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pity party
hi all- i am brand new to the boards and have registered to get some advice and support from those of you who have been there. In a nutshell, I was diagnosed with Hodgkins disease in 1980 and received full mantle radiation therapy (50 treatments). Like many of us treated in that era, I have suffered with many after effects…
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Blood Counts
Well I have been doing my weekly blood test for cbc and my levels are very low , I did the Zevalin Dec 23. My platelets are only 20 at this time. my wbc is only 1.6 and so on. Has anyone been this low before. I wonder what it will be next Wed. when I go back. I am getting a bit worried. The Oncologist put me on the…
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Long Term Radiation sickness- how long does it last?
Hi everyone, I am hoping for some answers... my fiance is 43, had Stage III Hodgkins under his arm and went through Radiation only. Because he was very healthy and muscular, they gave him heavy doses of radiation. He has been in remission for a year and few months and is still fatigued, very sick for days at a time and…
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Burkitts Lymphoma
Looking for others with this rare cancer or have been through the treatment. I was diagnosed on Feb 12 2009 with Burkitts, a few days before that I was treated with R-Chop which really blasted the tumors (which were many). I had the R-CHOP basically to save my life as we couldn't wait on MAYO any longer. I am now half way…
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Lymphoma and Lung Infection
My Mom had Lymphoma and also contacted some type of Lung infection that might take her life. She was to have 6 Chemo treatments but had a hard time breathing she has been on Oxygen for the last month. The Dr. say that they don't know what it is. My mom is on a ventalator and we were told the other day that she is not…
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Done!!
Hello to all, Just a quick note to say I finished my final round of R CHOP on 1-26-10. I am understandably happy. I went into remission at some point after treatment 2 of 6. I will have a PET scan on 3-9-10 to see if that held and if so at some point start Rituxin maintenance every 3 months.I now face all of the "back…
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Extremely dry skin
Has anyone had a skin side effect from either the steroids or Rituxan? I am having my maintainance treatments and my skin is going crazy! My lips and surrounding lip area is so dry. I have dry patches on my skin. My face burns when I use my night so that's no longer an option. Any experience with this? Can you share a…
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lymhoma of the tonsils
I was diagnosed with non hodgkin lymphoma of the tonsils stage 2 in2007 . Am in remission right now. Had last PET scan in aug.2008. Now doctors can't decide whether they should retest since I am symptom free. Is anyone else out there with similar cancer? Had 6 treatments of CHOP and 25 treatments radiation which left me…
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Neupogen and Vomiting?
My husband has just had his second neupogen shot in two days and he has now started to vomit. He has had SEVERE stomach pain for a couple days and saw the onco yesterday. Well his WBC count was low so he was prescribed a neupogen shot a day for 3 days and IV fluid. All of this other symptoms (sore mouth, swollen tongue,…
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Radiation after chemo...or not???? What to do?
Hi. I am 27 years old with a beautiful 9 month old son...I was diagnosed with stage 2 Hodgkins in August. I am a stage 2 but b/c of the same of the size of the mass in my chest (wrapped around my heart and goes up into my collarbone) my doc is treating me like a stage 4. I have been going through ABVD since Sept. I am…
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Does it ever get easier??
I feel like it's set back after set back. I am in remission for almost 1 year,we shall see after my scans next month. I just feel like I keep having set backs. Every time I think I feel like "ME" again, I have a set back. It can get pretty depressing. With a low immune system I can't fight colds like I used to, I'm always…
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Tonsillar Lymphoma Stage 3 or 4
Hello, This has been such a long process. Over a year since my husband found the tumor on his tonsil. He's been diagnosed with tonsillar lymphoma, mixed cellularity, stage 3 - possibly 4. They did a bone marrow biopsy and found 5% blast? Not sure what that means. He needs another one because they didn't get the other…
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Husband is a Hodgkin survivor - now has tonsil mass
Hello All... I have been all over this internet, every day for 5 months now. My husband had Hodgkin's Lymphoma 10 years ago - found in Stage 3B. Tumors in his right lymphnodes and in his chest. He had a year of chemo/rad. 6 years ago he came home from travel with a lump on his neck. He was seen by his PCP who then referred…
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Cisplatin and Etoposide?
