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Here we go again...
Hello there, my name is Michelle and I just joined this site in search of support from people who are going through what I am going through. So, on September 9th 2010 I was diagnosed with Hodgkin Lymphoma stage 3. I started chemo in October and had six months of it. I had had a PET scan just before my last chemo and it…
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All settled in...
Hi Guys, Well...we got here safe and sound and all settled in. We had such a nice surprise when we got here. The ownwer of the R.V Park is one of our very close friends. We have been coming here since he built and opened the park 12 years ago. Anyways...over the winter he completely remodeled the cottage we rent. Gutted it…
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Burnt esophagus
Hello all! I'm finally done with chemo and have now started radiation. All in all i will need a total of 15 treatments. But starting today it hurts in my throat and chest when i eat. Does anyone know how long the uncomfortable pain will last?
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Sister
My sister had surgery today. Great news! She had a small lump in the back of her neck and sometime last week it grew pretty big and because I have lymphoma she finally decided to get it checked out. She told her dr about me and he decided it needed to come out and get a biopsy of it. After surgery he came over to speak to…
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Harvesting, Harvesting, Harvesting
Well the Neupogen shots have done the job. My numbers were good enough to collect, so I sit here all hooked up to this machine just a pumping away. Keep your fingers crossed that today we get enough. I should know how many we get by around 5pm tonight. They are shooting for 2.5 million cells for every kilogram of body…
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Boss and FMLA benefit
Donna, I've been thinking about you and your new boss situation. Being on FMLA can/does set a different mindset at my work. I still have the same Web Director as when I was Dx a year ago. As soon as my treatments were finished, she held a party at her house in my honor. Because of all this I know they stand behind me.…
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IGM elevated- need treatment
Hi everyone, Just found out on Thursday that my IGM level is elevated again (1200). My onc says that treatment is necessary soon. It's in my stomach (per biopsy), I have a swollen node in my neck, have one in my groin, it's still in my bone marrow, and probably in my small bowel. What I have to do now is get a second…
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Well we're here
Well we got all settled in this evening to Hope Lodge. It's a really nice place. I just want to break down and cry tonight, but don't feel like I can. Leaving my house was the hardest thing I've had to do in years. I don't want to leave my home, my hubby, my dogs. The list goes on and on. I don't want to be here. I don't…
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Now the Bills
They kept promising the end of the world yesterday. I get up this morning and the world is still here. Now I have to go out Monday morning and pay all my past due bills. I get so tired of all these empty promises.LOL Have a nice day everyone. John
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Happy Vacation Sue
Sue, Have a great vacation for the next week. You certainly deserve it.Oh yea, I will send you my address so you can send me some of that salmon. 20 LBS.SHOULD DO IT. LOL John(FNHL-1-4A-5/10)
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Help
i have been so mad lately at my husband who is the sick one by the way. i dont know what to do about it. Its not like he ask to be going through this, and i know he dosent want to be sick. He isnt doing well with the chemo and is sick alot. We have 5 children, so i have to be up with them, keep them and house clean so he…
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need help
anyone know how to get of oral trush? i have been thru 4 bottles of oral suppensions a per scrition of i think it was ducclex i remember it started with a D. denise
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Cobra
Hello, I wanted to read new messages on "happy vacation sue". I was unable to connect. What happened?????????
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It's a go
Well, went today for consent and meetings with psych eval and nutritionist. I passed all the requirements and got my first neupogen shot today. Tomorrow morning I have surgery for the trifusion port. I know there are other options if this doesn't work, but damn it's scary guys. My sister made it in today and I am extremely…
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Ever wonder what your Trigger was?
