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Pet/Cat scan results
Hi Everyone: I went to see my Oncologist on St Patrick's day and my pet/cat scan was clear. So I was thrilled about that. So I have to do a regular cat scan before June 9th. Then he will see me again on June 9th. So far so good. I still wonder about things. Why is it you can not get it out of your mind. You have a pain and…
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20 Years Today!!!
I’ve done it. I reached a milestone that I thought impossible upon being told, “You have cancer.” I’ve reached the 20 year mark in remission, without relapse. While I do realize it is a big deal, to survive cancer this long, as always, I consider it bitter sweet. There are so many that I’ve had to say goodbye to from this…
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Flu shot and recurrence of F. lymphoma
My husband has had a recurrence of f. lymphoma after a recent flu shot. Northwestern University Research Dept. said there was a 98% happening of f. lymphoma if one gets the regular flu shot. He had a clear cat scan in July of last year and within a few months a lump appeared in his groin area, which turned out to be f.…
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Removing the port
Today I had my port removed in the Dr.'s office. I was worried before I went in but it was a very easy procedure. I will continue to have Rituxin in my good veins but no more port ever I hope!!!!!!! I had it in a year while battling NHL follicular lymphoma. Stage 3A. I feel very happy today and glad it is gone. SO if you…
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ABVD Treatments
A question to those who have had the ABVD treatments for lymphoma, what were the biggest side effects you had to deal with and how long after you had the treatment did they eventually subside? I started the ABVD treatment yesterday for the first time, before that they had me do a round of ICE and through that one I had to…
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Pet/Cat Scan
Hi Everyone; I did my first Pet/Cat Scan this morning. So I am nervous and hoping for the best. After doing the Zevalin. My blood counts are still too low. I did have a Neulasta shot 4 weeks ago and my wbc went up to 6.1 and then the following week it dropped down to 3.9 and now it dropped to 3.4 I dont know why it dropped…
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what are the risks with pregnancy post hodgkins disease
Hi I have never posted before, I has hodgkins disease at age 11 in 1981, age 18 in 1989 , at age 28 in 1998 , I had and radiation to my groin area in 1981, and ABVD in 1989 and 1998 followed by a peripheral stem cell transplant, then in 2003 i had stage 1A ovarian cancer treated successfully by surgery , totally not…
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ABVD didn't work, anyone have some hope?
Well my husband finished his 6 cycles of ABVD for stage II Hodgkin's (20cm x 20cm mediastinal mass) a month ago. He had his follow up PET yesterday and the news wasn't good. His score actually increased from the initial 4.5 to 7. Well the doctor said our next step was two rounds of ICE and he would harvest stem cells…
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8 months of ABVD
Hello Everyone, I was diagnosed in July 2009 with Hodgkin’s 2A with an 11 cm mediastinal mass and will be finishing up ABVD chemo on the 19th of March. I had a PET scan in January and was told that I was cancer free but would need to continue with the treatment. My doctor suggested I complete 6-8 cycles of chemo with no…
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Symptoms?
Hi everyone - I'm freaking out a little and needed some of your advice. I just lost my husband March 1 to colon cancer. I have recently been diagnosed with a food allergy - supposedly, I'm allergic to nickel in foods. My concern is that I have had swollen lymph nodes on the back of my neck, my armpits and my groin area. I…
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ANYBODY KNOW SOMEONE WHO HAS HAD AN AUTOLOGOUS STEM CELL TRANSPLANT?!
I am 28 and a mother of three small children. I am so scared to go through this transplant and don't know what to expect and haven't read any good stories. Thank you, Natalie
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stopping treatment short of remission?
my doctor just gave me my 7th chemo and said we will stop for now. my lymph node has gone from 3" to 1". she will give me a Pet scan in 2 months to see if it is stable. WHAT? all my blood work has been very good etc. why stop now? has any one else gone thur this same thing? i have follicular NHL. isn't the idea to reduce…
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brrrr!
Just a quick question for anyone. Currently near the end of my chemo for NHL and it seems that I am cold or chilled a lot. I do live in Minnesota but I always have,lol. Anyone else experience this? Thanks, Mary
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Pomegranate juice or pills
I will be starting the rituxan for my lymphoma after 23 years of remission. As we all know, the immune system plays a big part in controlling this disease. I have heard that the pomegranate juice or pills has a lost of antioxidant benefit. Does anyone else drink this stuff and do you have an opinion about it or something…
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Children after Chemo & Radiation?