Has anyone had Cisplatin and/or Etoposide for Hodgkin's? My husband has had 5 cycles of ABVD and his PET is still positive (SUV=2.5-3.0). The onco said 1 more cycle of ABVD then 3 weeks rest. If the PET after that is still positive then he'll get 1-2 cycles of Etoposide and Cisplatin. After he has finished all chemo then…
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Please Help
My father is 61years old, weight 79Kg.Recently (10/10/2009) high-Grade B-Cell NHL has been identified in his left neck.There are multiple nodes found at the same region. Biopsy report is saying that it is in Stage-IA but unable to get the origin. These are the following tests they have already done. 1.Chest X-Ray OK 2.ECG…
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looking for non hodgkins relapse stories
i recently had a 100% clean 3month post chemo pet scan. I want to be excited but i am having a lot of survivorship issues.. please share your relapse stories with me. i feel like my doctors live in a fairly tale worlds sometimes and i would love to here realty! please share age, type and treatment options.....thanks so much
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Getting there
I had round 5 of R CHOP yesterday and only 1 to go!! All went fairly well just a little tired. Hope all is well with everyone.
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Blood levels Dropping due to the Zevalin
I did the Zevalin December 23, 2009 and have go ne weekly for my blood counts. They are really dropping. I will have to see my dr. on Jan, 20th. I am kind of worried that my platelts have dropped to 86. My WBC is 2.0 and my RBC is 4.32. I dont know what RDW is but it is 16.3 so they say that is high. Anyway I guess we will…
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round 1 of R CHOP
Greetings to all. I'm needing a little info from all of your experiences. Had 1 R CHOP treatment on 10-6 with 5 more to go. It didn' go too bad the steriods probably causing the most problems but were of short duration..5days. I had blood work done on Tuesday and recieved a call telling me my blood was very low and I…
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mono and possible hodgkins cancer
I found out I had mono a year and a half a go. Since then my gland on the left side of my neck has not subsided. I've experienced weight and hair loss and also fatigue. The doctor thinks I have no reason to be concerned with having cancer. Does anyone know any info about mono and cancer or can anyone help me? I am only 23…
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CTCL/MF
I'm a 58 yr old minister with Cutaneous T-Cell Lymphoma (CTCL) Mycosis Fungoides (MF). This is my second occurence. The first was 13 Yrs ago. This time around July 2009. I have looked for support groups for this with no success. It would be nice to talk to others with like symptoms and set backs.
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Rituxan starts tomorrow
9:00 am for my first infusion. have to admit I am pretty scared... my mom is in bad shape and I keep thinking what if I have to stop treatments mid-way, anybody had this happen? I know we shouldn't worry about things that haven't happened. Keep us in your prayers, Sheila
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Depression
I was diagnosed with stage 3 NHL at the beginning of 2009. I have finished my treatments and all seems to be well. I am still having a problem with my spleen but the doctors are not sure if the problem is cancer or just a symptom of my treatments. The doctors have decided to wait a few months and retest to see. I have gone…
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A cancer sufferer has told how mistletoe saved her life ..
A cancer sufferer has told how mistletoe saved her life after she shunned conventional treatments. Joan van Holsteijn put her faith in the healing properties of the plant, which is more commonly associated with Yuletide romance. She turned down potentially life-saving chemotherapy and instead had injections of misteltoe.…
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ooooh the tired!
Hello to all. I am currently undergoing R CHOP for my follicular NHL. I have had 2 treatments and am at day 11 of that 2nd cycle. I am due back at Mayo on nov. 17th. I know fatigue is expected but boy I am so weak and feel shaky inside. I have not been able to make it to work the last couple of days. Can any of you share…
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Glad to be back
Hello to all and Happy New Year, I haven't been here for a month due to a computer crash, but all is well now. I have a lot of catching up to do. First let me say that I hope that the new year brings each and every one of us everything we need and alot of what we want. Thanks to all of you for your time, support and…
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numbness after chemo
just had my 4th round of CVP and Rituxan and now have numbness in my feet and legs up to my knees also numbness in my fingers. the doctor says she will probably lower my chemo. has anyone else had this? it is a little scary. Thanks for any responses.
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No change in tumor size for 2 months, need help!
My husband was diagnosed in Aug 2009 with Stage IIA bulky Hodgkin's. He had a mediastinal mass of 20cm x 20cm x 12cm. He started ABVD and after 2 cycles the tumor had shrunk to 7cm x 9cm. That was great. Well the 3 month scan showed the tumor was 7cm x 8.8cm and the doctor said that wasn't enough shrinkage. We continued on…
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Can someone please help me?
Can somebody please help me. I have Hodgkin Lymphoma nodular sclerosing. I've had it for 2 years now and 4 different types of chemo treatments. ABVD, ICE, GVD and now mini BEAM. they are still trying to get rid of it enough to get a stem cell trans. My terrible insurance company Health Assurance (I feel bad for anybody who…
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New biopsy to determine inflammation or refractory Hodgkin's
I was wondering if anyone had to go through this too? My husband has had 4.5 cycles of ABVD and his PET is still positive (SUV of 2.5-3.0, originally 4.5) so the onc and 2 of is colleagues want a new biopsy. They said it is to check if the positive PET is just inflammation or if the cancer has/is becoming refractory. Has…