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Lymphoma (Hodgkin and Non-Hodgkin)

Glad to be back
Hello to all and Happy New Year, I haven't been here for a month due to a computer crash, but all is well now. I have a lot of catching up to do. First let me say that I hope that the new year brings each and every one of us everything we need and alot of what we want. Thanks to all of you for your time, support and…
numbness after chemo
just had my 4th round of CVP and Rituxan and now have numbness in my feet and legs up to my knees also numbness in my fingers. the doctor says she will probably lower my chemo. has anyone else had this? it is a little scary. Thanks for any responses.
No change in tumor size for 2 months, need help!
My husband was diagnosed in Aug 2009 with Stage IIA bulky Hodgkin's. He had a mediastinal mass of 20cm x 20cm x 12cm. He started ABVD and after 2 cycles the tumor had shrunk to 7cm x 9cm. That was great. Well the 3 month scan showed the tumor was 7cm x 8.8cm and the doctor said that wasn't enough shrinkage. We continued on…
Can someone please help me?
Can somebody please help me. I have Hodgkin Lymphoma nodular sclerosing. I've had it for 2 years now and 4 different types of chemo treatments. ABVD, ICE, GVD and now mini BEAM. they are still trying to get rid of it enough to get a stem cell trans. My terrible insurance company Health Assurance (I feel bad for anybody who…
New biopsy to determine inflammation or refractory Hodgkin's
I was wondering if anyone had to go through this too? My husband has had 4.5 cycles of ABVD and his PET is still positive (SUV of 2.5-3.0, originally 4.5) so the onc and 2 of is colleagues want a new biopsy. They said it is to check if the positive PET is just inflammation or if the cancer has/is becoming refractory. Has…
Need your input with regards of a Thymoma patient
Hi folks, I hope to get some opinions from people in this froum. If something is not clear please ask. As a non native speaker, medical terms are not prety easy to translate or me. Diagnosis for a 23 year old girl friend: Thymoma carcinoma (CT and MRT are done - nothing else) As today aorta is compressed to 1/3. Patient…
WOW
First of all I am so glad I had a second diagnosis done since the first was misdiagnose from a large B cell (aggressive) type to an indolent type; so my dx was a FNHL. Blood work and the BMB was also done; the PET scan will be done on the 7th of Dec. and I will be having another date with the onc. on the 15th of Dec. as of…
SGN-35
I waa originally diagnosed with HL in 2005. Took long round of ABVD, and radiation. My HL went dorment for several weeks. Pet showed return. I went into hospital for salvage chemo. Then went to UAB for more salvage chemo then under went an autologous stem cell transplant. Almost made 1 year. The result is that I am in the…
Anyone change chemo half way through
Has anyone changed chemo regimes half way through treatment because the tumor response lessened? My husband was getting ABVD and had 50% reduction in tumor size (Hodgkin's) after 2 months but has since only had 10% reduction in the last 2 months. What are our options? Will different chemo work or will he need to get a SCT…
Confused with diagnosis. Please help!!
In December of 2008 I had surgery to remove a lump under my jaw. The pathology came back as atypical follicular hyperplasia with a subset of monoclonal b-cells. The pathologist defined this as possible follicular lymphoma in-situ. I was sent to an oncologist who did repeated PET scans. In April of 2009 we found a new mass…
Hodgkin's Recurrence....stories and symptoms??
I finished my 6 months of ABVD the end of August. I just started radiation 2 weeks ago. One week ago, I developed a severe itchy rash that has spread and it even on my hands and in between my fingers. I saw 2 dermatologists who haven't a clue...gave me ALLEGRA and cream. So, I went to see my Oncologist who put me on high…
chemo and eye sight
it seems as though my eye sight has gotten worse since recieving chemo. has anyone else had this problem? i am getting CVP and have had 3 rounds with 5 to go.
Lump in my neck
About 3 months ago I found a lump on my neck, above my thyroid. I went to my Dr and he suggested I see an ENT DR because he thought it might be a thyroglossal duct cyst. My ENT DR sent me for ultrasound which confirmed it was a cyst. I just had surgery and after my surgery was over my Dr said that it was not cyst that it…
Newly diagnose
Hello all, well I was just diagnose with Non-Hodgkin indolent follicular lymphoma of the B cell type. It sounds confusing and long but I've been reading and researching more information about this disease and have been learning more and more. I went to an oncologist in Fayetteville, GA. and recomemded chemo and Rituxan for…
Diagnosed with Marginal zone lymphoma
just been diagnosed, after my regular physical, dr sent me for chest x-ray,found a "spot" on my air passage, after pet scan, found growths in my groin area, under left arm pit, never had any symptoms. im currently on wait and watch, anyone have any idea what i'll should be expecting down the line. i know it is a very rare…