The experts say Non-Hodgkins is triggered by a series of stressful events. Has anyone ever figured out which events triggered it? Have you ever wondered if one stressful event per year over three years could have caused it? Does anyone know if the stressful events that cause NHL are a series of events within one week? or a…
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booking flight
Hi all, Having a bit of a problem. I need to book my flight to Houston. Everytime I check out the available flights and pick them out, I get scared to press the buy this ticket button. I know that this is so silly, but I still can't bring myself to do it. I have already reserved the hotel room, but the flight is just so…
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Surgery is done
Ok the trifusion port is in. Got my second shot after the surgery and now ready for a nap. I'll check in later. Take care everyone! Beth
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Blood test results
Hello everyone, I saw my oncologist Monday, May 9. She didn't offer another Pet Scan, because the last 2 scans were negative for cancer. I am due to see her again in Sept 2011. I did have a complete blood test. I was able to get some of the results on Monday. Everything was perfect on the first sheet. Yesterday, I had to…
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Got my Itinerary for the pre-transplant testing
Can we say WAY too much?? Good Grief. 12th at the Hospital 10:15 EKG 10:30 Echo/Resting 11:30 Panorex X-Ray 12:00 Chest X-Ray 1:00 Apheresis Education 2:00 Pulmonary Function Tests 13th at the Outpatient Clinic 8:30 Labs 8:50 Health & Physical 9:30 Evaluation Financial Workup 10:00 Evaluation Psych Workup 11:00 Bone Marrow…
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Good PET scan results
I've only ever posted here a few times but I got my PET scan results that were taken after round two of my escBEACOPP finnaly. My Hematologist said that the results were "fabulous" and that he "couldn't of hoped for a better result" which is alot considering the terminology doctors usually seem to use, and have used in the…
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Neupogen
Does anyone know if there are any long term effects from neupogen shots? I know there is paing while taking the shots, but I was wondering if anyone experiences pain after finished with chemo & neupogen shots? I was reading on the net that some people experience joint pain long after finishing the injections.
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Rash results/Treanda
Had my onc visit Monday.He feels the Treanda should be out of my system and had no clue why I still have this itchy rash(5mos).So he sends me to a dermatologist close to his office for a biopsy.O.K. the Dermatologist did a punch biopsy and called today with the results.Said the rash is a chemical reaction -he feels from…
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Enlarged neck muscle
For several years the Sternocleidomastoid muscle on the left side of my neck has been gradally getting bigger. Had several scans over the years and the doctors do not know what’s going on. Anyone experience this. I have slow growing NHL.
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Results
Well I had the pet scan and got the results this morning. It's not all gone, it is better dropped to about a 4 suv and when we started it was 8. I am pretty disappointed, but my onc thinks they'll still go through with the transplant as scheduled. He says that they do chemo first to make sure it's going to respond to chemo…
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Stem cell transplant,Portland,OSHU
Howdy: New here. Wanted to know if anybody here has had a stem cell transplant at OSHU in Portland, Oregon. Or maybe knew of or know of anyone who had it. I live in Eugene, diagnosed with intermediate NHL,unclassified. No one can figure out what it is. Frustration to say the least. Starting Tx #4 soon of R-Epoch at…
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Pictures of Baby Lizzy
Hi Guys, Sorry I've not been around as much..I've been helping the kids out with baby Lizzy. I think they are getting the swing of things much better now and I'll be able to be here at home more...(not that I mind being there)...ha! Anyways...I posted some pictures on my expression page of Lizzy. I just love holding…
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Emotions
Hi all Just wondering how you handle your emotions. I seem to be all over the place today. Simple things bring me to tears. I get overwhelmed so quickly. Things that should be easy are feeling very difficult. Does anyone else ever feel this way. Just wondering. Thanks, Lisha
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Post Chemo
It's me again. My daughter finished abvd on March 17th with her PET scan coming up on the 25th of this month. She is feeling pain in her left shoulder blade which is the same side that she had the mass in her chest on (Hodgkin's). She says it gets worse as the goes by.Has anyone experienced anything like this before or…
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blue line
i added this sight to favorites and now i have a blue line that says add to favorites how do i get rid of it im really dont know that much about computers any help denise
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Struggling with HEADACHES
Beth and Sue, I want to be sure you got this msg as I replied earlier since I unfortunately had not been in touch... thanks for checking in. Sue is right - I realize I could not just check in daily anymore becuz my energy had been sapped by work and - yes, headaches. I feel sad that I don't have the same kind of energy. I…