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bone marrow donor...what to expect
My fiance is the only possible donor for his sibling just diagnosed with non hodgkins lymphoma. Hopefully he is a match but I am concerned about a few things. I have read a little(all I could find so far) about how after he donates he could get really depressed and blame himself if it doesnt work. We are only in our mid…
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Fibromyalgia due to Chemo and Rad.
I was diagnosed with Hodgkin's III in 8/04. They quickly put me on ABVD for 6 months and 1 month of radiation.I was I bed for the whole 6 months but I had no problems with my joints until after radiation. I literally couldn't move. I was stiff and in pain with every movement. I told my Oncologist about it and gave me the…
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No taste
Jared completed his radiation treatments last week and now he can't taste anything. The doctors told us this is a temporary thing and that his taste will come back. Has anyone else had experience with this and how long did it last?
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Anybody with NHL who is older than70?
Hi, my father has been recently diagnosed with NHL stage 4. He is started with chemo now. Its just been 2 days. I was totally devastated but now trying to cope up. Is anybody out there in the same age group? Please share you experiences.
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recurring
Hi, I was diagnosed with stage 11B in 1990 and was treated with radiation treatment for 12 weeks. Once a year I go in to have a check-up,x-rays, blood work...i worry about secondary cancer and recurring hodgkins. I was wondering if anyone else shares this fear and is it unlikely for me to get sick again? Thanks for reading.
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Canadian LT hodgkin's survivors
would be interested in hearing from canadian LT HD survivors. s/p
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Scared, can anyone help?
I was just wondering if any of you have had an autologous bone marrow transplant. I recently had a relapse of my lymphoma and this is how they want to treat it. I am really scared. Can anyone tell me what to expect?
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concern of reoccur
I was diagnosed as hodgkin's IIA (neck and chest) in March. I finished my 6 month chemo on late September and did CT and PET scan early October. Everything looks fine. However, from last week, I feel pressure in my chest. The feeling is exactly same as before the chemo. I am very nervous. I went to see my doctor. He told…
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"Activity" found in spleen area
My brother was diagnosed last January with Hodgkins. (He is 60 years old). He went through a course of chemo and did very well. He's gained weight, hair has grown back and he says he feels great. The CT scan prior to this last one showed some "small activity". The doctors told him they suspected it was scar tissue (healing…
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Popping in throat - from radiation?
When I had radiation in my chest and throat, and recently when I swollow, my throat 'pops'. there is no other way to explain it. It is more annoying than anything else, but it really sin't normal. Any thoughts? Has this happened to you? I think I will call my radiologist and make an appointment, but was wondering if anyone…
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Secondary cancers after Hodgkins
Hi, I was diagnosed with Hodgkins at 19 and was given chemotherapy for 6 months. I was told I was in remisssion. However 3 months later I found swollen lymph nodes. This time I was given radiation, after 6 months of treatment I was again pronounced in remission. I have been cancer free for 18 years. However, last week I…
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skin sensitivity
Has anyone ever had skin suddenly start to feel extra sensitive..almost like a severe sunburn without the heat, after having chemo and radiation? and not necessarily in the areas you were irradiated?? what did you do for it?
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Radiation side effects - many years down the road
My mom had nhl when she was in her early 20's. She is now 57. The last few years she has developed hearing problems, degenerative disc disease, her eyesight has declined, she had cancer of the tongue (she never smoked), and had a blockage in her upper arm area that led to a by-pass. I think that this is all the result of…
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How best to support my friend?
One of my best friends *just* found out he has lymphoma (probably Hodgkins, although it hasn't yet been confirmed). He took it hard. I was hoping people here might be able to give me advice on things I can do to support him through this as a friend. What types of things might he need but be hesitant to ask for? What are…
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dont no what to do
i had hodgkins in 89 3b it was like walking into a brick wall.i thought i was in good health.but i had a not come up under my right arm no big deal i thought.went to doc he siad it was catscratch fever huuuuum i dont have a cat .any why a chest xray told other news .the doc sent me to md anderson in huston.i have beat the…
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Hoarse voice
Hi Everyone, It's been a long time since I have had any reason to worry about my health. But now I am almost ready to panic. I work with young children and have had a nasty infection going on. I finally got some antibiotics after 8 days of being told it was a common cold. Well the good news is my head is starting to clear,…
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Working with a Nauturopathic Doctor
I was wondering if there is anyone who has worked with a naturopathic Doctor while undergoing chemo. My Oncologist is telling me to get off supplements during chemo and I am confused.