Is it ever over?
I have tried so hard to stay positive. The vast majority of the time, I am. In fact, almost 100% of the people believe I am the most positive person that they have ever met. The statistics say, however, that I have less than a 30% chance of living 2 more years. I'm 53 and I put up a face to everyone that all is ok. I would…
Doctors are out of ideas - NHL Websites/Promising Treatments???
Hello, I’m trying to help my aunt find information on promising NHL diffuse large b-cell treatments. She is 69 years young with NHL stage IV cancer (now in her bone marrow) and she was not able to salvage stem cells (her brother was too old for the procedure). A few of the treatments she has tried include: SGN-40,…
Sex After Chemo
Now I was told that just a kiss on the cheek was the only thing I could do with my partner. She has been very understanding and supportive throughout our ordeal. I have copmleted 6 treatmenst of R CHOP and the C Scan came back negative. Now.....I was also told that it takes 3 months for the Chemo to leave my system. Just…
Non-Hodgkin's Lymphoma when I was 10.
Well Im new to this and I just want to talk to people who have been through the same thing as I have. I had cancer when I was 10 and now I am 15 and healthy. :)
terminal lymphoma,
i have been given 2 to 3 months of life left, doctors say there is nothing more they can treat me with,i have had 8 chop, with mabthera""rituximab"" + 2 eshsap treatments, thats 5 days 24/7 chemo and now vicomicin 1 treatment weekly,with steroids, it started off with a tumor in upper bowel, that was size of a grapefruit,it…
Radiation After Chemo - Mediastinal Large B Cell
Hi there, I just completed 6 rounds of R-CHOP...my tumor was gone after the second cycle. My oncologist referred me to a radiation oncologist for a consultation, although she mentioned big risks with radiation for the type of cancer I had. (Breast cancer, lung cancer, or thyroid cancer). Since I am in remission and have no…
Concerned Husband Lymph nodes
Hi I just wanted to know about my wife’s situation she was sharing her neck was swollen and tender so I told he to see the Doctor (she did not want to) they did an ultra sound and said there were dead lymph nodes and abnormal ones there were some other lumps. I have to tell you that for a while she has had some problems…
Bleeding after chemo... Trying to find a mediciation or treatment to help
Hello All, My dad has NHL. He was in remission for nearly 6 months when they found a reoccurance and started chemotherapy again. The lymphoma has grown and spread. He's had 2 rounds of chemotherapy so far. Unfortunately each time he has a round he starts bleeding badly. On the 1st round it was in his small intestine and on…
Back to school help
Well as u know- Zak has finished chemo- and will actually go for a scan on Tuesday- then go for radiation simulation on Thursday and then will start radiation on Nov 16th and will be done on Dec 4th- so all looks OK- but there is one glitch are u ready for this As u know school(Binghamton University) STARTS January 24th-…
Non-Hodgkins Follicullar Lymphoma Stage 4
I have just found this support group. I have been diagnosed in O4. Had surgery on my neck and inside my left cheek. Did 20 Radiation Treatments. Then was in remission till almost 5 years. One more week would have been 5 years. Now I am on Treatment #8 coming up for Stage 4 Follicular non-hodgkins lymphoma. My Oncologist…
BMB Proceedure pain or something else?
I have Follicular NHL and I am in the watch & wait period. I had a bone marrow biopsy back on Sept 11, 2009, which came back clear. It was very painful for me and I was so sore for 2 weeks after to the point where sitting in my car was very uncomfortable. Almost 2 months later I still ache in my hip. Most of the time it's…
scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
looking for someone that has been through this
I have not been able to find a support group around me. I am trying to see if the chemo treatments are simlar to others and how you felt while going through chemo. Do the sweats go away my seem to be getting worse I am on chemo treatment 4 this monday and have 4 more to go. thanks Liaa
Recently diagnosed with Hodgkin's
Hello I am a 22 year old male recently diagnosed with hodgkins in May. I have been on ABVD treatments for 2 months. To say the least I am scared out of my mind but I have been able to keep strong in front of friends and family. Now I am at the point where I have alot to talk about but really nobody to talk to. The place I…
Is Radiation really needed?
I have hodgkins lymphoma and I am halfway done with my chemo treatment right now. After 2 cycles of AVBD I found out that I was in remission, but my doctor is still talking about radiation after my chemo is done with. What is there left to radiate, if I am in remission already? I have done a little research on radiation…

Lymphoma (Hodgkin and Non-Hodgkin)

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