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Lymphoma (Hodgkin and Non-Hodgkin)

NHL Thymoma Surgery
I was diagnosed in 2002 with Large B cell NHL that manifested itself as a malignant thymus gland. Surgery removed it via an incision between the left ribs. I went through the CHOP-R chemo and 4 weeks of radiation. Im feeling pretty good health-wise with a couple of exceptions. I am coming up on 4 years in remission. Here…
prednisone/no hunger
i have to take prednisone 5 days every month and will finish my 5th day tomorrow. i am happy to say i have not gotten hungry yet. hope it will not do so since i am only taking it 5 days a month.
Can you help?
Two of my friends (both mid-30s) were diagnosed with non-hodgkin's follicular lymphoma this year. They are both starting treatment this December. To help keep their spirits up, I would like to collect a bunch of inspirational, successful patient stories and present them to both friends in the form of a book or on a web…
Need Help
Hello, My wife has just been diagnosed with Large B-cell NHL stage 4. She is only 21 and we have been married just about 2 years. This is a big shock in the family. She has been very healthy over the years and never had any issues. Instead of shopping for a new big home, I am worried about whether I have enough savings to…
Low White Blood Cell Count
My husband was diagnosed w/NHL last year. Underwent six months chemo and now in remission. However, his white blood cell count continues to drop, even five months after stopping chemo. Has anyone else experienced this? Dr is putting hims on B12 shots and iron supplements.
Follicular Lymphomia since April 2002 - problems with family
Hello. I am 63, will be 64 in October. I am new to this forum and very glad to have found a place where I can talk about things. My husband is now 73. My husband and I have pretty good insurance. I have always been a very physical person, we have show horses and I teach others to ride. I was accustomed to moving a bale of…
one down, three to go on Rituxan
and 3 to go but I wanted to THANK YOU all for sharing your stories and knowledge of the potential side effects proved to be most beneficial. The whole process took 5.5 hours. Started with tylenol and benedryl, two hours into the infusion the side effects kicked in. First itchy eye, nose, then ears and throat, felt like I…
bone marrow biopsy
i had my bone marrow biopsy on the 9th and happy to say i felt no pain. i had pain meds. thru iv during the biopsy. i did however get sick from all the meds i recieved during and after the procedure but I am better today. i can't imagine anyone having this done at a doctors office, no way. mine was done at the hospital.
hair loss
wondering how common hair loss is with chemo.
Mom refuses to eat
Hi, My mother was diagnosed with Large Cell Lymphoma three weeks ago. In the weeks leading up to her diagnosis her health steadily declined. One major change was her appetite,she had a major aversion to sweets. Then she became severly nauseated, she couldn't keep liquids or solids down. She has undergone her first round of…
Side effects from ARA C (Cytarabine)
My husband was diagnosed with Non Hodgkin's Burketts Like Sept. 2008. During treatment he woke up and felt like the world was spinning. He had loss of balance and he lost his ability to speak. We were told that this was side effect of ARA C (Cytarabine)and that all would go away. It is now 1 year later and things have…
People that think their disease is the same as having cancer
I developed NHL in 2000, stage 4. I would like to know if other cancer patients have had the problem I have had with friends or family who compare their disease as being as bad as your cancer. Some people say I look well, so how could I be sick. Here's the one that really burns me up. My sister developed Diabetis II a few…
Non-Hodgkins and Crohn's disease
Is there anyone who has nhl and crohn's disease? I am interested in what medications and anything else related to the two diseases. Thank you. Pnktopaz10
Living in fear
I was diagnosed with NHL in 2002 and underwent CHOP and rituxin - lost all my hair, etc. I'm 46 years old and needless to say, it was a terrible time for myself and my family. Because the lymphoma is a low grade, I've been told that it will probably return at some point. My problem is that it's really hard for me to get on…
new with 4th reccurance
well this is the 4th time for me. it can get pretty depressing. i sit here tonight with a fever knowing i should go to the hospital. well i see the dr friday i will hold on till then.
6th times a charm