I'm 27 and 6 months post chemo & radiation. I was diagnosed on Christmas Eve 2008 with Mediastinal Diffuse Large B-Cell NHL. I was trying to conceive my second child when I was diagnosed. Are there any young women out there who have had children after this disease? I don't feel well enough to jog around the block, much…
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Me again
So it seems as if I feell sooo crappy all the time. They had me on so many meds in the begining maybe I didnt realize how bad I did feel. Now that I'm getting closer to my next round of chemo I'm seriously doubting myself, I know I need to keep positive I just hope its not this hard forever. I sleep roughly 12 hours a day…
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H-Pylori caused bowel to perforate, ulcers, then NHL-anyone else
It all started with a most terrible pain, which I have no memory of. (middle of sept) I was rushed to the hospital, ER. I had a ct scan, and was immediately operated on. I was in ICU for almost one week, then 2 more weeks of hospitalization. Total 3 weeks in hospital. I thought I would never leave the hospital. I found out…
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Primary cutaneous CD4+ small to medium T cell lymphoma
In Nov 2009, a red/pink spot about the size of a pea cropped up on my right forehead. It was later diagnosed as "primary cutaneous CD4+ small to medium T cell lymphoma." My understanding is that it's very rare but slow growing. Anyone know anything about this? jack
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I need help!! Please
Im a 25 yr old mother of two and I have Hodgkin's Lymphoma. Im asking if anyone was still able to take care of their kds while on treatments. I have to do 12 treatments in 6 months and Im scared I wont be able to take care of my babies they are my world. And with my husband in the Army we are far away from family. Any help…
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to chemo or not to chemo
I am 36 and in Nov. 09 I was dx with FNHL stage 4A. The tumors are small in size and no pains are yet felt. I am just looking for opinions if I should start chemo now or wait until the tumors are bigger or start feeling pains. Thanks and God bless. Edwin
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weakness in both legs
I have stage 1, low grade, b cell Non-Hodgkin Lymphoma. I had treatment once a week for 4 weeks of rituxan in dec 2009. No side effects at all. Now it is march 2010. At the end of feb I started having weakness in both legs. I have no pain, but I get very tired in both legs. I did have a flare-up of pain in my left knee. My…
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Side Effect: Loss of Circulation in the Hip Joint
Have you experienced this? How have you treated it? I discovered this back in '93 and my doctor blamed the Predisone. Both of my femur ball joints are affected and my pelvis has tilted to relieve the weight pressure, which causes me to gimp. Swimming and stretching are very helpful but my flexibility is nearly zip due to…
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How is donald51
I am wondering how donald is? Have not seen him on here. I guess with doing the Zevalin I am wondering. Hope all is ok. Would love to hear. I am doing somewhat better. Still have to work on getting my platelets up. My red blood cells dropped somewhat. But did get a shot of Neulasta last Week. So hopefully all is on the…
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How is donald51
I am wondering how donald is? Have not seen him on here. I guess with doing the Zevalin I am wondering. Hope all is ok. Would love to hear. I am doing somewhat better. Still have to work on getting my platelets up. My red blood cells dropped somewhat. But did get a shot of Neulasta last Week. So hopefully all is on the…
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mantle cell lymphoma
My husband was diagnosed with mantel cell lymphoma after finding a large lump on his tonsil in November of 2009 with no other symptoms, i.e., fever, tired, flu like symptoms. An ENT doctor did a biopsy on his neck which they said showed cancer. Staging tests indicated no cancer in any other part of his lymph node system.…
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Where can I go to get assistance for my cancer treatment?
Hello anyone. My name is James and I have been diagnosed with Low-grade B cell lymphoma. I was given this diagnosis in April of 2009. Prior to being given this news I had been laid off my job for close to one year. I have not been back to see my PCP because I no longer have insurance. So, it has been a year now and I think…
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Flu shot and lymphoma
I found this article recently: Getting a flu shot almost doubles the chance of getting cancer according to Lankes and colleagues. In a new study at the Feinberg School of Medicine of Northwestern University, Lankes found that a single flu shot at any time alters the immune system in such a away that it increases the risk…
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Dry Mouth (xerostomia)
Anyone familiar with dry mouth after rad. therapy?? Phrangeal Lymphoma
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B cell follicular Lymphoma Stage 2 Grade 3 question
Hello everyone. I was diagnosed in Dec/2009 with B cell follicular Lymphoma and currently undergoing chemo (R-CHOP). My Oncologist ordered 3 cycles based on my stage/grade. I have my 3rd one tomorrow and hopefully it is my last before beginning radiation. Mine was localized to my neck (lymph glands on both sides of neck…
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My dad had Hodgkins at 70
Hello everyone: My dad was diagnosed in 2004 Hodgkins Stage IIA (nodular Sclerosis) at the age of 70. He did 4 cycles of ABVD. They cut the Bleomycin out early due to irritation of lungs and throat. He did 17 radiation treatments. Today, my dad is 77 will be 78 in June and living a normal active life. He did loss his hair,…