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Question about lymph nodes.
Has anyone heard of lymph nodes lighting up on both sides of the neck being cancer cells? Doctor says it lit up on both sides, but is very small-so small that it would not be able to be felt. Original Hodgkin's was on left side of chest.
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Baby Lizzie is here...FINALLY!
Hi Guys, Well...we thought we would have a Mothers Day baby, but Lizzie held out until 1:45 this morning. She held out for her due date, May 9th. ha! 22 hours of hard labor for mama, but the doctors finally did a C-section at 1:30 this morning. She weighs 8 1/2 pounds and is 22 inches long. Mama baby and daddy are doing…
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Remission
Hey Guys, This may be a dumb question,but then again maybe not. Do we still have cancer when we are in remission? They say everyone has cancer cells in their body from birth so it makes me wonder. It may be something to think about. John
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PET scan
My daughter just had her PET scan on Wednesday and her doctor called today saying that there is a very very small spot on her neck. He said she would not feel it because it is too small. He ordered a CT which she had done today (no results). He said he didn't know what it was. Has anything like this ever happened to…
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Oncologist Visit
Good Morning Everyone, Happy Memorial Day to you all. Hope you are all feeling well. As well as can be expected. I was at the Oncologist Friday, My blood tests were ok. Not back to where I started from but satisfactory. Had like 4 highs and two lows. My platelets were 124 and my wbc was 4.2 So not too bad all in all. So ok…
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Met with Rheumatologist
I met with a rhumatologist doctor today about my achy joints. after a lot of questions and a touch exam, she's suspecting it's Fibromyalgia. More blood work to test for that. Because my ankles are 'locked' every morning and it takes about 15 minutes to get them warmed up before I try to walk, she prescribed Flexeril. If…
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ensure
john you are so right about the ensure it is giving me energy thank you so much denise
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Long Term effects (physical/emotional)
Hey there. I'm new on the board and i was wondering if i could get some feedback on some of the stuff i'm currently dealing with. i was diagnosed with Hodgkins IIA in November of last year (i am 28 years old), went through 4 months of chemotherapy and 1 month of daily radiation as well as daily nupogeon injections to keep…
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Tornado's
God I am getting tired of being in Tornado watches. At least here in Hope Lodge if it becomes a warning the gal that's working the desk will come get everyone and have us go to the Theater Room to take cover. Too many folks have died in the last few days.
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Who's the queen of stem cell harvest??
ME. Great news everyone! We got them all today...ONE DAY and actually I am an over-achiever. We needed 2.5 million stem cells per kilogram of my body weight...we GOT 5.14 million per kilogram of my body weight!!!! To answer Johns questions, it's a big machine (sounds like a giant chemo pump). The trifusion port has 3…
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PET scan results
Hi all - after 11 months of chemo, we held our breath from PET scan last Friday until getting results yesterday. Though it's a partial remission (don't think it's in the cards for me to ever reach a full one), many good things happened this time which we're so thankful for! My large abdominal mass tumor is reduced in size…
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Bone Pain
It's been almost 2 weeks since I started BEACOPP and I suppose I'm handling it okay. One more week till the cycle starts again...bleh. Day 1 is ALWAYS the worst!...for nausea anyway. But after the Vincristine on Tuesday, my counts started to drop like crazy, and my doctor knew they would, so he's had me on Neupogen shots…
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Here we go again...
Hello there, my name is Michelle and I just joined this site in search of support from people who are going through what I am going through. So, on September 9th 2010 I was diagnosed with Hodgkin Lymphoma stage 3. I started chemo in October and had six months of it. I had had a PET scan just before my last chemo and it…
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All settled in...
Hi Guys, Well...we got here safe and sound and all settled in. We had such a nice surprise when we got here. The ownwer of the R.V Park is one of our very close friends. We have been coming here since he built and opened the park 12 years ago. Anyways...over the winter he completely remodeled the cottage we rent. Gutted it…
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Burnt esophagus
Hello all! I'm finally done with chemo and have now started radiation. All in all i will need a total of 15 treatments. But starting today it hurts in my throat and chest when i eat. Does anyone know how long the uncomfortable pain will last?