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velban removal from market
Yesterday i was told that my chemo velban was removed by FDA, does anyone know why???
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Secondary cancer after Hodgkins?
I've been 11 years cancer-free from Hodgkins. I'm a 37 year-old female. I've recently (for the past month) had swollen lymph nodes in my neck, nodules that showed up on my chest & neck CAT scan, and swollen nodes on my breast ultrasound. Can all these swollen nodes indicate a cancer about to occur? I'm very concerned and…
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Bone marrow transplant........
Should I, or shouldn't I go thru it???? Have you?
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Side-effects of treatment
Hodgkin's Stage IIB. Went through Stanford V treatment last fall/winter. By Christmas, falling at odd intervals and trouble standing/walking. Admitted to hospital for "paralysis" below the diaphragm---by then couldn't walk, support self, no feeling of bladder/bowel, able to move legs side to side but couldn't lift off of…
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anyone turn down radiation
im looking for anyone who has passed on having radiation due to long term side effects&2nd cancers. i have stage 4 hd and my doc said(in the beginning) he wouldnt use radiation because theres to many spots but after 6months of mopp&abvd,my last pet/ct scans showed all clear but my lungs(the docs not sure if its active or…
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How bad is it the SECOND time?
Hi! I'm new here. I'm writing about my father. He was treated for non-hodgkin's lymphoma 12 years ago. He was recently diagnosed AGAIN! He's 71 years old. He starts chemo treatments again after the 4th of July holiday. He's already showing signs of extreme tiredness. I've heard that it's WORSE the second time around. I…
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A friend with cancer
I actually had hodgkins stage II B over a year ago and had my AVBD and radiation and am now in remission.I still get weird twinges and pains in my neck and chest, but have been told not to worry so I just try and get on with things with a positive outlook. What this is actually about though is my friend. I can't believe…
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CALLING ALL 2OR MORE TIME HODGKINS PEOPLE.
HI, I'M 22 AND POSTED QUESTION RIGHT UNDER THIS ONE. I WAS WONDERING IF ANYONE HAS HAD HODGKINS MORE THAN ONCE. AND WILL I EVER BE CURED FROM THIS GOD AWFUL DIEASE. I HAD A BMT AFTER IT CAME BACK(5MOS REMIS). NOW MY DR. SAYS IT MAY BE BACK. ALTHOUGH I FEEL FINE. IT'S IN MY CHEST AGAIN. SO LOOKING FORWARD TO SOMEONE WHO IS…
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neupogen
Hello. I am new to this board. I have a question about Neupogen. I have been having terrible side effects from this medication (i.e. bone pain/headaches). So bad in fact that when my nurse called today to tell me to start another 3 day dose I started to cry. Has anyone ever tried Neulasta? How do the side effects compare…
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pet/ct
Hi IAM 21 SOON TO 22. I HAVE HODGKIN 2X. I ALSO HAD A BONE MARROW TRANS. MY FIRST PET/SCAN CAME BACK OK. WHEN I WENT A MONTH AGO SOMETHING SHOWED UP .ONE OF THE NODES WAS ENLARGED. THE DR. SAID HE IS NOT SURE WHAT IT IS. I HAD A LUNG BIOSPY AND AM WAITING ON RESULTS.I FEEL GREAT AND MY BLOOD WORK WAS FINE. I'M VERY SCARED…
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telling new friends
i just started my son in kindergarden and he has new friends and play dates..i scared to tell any of the moms that i have cancer(hd IV) & going through chemo . i dont want my son to loss his new friends.i ve been lucky w/ chemo ,no hair loss..almost no side effects. you would never think i was sick by looking at me. i want…
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Secondary Cancers
Ive read of a few of you having secondary cancers after battling Hodgkins and I was just curious as to how many of you out there have been diagnosed with a secondary cancer - nonrelated to Hodgkins? This is just out of curiousity because I know that cancer survivors can be more prone to getting diagnosed. Im a year and…
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cancer from radiation treatments
I am 45. When I was 19 I had Hodgkin's Disease. I had a spleenectomy and radiation treatments. Last year I found out that I had Breast and Thyroid cancer. They are both a long-term side effect of the radiation. I had a bi-lateral mastectomy, a thryoidectomy and 6 mos of chemo.I lost my breasts, lost my hair and gained a…