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Burkitt's Like

CGayle
CGayle CSN Member Posts: 3
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Seeking other people with B-like LBC NHL. Please email if that's you !
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  • sdeselle
    sdeselle CSN Member Posts: 19
    #2
    CGayle,
    I'm a 3-year survivor of Burkitt's, I'd be happy to talk with you.
    Check out my web page - sdeselle.
    -Scott
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  • andyhunt
    andyhunt CSN Member Posts: 3
    #3
    I'm a 2 year survivor of Burkitt's--treated at Duke University. E-mail me if I can help.

    Andy
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  • Bammers
    Bammers CSN Member Posts: 1
    #4
    andyhunt said:

    I'm a 2 year survivor of Burkitt's--treated at Duke University. E-mail me if I can help.

    Andy

    I was diagnosed 6 weeks ago with Burkitts. Lets hear those sucess stories.. I need em!!!
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  • sdeselle
    sdeselle CSN Member Posts: 19
    #5
    Bammers said:

    I was diagnosed 6 weeks ago with Burkitts. Lets hear those sucess stories.. I need em!!!

    Bammers,
    I'd be happy to talk with you.
    You can look at my web page here on the CSN site, or listen to my story on the CSN site.
    People do survive Burkett's!
    -Scott
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  • chenty1
    chenty1 CSN Member Posts: 1
    #6
    My 4yr. old son just went in to remission. This is the first sight that i have seen that talks about burkitt's??
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  • kscott
    kscott CSN Member Posts: 1
    #7
    chenty1 said:

    My 4yr. old son just went in to remission. This is the first sight that i have seen that talks about burkitt's??

    Hello all,

    I realize this thread is a bit old, but I am so glad I found it. My husband was diagnosed with Burkitt's-like NHL a month ago and is just finishing his 2nd round of hyperCVAD. I am brand new to CSN, but will be looking for individual posters' web pages. Many thanks,
    Kristi
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  • mrc_dpc
    mrc_dpc CSN Member Posts: 3
    #8
    kscott said:

    Hello all,

    I realize this thread is a bit old, but I am so glad I found it. My husband was diagnosed with Burkitt's-like NHL a month ago and is just finishing his 2nd round of hyperCVAD. I am brand new to CSN, but will be looking for individual posters' web pages. Many thanks,
    Kristi

    are you still at csn?
    hi, i only found 4 blogs about burkitts and they are all from 2002-2005! husband just got diagnosed any info would help. thank you
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  • Rosas Mom
    Rosas Mom CSN Member Posts: 1
    #9
    mrc_dpc said:

    are you still at csn?
    hi, i only found 4 blogs about burkitts and they are all from 2002-2005! husband just got diagnosed any info would help. thank you

    where to connect on Burkitt's
    My daughter was DX Feb 08. The best place I found for information and support was the http://www.leukemia-lymphoma.org (Leukemia & Lymphoma Society web page). Where is your husband being treated? Marianne
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  • rumeke
    rumeke CSN Member Posts: 1
    #10
    mrc_dpc said:

    are you still at csn?
    hi, i only found 4 blogs about burkitts and they are all from 2002-2005! husband just got diagnosed any info would help. thank you

    Burkitt's - mrc_dpc
    Hi! Just found your posting and wondering how your husband is doing? My husband was dx 1 year ago and finished his treatments in Sep 08..is now in remission. If you have any questions or concerns please let me know how I can help!
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  • Jerry1
    Jerry1 CSN Member Posts: 1
    #17
    sdeselle said:

    CGayle,
    I'm a 3-year survivor of Burkitt's, I'd be happy to talk with you.
    Check out my web page - sdeselle.
    -Scott

    I am just diagnosed with it
    they told me I have only 8 month to live it is not in my spinal but I do not know why,
    Please repond to me if you are alive
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  • 4thegirls
    4thegirls CSN Member Posts: 1
    #18
    B-Like
    I just finished treatment for burkitt's like and large diffuse b cell (showed markers for both). I was treated with r-chop for two rounds and then hyper cvad-r for six rounds. I could share a lot with you.

    god bless...
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