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gleevec for treatment of NHL
Hello all, I was watching the Dr. Oz show on tuesday, may 11. The subject was the chemo drug "Gleevec". It was an all inspiring show. People that were on death's door, including hospice, and months to live. Dr. Oz had about 20 patients on the show, all that were hopeless. Amazing as it may seem, they all looked wonderful…
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OK, new complicaton for me
I just got a call from the Dr. telling me she is confused, great, the dr. is confused.I am the one who is 58 and just diagnosed with follicular low grade stage one with b symptoms.And my bone marrow and Pet scan were normal, good news right? So she calls to tell me that the blood work she just did on me does not coinside…
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anyone heard of
Has anyone heard of having a diganosis of stage 1 low grade neg. bone marrow and Pet after removing lymph node and then getting a blood test come back saying small papulation of kappa light chain restricted CD5+ B-cells. For some reason my oncologist is puzzled, she expected this test to come back neg. since the bone…
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just diagnosed in april with nhl
I WAS JUST DIAGNOSED WITH NHL IN APRIL. IT IS FOLLICULAR AND LOCATED IN THE ABDOMIN. SOME OF THE TUMORS ARE UP TO 5CM. I DO NOT HAVE ANY B SYMTOMS YET. THEY ARE USING THE WATCH AND WAIT ACTION. IT REALLY HAS ME SCARED AND DON'T KNOW WHAT TO DO. I AM 61 YEARS OLD. DO NOT KNOW HOW FAR THEY HAVE COME WITH ADVANCES IN THE…
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CVP with Rituxan treatment
my treatment will be cvp and rituxan for one day and just prednisone the following 4 days. this will happen every month for 8 months. has anyone had such a treatment routine?
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power port
got a port put in and the next day and still it is so sore and bruised. anyone else experience the same?
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NHL:weight loss and swollen legs.
Hello all, My Sister was recently diagnosed with NHL. Its been a very diffcult time for us all considering she's just in her early 20s. If thats not bad enough,she has lost a great deal of weight. She has a swollen abdomen and now her legs are swollen.She's done all the test(no chemo yet) but is waiting for the results of…
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nhl w/ r-chop help
My mom was diagnosed on may 5th, 2010 with B cell Non-hogdkins lymphoma NOS with splenic involvement. About a week later, her spleen was removed and was the size of a nerf football. They doctor said that was around 90% of the cancer. So last friday, she went in for her first R-CHOP chemo treatment. It lasted about 8 hours.…
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ESHAP chemo anyone?
Has anyone undergone ESHAP therapy. I am 51yr old 1 1/2yr in remission after receiving RCHOP and now experience recurrence. I am starting ESHAP this Monday June 7, 2010, petrified, anxious of all the unknown. I tolerated RCHOP fairly well and am concernced about this more aggressive form of chemo. Would love some input…
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Hodgkin's at 20
Hi everyone. I'm new to this site. I was diagnosed with Hodgkin's at age 20 in 1989. 6 weeks mantle radiation/spleenectomy 6 months chemotherapy Breast cancer (DCIS) in 2005 (exactly 15 years post radiation) Lumpectomy/targeted radiation (bizarre) Thyroid issues Infertility Menopause at 39 (can't do any HRT b/c of estrogen…
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epigastric pain
Anybody get bad epigastric pain? I used to get real bad during treatment, but now I have this strange sort of pain (3 months out of treatment). It has lingered for about 4-5 days now. If I push on various parts of my epigastric area it hurts. Almost like thhere's something inflamed in there and really unhappy. experience?
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New to this.
Hello to all. I am new to this site but finally decided a little support might be in order. I was diagnosed with follicular NHL grade 1 stage 4a 1 year ago this past July. I participated in a clinical trial of rituxin and ontak from January thru March 2009. I had to stop the trial early because of an allergic reaction. I…
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Pet Scan?
Ok, so on Tuesday I have my first PET scan scheduled. How different is getting a PET scan done compared to getting a regular CT scan? I'm kind of scared because the last time I had a CT scan done after starting chemo the dye burnt really really bad going into my veins. Which I think is a result of the chemo because it…
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REMISSION
The word remission is beautiful! CAT and PET scans show no signs of lymphoma so only 2 rounds of ICE chemo are needed. Now that I am done with ICE (which was well tolerated for me), I went to my transplant facility yesterday meeting with my specialist. Bone marrow biopsy, bloodwork, chest xray, urinalaysis, and an ekg were…
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Prednisone & Hunger
I'm getting ready to do my 5th round of R-EPOCH, which is smilar to R-CHOP, except its given over 5 days in the hospital. Except for the times I'm nauseaus during and right after chemo, I can't seem to fill up. I'm hungry constantly and am gaining weight. Anyone else experience this? I only take the prednisone for 5 days…
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Side effects
I have been in remission for one and a half years. I had an auto stem cell transplant. I keep losing my eye lashes. They grow back and then after several months, fall out again. Has this happened to anyone else.