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Sister
My sister had surgery today. Great news! She had a small lump in the back of her neck and sometime last week it grew pretty big and because I have lymphoma she finally decided to get it checked out. She told her dr about me and he decided it needed to come out and get a biopsy of it. After surgery he came over to speak to…
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Harvesting, Harvesting, Harvesting
Well the Neupogen shots have done the job. My numbers were good enough to collect, so I sit here all hooked up to this machine just a pumping away. Keep your fingers crossed that today we get enough. I should know how many we get by around 5pm tonight. They are shooting for 2.5 million cells for every kilogram of body…
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Boss and FMLA benefit
Donna, I've been thinking about you and your new boss situation. Being on FMLA can/does set a different mindset at my work. I still have the same Web Director as when I was Dx a year ago. As soon as my treatments were finished, she held a party at her house in my honor. Because of all this I know they stand behind me.…
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IGM elevated- need treatment
Hi everyone, Just found out on Thursday that my IGM level is elevated again (1200). My onc says that treatment is necessary soon. It's in my stomach (per biopsy), I have a swollen node in my neck, have one in my groin, it's still in my bone marrow, and probably in my small bowel. What I have to do now is get a second…
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Well we're here
Well we got all settled in this evening to Hope Lodge. It's a really nice place. I just want to break down and cry tonight, but don't feel like I can. Leaving my house was the hardest thing I've had to do in years. I don't want to leave my home, my hubby, my dogs. The list goes on and on. I don't want to be here. I don't…
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Now the Bills
They kept promising the end of the world yesterday. I get up this morning and the world is still here. Now I have to go out Monday morning and pay all my past due bills. I get so tired of all these empty promises.LOL Have a nice day everyone. John
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Happy Vacation Sue
Sue, Have a great vacation for the next week. You certainly deserve it.Oh yea, I will send you my address so you can send me some of that salmon. 20 LBS.SHOULD DO IT. LOL John(FNHL-1-4A-5/10)
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Help
i have been so mad lately at my husband who is the sick one by the way. i dont know what to do about it. Its not like he ask to be going through this, and i know he dosent want to be sick. He isnt doing well with the chemo and is sick alot. We have 5 children, so i have to be up with them, keep them and house clean so he…
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need help
anyone know how to get of oral trush? i have been thru 4 bottles of oral suppensions a per scrition of i think it was ducclex i remember it started with a D. denise
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Cobra
Hello, I wanted to read new messages on "happy vacation sue". I was unable to connect. What happened?????????
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It's a go
Well, went today for consent and meetings with psych eval and nutritionist. I passed all the requirements and got my first neupogen shot today. Tomorrow morning I have surgery for the trifusion port. I know there are other options if this doesn't work, but damn it's scary guys. My sister made it in today and I am extremely…
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Ever wonder what your Trigger was?
The experts say Non-Hodgkins is triggered by a series of stressful events. Has anyone ever figured out which events triggered it? Have you ever wondered if one stressful event per year over three years could have caused it? Does anyone know if the stressful events that cause NHL are a series of events within one week? or a…
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booking flight
Hi all, Having a bit of a problem. I need to book my flight to Houston. Everytime I check out the available flights and pick them out, I get scared to press the buy this ticket button. I know that this is so silly, but I still can't bring myself to do it. I have already reserved the hotel room, but the flight is just so…
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Surgery is done
Ok the trifusion port is in. Got my second shot after the surgery and now ready for a nap. I'll check in later. Take care everyone! Beth
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Blood test results
Hello everyone, I saw my oncologist Monday, May 9. She didn't offer another Pet Scan, because the last 2 scans were negative for cancer. I am due to see her again in Sept 2011. I did have a complete blood test. I was able to get some of the results on Monday. Everything was perfect on the first sheet. Yesterday, I had to…