo last year and now,according to her doctor,she needs a stem cell transplant due to a recurrence of Hodgkin's.I thought I might forward some good news to her.Thanks for any help. Randy
Opinion on scans
Im set to be scanned within the next few weeks for my 6 month check and I havent been scanned since Feb. - during radiation. My doctor is ordering a CAT to be done and I was just wondering if this is commen b/c I received a PET during staging and havent had one since. Are CAT scans efficient enough to detect without the…
Memory Problems/Ginkgo Biloba
Hi I still have alot of problems with my memory after chemo. I have just started taking Ginkgo Biloba which is supposed to help. Has anyone tried this or have any other suggestions for improving memory? Thanks
Recurring Hodgkin's Disease - treatments
I am on this site tyring to find out some information for my friend who is about to start her 4th series of treatment. She had chemo and radio the first time, chemo and a stem cell transplant (her own spem cells) the second, chemo the third and the disease came back within 4 months of the last chemo. Her doctors here in N…
Need advice 2 years later
I was diagnoised withnhl in 1997 .I did rituxin first relapse 8 months later did it again relapse 6 months later Started chemo once a week ended up with another lump in neck so they upped the chemo.# months later you guessed it This time we did radiation on my neck .I think 35 days.6 months later here I go again .The good…
(long) after treatment-symptoms at 8 weeks, help?
Hello all, was hoping for some feedback on beloved's current situation. Not sure how to support him. Okay the rundown: Non-Hodgkin's lymphoma: small football shaped tumor in lymph duct, inoperable, due to upper GI region. From mid December to mid April, had series of chemo, radiation: CHOPS and Ritux. Left with tumor/scar…

Lymphoma (Hodgkin and Non-Hodgkin)

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