Hello; I'm a 38yr old woman with a reaccurance of Hodkins disease for the 6th time. I've been through it all-here's my reume; 1984-CAV,MOPP,and ABVD-with 2,000 rads of radiation at Sloan. 1986-Autogolous BMT with CBV protocol. 1992-VP16 with prednisone 1998-Gemzar-no response.1999-6/2000-ICE protocol.Feb 2001-ready for…
Follicular Lymphoma - Rutuxin first line treatment?
My story in a nutshell - I am 35. I felt and ignored a lump in my groin area for four or five months, assuming it was a sports related bump. Went to my PCP, who sent me to get a sonogram, an MRI, a needle biopsy and then the real deal - surgical biopsy. Violà! Follicular Lymphoma - Stage II, Grade 1. Oddly enough, never…
Symptoms?
Hi. I was just wondering if any of you had any of the symptoms I have before you were diagnosed. I have an appointment set up for later this week with my doctor for a complete health check, but I have to admit I am really scared. I can just FEEL that something is wrong and being a single mom of five kids, that has me…
Books on Hodgkin's?
Hi, Does anyone have any recommendations on books that might be helpful on Hodgkin's? I'm not a medical professional (and I don't play one on TV ;-)) so something that is more lay-oriented might be better in this early stage. I figure that as we get more into treatment, I'll get smarter and be able to understand more of…
Stage 1a - Large B cell
In July of 2006 I noticed a lump under my chin. I thought it was a swollen gland, but I went to my Dr after waiting a few days. He said it was really big. He sent me to as Neck surgeon who aspirated the lump. The lump biopsy came back positive for A Typical cells. He recommended to remove the lump. The time from noticing…
Help for the uninsured, dealing with long term effects of treatment
Anyone know of a long term follow up facility for the uninsured? I have been dealing with alot of health problems, I currently go to the local health department, and have been sent to several doctors that don't know about the long term effects, or how to treat me. Thanks
FOLLICULAR MIXED SMALL AND LARGE CELL LYMPHOMA
I was diagnosed with Follicular mixed small and large cell lymphoma at age 52 in 2008 and received 6 rounds of treatment with Rituxin, Chemo and Neulasta (repeated every 21 days). The doctor said I was in remission but now this year I am receiving Rituxin treatments once a week for 4 weeks every 6 months for 2 years as…
Rituxan and Interleukin 21 research trial
My husband who is stage 4 with NHL and is 2 years post stem cell has relapsed. They have asked him to participate in the IL-21 study at UCLA. He begins next week. Has anyone had any success with research trials?? I know its supposed to benefit others in the future, just holding onto hope that it can also benefit him. Thanks
Hodgkins Lymphoma 21 years old
Hi, my name is Whitney Colwell and in Feb. 2008 I was diagnosed with Hodgkins Lymphoma Stage 2. I was 20 years old and in March I turned 21. I thought my life was over because no one inm y family had ever had cancer so I had never dealt with it. I started chemo and completed 8 of them. I then had to do 17 radiation…
21 years old and was 36 weeks pregnant when I found out I had stage 2 NHL
my name is Gabrielle. Im 21 and I was 36 weeks pregnant when I found out that I had stage 2 Large B cell NHL. I found a lump on my neck and ended going to the ER plenty of times to try and figure out what that lump was. My primary doctor ended up haveing me go and get chest Xrays done an at that time they said they didn't…
ALCL (Anaplastic Large T-Cell NHL)
I would like to talk to anyone out there currently battling or has battled with this Cancer.
Which is the best hospital in State for Diffuse Large B Cell Lymphoma?
Can anybody suggest/name some good places to cure this cancer in the State? Any reply is appreciated.
Am I going to lose my friend to NHL?
My friend was diagnosed last monday with NHL type B. We are both 21. She began her treatment on Thursday. She's receiving CHOP chemotherepy. I'm seeing a whole different person, and i am taking it really hard. I cant even fathom how she is feeling. All i can do is cry because i dont want her to go through this alone. What…
Medical Bankruptcy???
I really need some help or advice here. I am thinking of filing for medical bankruptcy. I really have no other choice. I'm only 24 and it's sad to have my financial life ruined so soon, but that's part of what cancer does I guess. Has anyone here been through this process? I think I need a good lawyer but I have no clue as…
Fertility
How do you know if you are fertile after having ABVD? Do you just have to wait and see or the return of your menstrual cycle enough of an indicatior?

Lymphoma (Hodgkin and Non-Hodgkin)

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