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Constipation
OMG! Ok so I am trying to eat more so I don't lose any weight. Well I have had very small movements, but I am used to getting a bigger deposit but its narrow and not very rewarding.So to those that have had this is Mirolax ok?
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Been a year
Well, it's been one year since I had my last RCHOP treatment. So far so good. I have had two CTscans and both came back negative...Woo Hoo! I was dxed with follicular nhl on March 17 of 09. I did six rounds of RCHOP. Not the best thing to have to do, but I was able to work, but it wasn't always fun LOL. I know this is…
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Large cell lymphoma
My dad (52yrs) just got diagnosed with large cell lymphoma. its apparently very aggressive and the tumour that was meant to have been removed has mutated and resulted in him becoming HIV positive. How is this even possible? Can anyone help with advice or say that they've gone through the same? I am going out of my mind…
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sleepless
Hi everyone: I dont know what my problems are but lately I go to bed and can not sleep. I dont know if this has something to do with this condition. But I am so tired from not sleeping. Has anyone run into this? June 2nd is my cat scan and then June 9th I see the Oncologist. Hope you all are doing well. Hilde
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R-CHOP
I am starting my 1st treatment tomorrow. This will be the first of 6. I have aggressive follicular b-cell NHL. I have had 2 surgeries to remove lymph nodes from my neck area. I am a bit anxious and would like to hear from someone who is doing or has done the same. Thanks, Mike
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I'm a little confused about my nh lymphoma
The more I read I wonder. Can follicular Lymphoma be small b cell? I keep reading about large b cell in connection with follicular. My Onc isn't sure I have follicular, he didn't do a bone marrow biopsy, says that the chemo is the same.
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Had the Zevalin!
Hello to all and hope everyone is hanging in there. I had the Zevalin treatment 9 days ago and so far so good. I have to have weekly blood work the first of which was last Tuesday and that was good. Don't feel much except very tired. I would love to hear from others who have had this treatment. It is now being used instead…
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Watchful Waiting Treatment for NHL
I was diagnosed Sept. '09 with Stage IV Follicular B cell NHL. 8 months later, due to no visible symptoms, we're following Watchful Waiting treatment. Went to Moffitt Cancer Center in Tampa for a second diagnosis and they agreed with my local Oncologist. I'm very happy with not having Chemo yet, but has anyone else done…
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Zevalin and Non-Hodgkins Lymphoma
Hi Don: Just wanted to tell you that I went through with it. Last Wednesday 12/23 I had the infusion. So I seemed to do pretty well so far so good. I suppose I start with the blood count this week. Hopefully it will go ok I guess we will see how I come out. Hope you and your wife had a wonderful Christmas. Thank you for…
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Rituxin FDA Warning Letter to Genentech Over Claims about the Effectiveness of Rituxin
Did anyone see this Warning letter on the FDA website that was addressed to Genentech the makers of Rituxin? I am absolutely sick about this. ROCKVILLE, Md., May 5, 2010 - The FDA today posted on its website a warning letter sent to Genentech regarding table top panels for cancer drug Rituxan. The letter is below.…
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marginal B Cell NHL
Can anyone out there give me information on marginal b cell NHL? Stage 1, low grade, B Cell. If so, what kind of treatment did you receive? I was DX sept 2009. I had treatment of Rituxan for 4 weeks, once weekly. Somehow, I thought I had malt NHL. Not so My problems started when my small bowel perforated and ulcer was…
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anaplastic large cell lymphoma
My 3 year old just had a growth removed from his skin on his stomach. We were called by our doctor on Tuesday. She told us that the lab results had come in and the growth was anaplastic large cell lymphoma ALK+. We are meeting with an oncologist today at one. He hasn't shown any side effects, but needless to say we are…
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3 days out from first chemo treatment what to expect in next few days???
I really feel pretty good and this morning I can tell the tumors in my belly are already shrinking. I have several and one is as big as a football. The last few days before treatment were painful and I was so swollen. Now I look normal. I mean my skin felt like it was being pulled so tight it was unbearable.I haven't…
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What did you take with you to Chemo
What kept you occupied? What did you wish you had taken.